• Child Health Nursing Research
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• v.3 no.1
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• pp.42-51
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• 1997

Although a family-centered approach to health care for developmentally disabled children has been advocated, existing systems of care have not adequately addressed the support needs of the family system and the essential role that parents play in the daily care of these children. The overall purpose of this research is to examine family system adaptation to the care of a developmetally disabled child using the Resiliency Model of Family Stress, Adjustement, and Adaptation Framework. Relationships among family system demands (stressors, strains, transitions, child's illness factors) and family system strengths and capabilities(resource of social support) were examined to determine their separate and combined contribution to explanining the variability in family system outcomes (family system coping ). The subject for this study was 46 families who have a child with developmental disabilities(mental retardation and / or autism) from three special educational programs in Seoul, Korea. Results from correlation and hierachial regression analysis revealed that perceived social support operated as a resiliency factor between family stress and coping. Child and family characteristics appeared to be important predictors of perceived social support and coping. In summary, there is evidence that the resource of social support as a family strength and capability was found to improve the family coping. These findings also must be viewed within the context that sample of families of children with disabilities was relatively small and eligible families from support group of special educational program.

• Journal of Industrial Convergence
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• v.20 no.3
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• pp.73-79
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• 2022

The purpose of this study was to examine the relationship between parental participation motivation, satisfaction, and intention to reuse children with developmental disabilities using psychomotor centers. To this end, a questionnaire survey was conducted on the parents of children participating in psycho-exercise programs at a private developmental disability center located in the metropolitan area. The collected data was 188 copies, and the causal relationship was verified through descriptive statistics, factor analysis and reliability analysis, correlation analysis and regression analysis. As a result of the analysis, the following conclusions were obtained. First, in the relationship between parental participation motivation and satisfaction with regard to psychological exercise participation of children with developmental disabilities, only pleasure and social factors were significant in use satisfaction, and only social, health and physical fitness factors in performance satisfaction showed a significant influence. Second, in the relationship between participation motivation and intention to reuse, there were significant influences on pleasure, skill development and sense of achievement, and social factors. Third, in the relationship between satisfaction and intention to reuse, intention to reuse was significantly explained in factors of satisfaction with use and satisfaction with performance. In order to increase the reuse rate of psychomotor centers in the future, it is judged that additional analysis is necessary in addition to the measurement variables of this study.

• Journal of the Korean Society of Food Culture
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• v.35 no.3
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• pp.241-255
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• 2020

This study examined the eating habits and preferences of foods according to the age of children with autism spectrum disorders and identified the nutritional needs of parents to support their healthy eating habits and provide basic data for the development of educational programs. A survey of 100 parents of children with autism spectrum disorders was conducted on their children's snack intake, food preferences, and parents' nutrition education needs. As a result, there were four times more boys than girls, and the body mass index differed according to age (p<0.001). Most children ate snacks more than once a day, and parents found that they wanted to develop nutritious snacks that could replace high-protein, low-calorie meals with the minimal use of additives. For the food preference, there was a significant difference in grains and starches, vegetables/seafood and fruits, milk and dairy products (p<0.05), fats and sugars, and Korean fermented pastes (p<0.01) between the two age groups. Regarding whether nutrition education was required, many parents had a high demand for nutrition education (4.24±0.70), and the intention to participate was 3.62±1.09. The most important content to be dealt with in parent education was 'Inducing a change in bad eating habits and behaviors', which was the highest (63%), and mostly face-to-face education was preferred. In conclusion, young children require diet education, and older children need to focus on weight control and obesity.

• Journal of Korean Academy of Nursing
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• v.52 no.3
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• pp.308-323
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• 2022

Purpose: This study aimed to construct and test a predictive model for the quality of life (QOL) in mothers of children with developmental disabilities (DB). The hypothesized model included severity of illness, distress, uncertainty, self-help, and parenting efficacy as influencing factors, QOL as a consequence based on the Braden's Self-Help Model. Methods: The data were collected through a direct and online surveys from 206 mothers in 8 locations, including welfare or daycare centers, developmental treatment centers, and The Parents' Coalition for the Disabled located in two provinces of Korea. Data were analysed using SPSS/WIN 23.0 and AMOS 21.0 program. Results: The fit indices of the predictive model satisfied recommended levels; 𝛘² = 165.79 (p < .001), normed 𝛘² (𝛘²/df) = 2.44, RMR = .04, RMSEA = .08, GFI = .90, AGFI = .85, NFI = .91, TLI = .93, CFI = .95. Among the variables, distress (β = - .46, p < .001), parenting efficacy (β = .22, p < .001), and self-help (β = .17, p = .018) had direct effects on QOL. Severity of illness (β = - .61, p = .010) and uncertainty (β = - .08, p = .014) showed indirect effects. The explanatory power of variables was 61.0%. Conclusion: The study results confirm the utility of Braden's Self-Help Model. They provide a theoretical basis for improving QOL in mothers of children with DB. Nursing intervention strategies that can relieve mothers' distress and uncertainty related to disease and enhance parenting efficacy and self-help behavior should be considered.

• The Journal of the Korea Contents Association
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• v.21 no.7
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• pp.510-518
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• 2021

This study analyzed (1) the utility of telepractice in language assessment and (2) parental satisfaction for telepractice. Young children with language disabilities conducted REVT through both face-to-face and telepractice system. The correlation and paired t-test were analyzed. The results showed (1) the strong correlations between telepractice and face-to-face assessment scores. However, the telepractice score was significantly lower than face-to-face in the receptive vocabulary test and (2) the overall average of parental satisfaction for telepractice was 3.6 out of 5 points. The parents showed the highest satisfaction in terms of time and convenience of telepractice while the equivalence between telepractice and face-to-face item was the lowest. This study suggested the possibility and considerations in applying telepractice of language assessment in Korea.

• Clinical and Experimental Pediatrics
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• v.52 no.9
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• pp.1005-1014
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• 2009

Purpose:Epilepsy of child may cause high level of psychosocial difficulties for parents including stigmatization and stress and therefore worsen their quality of life (QOL). The purpose of this study was to evaluate the mediating effect of perceived stigma against epilepsy on QOL among parents with epileptic child. Methods:Two hundred and sixty parents of epileptic child recruited from five separated university hospital child neurology clinics specializing in epilepsy completed a demographic questionnaire, a medical questionnaire, a perceived stigma questionnaire and the Ro's Quality of Life Inventory, a popular tool for evaluating QOL of adults in Korea which is composed of 6 domains and 47 questions. Data was analyzed with SPSS 14.0 program using frequency analysis and descriptive analysis and with AMOS 7.0 program using Structural Equation Model (SEM) analysis. Results:The level of parents' QOL was relatively fair. SEM analysis on the quality of life level of parents showed that all variables (especially having religion, the monthly income, employment state, age of child, the leisure time, the perceived stigma level against epilepsy, and seizure frequency) directly affect the quality of life level of parents and that disease-related variables also affect the quality of life level of parents indirectly through the mediating factor (the perceived stigma), where the indirect effect is large with the existence of combined disabilities. The total effect on the quality of life level of parents is large with the existence of combined disabilities, the perceived stigma level, the leisure time, having religion, and the monthly income. Conclusion:The results of this study indicated that many factors including parents' perceived stigma may affect the quality of life of parents with epileptic children directly, and that some disease-related factors may affect indirectly through a mediating factor, the perceived stigma. Multidisciplinary collaboration would be imperative for their welfare.

• The Journal of the Korea Contents Association
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• v.13 no.3
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• pp.444-455
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• 2013

The purpose of this study is to explore the selection attributes for parents of children with language disability when choosing a clinic. The data collection was carried out in 3 steps: the preliminary survey, first open survey and second survey in AHP(Analytic Hierarchy Process). The subjects of were 252 in total. The results were as follows: First, The order of priority attributes in superior categories for parents of children with language disability when selecting a clinic were 'therapist-related attributes', 'program-related attributes' and 'physical-related attributes' in turn. The top 5 priority attributes in subcategories were 'therapist's academic background and major', 'ability to make a rapport', 'clinical experience and qualification of therapist', 'kindness and confidence' and 'counseling program for parents'. Second, The parents of preschoolers age 6 and younger chose 'clinical experience and qualification of therapist', 'counseling program for parents' and 'learning materials' for the most priority attributes, whereas the parents of students age from 7 to 12, considered 'therapist's academic background and major', 'clinical fee' and 'distance transport parking' more importantly to select a clinic. The results of this study provided preliminary data for successful planning of speech and language therapy.

• Journal of The Korean Society of Integrative Medicine
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• v.10 no.3
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• pp.95-105
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• 2022

Purpose : This study aims to systematically review the methods of occupational therapy intervention in children with autism spectrum disorders having sleep disorders and evaluate the improvements with intervention effects, based on experimental studies of children with sleep disorders. Methods : Studies published overseas from January 2011 to June 2021 were searched from a total of two databases. Science Direct and OTseeker. The five selected studies were analyzed by dividing them into age, number, intervention period, intervention type, intervention effect, evaluation tool, research design type, and evidence level. Results : The total number of subjects was 182, 95 subjects in ther experimental group, and 87 in the control group. The interventions included weighted blankets, swimming, and sleep education for parents. Ther interventions were found to increase total sleep time, improve mood when waking up, reduce sleep anxiety, reduce sleep time, reduce the number of waking up of during sleep, and reduce sleep resistance behavior. Conclusion : Many people have sleep disorders, with or without disabilities, and the number is gradually increasing. Consequently, research on occupational therapy intervention in children with autism spectrum disorder are actively conducted in foreign countries, and these interventions have a positive effect. Based on the results of this study, it can be concluded that such occupational therapy intervention studies are necessary for children with autism spectrum disorder with sleep disorders in Korea. In addition, further research on the quality of life of parents of children with autism spectrum disorders due to sleep disorders and their methods are required.

• Journal of the Korean Home Economics Association
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• v.44 no.7 s.221
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• pp.163-175
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• 2006

The purpose of this study was to investigate the actual conditions and needs assessment of parental education for preschoolers with and without disabilities in integrated kindergartens. The subjects were 273 mothers and 121 teachers of preschool children with and without disabilities in integrated kindergartens in Daegu and Seoul. The major findings of this study were as follows. (1) Parental education for preschoolers in integrated kindergartens needs to be conducted with attention for the effect on parents of preschoolers with and without disabilities together. (2) The major contents of parental education for preschoolers in integrated kindergartens are 'understanding integration'. (3) Mothers need 'parental training of child's problem behavior' most. (4) Mothers need parental education for preschoolers in integrated kindergartens once a month, by experts, in a workshop. (5) The participation rate of fathers in parental education for preschoolers in integrated kindergartens needs to be increased.

• Journal of Preventive Medicine and Public Health
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• v.57 no.2
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• pp.157-166
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• 2024

Objectives: Children with disabilities may exhibit a multitude of symptoms, and treatment requires a multidisciplinary approach for a satisfactory outcome. Lack of awareness among physicians, lack of referral, and lack of inter-sectoral coordination have hindered paediatric practice in Tamil Nadu, a state in India with a striking childhood disability rate that warrants a timely interdisciplinary approach. However, the perspectives of paediatricians on paediatric physiotherapy are unknown. The aim of the study was to investigate the perspectives of practicing paediatric physicians in Chennai on the role of physiotherapy in paediatrics. Methods: For an in-depth exploration, qualitative semi-structured interviews were conducted in person with 10 paediatricians. Audio from the sessions was recorded and transcribed, and data saturation was achieved through iterative analysis. Results: A grounded theory analysis of the results yielded 5 domains under which the perspectives and expectations of the physicians were described, along with the barriers experienced by patients' parents as explained by their paediatrician. The responses highlighted deficits in awareness, structural support, accessibility and direct communication between physicians and physiotherapists. Conclusions: Paediatric physicians have different opinions, and some ignorance persists concerning paediatric physiotherapy. This study warrants a proper structure of the paediatric rehabilitation unit and regular interdisciplinary meetings and focus group discussions to increase access for parents and improve patient outcomes.