• Research in Community and Public Health Nursing
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• v.21 no.4
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• pp.439-447
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• 2010

Purpose: This study was to describe the burden of aged parents caring for adult children with disabilities and related factors. Methods: The subjects were 123 caregivers aged over 65 who were caring for 18-year-old or older children with disabilities. The research tool of this study was a structured questionnaire on family burden. Data were collected from June 3 to 25, 2010, and analyzed by Cronbach's alpha, mean, standard deviation, t-test, and ANOVA using SAS 9.2 program. Results: The major findings of this study were as follows. Elderly parents caring for adult children with disabilities perceived a moderate level of burden. The burden from concern over their children's future was highest, and economic and physical burdens were higher when the parents were younger. Burden was significantly different according to parents' characteristics such as gender, perceived health status, disease, the costs of caring for disabled children, and children's characteristics such as disability rating, health status, and ADL. Conclusion: In order to reduce the burden of elderly parents caring for adult children with disabilities, we need to improve their health status and assess comprehensive policies.

• Korean Journal of Family Social Work
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• no.56
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• pp.251-277
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• 2017

This study aimed to explore the parents'intentions of choosing a residential institution as the future alternative for their children with disabilities after the death of a parent, regarding the recent disability service and policy focusing on the deinstitutionalization of services for people with disabilities. For this purpose, the effects of factors relating to the children with disabilities, families and society on the parents' future plans of residential place and guardians are examined. First, parents of children with disabilities are less likely to choose a residential institution as the future living place for their children when their children have a better communication competence, their families are more positive, and their caring burden is lower, compared to others. Second, parents are less likely to choose a residential institution as the future guarding body for their children when their children could communicate well and their families are positive. This result indicated the communication competence of children with disabilities and the positiveness of families are important factors associating with the future plan decision and the additional support for the prevention of institution arrangement after the death of a parent. Findings are discussed in relation to the importance of future plans of residence and guardians for the life of children with disabilities after the death of parents and the implication for social welfare.

• The Journal of Korean Academy of Sensory Integration
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• v.20 no.2
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• pp.22-35
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• 2022

Objective : This study was conducted to investigate the stress, anxiety, depression, and quality of life that parents of children with disabilities have according to their general characteristics and determine the correlation between stress, anxiety, depression, and quality of life. Methods : The subjects were 242 parents of children with disabilities under the age of 13 receiving treatment at rehabilitation centers for the disabled, rehabilitation hospitals, and child development centers located in D, B, and U metropolitan cities. Results : According to the result of analyzing the correlation between stress, anxiety, and depression that the parents of children with disabilities felt and the quality of their lives, the quality of their lives correlated negative with their stress, anxiety, and depression. In the case of the results according to the parents' general characteristics, stress showed a significant difference depending on the education level, monthly income, and anxiety showed a significant difference depending on child rearing time, occupation, and public transportation. Additionally, depression and the quality of life had a significant difference depending on child rearing time, education level, occupation, and monthly income. Conclusion : The results of this study identified the importance of the mental health of the parents of children with disabilities and the correlation between their mental health and quality of life. Social distancing and quarantine rules that children with disabilities must follow have limited their opportunities to receive education and treatment, so the influence of stress, anxiety, depression that the parents of children with disabilities who should continue to take care of their children should be considered. Based on these results, it is necessary to develop support services for the parents of children with disabilities for enhancement in their mental health in preparation for other disasters in the future.

• International journal of advanced smart convergence
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• v.9 no.1
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• pp.54-62
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• 2020

According to the Ministry of Health and Welfare, "Status of Registered Persons with Disabilities", the number of people with disabilities is 2,494,460 as of 2015. The lowest rates of children with disabilities were intellectual disabilities (23%) and mental disorders (33.3%). The highest rates of screening were blindness (97%), heart failure (94.4%), and hearing impairment (92.7%). 65.2% of visually impaired people who have already had a disability at the time of marriage, and the remaining 34.8% can be thought to be the cause of high incidence of disability after marriage. 'SID (Seed in the Dark)' project was designed to recapture the visually impaired parent's desire for attachment and the space difficulties of the blind who want to be a normal parent to their children through a visual impairment of a father with 7-year-old daughter. Using Gear VR(Virtual Reality), the general public was able to feel the surroundings as if they had no vision and focused on the hearing. Especially, We expressed the sound wave visually and added the hilarious game element which grasps the terrain of the maze by sound wave like a 'blind person who perceives the surroundings by sound' and catches up with daughter. People with disabilities who are far from mental illness often have a form of family with children. The fact that the rate of childbirth is high means that there is relatively little problem in daily life. It is wondered that the rate of blindness among the visually impaired, which accounts for 10% of the total disabled, is the highest at 97%. This is because, in the case of the visually impaired, the obstacle is often caused by aging, accidents, or diseases due to inherited causes rather than the visual disorder. In particular, However, the fact that there is an obstacle in vision that accounts for 83% of the body's sensory organs causes other difficulties in the nursing process of children who are non-disabled. Parents do not know the face of child when their visual impairment is severe. Parents are extremely anxious about worry that they will be lost or abducted if their children are not by their side. And that the child recognizes the disability of his or her parents other than the other parents easily and takes it as a deficiency. Since visually impaired parents are mentally mature parents with non-disabled people, they may want their children not to feel deprived of their disability. The number of people with visual impairments has been increasing since 2001, and people with impairments often become disabled. In addition, there is much research on the problem of nondisabled parents who have children with disabilities, while there is relatively little interest and research on the problem of nondisabled child rearing of parents with disabilities.

• International Journal of Computer Science & Network Security
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• v.22 no.3
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• pp.266-272
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• 2022

Private specialized institutions differ from public ones in that they mostly act independently. This paper reports a study designed to assess the provision of specialized institutions for children with intellectual disabilities in Saudi Arabia. The approach taken in this study was qualitative, involving a case study strategy that enabled the researcher to gain rich and in-depth information based on the shared experiences of participants comprising institution leaders, educators and families from two specific specialized settings, one public and one private. The study aimed to examine the existing disparities in service delivery so as to develop a clear picture of the service quality provided by public specialized institutions for children with intellectual disabilities in Saudi Arabia. The results suggest that the weak relationship with inpatient and specialized institutions is a consequence of the parents' poor responsiveness, which may result in these institutes developing a negative impression of the parents. Conversely, the lack of active initiative on the part of the public specialized institutions led to a negative parental attitude towards these institutions. A sensible approach to resolving this problem might be to recognize that these institutions have a significant responsibility to encourage parents of children with intellectual disabilities to become involved in their children's learning, to promote positive attitudes.

• Journal of The Korean Society of Integrative Medicine
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• v.9 no.4
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• pp.225-235
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• 2021

Purpose: Since coronavirus disease 2019 (COVID-19) spread around the world, non-face-to-face services have emerged as the new normal. The functioning of children with developmental disabilities and cerebral palsy improves when parents, therapists, and institutions cooperate. We aimed to investigate the difficult environment of pediatric physical therapy caused by COVID-19, and grasp parents' perceptions of home exercise programs. We intend to design home exercise programs for pediatric treatment in the future and create a non-face-to-face pediatric rehabilitation service system based on our findings. Methods: The first survey was conducted on 30 parents who had children with cerebral palsy and developmental disabilities. It was produced after consultation with relevant experts and discussion with the research team, based on a survey conducted in a previous study. The second survey was produced by revising and supplementing the opinions of parents who completed the first survey and consulting experts. Thereafter, an online survey was conducted on 118 parents who had children with cerebral palsy and developmental disabilities. Results: 61.01 % of the parents reported that they were anxious or afraid for their children to be treated for infectious diseases. 83.90 % of the parents reported that the role of parents had increased. 50.00 % of the parents complained of a lack of skill. 85.59 % of the parents reported that they needed a home exercise program provided by the organization. As a non-face-to-face exercise management method, 35.59 % of the parents wanted a real-time video recording electronically mailed to them, and 34.75 % wanted real-time education using video conferencing programs such as zoom. Conclusion: The threat of COVID-19 has further emphasized the importance of social cooperation and management, leading organizations to enter a new era of non-face-to-face rehabilitation services. It is necessary to collect and systematize related studies to reflect more diverse opinions and improve the perceptions of therapists and parents.

• Journal of Digital Convergence
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• v.14 no.2
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• pp.479-487
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• 2016

This study aimed to investigate the difference of the disabilities type of caring competency, caring appraisal(caring burden, caring satisfaction), self-help group support for parents who have children with disabilities. The data were collected by a self-reported questionnaire from 301 parents who have disabled children(180 mental disabilities & 121 physical disabilities). Given the three types of invariance satisfied, latent means analysis(LMA) is performed to test mean differences on the four factors across the two groups. According to LMA where the parents who have children with physical disabilities are used as the reference group, the parents who have children with mental disabilities showed higher latent mean values on the self-help group support and caring burden. However, the parents who have children with physical disabilities showed higher latent mean values on the caring satisfaction and caring competency.

• Journal of Industrial Convergence
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• v.20 no.4
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• pp.85-93
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• 2022

The purpose of this study was to verify whether strengthening family competency plays a mediating role in the influence of parents' parenting efficacy on the independent life of children with developmental disabilities. The subjects of the study were 146 parents with developmental disabilities, and data analysis using the SPSS 22.0 program was conducted. The mediating effect was Baron and Kenny Hierarchical regression analysis and sobel-test were conducted. As a result of the study, the positive effect of parents' parenting efficacy on the level of self-reliance and strengthening family competency of children with developmental disabilities was verified. In addition, the positive mediating effect of strengthening family competency was verified between the parenting efficacy of parents and the level of independence of children with developmental disabilities. As a result of the study, it is important to support parents' parenting and family capacity enhancement to support the independence of children with developmental disabilities.

• Journal of Family Relations
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• v.21 no.4
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• pp.27-50
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• 2017

Objectives: This study was carried out in order to evaluate the overall process that the caregiving stress of parents of adult children with developmental disabilities affected their life satisfaction through the levels of family resilience, and coping styles on the basis of stress-coping-adaptation model of Lazarus and Folkman(1984). Method: For this purpose, the structured survey was conducted by 394 parents of adult children with developmental disabilities. The data was analysed by AMOS 20.0 version. Results: The findings can be summarized as follows: First, the structural equation model(SEM) analysis was conducted in order to examine the various paths that parents' caregiving stress affected their life satisfaction. The model's goodness-of-fit was fine($x^2=225.20$, df=95, p=000. RMSEA=.06, TLI=.95). There were significant relationships between caregiving stress and family resilience(${\beta}=-.36$, p<.001), emotion-focused coping style(${\beta}=.47$, p<.001), life satisfaction(${\beta}=-.53$, p<.001). Second, family resilience and emotion-focused coping showed mediating effects on the relationship between caregiving stress and life satisfaction. Conclusions: The strategies for enhancing family resilience and social services for applying effective coping methods should be expanded in order to diminish the caregiving stress of parents of adult children with developmental disabilities.

• The Journal of Korean Academy of Sensory Integration
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• v.18 no.1
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• pp.1-12
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• 2020

Objective : In this study, we are going to check the impact of the daily performance of a child with developmental disabilities on the parent's burden and quality of life. Methods : 120 parents of children with developmental disabilities were targeted in Chungcheong and Jeolla provinces. To measure the daily performance ability of children with developmental disabilities, we used evaluative Pediatric Evaluation of Disability Inventory and The burden of parents was measured by Family Burden Questionnaire and the quality of life by Beach Center Family Quality of Life Scale. Based on the data collected, independent t-test, one-way anova, Pearson correlation analysis and regression analysis were conducted to check the impact of a child's daily performance ability of developmental disability on the parent's burden and quality of life. Results : The daily performance ability of a children with developmental disabilities showed a negative correlation with the burden of the parents and a positive correlation with the quality of life. The hygiene and bowel & bladder control of children with developmental disabilities had an important influence on parent's burden, while hygiene, toileting, and bowel & bladder control of children with developmental disabilities had a significant effect on their parent's quality of life. Conclusion : It has been shown that the daily performance ability of a children with developmental disabilities has a major influence on parent's burden and quality of life. In order to reduce the burden and improve quality of life, therapeutic intervention, education and interview programs for daily life of children with developmental disabilities need to be carried out systematically by occupational therapists.