• 제목/요약/키워드: Parents of children with a disability

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The Effect of Patent's Burden and Quality of Life on the Daily Performance Ability of Children With Developmental Disabilities (발달장애아동의 일상생활 수행능력이 부모의 부담감과 삶의 질에 미치는 영향)

  • Lee, In-Young;Lee, Jae-Shin;Cha, Tae-Hyun;Yoo, Doo-Han
    • The Journal of Korean Academy of Sensory Integration
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    • v.18 no.1
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    • pp.1-12
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    • 2020
  • Objective : In this study, we are going to check the impact of the daily performance of a child with developmental disabilities on the parent's burden and quality of life. Methods : 120 parents of children with developmental disabilities were targeted in Chungcheong and Jeolla provinces. To measure the daily performance ability of children with developmental disabilities, we used evaluative Pediatric Evaluation of Disability Inventory and The burden of parents was measured by Family Burden Questionnaire and the quality of life by Beach Center Family Quality of Life Scale. Based on the data collected, independent t-test, one-way anova, Pearson correlation analysis and regression analysis were conducted to check the impact of a child's daily performance ability of developmental disability on the parent's burden and quality of life. Results : The daily performance ability of a children with developmental disabilities showed a negative correlation with the burden of the parents and a positive correlation with the quality of life. The hygiene and bowel & bladder control of children with developmental disabilities had an important influence on parent's burden, while hygiene, toileting, and bowel & bladder control of children with developmental disabilities had a significant effect on their parent's quality of life. Conclusion : It has been shown that the daily performance ability of a children with developmental disabilities has a major influence on parent's burden and quality of life. In order to reduce the burden and improve quality of life, therapeutic intervention, education and interview programs for daily life of children with developmental disabilities need to be carried out systematically by occupational therapists.

A Study to Validate the Korean Child Development Review (0-5세를 위한 한국형 영.유아 발달 선별검사(K-CDR)의 타당성에 대한 연구)

  • Shin, Hee-Sun;Kim, Jeong-Mee;Lim, Seong-Or
    • Child Health Nursing Research
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    • v.13 no.2
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    • pp.222-229
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    • 2007
  • Purpose: This study was done to evaluate the validity of the Korean - Child Development Review in screening children with developmental risks. Method: The participants in the study were 172 children aged 6-75 months old and their parents. Data were collected by questionnaire or interview. Korean Denver II and Bayley test were administered with K-CDR for validation of children who were referred for developmental assessment at D University Hospital or public health center. The data were analyzed using correlation, $X^2$ test, and cross tab analysis. Results: There was a significant relationship between the K-CDR and Korean Denver II. The correlation coefficients were .42 to .61 by developmental sector. The sensitivity and specificity of K- CDR were .84 and .66 respectively when "abnormal" with MDI of Bayley test defined as lower than 85 the score which was used as a diagnosis of developmental delay. The responses to 6 questions for parents showed significant differences according to 3 groups by developmental state. Parents of children in the developmental disability group more frequently checked problems from the 26 problem checklist about their children's development and behavior. Conclusion: The results show that K-CDR is valid and has good sensitivity and moderate specificity in screening developmental delay.

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A Study on the Parents' Recognition of School Enterprise Convergence by Type of Disability (장애유형별 학교기업 융합에 대한 부모 인식에 관한 연구)

  • Kim, Woo-Ho;Seo, Bo-Jun;Lee, Jae-Moon
    • Journal of the Korea Convergence Society
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    • v.6 no.4
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    • pp.89-97
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    • 2015
  • This study aims to identify parents' recognition of school-enterprise convergence by type of disability. To this end, it analyzes 150 parents with children attending special school in region D, K, and S. As a result, first, parents preferred their children's vocational ability development, employment rate improvement, and manufacturing and supplying method of goods requested by industrial bodies in the community the most and hoped to complete educational courses for the professional education of a job that they wanted to learn and learn the basic ability education for the job. Second, they preferred participation in practical hours and after-school activities and hoped all 2nd and 3rd high school graders to be selected if they wanted, and as compensation for them, wanted appropriate adjustment of class hours or tasks. This suggests that active participation in classes and selection of various types of business seem to be necessary.

Preparing for the Future of Children with Disabilities - Focusing on parents' plans of residence and guardians for children with disabilities after the death of a parent - (부모 사후 장애자녀의 미래계획은 있는가?: 장애자녀를 가진 부모의 미래 주거지 및 보호자 계획을 중심으로)

  • Jung, Eun Hye;Kim, Mi Ok
    • Korean Journal of Family Social Work
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    • no.56
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    • pp.251-277
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    • 2017
  • This study aimed to explore the parents'intentions of choosing a residential institution as the future alternative for their children with disabilities after the death of a parent, regarding the recent disability service and policy focusing on the deinstitutionalization of services for people with disabilities. For this purpose, the effects of factors relating to the children with disabilities, families and society on the parents' future plans of residential place and guardians are examined. First, parents of children with disabilities are less likely to choose a residential institution as the future living place for their children when their children have a better communication competence, their families are more positive, and their caring burden is lower, compared to others. Second, parents are less likely to choose a residential institution as the future guarding body for their children when their children could communicate well and their families are positive. This result indicated the communication competence of children with disabilities and the positiveness of families are important factors associating with the future plan decision and the additional support for the prevention of institution arrangement after the death of a parent. Findings are discussed in relation to the importance of future plans of residence and guardians for the life of children with disabilities after the death of parents and the implication for social welfare.

The Effects of Parent's Participation and Satisfaction Degree on Physical Therapy for the Improvement of Motor Function in Cerebral Palsy Patients (부모의 물리치료 참여 및 만족도가 뇌성마비 아동의 운동기능 호전에 미치는 영향)

  • Lee, So-Young;Kim, Yong-Nam;Kang, Jeong-Il
    • The Journal of Korean Physical Therapy
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    • v.17 no.4
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    • pp.575-588
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    • 2005
  • Family and parents which serve as a primary group for the children's development also play important role in their cerebral palsy children's treatment. This study wants to know how the parents' participation in their children's physical therapy and satisfaction degree have an impact on their children's improvement of the motor function. For that purpose, a home made self filling survey was conducted of 156 cerebral palsy children's parents whose children were treated in 4 university general hospitals and 3 welfare centers from the 1st of April 2004 to the 31th of march 2005. The gross motor function was employed to evaluate the cerebral palsy children's motor function improvement. In this study, those questioned were divided into two groups according to the time of treatment. 'Group A' is consist of the patients whose parents attended to the treatment more than one hour at home. The patients who belonged to 'Group B' were treated less than one hour at home. The general features of the cerebral palsy children and their parents and the characteristics of their physical disability, the parents' participation and their satisfaction degree were examined by survey. Evaluating the difference between two groups' motor function according to their parents participation degree in the physical therapy leads to the following results. First, 'Group A' was better than 'Group B' in their satisfaction degree with the physical therapy and participation degree. Statistically 'Group A' was superior to 'Group B' in the requirements of the information and education for the children with cerebral palsy. Second, after two months of treatment, 'Group A' showed more statistically significant improvement than 'Group B' in every items as like lying in item 1, sitting in item2, crawling and kneeling in item 3, standing in item 4, walking,running, jumping in item 5. Third, parents' participation in physical therapy and satisfaction degree have some relevance to their children' motor function improvement. The satisfaction degree is related to motor function like crawling and kneeling in item 3, walking,running, jumping in item 5. It is showed that the parents' participation degree and information about handicapped children.

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Effects of Parenting Stress on the Quality of Life in Parents of Children with Developmental Disabilities:Focused on the Moderating Effects of Information Application (발달장애아동 부모의 양육스트레스가 삶의 질에 미치는 영향 : 정보활용의 조절효과를 중심으로)

  • Jeon, Byeong-Joo
    • Journal of Digital Convergence
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    • v.14 no.9
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    • pp.63-72
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    • 2016
  • Given that the number of people with developmental disabilities is continuously increasing in Korea, we need to pay attention to the lives of parents who rear the children with developmental disabilities. Accordingly, this study examined the effects of parenting stress on the quality of life in parents of children with developmental disabilities, and moderating effects of information application in the process. This study conducted a survey to 194 parents who rear such children in Chungnam and Chungbuk provinces. This study utilized PASW Statistics 18.0 for analysis, and the study results are as follows. First, it was found that parenting stress was more than average level, and information application was somewhat lower than average level. Quality of life was found to be lower than average level, and the level of relationship with neighborhood and emotional condition was relatively lower than other sub-factors. Second, influential factors of life quality were parenting stress, disability degree, information application, residential area, and disability type. Third, information application was found to have moderating effects on the relationship between parenting stress and quality of life. Based on such empirical analysis results, this study suggested concrete and comprehensive working strategies to improve quality of life in parents of children with developmental disabilities.

A Study on the Characteristics of the Current Situation of the Child Care Centers for the Children with Disability in Japan - Focus on the 'Day Service for Children' in Tokyo - (일본 장애아 요육시설의 설치 및 이용현황의 특성에 관한 연구 - 일본 동경권의 '아동 데이서비스'를 중심으로 -)

  • Choi, Hee-Won
    • Korean Institute of Interior Design Journal
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    • v.19 no.6
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    • pp.224-232
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    • 2010
  • This paper aims to identify the characteristics and the current situation of the architectural characteristics, children's characters using facilities, and status of management and utilization by surveying 'Day Service for Children' in Tokyo-do. First, About the status of management and utilization, 'Day Service for Children' is operated by a local government, NPO corporate group and social welfare corporate. There are not big differences of the care program or running hours depending on operating principals but there are differences depending on staff organization, number of children and space constitution. Also, infants ratio at 'Day Service for Children' is high for the purpose of detecting disability early and supporting their development early. They have diverse disabilities but developmental disabilities' ratios high and most children are using both this facility and normal nursery centers together. Samples for proper child care based on status of space constitutions were installing lock, raising door knobs and using softer floor materials which are for children's safety. For the problem of space utilization, most comments were about lack of space which is not enough for teaching and training materials. Therefore, as an example, observation rooms for parents and teachers were sometimes used as storages and it changes teachers' moving direction, staying area and behavior zone. The programs of 'Day Service for Children' are divided to group teaching and private one. It will be the best if they have separate spaces such as group class room, private class room and play room. When they were operated by NPO corporate group or Social welfare corporate, there are many cases that their space was not properly zoned for each activity.

Effect of Home Activity Support Program on Daily Living Performance Skills in Children with Cerebral Palsy and their Parents

  • Ko, Seok-Ho;Kim, Jae-Eun;Koo, Jung-Wan
    • Physical Therapy Rehabilitation Science
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    • v.11 no.1
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    • pp.24-31
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    • 2022
  • Objective: This study attempted to find out if it changes the child's ability to perform daily life activities when visiting the familiar environment and daily living space of children with cerebral palsy and conducting a home activity support program for children and parents. Design: Randomized Controlled Trial Methods: Among 22 children aged 3 to 12 years old, they were assigned to the intervention group and control group. Of these, 12 boys and 10 girls participated in the study. Gross motor function measure and upper extremity function evaluation were used to measure the physical function of children with cerebral palsy, and self-care skills, mobility and social functions were evaluated in the pediatric evaluation of disability inventory. In addition, a parenting sense of competence was used to find out the efficacy of parents in raising children. After the pre-evaluation, basic rehabilitation treatment and intervention programs were applied to the intervention group, and only basic rehabilitation treatment was performed to the control group, and post-evaluation was performed 8 weeks later. Results: As a result of the study, among the items that measured the gross motor function, upper limb function, and daily life performance ability of the intervention group in the difference between the intervention group and the control group, statistically improved in personal processing and movement (p<0.05). In addition, the parenting sense of competence children in the intervention group was statistically significant (p<0.05). Conclusions: The home activity support program will help strengthen the ability of cerebral palsy children to perform daily life as a way to set mutually agreed goals with their families or children and achieve them in a familiar environment.

The Study of Parents'Satisfaction towards School Education and Demographic Variables Associated with Decision-Making on Post High School Academic Completion for Their Child with Disability (장애학생 부모의 자녀 진학결정과 관련된 자녀학교교육 만족도와 배경변인에 관한 연구)

  • Lee, Ji Kyung
    • 재활복지
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    • v.18 no.4
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    • pp.145-164
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    • 2014
  • The purpose of the study is to examine the relationships of parents' satisfaction towards their children's school education and the demographic variables associated with decision-making on post high school academic completion of parents of the students with disabilities. The Korean Education Longitudinal Study data, which contained the responses of 162 parents of high school students with mild disabilities who enrolled in regular high schools, was used for the study. For data analysis, descriptive statistics, ordinal logistic regression analysis, and chi-square test were used. As a result, provision of college entrance related information/consultation, improvement of academic performance level, collaboration/ communication between the teachers and parents, and overall school education were significantly related to parents' decision-making on their children's post high school academic completion. Also, mothers' educational level showed significant difference in parents' decision-making on their children's post high school academic completion.

Older Parents with Disabled Adult Children in Later Life: Health and Welfare Needs (성인장애자녀를 돌보는 저소득 노인부모의 보건복지 욕구)

  • Kim, Eunhye;Suk, Min-Hyun;Youn, Jung-Hye
    • 한국노년학
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    • v.30 no.4
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    • pp.1213-1223
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    • 2010
  • The purpose of this study is to explore and describe the health and welfare needs experienced by old parents living with disabled adult children, and to help generate research interest and public policy attention on this critical issue. For the purpose of this study, the survey was conducted with older parents who are living with dependent adult children with physical or mental disability. Among collected data for this study, data for 105 older parents were analyzed. The results showed that older parents have suffered with care responsibilities for their disabled adult children as well as special needs resulted from their old age. And older parents have little or even nothing prepared for later life because of lifetime economic, physical and social difficulties related to their disabled children. Also these difficulties had a significant impact on their idea of health and welfare needs in later life. It showed that older parents had mainly concerned and wanted to have the direct cash benefits and medical provisions but hardly recognised the importance of other services such as leisure activities. Preliminary suggestions of this study therefore may be helpful to improve the public policy approach in order to better serve older parents with disabled adult children in the coming aging society.