• Asian Pacific Journal of Cancer Prevention
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• v.14 no.8
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• pp.4655-4660
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• 2013

Background: Hepatocellular carcinoma (HCC) is the most common primary liver cancer and the third leading cause of cancer-related death worldwide due to its generally poor prognosis. Caregiver burden for liver cancer cases is higher than with other cancer and needs especial attention. Methods: To explore the experiences of families of patients with newly diagnosed advanced terminal stage hepatocellular cancer by interview. Results: Nine participants were recruited in this study. Content analysis of the interviews revealed four themes: blaming oneself, disrupting the pace of life, searching all possible regimens, and not letting go. Conclusions: This study provides new insight into the needs and support of family members especially when they are facing loved ones with newly diagnosed advanced terminal stage HCC. These results will inform future supportive care service development and intervention research aimed at providing assistance in reducing unmet supportive care needs and psychological distress of these family members.

• Journal of East-West Nursing Research
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• v.19 no.1
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• pp.1-6
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• 2013

Purpose: The purpose of this study was to identify factors influencing quality of life of caregivers using day care services. Methods: Data were collected from 14 different day care services in D city, with a total of 146 female caregivers as participants. All participants were at home caregivers whose patients were senior citizens older than 65. Data were collected from September 1 to 30 of 2008 and analyzed by t-test, ANOVA, Pearson's correlation coefficient, and stepwise multiple regression. Results: Quality of life among caregivers of day care services differed significantly according to state of health, other caregivers, job, and family income. Quality of life among caregivers showed correlation with caregiving burden. The significant predictors affecting quality of life were state of health, other caregivers, job, and family income and caregiving burden. A combination of these predictors accounted for 43.5% of the variance in quality of life. Conclusion: These findings show that quality of life of family caregivers using day care services is influenced by caregiving burden. Development of day care service programs is necessary in order to reduce caregiving burden of family caregivers for the elderly.

• Journal of Korean Academy of Nursing
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• v.40 no.4
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• pp.524-532
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• 2010

Purpose: This study was done to explore the relationship of social support and meaning of life to suicidal thoughts among patients with cancer. Methods: Data were collected by questionnaires from 138 patients who had been in cancer treatment at medical clinics and 8 patients who were members of an internet cancer association. The data were collected between August and November 2009 and analyzed using SPSS 12.0. Results: Of the participants, 47.3% reported having had suicidal thoughts and 16.4% had attempted suicide since the diagnosis of cancer. The study participants received most support from family members, but 73.3% reported experiencing an existential vacuum. The suicide attempt group had significantly higher scores according to gender, age, level of education, diagnosis, treatment modality, level of activity, caregiver and social support compare to the suicide thought group. Suicidal thoughts were negatively related to social support and meaning of life was positively associated with social support. Support from family and friends and diagnosis explained 50.0% of variance for suicidal thoughts with 36.0% of variance being explained by family support. Conclusion: Nurses should be able to identify risk factors for suicide in cancer patients. Prevention and intervention efforts need to be directed toward improving social support, family support in particular, and assisting patients finding meaning in life after a diagnosis of cancer.

• Korean Journal of Occupational Health Nursing
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• v.28 no.2
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• pp.114-123
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• 2019

Purpose: The aims of this study were to identify the effects of caring burden and the way of coping on burnout in caregivers of cancer patients. Methods: One-hundred and forty family caregivers of cancer patients who visited the cancer center at one tertiary hospital in metropolitan city B were included. The data collection was conducted from August 1st to October 1st, 2018, using a structured, self-reported questionnaire. The collected data were analyzed using descriptive statistics, t-test, one-way ANOVA, Pearson correlation coefficients, and multiple regression. Results: In the multiple regression analysis, the subject's gender (${\beta}=.12$, p=.028) and caring burden (${\beta}=.74$, p<.001) had a significant effect on burnout. The explanatory power of the subject's gender, education level, religion, caring time, number of family caregivers, monthly income, economic burden, expectation for treatment, caring burden, the way of aggressive coping, and the way of passive coping with burnout was 63.8% (F=23.28, p<.001). Conclusion: Reducing the caring burden in family caregivers of cancer patients will ultimately contribute to reducing burnout, thereby contributing to an improvement in the psychological well-being and quality of life of family members, as well as positively contributing to the recovery of patients.

• Health Policy and Management
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• v.24 no.1
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• pp.71-84
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• 2014

Background: Informal care is increasingly recognized as placing a significant burden on the lives of family caregivers. The purpose of this study is to investigate factors related to family caregivers' burden with the community-dwelling disabled elderly under the long-term care insurance system, using the Stress Process Model developed by Pearlin (1990). Methods: Total 1,233 family caregivers with the disabled elderly, using the long-term care services in their home from May to June 2009, completed questionnaires finally. The questionnaire of this study consists of a total of 32 questions, including 11 questions related to background and context, 17 questions related to objective stressors, and 4 questions related to coping resourses. Family caregivers' burden is measured by the Korean Revised Caregiving Appraisal Scale (K-RCAS, Cronbach's alpha=0.86). To investigate factors related to family caregivers' burden, multiple regression analysis was conducted. Results: The average score of caregivers' burden was 22.0 (${\pm}6.12$). In multiple regression analysis, there were statistically significant factors affecting on the family caregivers' burden, that are related to background and context (region, living status, education level, relationship with beneficiary), objective stressors (duration of caregiving), coping resourses (caregiver's health status). Conclusion: This study found that family caregivers experience a considerable burden. The findings suggest that policies must be taken to relieve family caregivers of their duties temporarily, and to support them with counselling and education.

• Research in Community and Public Health Nursing
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• v.12 no.3
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• pp.582-588
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• 2001

Purpose : This study is to examine the characteristics of the elderly and their family caregivers. to study the main factors affecting Nursing Home utilization, and to help frame a policy about Nursing Home's demand. management and welfare facilities. Method: Data for this present study were collected via questionnaires randomly distributed to family caregivers of the over 60-year-old patients at general hospital and university hospital in Seoul. Kyung-Ki Do and In-Chon from 26 June to 20 July, 2000. Questionnaires were issued to 512 people and 479 were returned. The data was analyzed by frequency, $x^2$-test, t-test, ANOVA. factor analysis. correlation coefficients analysis and Stepwise multiple regression analysis using SPSS 9.0. Result First. Instrumental Activities of Daily Living(IADL), duration of hospitalization, sex, marital status, behavior problems, home ownership, and cognitive disorder about elderly patients affect family caregivers burden. one of need factors. Secondly, marital status. religion. health status, sex, education and age in the family caregiver predisposing factors are main factors on Nursing Home utilization. Third, in need factors, care burden. time burden, family relation burden, physical burden and mental burden have an effect on Nursing Home utilization. Finally, the model the most important factors that affect Nursing Home utilization is composed of six of eleven totally, care burden, religion, time burden, health status, marital status and education. When the family caregivers get care burden and time burden. are highly educated, have no religion, have health problems, and have no spouse, it is possibility for them to utilize Nursing Homes. Conclusion: The government should decrease a family caregivers burden and seek to find how to support Nursing Homes. Furthermore. Social support program for the family caregivers should be required. Thus, the family caregivers need consultation and need to meet to talk about their patients. how to care them, get information, which are the crucial field in advancing the research in nursing science.

• Journal of the Korean Home Economics Association
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• v.39 no.11
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• pp.27-42
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• 2001

This paper reviews researches related with the elderly caregiving, which hale published during the 1990s. After analyzingthe 29 articles in this field, the major findings are as follows: First, the advantageous position in life chances which is consisted of socioeconomic status and resources tends to reduce th burden for the elderly care. The higher in social status, the more resources older adults have, the more advantageous in controlling their relationship with their children and caregivers. Second, values based on familism is more associated with providing caregiving services for their parents than those of filial piety. Third, the tendency that daughter-in-law takes the role of the primary caregiver suggests a possibility of diminishing her enthusiasm, and finally comes to recognize her role as an enforced one, as time goes by. Fourth, cargiving burden affects the diverse aspects of caregiver's way of life. When the lower class elderly has dementia, caregiving stress and hassle have reached at their peak level. For meeting the needs of reducing the burden for the elderly care, this study suggests community- based approach for the elderly care. This approach attempts to share the caregiving burden with local community. To share the burden means that the boundaries of caregivers does not limit family members, but to expand community. This attempt includes a plan that establishes multipurpose community center which provides comprehensive services and care for the aged. The theoretical rationale of this approach are also discussed.

• Journal of Hospice and Palliative Care
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• v.18 no.4
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• pp.314-321
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• 2015

Purpose: It is well known that a terminal cancer condition affects not only patient themselves but their family members because the patients experience a variety of symptoms. This study was aimed to investigate modifiable factors that influence family caregivers' quality of life, depression, and anxiety. Methods: From January 2015 through May 2015, a survey was conducted with 61 family caregivers of hospice patients who were hospitalized in two university hospitals and one municipal hospital in Busan. The questionnaire was consisted of characteristics of family caregivers and patients, the Korean version of the Caregiver Quality of Life Index-Cancer (CQOLC-K), Beck's Depression Inventory II (BDI-II), Beck's Anxiety Inventory (BAI), and patient's symptom controlling scores rated by family caregivers. Results: Family caregivers' depression was associated with religion. Quality of life and depression of family caregivers were also influenced by monthly household income. Patient age was inversely related to family caregiver's quality of life ($r_s=-0.259$, P=0.043). Family caregivers' quality of life was associated with patient's anxiety (r=0.443, P=0.001). Family caregivers' depression was affected by patient's constipation (r=0.276, P=0.046), anxiety (r=0.508, P<0.001), and daytime drowsiness (r=0.377, P=0.005). And family caregivers' anxiety was influenced by patients' sleep disturbance (r=0.276, P=0.046), depression (r=0.297, P=0.031), and anxiety (r=0.357, P=0.009). Conclusion: According to our findings, family caregivers had higher quality of life and less depression and anxiety when symptoms in hospice patients were well controlled.

• Journal of Families and Better Life
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• v.14 no.2
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• pp.77-96
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• 1996

The purposes of this study were to understand caregiving situation and to develop education program for families with the demented elderly,. Family caregivers of elderly patients with dementia clearly experience high levels of stress which often leads to such negative caregiver outcomes as depression interference with social activities and health difficulties. That is providing care is stressful for caregivers because the demands of the caregiving situation threaten to overwhelm the caregivers' coping resources. Therfore the families with demented elderly persons need assistances in order to alleviated burden of caregiving, In this study the educational program was designed to increase caregivers' confidence in problem-solving, And it was designed to provided information to demented elderly. The educational program of this study was given 5 session. And it was included the understanding of dementia the family caregiving experiences of the demented elderly persons the time for elf-care the search for helping the improving of interpersonal relations and communications.

• Human Ecology Research
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• v.59 no.2
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• pp.143-156
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• 2021

This study presents the psychometric properties of the Infant Behavior Questionnaire-Revised (IBQ-R), including internal consistency, content validity, and construct validity. The IBQ-R is a caregiver (parent) reporting instrument designed to assess temperament in infants (aged 3-12 months). Two groups of participants were included. The first group comprised 92 infants and the second 83 infants, giving a total of 175 infants (M=8.3 months, 80 boys and 95 girls). Their caregivers completed IBQ-R. The IBQ-R subscales demonstrated adequate internal consistency. Also, confirmatory factor analyses of the IBQ-R scale found that three broad dimensions: surgency, negative affectivity, and orientation/regulation. This study confirmed that the IBQ-R is a reliable and valid temperament instrument that can be recommended for evaluating temperament in infants.