• 제목/요약/키워드: parental experiences

검색결과 90건 처리시간 0.025초

Socio-economic Status Plays Important Roles in Childhood Cancer Treatment Outcome in Indonesia

  • Mostert, Saskia;Gunawan, Stefanus;Wolters, Emma;van de Ven, Peter;Sitaresmi, Mei;van Dongen, Josephine;Veerman, Anjo;Mantik, Max;Kaspers, Gertjan
    • Asian Pacific Journal of Cancer Prevention
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    • 제13권12호
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    • pp.6491-6496
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    • 2012
  • Background: The influence of parental socio-economic status on childhood cancer treatment outcome in low-income countries has not been sufficiently investigated. Our study examined this influence and explored parental experiences during cancer treatment of their children in an Indonesian academic hospital. Materials and Methods: Medical charts of 145 children diagnosed with cancer between 1999 and 2009 were reviewed retrospectively. From October 2011 until January 2012, 40 caretakers were interviewed using semi-structured questionnaires. Results: Of all patients, 48% abandoned treatment, 34% experienced death, 9% had progressive/relapsed disease, and 9% overall event-free survival. Prosperous patients had better treatment outcome than poor patients (P<0.0001). Odds-ratio for treatment abandonment was 3.3 (95%CI: 1.4-8.1, p=0.006) for poor versus prosperous patients. Parents often believed that their child's health was beyond doctor control and determined by luck, fate or God (55%). Causes of cancer were thought to be destiny (35%) or God's punishment (23%). Alternative treatment could (18%) or might (50%) cure cancer. Most parents (95%) would like more information about cancer and treatment. More contact with doctors was desired (98%). Income decreased during treatment (55%). Parents lost employment (48% fathers, 10% mothers), most of whom stated this loss was caused by their child's cancer (84% fathers, 100% mothers). Loss of income led to financial difficulties (63%) and debts (55%). Conclusions: Treatment abandonment was most important reason for treatment failure. Treatment outcome was determined by parental socio-economic status. Childhood cancer survival could improve if financial constraints and provision of information and guidance are better addressed.

발달장애아동 부모의 온라인 공동체 상호작용과 성장과정 유형에 관한 연구 (A Study on the Pattern of Growth Process of the Parents of Children with Developmental Disabilities based on Online Parental Community)

  • 이경아;김성천;장혜림;이은정
    • 한국사회복지학
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    • 제66권4호
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    • pp.181-205
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    • 2014
  • 본 연구는 발달장애아동 부모의 상호작용과 이를 통한 성장과정에 대한 이론적 모형을 제시하고자 포털사이트에서 운영되는 온라인 공동체의 게시글 중 총 250개를 근거이론방법을 활용하여 분석하였다. 연구결과에 따르면 발달장애아동 부모들은 도움이 필요하고 동질감을 갖고자 하는 인과적 조건에서 상호작용을 시작하였다. 게시자, 댓글자간의 상호작용이라는 중심현상은 각 게시자의 태도가 개방적인가, 폐쇄적인가라는 맥락적 조건과 게시자와 댓글자가 상대방을 존중하고 친밀하게 대화하는가, 일방적이고 평가적 대화인가라는 중재적 조건에 따라 주고받음이 활발해지기도 하고 숨어버리는 양상이 나타나기도 하였다. 상호작용의 중심전략으로는 의지다짐, 구체정보, 공감과 지지라는 세 개의 범주에 7개의 하위범주가 포함되었다. 건강한 성장을 이룬 발달장애 부모들은 자기 수용과 강한 유대감을 가지게 되고, 부정적 철수를 하게 되는 부모들은 신세한탄을 하거나 숨어버리는 결과를 보인다. 부모성장 과정은 세 개의 상호작용 모형인 '의지다짐', '구체정보', '공감과 위로' 모형을 통하여 설명되었고 부모성장을 위한 지원으로 경험자를 통한 신뢰와 격려 제공, 지속적인 상호작용 격려하기 그리고 비공식적 지원체계와 공식적 지원체계의 협력적 보완 등을 제언하였다.

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선천적 심질환아의 수술동의서 작성과 관련된 부모의 요구 (Needs of Parents Who have the Child with Congenital Heart Disease Related to the Informed Consent)

  • 최미영
    • 부모자녀건강학회지
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    • 제6권1호
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    • pp.18-30
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    • 2003
  • Congenital heart disease is the most frequently shown congenital disease among children, most of them can be corrected with operation. However, Patients and their parents need nursing intervention when they face this risky incident of operation. Therefore, parents' experiences are absolutely needed to plan nursing intervention to give practical help to the patients and their parents. The purpose of this study is to provide basic resources to develop a feasible intervention program for the parents by understanding the experiences related to the informed consent of cardiac surgery of their child. From January to June 2003, 10 parents of children patients with congenital heart disease were interviewed who filled out Operation Agreement before the primary operation after they are diagnosed as congenital heart disease in pediatric chest surgery of A hospital in Seoul. They were asked to give opinion regarding pre-operation needs and the interviewed information was analyzed. The results of this study are as follows : Firstly, they were asked what they felt before they were told about the operation of their children from the doctor before filling out the informed consent of operation. They felt 1) vague, 2) confusion of choose, 3) risky, 4) resented, 5) uneasy, 6) guilty, and 7) the burden of operation. Secondly, they were asked what they felt after they filled out the informed consent of operation and the doctor gave them detailed information on the operation of their children. They felt 1) confused, 2) responsible, 3) rejected, 4) angry, 5) plain, 6) to have hope, 7) trying to trust medical people, 8) that consolation is needed, and 9) conditional reduction of the burden of operation. Thirdly, followings are the categories of congenital parents' demand before operation based on the analysis of experiences related to the preparation of the informed consent of operation. 1) Information Demand (1) Anticipatory information (2) Concrete and precise information (3) Individual information 2) Support (1) Empathy (2) Parental supporting (3) Support of parents in the same situation 3) Education and consulting (1) Children-oriented Education (2) Consultation Considering the results of this study, parents of the child with congenital heart disease seem to have various emotional experiences related to filling out the informed consent and they need concrete and practical helps before cardiac surgery. This study proposes that systematic nursing intervention is needed according to the needs of the parents who have the child with congenital heart disease before operation in the field of child health nursing.

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어머니의 아동기 경험, 부모역할 만족도 및 배우자의 부모역할 지지와 아동이 지각한 어머니의 자녀양육 행동 간의 관계 (Children's Perception of their Mother's Child-rearing Behaviors in Relation to the Mothers' Childhood Experiences, Satisfaction as a Parent and Spousal Support in Parenting)

  • 이진선;정문자
    • 대한가정학회지
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    • 제45권5호
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    • pp.85-94
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    • 2007
  • The purpose of this study was to examine the relationships between mothers' childhood experiences, satisfaction as a parent, spousal support in parenting and their children's perception of their child-rearing practices. The subjects were 321 fifth and sixth graders from two elementary schools in Seoul and their mothers. A revised version of the Mother-Father Peer Scale (MFPS; Epstein, 1983) was used to assess the mothers' child experiences. To measure parental satisfaction, the Parent Satisfaction Scale (PSS; Duke, Rose, & Halverson, 1997) was revised and used. A modified version of the Teamwork of Parenting Alliance Inventory (PAI; Abidin, 1988) was used to assess spousal support in parenting. A modified version of the Child-rearing Behaviors Questionaire (Park, 1995) was used to assess the mothers' child-rearing practices. The data were analyzed with descriptive statistics and a t-test. The results of this study were as follows. 1) Mothers who received a greater degree of independence encouragement and acceptance from their fathers tended to show more warmth/acceptance in their child-rearing practices than those who received a lesser degree of independence encouragement and acceptance from their fathers. Mothers who received a greater degree of independence encouragement from their own mothers tended to show more warmth/acceptance of their children but less permissiveness/nonintervention and rejection/restriction in their child-rearing practices when compared to those who received a lesser degree of independence encouragement from their own mothers. The mothers who received a greater degree of acceptance from their own mothers tended to show more warmth/acceptance of their children but less rejection/restriction in their child-rearing practices when compared to those who received a lesser degree of acceptance from their own mothers. 2) Mothers who had a greater degree of satisfaction as a parent tended to show more warmth/acceptance but less rejection/restriction in their child-rearing practices than those who had a lesser degree of satisfaction in parenting. 3) Mothers who received a greater degree of spousal support in parenting showed more warmth/acceptance in their child-rearing practices than those who received a lesser degree of spousal support.

아버지의 부성경험: 다양한 역할수행의 긴장과 갈등 (Men's fathering experiences focused on tensions and conflict of multiple roles)

  • 양소남
    • 디지털융복합연구
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    • 제11권2호
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    • pp.375-383
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    • 2013
  • 본 연구는 기혼 유자녀 맞벌이 남성의 부성역할 수행 경험을 탐색하는 것으로 목적으로 한다. 이를 위해 심층면담과 문서를 활용하여 자료를 수집하였으며, 맞벌이 아버지 10명이 연구에 참여하였다. 자료수집은 2012년 9월부터 12월 사이에 이루어졌으며, 수집된 자료는 분석적 귀납에 근거한 지속적 비교분석방법을 사용해 분석하였다. 자료의 분석결과 참여자들은 바람직한 아버지 상에 대한 인식과 실제적인 역할 수행의 불일치, 생계부양자와 돌봄 제공자 역할 수행으로 인한 긴장, 그리고 자녀에 대한 헌신과 직업적 성취욕구 간의 갈등을 경험하고 있었으며, 이러한 갈등은 점진적으로 가족 의사소통과정에서의 소외라는 결과를 가져왔다. 이를 토대로 아버지의 적극적인 가족생활 참여를 지원하기 위한 사회적 인식 제고방안과 함께 가족, 노동시장, 지역사회, 그리고 정부 차원의 다각적인 접근과 제도의 운영을 제안하였다.

재미한인노인의 생성감과 손자녀 양육경험 (Korean Immigrant Elderly's Generativity and Care-giving Experiences of Their Grandchildren)

  • 오경석
    • 한국보육지원학회지
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    • 제6권1호
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    • pp.1-21
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    • 2010
  • 본 연구는 재미한인노인의 생성감 수준에 따라 그들의 손자녀 양육경험이 어떠한 특정을 보이는가를 살펴보았다. 심층면접과 참여관찰법이 연구방법으로 이용되었다. 먼저 재미한인노인의 생성감 수준을 측정하였다. 생성감 수준이 낮은 노인과 높은 노인으로 각각 4명이 연구에 참여하였다. 생성감 수준이 낮은 조부모들은 비자발적 양육책임, 심한 양육스트레스, 가족에 대한 죄책감과 수치심, 불안한 미래, 자기 돌봄의 부재, 사회적 지지의 부재를 나타내었다. 생성감 수준이 높은 조부모들은 자발적 양육책임, 역전된 부모역할에 대한 긍정적 반응, 양육에 대한 보람, 미래에 대한 희망, 자기 돌봄의 존재, 사회적 지지의 존재를 특징으로 보여주었다. 마지막으로 연구결과에 대한 논의와 제안을 하였다.

손자녀 양육지원에 따른 조모와 취업모의 관계 경험 : 세대 간 지원 제공 및 수혜의 의미 (Providing and Utilizing Child Care by Grandmothers in South Korea : Grandmothers' and Employed Mothers' Relationship Experiences)

  • 이재림
    • 가정과삶의질연구
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    • 제31권2호
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    • pp.1-24
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    • 2013
  • The purpose of this study was to understand the lived experiences of grandmothers who provide child care services to their grandchildren and employed mothers who utilize child care by grandmothers, with regards to their relationships while exchanging the specific type of intergenerational support. The data for this study came from 42 in-depth, individual interviews with 21 pairs of employed mothers who had at least one child younger than elementary-school age and their mothers or mothers-in-law who had provided child care on a daily basis for their grandchildren. Our phenomenological analysis revealed that the grandmothers felt uncomfortable and overwhelmed when caring for their grandchildren and that they considered this activity to be different from caring for their own children by nature. However, the grandmothers wanted to help their adult children based on their feeling of "boo-mo-ma-eum" (meaning parental heart, i.e., love or care). The employed mothers perceived that they were substantially dependent on the grandmothers by receiving help with child care and housework. Reliance on grandmothers was inevitable and beneficial to these mothers. Dynamic intergenerational living arrangements enabled the dependent relationships. The grandmothers set specific boundaries pertaining to current and future child care so that they would not take on too much responsibility for child care. The mothers used various strategies that contributed to stable child care support from the grandmothers. Providing financial remuneration was an important strategy that had symbolic relational meanings, such as expressing gratitude, rather than financial meanings.

아동작업치료사의 부모상담 경험에 관한 현상학적 연구 (The Phenomenological Study on Parents Consultation Experiences of Pediatric Occupational Therapists)

  • 박주영;정남해
    • 대한감각통합치료학회지
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    • 제19권2호
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    • pp.46-59
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    • 2021
  • 목적 : 아동작업치료사의 부모상담에 관한 경험을 현상학적으로 탐색하여 추후 부모상담 기술 향상을 위한 프로그램 마련의 근거로 활용하고자 하였다. 연구방법 : 연구 방법은 Colaizzi의 현상학적 연구 방법을 적용하였다. 임상경력 8년 이상으로 사설센터에서 근무하는 아동작업치료사 6명을 대상으로 전화 인터뷰를 실시하였다. 인터뷰 내용은 연구참여자의 동의하에 녹음하였으며, 추가적인 내용 확인은 이메일로 받았다. 녹음된 내용은 전사 뒤 분석하여, 아동작업치료사의 부모상담 경험의 의미와 본질을 기술하였다. 결과 : 면담 내용을 분석한 결과 2개의 범주화, 4개 주제모음, 21개의 주제가 도출되었다. 2개의 범주화에는 부모상담의 중요성과 부모상담에 영향을 미치는 요소가 있었고, 4개의 주제모음에는 부모상담의 의미, 부모-아동-치료사 간의 상호성, 치료사의 노력, 필요한 역량이 있었다. 결론 : 본 연구의 결과는 초임 아동작업치료사에 의미있는 자료로 활용될 수 있으며 앞으로 아동작업치료사의 부모상담 기술 향상을 위한 교육 프로그램이나 자료 개발의 기초자료로 활용될 수 있을 것이다.

부모의 국적에 따른 다문화가정 청소년의 구강 증상 경험: 제16차 청소년건강행태조사 (Oral symptom experiences in adolescents among multicultural families according to the parental nationality: The 16th Korean youth health behavior survey)

  • 유자혜;이민영;김영숙
    • 한국치위생학회지
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    • 제23권1호
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    • pp.73-82
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    • 2023
  • Objectives: This study aimed to evaluate the oral symptoms experiences of Korean adolescents among multicultural families. Methods: Data on 985 participants from the 16th Korea Youth Risk Behavior Web-based Survey were collected and analyzed using complex sample descriptive statistics. Results: The foreign-born mother, foreign-born parents, and foreign-born father rates were 77.2%, 17.3%, and 5.4%, respectively. The toothache, gingival bleeding, tooth fracture, and tooth sensitivity experience rates were 21.3%, 18.8%, 13.3%, and 30.4%, respectively. The tooth fracture rate was highest in the foreign-born parents group (24.6%). The toothache odds ratio (OR) was 1.71 (95% CI: 1.24-2.37) times higher in girls. The foreign-born mother group was 2.47 (95% CI: 1.09-5.60) times higher than that of the foreign-born father or both parents foreign-born groups. The smoking group was 2.03 (95% CI: 1.20-3.43) times higher than that of the non-smoking group. The gingival bleeding OR was 5.11 (95% CI: 1.80-14.53) times higher in the lowest economic status group. The tooth fracture OR was 3.44 (95% CI: 1.01-11.70) times higher in the lowest economic status group. The tooth sensitivity OR was 1.53 (95% CI: 1.14-2.04) times higher in girls. Conclusions: It is necessary to establish a program to promote oral health of adolescents from multicultural families.

자녀의 소프트웨어 교육에 대한 학부모 의지에 미치는 요인의 구조방정식 모형 (The Structural Equation Modeling of Factors Affecting the Parent Willingness on Child's Software Education)

  • 류미영;한선관
    • 정보교육학회논문지
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    • 제20권5호
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    • pp.443-450
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    • 2016
  • 본 연구에서는 학부모가 자녀의 SW교육 의지에 미치는 영향이 무엇인지 분석하였다. 구조방정식 모형을 설계하기 위해 변인을 자녀의 SW 관심도, 부모의 SW정책 인식, SW관련 역량, 자녀의 SW 진로, 자녀에 대한 SW교육 의지로 설정하고 SW교육 경험이 있는 자녀를 둔 부모를 대상으로 검사하였다. 연구 결과 자녀의 SW 교육에 대한 학부모 의지에 미치는 요인은 자녀의 SW 관련 직업을 매개로 SW관련 정책과 SW 역량의 중요성에 대한 인식이 중요한 변인으로 작용하였고, 자녀의 SW 관심도는 직접적으로 중요한 요인임을 밝혔다.