• Title/Summary/Keyword: lack of support from parents

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The Experience of Parents Whose Child is Dying with Cancer (암 환아 부모의 경험에 대한 질적 연구)

  • ;;Ida Martinson
    • Journal of Korean Academy of Nursing
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    • v.22 no.4
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    • pp.491-505
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    • 1992
  • The purpose of this research was to understand the structure of the lived experience of parents of a child terminally ill with cancer The research question was “What is the structure of the experience of parents of a child terminally ill with cancer\ulcorner” The sample consisted of 17 parents of children admitted to the cancer units of two university hospitals in Seoul. The unstructured interviews were carried out from October 10, 1991 through January 10, 1992. They were audio-recorded and analysed using Van Kaam's method. Parents ascribed the cause of the cancer to the mother's emotional imbalance during pregnancy, the mother's stress, failure to observe religious rites, food, the parent's sin, misfortune and pollution. The theme clusters were tension, fear and depression experienced during pregnancy, stress that children suffer from abusive parents, failure to observe religious activites, bad luck, and sins committed during a previous life. When the child suffered a recurrence of cancer, the parents experienced negative emotions, nervousness, sorrow. depression and death. The theme clusters were feelings of despair, helplessness, regret, guilt, insecurity, emptyness and apathy. The long struggle with cancer resulted in the loss of economic security, loss of psychological and physical well being, and social withdrawal. The theme clusters were the economic burden of medical cost, giving up treatment, debt, limited medical insurance coverage and blood transfusion. The loss of psychological well being included stress, lack of support systems, inability to carry out responsibilities, lack of trust of the medical ten family breakdown, inappropriate expression of emotion and not disclosing the diagnosis to the child. Physically the parents suffered fatigue, insomnia, loss of appetite, loss of weight, dizzness, headache, psychosomatic symptoms, and increased consumption of liquor and cigarettes. Social withdrawal was manifested by taking time off from work to look after the child, decrease of outside social activities and feelings of isolation. Influences on family life were spousal conflicts, negative response of siblings, separation of the family members and economic hardship. The theme clusters were blaming a spouse for the cause of the illness and disagreements, maladjustment, lonliness, hostility and depression of siblings. The high price of medical care over the long period was a major factor influencing the life of the family. Positive experiences during the child's long illness were the strengthening of support systems and religious beliefs and financial help from social organizations. The support of one's spouse primarily helped to overcome the stress of the long illness. In addition, support was received from parents of other children with cancer and from nurses and religious leaders. The nurse, by providing empathetic support, should be a person with whom parents can express their feelings and share their experiences.

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Acceptance and Effectiveness of Distance Learning in Public Education in Saudi Arabia During Covid19 Pandemic: Perspectives from Students, Teachers and Parents

  • Alkinani, Edrees A.
    • International Journal of Computer Science & Network Security
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    • v.21 no.2
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    • pp.54-65
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    • 2021
  • The movement control order and shutting down educational institution in Saudi Arabia has jeopardized the teaching and learning process. Education was shifted to distance learning in order to avoid any academic loss. In the middle of the Covid-19 crisis, there is a need to assess the full image of e-learning in Saudi Arabia. To investigate student and teachers' perception and acceptance, parents' attitudes and believes about distance education are the main goals of the study. The mix-method research design was employed to collect data. Three surveys were distributed to 100 students and 50 teachers and 50 parents from different educational institutions in Saudi Arabia, while semi-structured interviews were conducted with 10 parents. Random stratified and convenient sampling methods were adopted. Both descriptive and content analysis was conducted using SPSS25.0 and NVIVO software for quantitative and qualitative data accordingly. The findings showed that students are comfortable with remote education and are receiving enough support from schools and instructors but they think online education can't replace conventional face-to-face learning. Moreover, the results showed that teachers are having challenges in preparing online classes because of the development of conducting online classes and the lack of training. However, parents showed negative attitudes regarding the benefits and values of remote education and preferred conventional learning styles in elementary schools. Parents tended to reject and resist distance learning for several reasons: professional knowledge and lack of time to support their young kids in online classes, the shortcomings of e-learning, young children's inadequate self-regulation. Saudi parents are neither trained nor ready to use e-learning. The study provided suggestion and implications for teacher education and policymakers.

Environmental Factors, Types of Bullying Behavior, and Psychological and Behavioral Outcomes for the Bullies (괴롭힘 가해자의 환경적 요인, 괴롭힘 행동유형, 가해자의 심리.행동적 결과에 대한 연구)

  • Lee, Myung-Shin
    • Korean Journal of Social Welfare
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    • v.51
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    • pp.29-61
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    • 2002
  • This study was designed to find out the determinants of types of bullying behavior, and the effects of types of bullying behavior on the bullies. For this purpose, a hypothetical model which explains the relationships among 6 environmental factors, 5 types of bullying behavior, and 5 outcome variables for the bullies was developed. Using the data collected from 177 junior and high school students who have bullied the other students, the hypothetical model was tested. For data analysis, a path analysis was used, and the best-fitting model was found (df=78, GFI=0.953, CFI=1.00). As a result of analyzing the model, types of bullying behavior were found to be determined by the different environmental factors: Isolation was determined by 2 factors (feeling of isolation from friends, exposure to bullying), social bullying by 2 factors (lack of support from parents, exposure to bullying), verbal bullying by conflicts with parents, physical bullying by 3 factors (lack of support from parents, exposure to isolation and exposure to bullying), and instrumental bullying by lack of support from parents. On the other hand, the pleasure that the bullies feel after bullying behavior was increased by isolation, verbal bullying and physical bullying, while decreased by instrumental bullying. Guilt feeling was decreased by isolation and instrumental bullying, while increased by physical bullying. Isolation increased the tendency of blaming the victim. Isolation and instrumental bullying increased bullies' self-esteem, while social bullying decreased self-esteem. Verbal bullying increased the extent of bullying, while instrumental bullying decreased the extent of bullying. Based on the findings, the intervention strategies to change the bullies' attitudes toward victim, and to increase social support from the significant others as well as the effective ways to reorganize the school environment in order to reduce and prevent bullying behavior were suggested.

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Transfer anxiety in parents of children transferred from pediatric intensive care units to general wards in South Korea: a hybrid concept analysis

  • Park, Jisu;Choi, Eun Kyoung
    • Child Health Nursing Research
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    • v.28 no.2
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    • pp.154-165
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    • 2022
  • Purpose: This study aimed to analyze the concept of transfer anxiety in parents of children transferred from pediatric intensive care units to general wards. Methods: The hybrid model by Schwarz-Barcott and Kim was used to analyze the characteristics of transfer anxiety in parents of children transferred from pediatric intensive care units to general wards. Results: Transfer anxiety was defined by the following attributes: 1) stress concerning the adaptation process, 2) concern about the child's condition worsening due to the parent's caregiving, and 3) involuntary changes in daily life due to the treatment. Transfer anxiety has the following antecedents: 1) uncertainty; 2) a lack of knowledge about the illness, medical devices, and caregiving; and 3) a lack of social support. It resulted in 1) caregiver burden, 2) a decrease in the capacity for coping with caregiving, 3) delays in the child's physical and psychological recovery, and 4) decreased quality of life. Conclusion: It is necessary to develop an assessment scale that considers the attributes of transfer anxiety in parents of children transferred from pediatric intensive care units to general wards. Furthermore, an effective nursing intervention should be developed to reduce transfer anxiety.

Compensatory Support Among Children's Peer Relationships: School Friends, Nonschool Friends, and Sibilings (학령기아동의 친구관계에 따른 대체지지에 관한 연구)

  • Choi, Yong Joo;Lee, Jae Yaon
    • Korean Journal of Child Studies
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    • v.14 no.1
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    • pp.109-127
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    • 1993
  • This study examined compensatory patterns of support among three types of children's peer relationships: school friendships, nonschool friendships, and sibling relationships. Specifically, this study investigated (1) the degree to which children with unsupportive school friendships turn to nonschool friends and siblings to compensate for the provisions they lack from school friends, and (2) the potential protective effects of substitute support on such children's adjustment. Subjects for this study were drawn from a sample of 297 sixth graders attending 3 public schools in Seoul. 6 teachers and 594 of parents of subjects also participated in the study. Subjects completed their questionnaires in their own classroom. The teachers and parents completed their forms within 1 week. The data were analyzed by two-way ANOVA and $Scheff{\acute{e}}$ test. The results of this study were as follows: (a) When compared with the average, aggressive children and isolated children perceived their school friendship as low support. (b) Isolated, aggressive, and average children differed in their perceptions of support from nonschool friends and their favorite siblings. (c) The children who have unsupportive school friendships experienced greater socioemotional difficulties than did children with supportive school friendships. (d) The extent that sibling and nonschool friends provided the support lacking in their school friendships, isolated and aggressive children experienced diminished emotional distress.

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Uncertainty, Self-Efficacy & Coping in Parents′ of Children with Cancer (암환아 부모의 질병에 대한 불확실성, 자기효능감 및 대처정도)

  • Oh Won Oak;Park Eun Sook
    • Child Health Nursing Research
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    • v.4 no.2
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    • pp.274-285
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    • 1998
  • Improvements in therapy have resulted in increasing numbers of children being successfully treated for cancer. However the agrressiveness of therapy & uncertainty about prognosis are associated with many adverse effects, psychological as well as physical for both the child & family. The purpose of this study were to measure the degree of perceived uncertainty, self-efficacy & coping, and then to examine the relationship between the perceived uncertainty, self-efficacy & coping in parents of children cancer patients. The subjects of this study consist of 140 parents with pediatric cancer, registered at pediatric cancer ward & Out Patient Department. Data was collected from July 1st to August 15th 1998. The tools used in this study were Mishel's the Parents' Perception of Uncertainty Scale (28 item, 4 likert scale), Shere's Self-Efficacy Scale (17 item, 5 likert scale) & Folkman & Lazarus Ways of Coping Checklist(34 items, 4 likert scale). Data was analyzed by t-test, Anova, Pearson Correlation coefficient. Results of this study are summerized as follows 1. Parents perceived their uncertainty to be slightly high(Mn 2.41). The degree of perceived uncertainty by the four components were followed as lack of clarity (2.60), unpredictability(2.59), ambiguity(2.51) & lack of information(1.90). The degree of perceived uncertainty of parents with pediatric cancer revealed to be influenced significantly by the family outcome, reliability about health care provider & perceived severity of illness. 2. The range of parents' self-efficacy was measured iron 35 to 85 point, so revealed slightly high. The degree of self-efficacy related to be Influenced signiicantly by the sequency of child birth, family religion & degree of perceived support. 3. The degree of parents' coping was measured slightly high (Mn 2.78). The degree of coping related to be influnced significantly by the sequency of child birth, number of sible & degree of perceived support. 4. parents' uncertainty was related inversely to the parents' self-efficacy(r=-.38, p<.001) & coping(r=-.26, p<.001). And also parents' self-efficacy was positively related to coping(r=.56, p<.001) From the above results, it can be concluded that predicting & controlling parents' uncertainty with children cancer are necessary to improve positive coping strategies. This information may be used as a foundation for developing nursing interventions to decrease perceived uncertainty & to foster self-efficacy & coping for parents with children cancer.

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Exploring the Psychosocial Characteristics and Systematic Support of Academically Maladjusted Students (의과대학 학업부적응 학생의 심리사회적 특성과 체계적 지원방안에 대한 탐색)

  • Park, Young-Soon;Chun, Kyunghee;Lee, Tae Hee
    • Korean Medical Education Review
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    • v.24 no.3
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    • pp.215-230
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    • 2022
  • The purpose of this study was to explore the psychosocial characteristics of academically maladjusted students and the College's current status regarding academic maladjustment based on 4-year medical student cohort data collected from 2018 to 2021 and through interviews with 10 medical education experts using the integrated research method. This study included 223 students who consented to inclusion in the student cohort and participated in the emotional behavior test and college adaptability test of whom 65 students experienced academic maladjustment. Academically maladjusted students had significantly higher scores for social stress, anxiety, sense of inadequacy, attention, hyperactivity, and school maladjustment, and significantly lower scores for relationships with parents, interpersonal relationships, self-esteem, self-confidence, and self-strength. Academic and social integrity, emotional stability, university satisfaction, and university service satisfaction were all significantly lower in the academically maladjusted students than in the non-maladjusted group. The expert interviews indicated that academic maladjustment was mainly recognized as a personal problem, with causes such as lack of motivation and learning methods, vulnerability to stress, lack of social relationships and alienation, lack of support from the family, and insufficient resilience. Systematic support other than counseling for academically maladjusted students is required, and an early diagnosis and preventive intervention are important.

Development of a Scale to Measure Life Transition Process in Parents of Children with Autism (자폐성장애 아동 부모의 삶의 전환과정 측정도구 개발)

  • Lee, Ae Ran;Hong, Sun Woo;Ju, Se Jin
    • Journal of Korean Academy of Nursing
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    • v.42 no.6
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    • pp.861-869
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    • 2012
  • Purpose: The purpose of this research was to develop a scale to measure the life transition process of parents of children with autism, against the backdrop of a lack of research on this topic. Methods: Seventy preliminary items were drawn from previous qualitative research, and content validity was tested by three professors as well as three parents of children with autism. A questionnaire survey was also done between August 2011 and February 2012. Data were collected from 207 parents of children with autism and analyzed using descriptive statistics, item analysis, Cronbach's alpha, Pearson correlation coefficients, and factor analysis with the SPSS Win 15.0 program. Results: Twenty-nine items were selected to constitute the appropriate measuring scale and categorized into 5 factors explaining 63.2% of the total variance. The 5 factors were named; stages of denial (5 items), wandering (6 items), devotion (7 items), frustration (3 items), and finally acceptance (8 items). Cronbach's alpha for the 29 items was .80. Conclusion: The results of this study not only suggest assessment criteria for the life transition process of parents who have children with autism but also provide basic directions for program development to provide differentiated support and care at each stage.

Understanding the Perspectives of Paediatric Physicians on Physiotherapy in Paediatric Rehabilitation in Chennai, India: A Qualitative Approach

  • Vadivelan Kanniappan;Abishek Jayapal Rajeswari;Pearlyn Esther Padma Lawrence;Subash Sundar
    • Journal of Preventive Medicine and Public Health
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    • v.57 no.2
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    • pp.157-166
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    • 2024
  • Objectives: Children with disabilities may exhibit a multitude of symptoms, and treatment requires a multidisciplinary approach for a satisfactory outcome. Lack of awareness among physicians, lack of referral, and lack of inter-sectoral coordination have hindered paediatric practice in Tamil Nadu, a state in India with a striking childhood disability rate that warrants a timely interdisciplinary approach. However, the perspectives of paediatricians on paediatric physiotherapy are unknown. The aim of the study was to investigate the perspectives of practicing paediatric physicians in Chennai on the role of physiotherapy in paediatrics. Methods: For an in-depth exploration, qualitative semi-structured interviews were conducted in person with 10 paediatricians. Audio from the sessions was recorded and transcribed, and data saturation was achieved through iterative analysis. Results: A grounded theory analysis of the results yielded 5 domains under which the perspectives and expectations of the physicians were described, along with the barriers experienced by patients' parents as explained by their paediatrician. The responses highlighted deficits in awareness, structural support, accessibility and direct communication between physicians and physiotherapists. Conclusions: Paediatric physicians have different opinions, and some ignorance persists concerning paediatric physiotherapy. This study warrants a proper structure of the paediatric rehabilitation unit and regular interdisciplinary meetings and focus group discussions to increase access for parents and improve patient outcomes.

Foreign Immigrant Mothers' Experiences of Pregnancy, Childbirth, and Child Rearing (결혼이민자 어머니의 임신, 출산 및 영유아 양육 경험)

  • Bang, Kyung-Sook;Huh, Bo-Yun
    • Korean Parent-Child Health Journal
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    • v.14 no.1
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    • pp.36-44
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    • 2011
  • Purpose: This study was conducted to explore foreign immigrant mothers' experiences of pregnancy, childbirth, and child rearing. Methods: Ten married female migrants were selected by a purposive and snowball sampling method. Data were collected during the period from September to November, 2009 by individual in-depth interviews and all interviews were audio-taped and transcribed verbatim. Results: Ten categories were induced: In pregnancy and childbirth domain, social support-request help to their own parents, social support-depending on husband and mother's in law, Enduring emesis-gravidarum in strange environment were extracted. In Chid-rearing domain, child-rearing overburden, lack of self-confidence on maternal role, child-rearing difficulties due to language barrier, lack of information and education on child-rearing, lack of accessibility to public health care services, expectation of child's assimilation in Korea, financial strain in child-rearing. Conclusion: This study provides basic knowledge regarding married female migrants' experiences related to pregnancy, childbirth, and child rearing. The findings of the study will help health professionals designing effective interventions for married female migrants with difficulties related to child care, parenting, rearing.

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