This study attempts to examine the factors influencing the Caregiving responsibility of sibling without disability on their adult siblings with intellectual disability. For this purpose, a questionnaire survey was conducted on siblings without disability who have adult siblings with intellectual disability aged 18 years old or more and also who use services provided by 8 welfare centers for persons with disabilities in Seoul. With 132 valid responses, multiple regression technique was adopted in exploring a model for characteristics of adult with intellectual disability, a model for characteristics of siblings without disability, a model for relationship factors, and a comprehensive model. The findings of the study showed that the degree of disability in the model for characteristics of adult siblings with intellectual disability and the intimacy of siblings and social support in the model of relationship factors were significant. The result of the comprehensive model revealed that the degree of disability, the gender of the siblings without disability, the intimacy of siblings, and social support were significant. Especially, the relationship factors including the intimacy of siblings and social support were found to be the most significant factors in order to explain the caregiving responsibility. The findings of the study suggest that sibling program needs to be developed and disseminated in order to increase the understanding and the trust between adult with intellectual disability and sibling without disability, that a help is critical for adult with intellectual disability to extend the social network in which sibling without disability receives support from sibling without disability, family, friends, and other acquaintances around, and that different approach is needed in order to reduce caregiveing difficulties depending on the dependence of disability.
Journal of Family Resource Management and Policy Review
/
v.18
no.4
/
pp.111-133
/
2014
The Purpose of this study was to explore the generational conflicts around adult children's taking care of elderly parents and grandparents' caring for grand children. The results of this study were as follows. First, the child care responsibility of the parents' generation is much more intense than that of the parent care responsibility of the children's generation. Second, the norm of parent care has changed from being the responsibility of the eldest son to being the responsibility of all of the children, which had led to an increased probability of conflicts between the two generations due to the differences in expectation and reward. Third, the bilateralization of the kinship increases the responsibility of women in taking care of their families, which leads to an increase in conflict among women of different generations. Finally, the generational conflicts related to family care appear across different social classes.
Background: The healthcare needs of cancer patients are complex and persons involved in their caregiving process are faced with many issues that need to be addressed. The entire family and particularly the person taking on responsibility for patient care develop expectations from healthcare professionals, especially nurses. Objective: The study was conducted to evaluate the impact of a home education program provided to caregivers of cancer patients on the level of their perceived social support and problems in caregiving. Interventions/Methods: The caregivers of thirty seven cancer patients of 2,400 registered people in a family center were given an educational program in this descriptive and cross-sectional study twice a week for a month during the period of March 2011 - April 2011. Results: Of all caregivers, 56.8% were between the ages 36-40, 94.5% were female, 91.9% had received no education on caregiving, 81.0% stated that they mostly felt physically and mentally inadequate in their caregiving. Perceived Social Support from the family indicated a significant difference at $8.05{\pm}4.38$ before and $11.7{\pm}4.97$ after the education. A comparison of the mean scores of caregivers on emotional issues before and after the education revealed the following: spiritual distress scores were $2.54{\pm}0.69$ before and $2.44{\pm}0.43$ after the education; hopelessness scores, $2.24{\pm}0.59$ before and $2.23{\pm}0.38$ after the education; ineffective individual coping was $3.89{\pm}1.42$ before and $2.45{\pm}0.59$ after the education; competing needs in decision-making were $3.54{\pm}0.69$ before and $2.10{\pm}1.24$ after the education; depressive feeling were $3.01{\pm}1.53$ before and $2.02{\pm}0.99$ after the education (p<0.05). Conclusions: Positive effects of home education on levels of perceived social support and caregiving problems of caregivers of cancer patients were observed. Home educational programs for caregivers of cancer patients are important for both better understanding of the requirements of their patients and themselves.
The number of grandparents who have responsibility for raising their grandchildren is growing. The present study examines the extent of this phenomenon and some of the issues these grandparents face in surrogate parenting. The sample consists of 69 grandparents(63 grandmothers and 6 grandfathers) of grandchildren who have lived with them at least 6 months without their parents. The grandparents raising grandchildren reported that caregiving bought negative changes in relations with their own children, economic situation and health condition. They concerned most about the issue of good mannered behavior of grandchildren and making good friends and needed social supports in terms of house cleaning and cooking and transportation for after school activities. Caregiver burden was related to the number of family members, the degrees of life changes, economic hardship due to caregiving, grandchildren's school performance and the relations with granparents' own children.
This study examined what factors were associated with psychological well-being of grandparents providing daily care to their grandchildren. More focus on the role of various mediators such as caregiving perception and resources were given to investigate the complicated relationships between providing care and psychological function. I used the nationally representative data from the '2008 Korean National Survey of Welfare Need in the Elderly'. Results showed that there were diverse circumstances of caregiving. Grandparents who cared their grandchildren on behalf of dual career parents emerged predominantly from them. Findings also suggested that type of caregiving was related to external factors. Grandparents shouldering greater responsibility for their grandchildren showed lower levels of resources such as financial conditions and social support, and more negative perception of caregiving, which in turn was associated with lower psychological well-being. Finally, more financial resource and neighborhood support directly influenced more positive perception of caregiving. To enhance resources and empower grandparents raising their grandchildren, community-based intervening mechanism incorporating various environments and effective services to meet the needs of grandparents should be discussed in future studies.
The purpose of this study was to develop the generative fathering scale to measure fathers' active involvement of parenting. Subjects were 188 fathers of early childhood from Jeonju. To begin with, the concept of generative fathering was discussed in the theoretical review, and then the measurement was comprised of two dimensions(the parental involvement of fathers and paternal responsibility) The parental involvement of fathers : thirty of 37 items were selected through the item analysis, and that 30 items were analyzed by factor analysis. The result of factor analysis indicated that the parental involvement of fathers comprised of three factors(developmental support, caregiving and monitoring, shared activities). paternal responsibility : this was analyzed through the same process above, two factors(responsibility as a resource provider and responsibility as a child-rearing)were extracted by factor analysis. The construct validity was supported and the internal consistency of this two sub-scale appeared to be at an acceptable level, and were considered to be useful way to measure generative fathering.
Purpose: This study done to identify the experiences of families caring for patients with terminal cancer. The question was, "What is the caregiving experience of a family who has a member with terminal cancer?" Methods: Grounded Theory was applied and in-depth interviews were done with 11 family members. Interviews were recorded with the interviewees' consent and were transcribed and analyzed. Participants' relationships to patients were 6 spouses, 4 daughters, and 1 mother. The ages of the participants were between 32 and 62, with an average of 47.5. Results: The study showed "enduring with bonds" as the main category and the main factor affecting this category was the "patients' diagnosis of terminal cancer." The caregiving experience was divided into four stages: shock, confusion, struggle, and acceptance. Mediating factors were relationship with the patient, intimacy with the patient, social support, communication, and trust. Conclusively, participants underwent internal maturity, and changes occurred in family and social and personal life. Conclusion: The families took care of the patients with responsibility and love. The study results should help with the understanding of a family with a member with terminal cancer and should be used to develop nursing, mediating, and consulting programs for these caregivers.
The purpose of this study is to examine the relationship between caregivng stress and depression of the caregiver. The data was collected through by a survey on to married adults who are responsible for the care of old parents. The survey(by purposive sampling) was conducted over the course of for the three months duration from Jan. to Feb. 2014. A total of Finally, 307 copies of the questionnaire retrieved were used for analysis. First, in the case of women, those in their 50s or over, and in the all both gender cases, those who live in rural area, and those who perceive their economic levels as 'low' tend to have higher caregivng stress than other kinds of groups. Second, those who do not have spouses, and those who perceive their economic levels as 'low' tend to have higher depression than other kinds of groups, and those who hold the whole responsibility of caring old parents had a severe high depression. Third, it was found that the greater higher the caregivng stress of caregivers get, the more serious higher their stresses become get.
The purpose of this study was to investigate the factors associated with instrumental support (i.e., economic and practical support) from parents to their adult children. We examined both parents' attitudes toward instrumental support for adult children and parents' actual provision of instrumental support. From the data of the 2010 second National Survey of Korean Families, we selected 532 mothers and 524 fathers who were married and had at least one adult child aged over 25. Multiple regression analyses by the parents' gender showed that fathers were more likely to agree with instrumental support for adult children in general when they had unmarried children, had a lower household income level, had a lower evaluation of their socio-economic class, were satisfied with their own household economic situation, had positive attitudes toward caregiving for elderly parents, and were satisfied with their couple relationships. For mothers, they were more likely to agree with instrumental support for adult children in general when they had positive attitudes toward caregiving for elderly parents, were satisfied with their couple relationships, and perceived their child as someone to rely on in times of difficulties. Our analyses of the actual provision of support indicated that fathers tended to provide more support when they perceived that they were healthy, had unmarried children, were less satisfied with their household economic situation, had negative attitudes toward child-rearing, and reported a higher quality of parent-child relationship. For mothers, they were more likely to provide actual support when they were healthy, had unmarried children, had a higher level of household income, were financially preparing for later life, and less satisfied with their couple relationships. The findings of this study imply that it is imperative to distinguish the attitudes toward support from the actual provision of support and to also consider parents' gender in the literature on instrumental support for adult children.
Under the Korean mental health circumstances where familistic culture is predominant and social resources are limited, siblings are an important presence that effect chronically mentally ill people's lives. Despite this fact, our society in some aspect overlooks their importance. Therefore, this study is focused on the role of siblings as caregivers of chronically mentally ill adults and is conducted to understand the relevant process and types of how siblings fulfill the role of caregivers. In order to achieve this goal, data was collected from nine study participants through individual interviews and focus group interviews and its contents were analyzed according to Grounded Theory. The results revealed that the siblings' experiences as caregivers of chronically mentally ill people were mainly categorized as 'carrying painful memory, responsibility, and concern about the obscure future of the mentally ill sibling and finding a caring role different from those of parents.' Moreover three types of sibling caregivers were recognized: 'reality-adapting, obligation fulfilling' type, 'sacrificial self-responsibility fulfilling' type, and 'growing guardianship creator' type. This research aimed to vividly deliver the voices of research participants and proposed social support and permanent planning services based on the experiences and desires unique to siblings.
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