• 제목/요약/키워드: care burden

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Head and Neck Cancer: Global Burden and Regional Trends in India

  • Mishra, Anupam;Meherotra, Rohit
    • Asian Pacific Journal of Cancer Prevention
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    • 제15권2호
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    • pp.537-550
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    • 2014
  • The actual burden of head and neck cancer in India is much greater than reflected through the existing literature and hence can be regarded as a 'tip of iceberg' situation. This has further been evident by the recent reports of 'Net-based Atlas of Cancer in India'. South-east Asia is likely to face sharp increases of over 75% in the number of cancer deaths in 2020 as compared to 2000. Since the percentage increase of Indian population has been nearly twice that of the world in last 15 years there is a likelihood of increase in cancer burden with the same proportion. The distribution of population based cancer registries is grossly uneven with certain important parts of the country being not represented at all and hence the current cancer burden is not reflected by registry data. However, the pathetic situation of health care system in major parts of the country as also emphasized by the World Bank, is not suitable to provide anywhere near accurate data on cancer burden. Head and neck cancer (including thyroid lesions) is third most common malignancy seen in both the sexes across the globe but is the commonest malignancy encountered in Indian males. Also oral cavity cancer is the most prevalent type amongst the males and one of the highest across the globe. This article reviews the latest global and national situation with an especial emphasis on head and neck cancer. Furthermore this review focuses on burden in different sub sites at national and global levels.

치매환자를 돌보는 요양보호사의 케어부담감이 건강지각과 신체증상에 미치는 영향 (Effects of the Caring burden of Caregivers who manage Dementia patients on the Health perception and Somatic symptoms)

  • 김순옥
    • 디지털융복합연구
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    • 제16권12호
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    • pp.427-440
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    • 2018
  • 본 연구는 치매환자를 돌보고 있는 요양보호사의 케어부담감을 알아보고, 케어부담감이 신체증상과 건강지각에 미치는 영향을 파악하기 위한 서술적 상관관계연구이다. 연구대상자는 요양보호사 174명이었으며, 자료수집은 2018년 4월 1일부터 30일까지 였다. 자료분석은 t-test 및 One-way ANOVA, Pearson's correlation coefficient, Multiple regression analysis을 활용하였으며, 사후분석은 Scheffe를 사용하였다. 연구결과 케어부담감은 "중상", 신체증상은 "중간"수준으로 나타났고, 건강은 좋지 않은 것으로 인식하고 있었으며, 주관적 안녕감은 낮게 나타났다. 케어부담감은 신체증상(r=.157, p<.05), 신체증상은 지각된 건강과 양의 상관관계(r=.220, p<.01)를 보였고, 신체증상과 주관적 안녕에 미치는 영향 요인은 요양보호사 근무동기로 나타났다. 연구결과 요양보호사의 케어부담감은 신체적, 정신적 건강상태에 영향을 미치는 요인으로 확인되었으며, 연구결과를 근거로 요양보호사의 근무지에 따른 케어 부담감에 차이가 있는지를 파악해보는 연구를 수행할 것을 제언한다. 또한 요양보호사의 케어부담감을 측정할 수 있는 도구를 개발하여 반복연구를 수행해 볼 필요가 있겠다.

동사섭 훈련이 치매간병 가족의 부양 스트레스, 우울, 자아존중감에 미치는 효과 (Effects of Dongsasub Training for Family Caregivers of Patients with Dementia on their Burden, Depression, and Self-esteem)

  • 김명숙;임경춘
    • 근관절건강학회지
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    • 제23권1호
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    • pp.9-18
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    • 2016
  • Purpose: The purpose of this study was to verify the effectiveness of Dongsasub training for the family caregivers of patients with dementia on their care burden, depression, and self-esteem. Methods: An one-group pretest-posttest quasi-experimental design was used. Six family caregivers recruited from a support center for dementia in Seoul and participated in this study. Once a week, the Dongsasub training was provided for 90 minutes during eight weeks. Results: Depression was significantly lower (z=-2.01, p=.044), and self-esteem was significantly higher (z=-2.21, p=.027) than before Dongsasub training. However, care burden was not significantly different between pre and post program (z=-1.58, p=.115). Conclusion: The results of this study indicate that the Dongsasub training can be used as a nursing intervention in community settings to decrease depression and improve self-esteem for the family caregivers of patients with dementia.

치매노인 가족수발자를 위한 지역사회기반 휴식프로그램 개발 및 적용효과 (Development and Evaluation of Community-based Respite Program for Family Caregivers of Elders with Dementia)

  • 천숙희;장성옥;공계순;송미령
    • 기본간호학회지
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    • 제18권3호
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    • pp.337-347
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    • 2011
  • Purpose: Purposes of this study were to develop a community-based respite program for family caregivers and to test the effects of the program. Methods: Focus group interviews were performed to extract meaning of respite care for family caregivers (13 participants) and a survey was done to identify respite needs of family caregivers (157 participants). The community-based respite program for family caregivers was developed based on results of the focus group interview and survey. The program was used with 41 participants (19 experimental and 22 control). Independent t-test and Mann-Whitney U-test were used to test differences between control and experimental groups for respite needs, burden of caregivers, subjective wellbeing, social support, fatigue and functional status of elders with dementia. Results: There were statistical differences in caregiver burden, subjective wellbeing, and social support after the program, but, none for respite needs, fatigue and functional status of elders with dementia. Conclusion: The results indicate that a respite program can be useful to decrease burden of caregivers and increase subjective wellbeing and perceived social support of family caregivers in community settings. Further intervention research is needed to increase the functional status of elders with dementia and decrease fatigue in caregivers.

도시 취업모의 탁아유형 실태에 관한 연구 (A Study on the Actual Condition of Day Care Type among the Employed Mothers of Urban Area)

  • 전세경
    • 대한가정학회지
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    • 제32권4호
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    • pp.135-147
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    • 1994
  • The purpose of this study is to get the data on the day-care type of the employed mothers in urban area and to make it improve the day care service program. I classified day care type into four classes accoding to existing one. And we surveyed 401 employed mothers with the child under age of six who lived at Seoul. the major results were as follows; 1) Most of employed mothers felt the burden of day care expenses and payed it of their own earning 2) The common type of day care is 'by family' and the users of this type more satisfied with the condition than any other types. 3) the difficulty of day care is that can't apply the tool and materials sufficiently, except day care center, 4) The reason that they use day care center or not is thier family. 5) Accoding to child age, family composition, educational level, job, income level, employed mothers choose day care type differently. So I suggest the social support for the employed mothers.

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정신장애인 가족의 긍정적, 부정적 돌봄의 경험에 관한 연구 (Study of the Positive and Negative Caregiving Experiences in the family members who care for the psychiatric mentally ill relatives)

  • 이광옥;김희정
    • 지역사회간호학회지
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    • 제10권2호
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    • pp.435-454
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    • 1999
  • The caregiving experiences of 100 family menbers of outpatients with schizophrenia and schizoaffective disorders were investigated for the presence of positive(positive family-patient relationship. patient' contribution to the family) and negative caregiving experience(objective and subjective burden) and their predictors. This study attempts to make the analysis of caregiving experience more useful by expanding the focus to incoporate these positive aspects of the experience of family caregiver. Objective burden consists of two elements: 'disruption of family life', 'care'(amount of caregiving related to activity of daily living). Subjective burden is defined as emotional reactions to the care giving and it comprised of 6 emotional subdimensions such as 'stigma', 'grief'. 'worry', 'pity', 'fear', 'despair'. Also we investigate the severity of patients' disturbing behaviors into two categories, positive and negative disturbing behaviors and patient' contribution to the family as a predictors of positive and negative caregiving experiences. This study use Pearson's correlation coefficient, Hierardhical regressions in the SAS Program. The results are as follows: 1. Respondents reported moderate level of objective burden 'disruption of family life' (mean = 2.48, range = 1-4), and 'care' (mean=2.54, range = 1-4), and slightly high level of total subjective burden(mean = 2.19, range = 1-4). Mean scores for the measure of the severity of behavioral disturbance indicated that the caregiver experienced negative disturbing behaviors around almost 'somtimes'(mean=2.28, range = 1-4), and positive disturbing behaviors 'almost not frequent'(mean=2.78. range=1-4). So they reported that they perceived patient's negative disturbing behaviors more than positive disturbing behaviors. Mean scores for the measure of the patient' contributions (mean = 1.99. range = 1-4) indicated that caregivers experienced these contributions a little. It means that there should be a positive aspect of possibilities of patient' family roles that can be developed in the daily life. Mean scores for the measure of the positive family-patient relationship indicated that caregivers experienced moderate level of positive family-patient relationship(mean=2.52, range = 1-4). 2. Hierardhical regression analysis 1) Hierardhical regression of 'disruption of family life' showed that the interaction between positive disturbing behaviors and patient' contributions (B = .20. p = .022) and caregiver's educational level(B=.06. p=.000) were 'significant and Hierardhical regression of 'care' showed that 'negative disturbing behaviors'(B= .35. p= .007). 'patient' contributions'(B= .28, p= .019). 'family income'(B=-.l1. p=.096) were significant. 2) Hierardhical regression of 'total subjective burden', 'stigma', 'grief', 'worry', 'pity'. 'fear', 'dispair' showed that 'positive disturbing behaviors'(B=.51. p=.000). 'negative disturbing behaviors' (B = .17, p = .026), 'caregiver's educational level'(B = .03. p=.036), 'family income'(B=.08. p=.041) were significant predictors of 'total subjective burden': 'positive disturbing behaviors'(B=.32. p=.066). 'negative disturbing behaviors'(B=.24, p=.096) 'durations of illness'(B= .03. p= .079) were significant predictors of 'stigma' 'negative disturbing behaviors'(B=.28. p=.005). 'patient sex'(B=-.32. p=.022). 'positive disturbing behaviors'(B=.28. p=.020), 'patient age'(B=.02. p=.010), 'caregiver age'(B=-01, p= .002) were significant predictors of 'grief' 'negative disturbing behaviors'(B= .28, p= .005). 'patient sex'(B= -.32. p=.039), 'caregiver age'(B=-.02, p= .023). 'caregiver's educational level'(B= .04, p = .044) were significant predictors of 'worry' 'patient sex'(B=-.46. p=.005). 'negative disturbing behaviors'(B= .28. p=.018), 'caregiver age'(B=-.01, p=.037) were significant predictors of 'pity' 'positive disturbing behaviors'(B=.83. p=.000). 'patient' contributions' (B = .22, p =.017). 'family income'(B=.09. p=.65) were significant predictors of 'fear' 'positive disturbing behaviors'(B=.49, p=.001). 'negative disturbing behaviors'(B= .24. p=.057) 'patient sex'(B=-.4l, p=.017), 'family income'(B=.14, p=.047) were significant predictors of 'dispair'. 3) Hierardhical regression of 'positive relationship' showed that 'patient contributions'(B=.32, p=.000). 'negative disturbing behaviors'(B= .24, p= .005), 'patient sex'(B=-.23, p=.036).

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성인 정신장애인의 평생계획에 관한 연구 (A Study on Permanency Planning for Adult with the Mental Disability)

  • 서미경
    • 한국사회복지학
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    • 제43권
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    • pp.106-130
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    • 2000
  • When parents as primary care takers to the mentally disabled adult are no longer taking care of their care-needed offsprings because of their own death or illness, instead themselves. who take care of their offsprings with the mental disability? Therefore, 'permanency planning' is very important for reduction of parents' care burden and social integration of mentally disabled adults. Accordingly, this study aims to find out factors which are related to permanency planning for adults with the mentally disability For the purpose of the study, 192 parents of the adult with the mental illness and mental retardation were conducted a survey regarding type of permanency planning, and its related factors including social functioning level of the mentally disabled, care burden, parents' self-perception of being aged, help from offspring without mental disability, social support, and financial ability. Furthermore, this study examined correlation between these factors and residential planning. Results obtained by the study were as follows: 1) 51% of the parents are having a plan for institution and most parents want other family member to take care for financial planning for their mentally disabled offsprings. 2) As a result of multiple regression for finding out factors which affect parents' permanency planning, social functioning level of the mentally disabled, parents' self-perception of being aged, help from offspring without mental disability, social support, and financial ability were statistically significant influenced factors, which has 23.3% of explanatory power. 3) As a result of step-wise multiple regression, financial ability, parents' self-perception of being aged, and help from offspring without mental disability were the most powerful influenced factors for permanency planning. 4) In case of having a plan for residential types-which are institution and community living-, parents who have a plan for the mentally disabled offsprings' future residence as community living than institution have the offsprings with more social functioning and also have more help from offspring without mental disability. Therefore, this study concluded that welfare policy for mental health and the handicapped which secure various types of community living facilities and income security is strongly needed. At the same time, mental health profession is needed to have more active interest and intervention for permanency planning for their adult clients and parents.

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뇌졸중 환자가족의 건강상태, 부담감 및 삶의 질과의 관계 연구 (Correlations Among the Stroke Patient Family상s Health Status, Burden and of Life)

  • 이경호
    • 대한간호학회지
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    • 제31권4호
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    • pp.669-680
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    • 2001
  • Purpose: This study is used to investigate the correlation among a stroke patient family's health, burden and quality of life. Method: Data was collected from one hundred twenty family care-givers registered at K and H Hospital in Seoul. Questionnaire data was drawn up by personal interviews aided by the staff nurses. The analyses of collected data are based on the rate of 100 percentage to the average, t-test, ANOVA, DMR, Pearson Correlation. Result: (1) The influential factors on physical health proved to be age, sex, academic career, matrimonial status, present occupation, economic situation, the relationship with the patient, the patient-caring term, and the family-formation. The psychological health issues were age, final academic career, matrimonial status, the relation with patient and the family-formation. Burdens were shown to be age, matrimonial status, the relation with patient, and the patient-caring term. The quality of life was determined by age, final academic career, matrimonial status, and the relationship with the patient, the patient- caring term, and the family-formation. (2) The rate of the physical condition was 2.87, the psychological condition 2.43, the sense of burden 3.08, and the quality of life was 2.42. (3) The rate of correlation between the burden and the quality of life was (r= -.547), the psychological health and the burden was (r= -.531), the physical health and the burden was (r= -.263), physical health and quality of life was (r= .301), psychological health, and quality of life was (r= .413). Conclusion: It follows from this study that there is a very close correlation among the stroke patient family's health, the burden, and quality of life. Therefore it is necessary that we should find various nursing intervention ways in order to mitigate the burden of family when caring for the stroke patients.

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Measuring the Burden of Disease in Korea, 2008-2018

  • Jung, Yoon-Sun;Kim, Young-Eun;Park, Hyesook;Oh, In-Hwan;Jo, Min-Woo;Ock, Minsu;Go, Dun-Sol;Yoon, Seok-Jun
    • Journal of Preventive Medicine and Public Health
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    • 제54권5호
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    • pp.293-300
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    • 2021
  • The study aims to examine the current status and differences in the burden of disease in Korea during 2008-2018. We calculated the burden of disease for Koreans from 2008 to 2018 using an incidence-based approach. Disability adjusted life years (DALYs) were expressed in units per 100 000 population by adding years of life lost (YLLs) and years lived with disability (YLDs). DALY calculation results were presented by gender, age group, disease, region, and income level. To explore differences in DALYs by region and income level, we used administrative district and insurance premium information from the National Health Insurance Service claims data. The burden of disease among Koreans showed an increasing trend from 2008 to 2018. By 2017, the burden of disease among men was higher than that among women. Diabetes mellitus, low back pain, and chronic lower respiratory disease were ranked high in the burden of disease; the sum of DALY rates for these diseases accounted for 18.4% of the total burden of disease among Koreans in 2018. The top leading causes associated with a high burden of disease differed slightly according to gender, age group, and income level. In this study, we measured the health status of Koreans and differences in the population health level according to gender, age group, region, and income level. This data can be used as an indicator of health equity, and the results derived from this study can be used to guide community-centered (or customized) health promotion policies and projects, and for setting national health policy goals.

농촌지역 정신질환자 가족 부담 (A Study on the Family Burden of the Mentally Ill in a Rural Area)

  • 이원영;김정회;남정현;문옥륜;신영전
    • Journal of Preventive Medicine and Public Health
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    • 제32권3호
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    • pp.400-414
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    • 1999
  • Objectives: This is a descriptive study which was carried out to identify characteristics of the chronic mentally ill and their families in a rural area and the influencing factors on family burden. Methods : Data was collected for seven months beginning April 1, 1998 by questionnaire from chronic mentally ill patients and their families in two towns and seven townships of the rural areas of Kyonggi Province. In additional to the mental diagnosis of the mentally ill patients, family burden was measured by interviewing the other family members using the questionnaire developed by Pai & Kapur (1981). Of those interviewed, 103 patients were selected for final analysis. Results : Of 103 mentally ill patients, 36.1% of the subjects were not under treatment. In particular, of 29 patients with schizophrenia, 48.3% of the subjects had stopped taking medication and 6.9% of the subjects had never been treated. According to the results of a specialized examination by a psychologist, 81% of patients were in need of Hospitalization. Most primary caregivers were parents. Of the 101 primary caregivers in the study, 39.6% were over 65 years old. In case of death of the primary caregiver, 50.5% of these 101 mentally ill patients would not have anyone to care for them. Of the various kinds of family burden, primary caregivers most often reported psychological stress. Overall, the families of dementia and schizophrenia patients complained of the most family burden. Through univariative analysis, the variables of sex, education and current treatment type of the patients, the relationship with the patient and marital status of the primary caregiver and the number of people living together in the household showed significant correlation with the family burden of schizophrenia patients. Univariative analysis also showed that there were a number of variables which were correlated to the family burden in mentally retarded patients. Concerning the need for mental health services, the most common requests were for entitlement to disability benefits and housing programs. Conclusions: Community mental health services in rural areas must be developed, planned and executed in consideration of the local situation. In particular, the development of various family support programs is needed in order to mitigate emotional, mental and economic burdens and carry out a positive role to care for and rehabilitate patients.

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