• 제목/요약/키워드: Terminal illness

검색결과 51건 처리시간 0.018초

암 환아 가족의 질병에 대한 불확실성과 대처양상에 관한 연구 (A Correlational Study on Uncertainty and Coping in Families of children with Cancer)

  • 민영숙
    • 대한간호학회지
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    • 제24권4호
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    • pp.529-544
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    • 1994
  • For most parents their child's illness and hospitalization is strssful. Internal stress and over anxiousness leads to uncertainty. Parents have a variety of ways of coping when faced with such stress factors, especialy when the child has cancer. The purpose of this study was to examine the relationship between uncertainty in illness and mastery and coping styles in parents of pediatric cancer patients, and further to identify differences between three groups of subjects. A cross-sectional descriptive correlational design was used in this study to investigate the relationship among the three groups. The sample was composed of 59 parents of children with cancer in pediatric wards in three hospitals in Seoul : 21 in Group 4 with a child newly diagnosed with cancer : 25 in Group B, with a child under treatment and rehospitalized with a relapse : and 13 in Group C, with a child with a terminal cancer, A formalized questionnaire which included demegrapic information and consisted of 75 items was used in this study ; The Parent Perception of Uncertainty Scale(PPUS) adapted form Mishel’s Uncertainty in Illness Scale, Pearlin & Schooler's Mastery Scale(MS) and Folkman & Lazarus’s Ways of Coping Checklist(WCC) were used to measure the variables : uncertainty in illness, mastery, and coping styles. A pretest was conducted on the questionnaire items for reliability. The results gathered were analyzed using SPSS /PC/sup +/. Data analysis included descriptive correltional statistics such as ANOVA, Pearson Correlation Coefficient, amd chi square test. The conclusions of this analysis are summarized as follows : 1. A higher level of uncertainty was seen among parents of children with terminal cancer. 2. The first hypothesis that uncertainty in illness would differ among the three groups was supported(F=4.182, P=.020). The second and third hypotheses that mastery and coping styles would differ among the three groups were not supported. There was a correlation between uncertainty, mastery, and coping styles which was positive, also there was a positive correlation between mastery and coping style(r=.3744, P<.001) but a negative correlation between uncertainty md mastery(r=-.4749, P<.01). From the above results, it can be concluded that prediciting and controlling uncertainty in illness by considering coping styles and mastery are necessary for improved, efficient nursing interventions.

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Comparison of the Spiritual Needs of Terminal Cancer Patients and Their Primary Family Caregivers

  • Kang, Kyung-Ah;Choi, Youngsim
    • Journal of Hospice and Palliative Care
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    • 제23권2호
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    • pp.55-70
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    • 2020
  • Purpose: This study was conducted to examine differences in Spiritual Interests Related to Illness Tool (SpIRIT) scores and the degree of spiritual needs (SNs) between patients with terminal cancer and their primary family caregivers and to compare spiritual needs between them. Methods: The study participants were inpatients with terminal cancer and their primary family caregivers at 40 national hospice centers. The final analysis included 120 SpIRIT surveys from patients and 115 from family members, and 99 SNs questionnaires from patients and 111 from family members. Data analysis was conducted using descriptive statistics, the t-test, one-way analysis of variance, and Pearson correlation coefficients. Results: There were no significant between-group differences in SpIRIT scores or SNs. The SpIRIT sub-dimensions that ranked high for both patients and primary family caregivers were "maintaining positive perspective", "loving others", and "finding meaning". The SNs sub-dimensions were ranked identically in both groups, in the order of "love and connection", "hope and peace", "meaning and purpose", respectively. In both groups, the recognition of the importance of spiritual matters and religion were major factors influencing SpIRIT scores and SNs. Conclusion: The SpIRIT scores and degree of SNs of patients with terminal cancer and their primary family caregivers were found to be very closely related, and the needs for coherence and meaning were greater than religious needs. When providing spiritual care for patients with terminal illness, family members should also be considered, and their prioritization of spiritual needs and the importance of spiritual matters and religion shall be taken into account.

임상간호사의 영상표시단말기 증후군 및 영향요인 (Factors influencing Video Display Terminal Syndrome in Clinical Nurses)

  • 권윤희
    • 한국간호교육학회지
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    • 제22권4호
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    • pp.485-494
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    • 2016
  • Purpose: The present research is a descriptive study aimed at understanding clinical nurses' Video display terminal (VDT) syndrome and identifying the factors that affect their VDT syndrome. Methods: Data were collected from 239 clinical nurses working in two metropolitan cities. Research tools included subject's VDT syndrome assessing musculoskeletal, ophthalmic, dermal, psychiatric, and whole body syndromes. The data were analyzed using frequency analysis, average and standard deviation, t-test, One-way ANOVA, and multiple regression analysis with the SPSS/WIN 20.0 program. Results: The subjects' VDT syndrome score was 1.34 out of 5. There were significant differences in participating subjects' VDT syndrome, hospital's size, working unit, health status, diagnosis of illness, having an Order Communication System (OCS), having an Electronic Medical Record (EMR) System, continuous VDT working for more than one hour, break time during VDT use, VDT use time, comfort of the chair, adjustability of the height of the chair, size of the VDT's desk, distance between the monitor and the user's eyes, resolution of the monitor, and frequency of eye exercise during VDT use. According to the research, influencing factors on VDT syndrome in clinical nurses included size of the VDT's desk, frequency of eye exercise during VDT use, having an EMR system, break time during VDT use, diagnosis illness, and having an OCS' system. Conclusion: The findings from this study can be used as a basis for future VDT syndrome prevention education and programs for clinical nurses.

살 가망이 없는 환자간호에 대한 교육이 간호학생의 태도에 미치는 영향에 관한 일 연구 (A Study on the Influence of the Education on the Attitudes of Nursing Students about the Dying Patient Care)

  • 최공옥
    • 대한간호
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    • 제19권1호통권104호
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    • pp.50-59
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    • 1980
  • Death is such a difficult event that it is more than a match for nurse. In caring for the dying patient, most important thing is nurse''s attitudes and ability to face terminal illness and death. It was given to the 108 nursing students that the lecture a

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인기 TV 드라마에서 질병을 활용하는 방법 (Method of Using Disease in Television Drama)

  • 노동렬
    • 한국콘텐츠학회논문지
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    • 제17권8호
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    • pp.351-365
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    • 2017
  • 텔레비전 드라마에서 질병을 활용하는 방법은 여자주인공에게 육체적 질병이 극 후반에 발병하는 추세로부터 남자주인공에게 정신적 질병이 극 초반부터 발현되는 양상으로 변화하고 있다. 특히 질병이 여성에게 발병하는 경우는 사망으로 이어지며 갈등이 해결되는 반면, 남성의 발병은 캐릭터를 구축하는 도구인 동시에 스토리에 인과관계를 설정하고 갈등을 증폭시키는 소재로 활용된다. 따라서 정신적 질병은 스토리 전개에서 반전, 발견, 전환점을 지속적으로 만들어내며 시청자들에게 긴장감과 감정이입, 동일시, 그리고 서스펜스를 유발하는 기능을 수행하고 있다. 결국 질병 활용 방법은 여성을 죽음으로 몰아가며 스토리를 종결하는 데우스엑스마키나로부터 남성의 정신적 질병으로 인해 플롯의 다양성과 장르 핍진성이 강화되는 방향으로 진화하면서 드라마를 변화시키고 있다. 이는 우리 드라마산업이 멜로드라마 위주에서 다양한 장르 특성이 강화되고 있음을 의미한다.

암환자와 가족원의 질병단계에 따른 대처 방법의 비교 (The Comparison of the Coping Patterns of Cancer Patients and Their Caregivers According to the Phases of Illness)

  • 양영희
    • 대한간호학회지
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    • 제28권4호
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    • pp.970-979
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    • 1998
  • Cancer has been considered a life-threatening disease and coping patterns could have a strong impact the physical and psychological health of patients and their family. The purpose of this study was to identify the change of coping patterns according to the phases of illness in the patients with cancer and their family caregivers and to compare the coping patterns of patients with those of their caregivers. The phases of illness consisted of 1st(initial) stage, 2nd(metastatic or recurred) stage and 3rd (terminal) stage based on literature. The coping methods were measured using the modified Ways of Coping Questionnaire by Lazarus & Folkman(1984). Seventy-nine patients(35 in stage 1, 31 in stage 2, and 13 in stage 3) and ninety-two caregivers (38 in stage 1, 30 in stage 2 and 24) agreed to participate from two general hospitals in Seoul and Choongnam. No significant changes were found in the coping patterns according to the phases of illness in both groups. Patients in stage 2 and caregivers in stages 2 and 3 problem-focused coping methods were significantly used more than emotion-focused coping methods. Patients in stage 1 significantly used two coping strategies that were cognitive reconstruction and emotion expression more than caregivers. Patients in stage 2 significantly used emotion-focused coping methods including minimizing threat, blame, and emotion expression excepting wishful thinking more than caregivers. We need more research to identify the relationship between the coping methods and their efficiencies through longterm observation and attempt to develope the nursing interventions that could have an improvement on positive coping methods and provide guidance on the problems the patients experience.

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말기암 환자들의 의료이용행태 (Behavior Patterns of Health Care Utilization in Terminal Cancer Patients)

  • 한태형;조병진;신백효
    • The Korean Journal of Pain
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    • 제12권1호
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    • pp.101-107
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    • 1999
  • Background : In order to improve the quality of life of dying patients, they need to receive not only the physical, psychological, social, and spiritual care, but also systematic and continuous care to die with dignity. However, no adequate medical services are available for these terminal cancer patients. We studied their behavior patterns of health care utilization to understand more of their medical and social needs. Methods : We investigated 108 bereaved families through the telephone interview with structured questionnaires. They were randomly selected through the retrospective chart review of the terminal patients who passed away due to cancer. Results : Most of the terminal cancer patients received their care from proper medical services including admission to hospital (45.4%), outpatient clinic (22.2%), emergency room (16.7%), and oriental medicine (12.0%). But during the terminal phase of their illness, 32.4% of patients never received medical care including oriental medicine, and 28.7% received alterative natural care. 26 bereaved families (24.1%) pointed out the indifference of medical staff as a problem receiving proper hospital care, and 22 (20.4%) emphasized emotional strain of their helplessness with the patients' suffering as a problem of caring at home. Over 90% suggested availability of continuous care, hospice care, home care, and 24 hour telephone service to be improved. Conclusions : Due to various reasons, adequate medical care is not delivered to the terminal cancer patients in our present medical system. These problems can be approached with the establishment of proper education and medical delivery system. The role of comprehensive medical specialty cannot be overly emphasized to accomplish this most effectively.

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말기환자를 간호하는 간호사의 고통 경험 (Nurses호 Painful Experiences through Terminal Patient)

  • 조계화;한희자
    • 대한간호학회지
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    • 제31권6호
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    • pp.1055-1066
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    • 2001
  • The Purpose of this study is to understand the meaning and the essence of suffering as viewpoint and to find the meaning and structure of the experience from encounters with patients in their terminal stages of illness. Method: A descriptive design based on the phenomenological approach model developed by Collaizzi was used. The period of data collection was from August to November of 2000. Data collection was conducted by open-ended and audio-taped interviews. The participants were nine female nurses who were willing to take part in this study. Results: Results of this study were classified into five main categories. The main category clusters were "difficulty in experiencing suffering," "professional challenges to expert nurses," "formation of empathic relationships," "expanding consciousness through suffering," and "alleviation of the patient's suffering." Conclusion: In conclusion, the implications for providing nursing care to end-stage patients in the throes of suffering is both rewarding and stressful. However, sharing these research results may help other nurses discover and experience deeper meanings in their own practice and careers.deeper meanings in their own practice and careers.

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Providing End-of-Life Care in the Community: What Are the Challenges in Malaysia?

  • Leong, Yoke Yeng;Hamzah, Ednin;McCarthy, Sylvia;Lim, Zee Nee
    • Journal of Hospice and Palliative Care
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    • 제25권3호
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    • pp.133-137
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    • 2022
  • A 72-year-old woman with metastatic lung cancer to bone and brain and with left external iliac vein thrombosis was under the care of a community palliative care provider. She experienced an acute pain crisis due to acute limb ischemia of the left lower limb. Goals-of-care discussions were held with the patient and her family; she prioritized symptom control and end-of-life care at home. The family and patient were aware of her short prognosis. Her complex pain was managed by the community palliative team, and her family was empowered to give subcutaneous injections. We illustrate a case showing the importance of community health services with palliative care support in providing symptom management and support to patient and family caregivers throughout the course of a life-limiting illness. It also highlights family caregivers' potential psychological distress in delivering subcutaneous injections in terminal care for a patient at home.

질병단계에 따라 암환자, 돌보는 가족원, 간호사의 간호요구 지각 비교 (The Comparison of the Perceived Needs between Patients with Cancer, their Caregivers, and Nurses According to the Cancer Patient,s Phases of Illness)

  • 양영희
    • 대한간호학회지
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    • 제27권4호
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    • pp.787-795
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    • 1997
  • This descriptive study was conducted to ascertain whether the needs of patients with cancer, their caregivers and their nurses changed according to the illness phases and if the perceived needs of the three groups were different for three categories of nursing needs. At two hospitals in Seoul and Choongnam, three groups of subjects, -patients with cancer(79), caregivers(92), and nurses(72) - responded to a questionnaire consisting of items on educational need(11 items), physical need(8 items), emotional need(9 items) using a 4-point Likert scale. The patients and caregivers were selected according to the phase of the cancer (initial, intermediate or recurred, terminal phases). Finding revealed that the level of perception and degree of satisfaction of the needs were low, just around two points in patients and caregivers. Of the three categories of needs, physical needs were received the highest score and the degree of satisfaction of physical needs was also the highest. There was no significant difference between the level of perception and satisfaction of needs in patients and caregivers according to the phases of the illness and the degree of per reception and the satisfaction of the patients were not significantly different and caregivers showed the same result. There was a significant difference in the level of importance of the needs of nurses according to the phases of the cancer. They perceived emotional needs were the most important in first phase and second phase, physical needs in third phase and the educational needs were more important in the first phase than in any other phase. The degree of importance of needs was significantly lower than the degree to which needs were addressed, according to the nurses response. In a comparison of patient and caregiver's perceived degrees of need, and need satisfaction, and nurse's perceived degree of need provision, patient and caregiver scores were lower than the nurses.

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