• Title/Summary/Keyword: Parents of children with a disability

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CRITICAL PATHWAY ON GENERAL ANESTHESIA FOR DISABLED CHILDREN (장애아동 전신마취에 대한 Critical Pathway적용)

  • Kum, Jin-Eun;Lee, Su-Jin;Huh, Jeong-Ae;Jeong, Tae-Sung
    • The Journal of Korea Assosiation for Disability and Oral Health
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    • v.3 no.2
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    • pp.80-86
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    • 2007
  • A critical pathway (CP) defines the optimal care process, sequencing and timing of intervention by multi-disciplinary health care teams for a particular diagnosis and procedure. It plays an important role as a cost-effective health care delivery system and a tool for quality control of medical and dental services by means of standardizing medical practices. The aim of this study is to investigate the satisfaction of patients and medical/dental staff after implementation of a critical pathway for dental treatment of disabled children under general anesthesia and its cost effectiveness. Ten patients who underwent dental treatment under general anesthesia were included in the CP group between August and December 2006. The pre-CP group included 20 patients who underwent the same procedure from February 2003. The satisfaction of parent of child patient and medical staff members were compared between two groups. The parents' satisfaction was significantly improved after the implementation of CP and medical/dental staff members were highly satisfied with the usefulness of the critical pathway. In conclusion, the critical pathway for the dental treatment of disabled treatment under general anesthesia can highly improve the satisfaction of parents and medical/ dental staff members.

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Understanding the Perspectives of Paediatric Physicians on Physiotherapy in Paediatric Rehabilitation in Chennai, India: A Qualitative Approach

  • Vadivelan Kanniappan;Abishek Jayapal Rajeswari;Pearlyn Esther Padma Lawrence;Subash Sundar
    • Journal of Preventive Medicine and Public Health
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    • v.57 no.2
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    • pp.157-166
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    • 2024
  • Objectives: Children with disabilities may exhibit a multitude of symptoms, and treatment requires a multidisciplinary approach for a satisfactory outcome. Lack of awareness among physicians, lack of referral, and lack of inter-sectoral coordination have hindered paediatric practice in Tamil Nadu, a state in India with a striking childhood disability rate that warrants a timely interdisciplinary approach. However, the perspectives of paediatricians on paediatric physiotherapy are unknown. The aim of the study was to investigate the perspectives of practicing paediatric physicians in Chennai on the role of physiotherapy in paediatrics. Methods: For an in-depth exploration, qualitative semi-structured interviews were conducted in person with 10 paediatricians. Audio from the sessions was recorded and transcribed, and data saturation was achieved through iterative analysis. Results: A grounded theory analysis of the results yielded 5 domains under which the perspectives and expectations of the physicians were described, along with the barriers experienced by patients' parents as explained by their paediatrician. The responses highlighted deficits in awareness, structural support, accessibility and direct communication between physicians and physiotherapists. Conclusions: Paediatric physicians have different opinions, and some ignorance persists concerning paediatric physiotherapy. This study warrants a proper structure of the paediatric rehabilitation unit and regular interdisciplinary meetings and focus group discussions to increase access for parents and improve patient outcomes.

Functions (Mobility, Self-care, Social Ability) and Health-related Quality of Life in Children with Cerebral Palsy

  • Ko, Joo-Yeon;Lee, Suk-Min
    • The Journal of Korean Physical Therapy
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    • v.22 no.3
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    • pp.37-44
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    • 2010
  • Purpose: The purpose of this study was to describe the functional (mobility, self-care, social ability) and health-related quality of life in children with cerebral palsy (CP). Methods: A cross- sectional survey of 202 children with CP, mean age $5.91{\pm}1.57$ years, was carried out using the Gross Motor Function Classification System (GMFCS), Gross Motor Function Measure (GMFM), Pediatric Evaluation of Disability Inventory (PEDI), and Child Health Questionnaire (CHQ). Results: The functional assessment of children with CP showed that a more severe GMFCS level was associated with lower functional abilities (p<0.05). The health-related quality of life assessment showed that psychosocial well-being was less impaired than physical well-being. The internal consistency of the three instruments was satisfactory (cronbach's ${\alpha}$>0.80). The three different scales were correlated from moderate to strong (r=0.44 to 0.92). It was also found that mobility, tone distribution, and the parents' education level exerted a significant effect on the quality of life of children with CP (p<0.05). Conclusion: These findings suggest that children with CP have reduced function and quality of life and these are influenced by various factors. However, planning and application of various task-oriented functional interventions to childhood CP may be useful.

A Study on the Current Status and Improvement of Online Classes for Students with Developmental Disabilities during the COVID-19 Pandemic -in chungbuk- (코로나19 상황 속 발달 장애 학생의 온라인 학습 실태와 개선방안 -충북지역을 중심으로-)

  • Kim, Hyun-Jin
    • The Journal of the Korea Contents Association
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    • v.21 no.6
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    • pp.350-358
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    • 2021
  • The purpose of this study is to analyze the status of rights for online learning of students with developmental disabilities in the COVID-19 situation and suggest plans to promote the rights focusing on parents with children with disabilities. This research conducted the mixed method, which utilizes the survey of 200 parents with children in chungbuk, who have developmental disabilities, and FGI of six parents. The survey analysis shows that 50.5% of the respondents could not support their children due to telecommuting. The most urgent support system for learning assistance was identified as support for assistive personnel. As a result of the analysis of FGI, two categories of "status of online classes in the COVID-19," "improving non-contact learning environment considering the nurturing environment," "diversifying teaching methods such as video classes," "introducing of a contextual assessment," and "enhancing health support." Based on these findings, the study proposed to review legal grounds for online classes for disabled students, expand the dispatch of learning support personnel and prepare plans to promote the online learning environment.

A Study on the Occurrences and Causes of Accidents in Lower Grade Elementary School Children (초등학교 저학년 아동들의 안전사고 발생 실태 및 관련요인 분석)

  • 김소선;이은숙
    • Journal of Korean Academy of Nursing
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    • v.29 no.1
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    • pp.117-126
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    • 1999
  • Accidents involving children are an important cause of death and disability. They also have enomorous financial implications. In order to prevent childhood accidents, research and education for safety should be strengthened. The purpose of this study was to determine how often young children have accidents and what factors affect the accident rate. The sample consisted of 771 children who were in the second, third and forth grades of two elementary schools located in Kyung-gi Province. One school had students from middle class families living in apartment complexes and the other, students from lower income families mainly living in single houses. The questionnaires included items on the occurance of accidents and the parents' attitudes regarding accidents during the academic year from March 1997 to February 1998. The Questionnaires were distributed to conventiently selected students to be compeleted by their parents and collected during the period of May 28, to June 6, 1998. The data were analyzed using SAS PC statistical package. The results of the study are as follows ; 1. Of 771 student subjects, 393 had 887 accidental injuries during the study period. 2. The month, the day and the time with the highest accident rate were May, Sunday, and between 1 and 4 p. m. each. 3. In the analysis of the location where the injury took place, the most frequent place was on around their homes followed by school and, then, inside the home 4. Most of the accidents were caused by carelessness on the part of the children and the most frequent type of injury was an abrasion. 5. Children most injured their legs 6. They were treated at home most often and usually emergency treatment was performed by family members with, disinfection being the main type of first aid. Cost of the treatment ranged from 8,000 to 20,000 won in most cases. 7. House type and parents' education level were statistically significant in chi-square analysis. 8. Parents educate their children about traffic safety most frequently followed by fire safety and, then, prevention of violence. 9. Parents think that prevention of violence should be the most important part of injury prevention education both at school and home. 10. To identify factors related to accident occurrence, multiple logistic regression was performed and the main factors were birth order and house type.

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Analysis of Importance and Performance of Family Support for Special Education Children (특수교육 대상 아동 가족지원에 대한 중요도 및 실행도 분석)

  • Kim, Ki-Ryong
    • Journal of the Korea Convergence Society
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    • v.11 no.6
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    • pp.367-374
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    • 2020
  • This study was conducted to provide basic data for prioritization of family support services by examining the importance and performance of family support for parents of children with special education. To achieve the purpose of the study, a questionnaire survey was conducted with 220 parents of children from special education nationwide. As a result of the study, the importance of all 29 family support service items was rated high, but the performance level was low, and statistically significant differences were found. In addition, as a result of analysis of importance and performance, family support services related to physical and physical well-being and disability-related support were evaluated as high-priority, low-practice services, and it was a task that should be presented as a priority in family support services. On the other hand, it was found that family support services in the areas of family interaction support or emotional well-being were considered to be services that should be avoided due to their low importance but high performance. Based on the results of these studies, the direction for the operation of family support services for children with special education needs to be suggested in the future.

Parents' Perceptions of Cognitive Rehabilitation for Children With Developmental Disabilities: A Mixed-Method Approach of Phenomenological Methodology and Word Cloud Analysis (발달장애 아동 부모의 인지재활 경험에 대한 질적 연구: 워드 클라우드 분석과 현상학적 연구 방법 혼합설계)

  • Ju, Yu-Mi;Kim, Young-Geun;Lee, Hee-Ryoung;Hong, Seung-Pyo;Han, Dae-Sung
    • Therapeutic Science for Rehabilitation
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    • v.13 no.1
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    • pp.49-63
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    • 2024
  • Objective : The purpose of this study was to investigate parental perspectives on cognitive rehabilitation using a combination of phenomenological research methodology and word cloud analysis. Methods : Interviews were conducted with five parents of children with developmental disabilities. Word cloud analysis was conducted using Python, and five researchers analyzed the meaning units and themes using phenomenological methods. Words with high frequency were considered as a heuristic tool. Results : A total of 43 meaning units and nine components related to the phenomenon of cognitive rehabilitation were derived, and three themes were finalized. The main themes encompassed the definition of cognitive rehabilitation, challenges associated with cognitive rehabilitation, and factors influencing the selection of a cognitive rehabilitation institute. Cognitive rehabilitation emerged as a treatment focused on improving learning, daily functioning, and cognitive abilities in children with developmental disabilities. The perceived issues with cognitive rehabilitation pertained to treatment methods, therapist expertise, and associated costs. In addition, parents highlighted the importance of therapist expertise, humane personality, and affordability of cost and schedule when choosing a cognitive rehabilitation institute. Conclusion : Parents expressed expectations for substantial improvements in their children's daily functioning through cognitive rehabilitation. However, challenges were identified in clinical practices. Going forward, we expect that cognitive rehabilitation will evolve into a better therapeutic support service addressing the concerns raised by parents.

The relationship between payment of policy on children disabilities(cash, voucher) and satisfaction of parents (장애아동급여정책(현금, 바우처)과 부모만족도와의 관계)

  • Lee, Young-Kwang;Ji, Eun-Gu
    • Asia-pacific Journal of Multimedia Services Convergent with Art, Humanities, and Sociology
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    • v.6 no.2
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    • pp.169-178
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    • 2016
  • The number of people with disabilities is increasing recently in Korea, in particular the proportion of children with disabilities is approximately above 5%. While there are many studies focusing on satisfaction of payment policy due to increased concern about children with disabilities, the studies on comparison and the effect factor of user satisfaction depending on the cash and voucher are not sufficient. Based on the need to recognize and research this issue, the ultimate goal of this study is to lead to implications for the payment policy by investigating user satisfaction depending on the type of payment of policy on children with disabilities. The result that analyzes the effect of general characteristics on user satisfaction shows that in case of in-cash, children and the degree of disability affect user satisfaction. In the case of voucher, the gender of parents, the degree of disability and the average income affect it. The implication of this study suggests practical implication and policy implication. Implications of the study is that provide a customized service considering general characteristics. Second, It needs to extend the range of amount of payment of in-cash. Third, extend and pay the amount of in-cash, and the service of voucher. Fourth, provide low-income group(including public aid recipients and near poverty group) with voucher to ease financial burden.

Pediatric Voice Handicap Index-Korean(pVHI-K) : A Pilot Study for Standardization (한국어판 소아음성장애지수(pVHI-K : Pediatric Voice Handicap Index-Korean) : 표준화를 위한 예비연구)

  • Park, Sung-Shin;Choi, Seong-Hee;Hong, Young-Hye;Jeong, Nyun-Gi;Sung, Myung-Whun;Kim, Kwang-Hyun;Kwon, Tack-Kyun
    • Journal of the Korean Society of Laryngology, Phoniatrics and Logopedics
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    • v.22 no.2
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    • pp.137-142
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    • 2011
  • Background and Objectives : The aim of this study is to introduce Korea version of pediatric VHI and to compare pVHI-K scores between children with dysphonia and children without voice problems before pVHI-K is developed as a preliminary study. Additionally, the relationship between pVHI and acoustic measures were investigated. Materials and Methods : pVHI-K scores in normal group were obtained from 15 parents who have children with no present or past history of a voice disorder, hearing loss, or related disability that can affect the their voice or speech. Dysphonia group consisted of 15 parents who have children with bilateral vocal fold nodule's at Department of Otolaryngology, the Seoul National University Hospital (SNUH). pVHI-K and acoustic parameters were measured in two group. Results : The mean pVHI scores (total, functional, physical, emotional) in normal group were 2.33 (T), 0.80 (F) 1.33 (P) and 0.27 (E), respectively whereas those of pVHI in children group with dysphonia were 23.13 (T), 11.07 (F), 5.73 (P) and 6.13 (E), respectively and significant differences were revealed in total pVHI score as well as in all of the sub-pVHI scores. Moreover, significant correlation between pVHI-K parameters (T, F, P) and acoustic measures [Shimmer(%)] were shown in children in dysphonia group. Conclusion : Reported by parents can be useful as a supplementary clinical tool for diagnosing and measuring treatment effectiveness in young children with dysphonia.

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Social Interaction of Caregivers and Their Children with Down Syndrome or Without Disability (다운증후군 아동과 정상아동의 보호자와의 사회적 상호관계에 대한 비교연구)

  • Cho, Mi-hyun;Cho, mi-suk
    • Proceedings of the Korea Contents Association Conference
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    • 2009.05a
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    • pp.1076-1082
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    • 2009
  • This study investigated caregivers' communication styles and children's emotional development. Emotion-laden puzzle tasks were used to elicit caregivers' communication styles while interacting with their children. Participants included children with Down syndrome (N=10) and typical children (N=15) and their caregivers. As expected, caregivers of children with Down syndrome (DS) used more behavior and attention directives with their children, and caregivers of typical children used more conversation-eliciting prompts with their children. Parents of children with Down syndrome also used a unique communication style in which they asked a question and immediately answered it themselves. Additionally, caregivers of typical children focused more on emotion concepts in their communications with their children and caregivers of DS used more cognitive concepts such as labeling colors and shapes. The results revealed that caregivers of children with Down syndrome usually tried to educate children by emphasizing cognitive concepts to compensate for their delayed development. Because the children are delayed in their emotional development, parents may need help in intervening on the area of emotional development.

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