• 제목/요약/키워드: Family Burden Questionnaire

검색결과 85건 처리시간 0.029초

암환아 어머니의 사회적지지와 부담감 (Social Support and burden in mothers of children with cancer)

  • 백소희;박인숙
    • Child Health Nursing Research
    • /
    • 제2권1호
    • /
    • pp.27-54
    • /
    • 1996
  • The purpose of the study was to identify the degree of social support and burden in mothers of children with cancer, and to determine a strategy of an effective social support utility for burden relief in these mothers. The subjects of this study were consisted of mothers of cancer children, registered at a'C'University affiliated hospital in Taejon. The data was collected from July 1 to August 31, 1994. Three instruments were used to collect the data : a semi-structured interview questionnaire which was developed by the researcher was used to identify the content of the mother's burden, a Visual Analogue Scale(VAS) that had a 10cm horizontal line was used to measure the degree of mother's burden and the PRQ part I & part Ⅱ were used to measure the degree of mother's social support. The content of mother's burden collected through in depth interviews was analyzed using content analysis. Also burden and social support data were analyzed by SAS program. The result of this study were summarized as follows : 1. The data on burden content from the interview were categorized as psychological, physiological, family interaction with maternal role, financial burden and personal interaction with social relational burden. 2. The degree of burden measured by VAS had a mean of 8.04(range from 0.5 to 10). 3. The score for social support measured by PRQ part Ⅱ had a mean of 88.9(range from 71 to 113). The highest scores was for reassurance of worth. The lowest score was for opportunity for nuturance. Most of the 15 mothers received the greatest amount of support from their sisters, spouse, friends, neighbors, relations, priest were perceived as eaningful resource person. 4. The correlation coefficient of burden and social support was somewhat negative correlation but no statistical significance(r=-.072). Therefore, a further study is necessary to repeat the qualitative research for exploring factor to be affected family caregiver's burden according to disease proceeding stage. On the basis of the results from this study, future research will be promoted valid and reliable tool development. Through this study, nurses understand and assess the individual psychologic burden and further it would be recommendated to produce professional education program for pediatric oncologic specialist nurse.

  • PDF

노인층과 청·장년층 뇌졸중 환자가족의 건강상태·부담감 및 삶의 질과의 관계 (The Correlation Among Health Status, Burden and Quality of Life of the Adult Stroke Patient's Family and the Elderly Stroke Patient's Family)

  • 김귀분;이경호
    • 성인간호학회지
    • /
    • 제13권2호
    • /
    • pp.262-276
    • /
    • 2001
  • The purpose of this study is to investigate the correlation among the stroke patient family's health, burden and quality of life which is based upon the comparative appreciation of the adult stroke patient's family and elderly stroke patient's family. For this purpose, data were collected from the family care-givers for two groups of stroke patients under sixty years old and over sixty years of age, admitted at K Hospital and H Hospital in Seoul. The instruments for this research are based on the tool for measuring physical health and psychological health developed by Yang, Young-hee(1992), the tool for measuring the sense of burden by Seo, Mee-hae and Oh, Ga-sil(1993), and the tool for the quality of life by Noh, Yoo-ja(1988). The sampling for this study was done from December, 2000 until February, 2001. Questionnaire data were drawn up by personal interviews aided by the staff nurses. The analysis of collected data are based on general characteristics calculated at the rate of 100 percent of the average, t-test, ANOVA(some difference on a level with p<.05 being subsquently confirmed by DMR) for Health Status, Burden, Quality of Life and Pearson Correlation to verify the hypothetical correlation among the subjects. The results of this study are as follows: 1. In the adult stroke patient family, the factors influencing the physical health proved to be age, present occupation and family-formation. Here, the factors influencing psychological health turned out to be age, matrimonial status, present occupation and family-formation. In the elderly stroke patient family, the factors influencing physical health proved to be age, gender, final academic status, matrimonial status, present occupation, and relation with the patient. Here, the factors influencing the psychological health were age, final academic status, matrimonial status, present occupation, relation with the patient and family-formation. In the former case, the influencing factors upon the burden were shown to be age, final academic status, matrimonial status, relation with the patient and family-formation. In the latter case, the influences upon the burden were age, gender, final academic status, matrimonial status, present occupation and relation with the patient. In the former case, the influences on the quality of life were gender, and economic situation. In the later case, the influencing factors on the quality of life were age, final academic status, matrimonial status, present occupation, and relation with the patient. 2. The rate of the physical condition in the former case turned out to be 2.83, and the psychological condition 2.37. The physical condition of the latter case was 2.76, and the psychological condition 2.46. The rate of the burden in the former case was 3.14, and that of the latter case was 3.04. The rate of quality of life in the former case proved to be 2.46, and that of the latter case 2.55. 3. The rate of correlation between the burden and the quality of life appeared to be the high counter-correlation (r= -.573). The rate of correlation between the psychological health and the burden of a simialr (r= -.565). The rate of correlation between the physical health and the psychological health proved to be a moderate correlation (r= .372), The rate of correlation between physical health and the burden turned out to be a low counter-correlation (r= -.276). According to this study, there proved to be a very close correlation among the stroke patient family's health, the burden and quality of life. Thus, it would be necessary to find out various nursing interventions in order to mitigate the stroke patient family's burden in the process of caring for the patients.

  • PDF

정신과 환자 주 보호자의 삶의 질과 부담 영향 요인 - 정신분열병과 알콜 의존 환자의 보호자 비교 - (Study on Influencing Factors on Subjective Quality of Life and Family Burden of Caretaking Family Members who have a Patient with a Psychiatric Disorder - Comparison between Schizophrenia and Alcohol Dependence -)

  • 류석환
    • 정신신체의학
    • /
    • 제12권1호
    • /
    • pp.56-65
    • /
    • 2004
  • 연구목적: 만성 정신과 환자 보호자의 부담과 삶의 질을 알아본 후, 상관관계에 대하여 조사하여, 향후 가족 치료를 포함하는 치료적 중재를 위한 기초 자료로 사용하고자 함이다. 방 법: 정신분열병으로 진단을 받은 환자 보호자 78명과 알콜 의존으로 진단을 받은 환자 보호자 54명을 포함하여 총 132명을 대상으로 하여 가족 부담 척도와 스미스클라인 비챰 '삶의 질'척도를 이용하여 조사하였다. 결 과: 가족이 느끼는 부담과 보호자의 성별, 연령, 월 평균 소득과 병전 함께 산기간은 유의한 상관관계를 나타내지 않았다. 삶의 질에서는 남성이 더 삶의 질이 높았으며, 신체적 안녕 요인과 활력 요인에서 연령과 유의한 상관관계를 나타내었다. 스트레스 반응 요인, 부담과 정신과 영역의 장점 요인이 정신과 환자 주 보호자의 삶의 질 전체 변이 중에 약 41%를 설명하였으며, 이 중 긴장 요인이 가장 큰 설명력을 보였다. 결 론: 만성 질환은 간병하는 보호자에게 부담을 주며, 이러한 부담이 보호자의 삶의 질을 악화시키는 요인으로 작용할 수 있다. 특히, 환자의 유병기간이 증가할수록 유능감에 부정적 영향을 줄 수 있다. 그러므로, 보호자가 경험하는 부담과 스트레스를 줄여주어 보호자의 삶의 질을 높일 수 있도록 하는 가족 교육을 포함한 가족 치료적 중재가 필요하리라 사료된다.

  • PDF

Effects of Care Burdens of Caregivers of Cancer Patients on their Quality of Life

  • Turkoglu, Nihan;Kilic, Dilek
    • Asian Pacific Journal of Cancer Prevention
    • /
    • 제13권8호
    • /
    • pp.4141-4145
    • /
    • 2012
  • In this study, the aim was to examine the effects of caring burdens of family caregivers of cancer patients on their quality of life in the east of Turkey. Data were collected at the Chemotherapy unit of Yakutiye Research Hospital of Ataturk University. Participants were 18 years old and older. The sample included 190 family caregivers who were living in the same flats with the patients during caregiving. Data were collected using a questionnaire that included socio-demographic questions for family caregivers and the Burden Interview, and the Caregiver Quality of Life Index-Cancer (CQOLC) Scale. SPSS version 14.0 was used to analyse the data. Descriptive statistics were computed for demographic variables of family caregivers. Pearson correlation analysis was used to analyze the relationship between the care burden and quality of life, linear logistic regression analysis was applied to determine the effect care burdens have on the quality of life, and logistic regression analysis was employed to determine the effect descriptive characteristics and care-related properties have on the quality of life. The score mean of the burden interview of caregivers was $36.6{\pm}11.2$; and their score mean of CQOLC was $81.4{\pm}17.3$. This study concluded that there was a negative relationship between caring burdens and the quality of life (p<0.001); descriptive characteristics, caring-related properties, and caring burden variables were all significant predictors of the quality of life. It is recommended that caregivers are given support by being offered training about providing care.

치매노인을 돌보는 가족원의 부양부담감과 가정간호요구도 (The Home Care Need and the Burden of a Primary Family Care Giver with Senile Dementia Patients)

  • 손영주;강기선;김수진
    • 지역사회간호학회지
    • /
    • 제11권2호
    • /
    • pp.423-440
    • /
    • 2000
  • This research was conducted to identify the following: the home care needs of patients with dementia and the burden on the primary family care giver: to provide basic data required to develop nursing intervention for the care giver: and to suggest recommendations for medical institutions and social services that could reduce the burden on the families of people suffering from dementia. subjects of this research were 53 patients of the two Public Health Centers of Cheju Province who are suffering from dementia and their families. The instrument used in the research was Kuen. Jung Don (1994)' s assessment tool of burden in the primary family care giver who has parents with senile dementia and Yoo. Young Mi(1998)'s assessment tool of home care need. modified by the researcher in the questionnaire by a Likert rating scale. The period of data collection was from February 8. 2000 to March 10. 2000. Collected data was analyzed by SPSS, using mean, standard deviation. ANOVA, t-test and Pearson correlation coefficient. The result of this research was that there was not a significant correlation between the burden on the care giver and the level of dementia, its duration, the patient's ability to perform daily tasks, the period of care giving. and the use of social services, although the lower the patient's ability to perform daily tasks. and the worse the care giver's own health situation, the higher the burden on the primary family care giver. The following suggestions are made based on the results of this research. 1. More than half of the subjects don't use social facilities and services. More publicity and referral efforts are needed about medical institutions. nursing institutions and other facilities that specialize in services for dementia sufferers and their families. 2. Nursing services should include intensive education for the primary care giver in the most important aspects of home care. 3. Further research should be done, and should include data from all parts of Cheju Province.

  • PDF

성인이 된 장애자녀를 돌보는 노인부모의 부양부담감 (The Burden of Aged Parents Caring for Adult Children with Disabilities)

  • 석민현;김은혜
    • 지역사회간호학회지
    • /
    • 제21권4호
    • /
    • pp.439-447
    • /
    • 2010
  • Purpose: This study was to describe the burden of aged parents caring for adult children with disabilities and related factors. Methods: The subjects were 123 caregivers aged over 65 who were caring for 18-year-old or older children with disabilities. The research tool of this study was a structured questionnaire on family burden. Data were collected from June 3 to 25, 2010, and analyzed by Cronbach's alpha, mean, standard deviation, t-test, and ANOVA using SAS 9.2 program. Results: The major findings of this study were as follows. Elderly parents caring for adult children with disabilities perceived a moderate level of burden. The burden from concern over their children's future was highest, and economic and physical burdens were higher when the parents were younger. Burden was significantly different according to parents' characteristics such as gender, perceived health status, disease, the costs of caring for disabled children, and children's characteristics such as disability rating, health status, and ADL. Conclusion: In order to reduce the burden of elderly parents caring for adult children with disabilities, we need to improve their health status and assess comprehensive policies.

걸음마기 한 자녀를 둔 어머니의 양육스트레스 (Parenting Stress in Mothers with Only One Child in Toddler Stage)

  • 이선영;안선희
    • 가정과삶의질연구
    • /
    • 제34권1호
    • /
    • pp.33-47
    • /
    • 2016
  • The purpose of this study was to examine factors which influence maternal parenting stress. The subjects were 182 mothers with toddlers 12 to 36 months old living in Seoul and Gyeonggi-do Province. The instruments used for this study were a self-report questionnaire, PDH(Parenting Daily Hassles), EAS(Emotionality, Activity, Sociability), Value of children by Lee et al., PAI(Parenting Alliance Inventory), and burden of the costs of children. The data were analyzed by descriptive statistics, Pearson's correlation and Hierarchical multiple regression using the SPSS 18.0 program. The main results of this study were as follows: First, the mean score of activity temperament, emotional value of children and husband's support were higher than average. The mean score of Emotionality temperament, instrumental value of children, burden of the costs of children and maternal stress were average. Second, maternal parenting stress was positively correlated with emotionality temperament, mother's age, burden of the costs of children, and negatively correlated with emotional value of children, and instrumental value of children, husband's support. Third, emotionality temperament, husband's support, burden of the costs of children, maternal employment status, and instrumental value of children had an impact on maternal parenting stress. It is expected that the results of this study will contribute to providing basic data for establishing a policy to decrease maternal parenting stress.

치매노인 가족의 부담감, 대처능력과 건강관련 삶의 질과의 관계 (A Study about Health related Quality of Life, Burden and Coping Ability for Family Caregivers caring for Dementia Elderly)

  • 유문숙;김용순;김기숙
    • 한국노년학
    • /
    • 제30권4호
    • /
    • pp.1117-1127
    • /
    • 2010
  • 본 연구는 치매노인 가족의 부담감, 대처능력과 삶의 질을 파악하고 그 관계를 확인하기위해 구조화된 설문지를 이용해 시행된 서술적 조사연구이다. 연구의 대상자는 치매주간보호센터에 등록되어 서비스를 받고 있는 65세 이상 치매 진단자의 가족으로 경기도 일개 시 주간보호센터 8곳을 임의 표출하여 2010년 4월부터 6월까지 조사하였고 최종 연구대상자는 탈락자를 제외한 93명이었다. 연구결과 치매노인 가족의 부담감과 대처능력, 건강관련 삶의 질 정도를 확인하였고 부담감은 연령, 학력, 직업에 따라 차이가 있었으며 대처능력은 학력과 월소득에 따라, 건강관련 삶의 질은 연령과 결혼형태, 치매노인과의 관계에 따른 차이가 있음을 확인하였다. 본 연구의 의의는 건강관련 삶의 질과 대처능력, 부담감간의 관계를 확인함으로써 건강관련 삶의 질 향상을 위한 중재개발에 기초자료를 제시한 것이며 앞으로 대처능력 향상을 위한 구체적 연구와 치매노인 가족의 대처능력이 스트레스와 부담감에 미치는 영향에 대한 연구가 확대될 것을 제언한다.

학령기 어머니의 가계소득, 교육소비욕구 및 사교육비와 경제적 노후준비행동 간의 관계 (The Relationship between Household Income, Consumption Wants for Education, Private Education Expenses, and Old-Age Economic Preparation Behaviors in Mothers with School-Aged Children)

  • 이나영;장윤옥;정서린
    • 가족자원경영과 정책
    • /
    • 제20권1호
    • /
    • pp.159-182
    • /
    • 2016
  • The purpose of this study was to investigate the relationship between household income, consumption wants for education, private education expenses, and old-age economic preparation behaviors in mothers with school-aged children. The participants in this study comprised 393 mothers living with children aged 8.19 in Daegu. All participants had wage-earning husbands. A questionnaire was used to collect the data. Factor analysis was conducted using SPSS and structural regression analysis was performed using AMOS. The main results of this study were as follows: The participants' old-age economic preparation behaviors were influenced by their household income, the proportion of private education expenditures they paid, and the perceived burden the participants had of these private education expenditures. The consumption wants for education in mothers with school-aged children had no significant impact on the proportion of private education expenditures paid by the participants. Household income, proportion of private education expenditures, and perceived burden of the private education expenditures had a direct effect on the old-age economic preparation behaviors of the participants. When the perceived burden of the private education expenditures was mediated, the consumption wants for education in mothers with school-aged children had an indirect effect on their old-age economic preparation behaviors.

발달장애아동의 일상생활 수행능력이 부모의 부담감과 삶의 질에 미치는 영향 (The Effect of Patent's Burden and Quality of Life on the Daily Performance Ability of Children With Developmental Disabilities)

  • 이인영;이재신;차태현;유두한
    • 대한감각통합치료학회지
    • /
    • 제18권1호
    • /
    • pp.1-12
    • /
    • 2020
  • 목적 : 본 연구에서는 발달장애아동의 일상생활 수행능력이 부모의 부담감 및 삶의 질에 미치는 영향에 대해서 확인하고자 한다. 연구방법 : 충청 및 전라지역에서 발달장애아동의 부모 120명을 대상으로 하였다. 발달장애아동의 일상생활 수행능력을 측정하기 위해 소아장애 평가도구를 사용하였고, 부모의 부담감은 가족부담감 측정도구와 삶의 질은 삶의 질 척도로 설문을 실시하였다. 수집된 자료를 바탕으로 발달장애아동의 일상생활수행능력이 부모의 부담감과 삶에 질에 미치는 영향을 확인하고자 독립표본 t-검정, 일원배치분산분석, 피어슨 상관 분석과 회귀분석을 실시하였다. 결과 : 발달장애아동의 일상생활 수행능력은 부모의 부담감과 음의 상관관계를 보였고, 부모의 삶의 질과는 양의 상관관계를 보였다. 발달장애아동의 대소변 조절과 위생관리는 부모의 부담감에 중요한 영향을 주었으며, 발달장애아동의 위생관리, 화장실이용, 대소변조절은 부모의 삶의 질에 중요한 영향을 주었다. 결론 : 발달장애아동의 일상생활 수행능력은 부모의 부담감과 삶의 질에 주요한 영향을 미치는 것으로 나타났다. 부모의 부담감 감소와 삶의 질 증진을 위해 발달장애아동의 일상생활에 대한 치료적 중재와 교육, 면담 프로그램이 작업치료사들에 의해서 체계적으로 진행될 필요가 있다.