• Title/Summary/Keyword: Family Burden Questionnaire

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Influence of Caring Burden and the Way of Coping on Burnout in Caregivers of Cancer Patients (암 환자 돌봄제공자의 돌봄부담감과 대처방식이 소진에 미치는 영향)

  • Heo, Su Bin;Shin, So Young
    • Korean Journal of Occupational Health Nursing
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    • v.28 no.2
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    • pp.114-123
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    • 2019
  • Purpose: The aims of this study were to identify the effects of caring burden and the way of coping on burnout in caregivers of cancer patients. Methods: One-hundred and forty family caregivers of cancer patients who visited the cancer center at one tertiary hospital in metropolitan city B were included. The data collection was conducted from August 1st to October 1st, 2018, using a structured, self-reported questionnaire. The collected data were analyzed using descriptive statistics, t-test, one-way ANOVA, Pearson correlation coefficients, and multiple regression. Results: In the multiple regression analysis, the subject's gender (${\beta}=.12$, p=.028) and caring burden (${\beta}=.74$, p<.001) had a significant effect on burnout. The explanatory power of the subject's gender, education level, religion, caring time, number of family caregivers, monthly income, economic burden, expectation for treatment, caring burden, the way of aggressive coping, and the way of passive coping with burnout was 63.8% (F=23.28, p<.001). Conclusion: Reducing the caring burden in family caregivers of cancer patients will ultimately contribute to reducing burnout, thereby contributing to an improvement in the psychological well-being and quality of life of family members, as well as positively contributing to the recovery of patients.

Convergence Study on the Influence of the NeuroRehabilitation Patients on Family Burden (뇌신경계 재활 환자 가족부담감에 미치는 영향에 관한 융합연구)

  • Yang, Young-Mi;Cho, Mi-Ock
    • Journal of Convergence for Information Technology
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    • v.9 no.5
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    • pp.77-85
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    • 2019
  • This study is a descriptive study to identify the burden of family burden, general characteristics, and disease characteristics of patients undergoing cranial nerve rehabilitation in hospitalized rehabilitation hospitals and to identify the factors influencing the integration. The questionnaire was administered to 113 family members who were the primary care providers of rehabilitation in rehabilitation hospitals and analyzed using the SPSS statistics 22 program. The results of this study showed that the level of burden of the patient family was 3.16, the burden of the family was significantly different in the age of the caregiver, the educational level, and the relationship with the caregiver. There was no difference. Finally, the factors influencing family burden were identified as predictors of carer's age, education, religion, and relationship with the patient. It will be necessary to consider general characteristics in the development of an intervention program that lowers the burden of family rehabilitation.

A Study on the Related Factors of the Wellbeing of Family Caregivers in Elderly with Stroke (뇌졸중 노인을 돌보는 주 가족간호자의 안녕감 예측 요인)

  • Park, Yeon-Hwan;Yu, Su-Jeong;Kim, Shin-Mi;Lee, Yun-Jung
    • Journal of Korean Academy of Nursing
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    • v.36 no.2
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    • pp.373-380
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    • 2006
  • Purpose: The purpose of this study was to identify the factors related to the wellbeing of the family caregivers of the elderly with a stroke. Methods: The subjects of this study were 199 elderly treated in four oriental hospitals in Korea, and their primary family caregivers. The data was collected by interviewsand a self reported Questionnaire, during the period from October, 2003 to April, 2004. Results: The results of this study were as follows. The mean score of wellbeing of family caregivers was 60.6412.63. The factors related to wellbeing of family caregivers were sex, age, education, depression, illness severity, ADL, paralysis, and speech disability in elderly characteristics. Among family caregivers characteristics, education, relation, and burden were significantly related. In situational variables, family income and the previous relationship between the elderly and family caregivers were related to wellbeing. Stepwise multiple regression analysis revealed that the most powerful predictor of wellbeing was the burden of family caregivers. A combination of the depression of elderly and age of family caregivers accounted for 50.3% of the variance of wellbeing. Conclusions: On developing the nursing intervention for improving wellbeing of family caregivers, many factors should be considered, especially caregiver burden, and elderly depression.

The Influence of Family Aggregation with Disabilities on Life Satisfaction: The Mediating Effect of Caregiving Burden (장애가족 가족응집성이 삶 만족에 미치는 영향: 부양부담 매개효과)

  • Shin, Kyung-An
    • Journal of Industrial Convergence
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    • v.19 no.3
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    • pp.97-105
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    • 2021
  • The purpose of this study was to determine the effect of family cohesion and burden of support on life satisfaction of disabled families and ultimately support the satisfied life of disabled families. The study investigated the factors that influence the life satisfaction of the disabled family through a questionnaire survey as a disabled family caring for a disabled family. As a result of the study, life satisfaction of families with disabilities was as low as 2.278 on a 5-point scale, and the burden of support was 3.432, indicating that they felt a relatively high burden of support. However, family cohesion was relatively good at 3.664, showing that support to lower the burden of support was needed to increase life satisfaction. Based on these findings, the researcher makes the following suggestions to increase the life satisfaction of disabled families. First, the need for support to alleviate the burden of caregivers for the disabled. Second, expanding support for people with disabilities receiving care. Third, there is a need to strengthen support for families with disabilities. However, as this study was conducted centered on Gyeonggi-do, there is a need for follow-up research as the study has limitations.

A Study of Burden and Social Support in Mothers of Handicapped Children (장애아 어머니의 부담감과 사회적지지에 관한 연구)

  • Jun, Hoa-Yun;Kwon, Hye-Jeoung;Kim, Sang-Jin
    • Journal of Korean Physical Therapy Science
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    • v.4 no.2
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    • pp.439-452
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    • 1997
  • Mothers of handicapped children experience many problems and difficulties related to the child's prolonged dependency and demands for special care. Social support can be identified as stress-relieving factor, social support is considered to decrease the amount of negativeness in an individual or family. This study attempted to identify the level of burden and social support in mothers of children who are handicapped, and to determine whether social support is an effective strategy for burden relief in these mothers. The method used in the study was a correlational descriptive survey using a questionnaire. The subjects for the study were 42 mothers who have the handicapped children, between two to twelve years of age, being treated at S General Welfare House for Handicapped and S Rehabilitation Center in Seoul. The data were collected during 1 month from March 20 to April 20, 1996. The instruments used for this study was a structured questionnaire which was the Burden scale developed by Suh Mihae and Oh Kasil(1993) and the PRQ(Personal Resource Questionnaire) scale developed by Brandt & Weinert(1981). The collected data were analyzed using the SPSS computer program, yielding frequencies, percentiles, means, standard deviations, $x^{2}$-test, Pearson's correlation coefficienct, t-test and ANOVA. The results of this study are as follows ; 1)The range of age in the subjects was $29{\sim}44$ years, the range age in the handicapped children was $2{\sim}12$ years. 2) The mean score of burden, for the mothers of the handicapped children was 2.75(standard deviation was 0.47) of a possible total of 5. 3) The mean score of social support, for the mothers of the handicapped children was 4.99 (standard deviation was 0.59) of a possible total of 7. 4) There was an negative correlations hip between burden level and the social support, but there was no statistically significant correlationship between burden level and the social support(r = -.2252, p = .076) 5) In the general characteristics influencing on the burden level was significantly related with the sex(t = - 2.87, p = .007) and the degree of child's handicap level(F = 11.8680, p = .000l). In the general characteristics influencing on the social support was significantly related with the family(husband) support(F = 3.5199, p = .0240). There were significant differences in the mother's levels of burden depending upon the severity of child's handicap. In other words, the degree of mother's burden was directly proportionate to the degree of child's handicap level. There were significant differences in the mother's levels of social support depending upon the family(husband) support. In conclusion, on the basis of the results of this study, there was no statistically significant correlationship between burden level and the social support. Above results suggest that strategies for the intervention programs in diminishing the mother's burden and reinforcing the social support.

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A Study on the Degree of Self-care Activities of Stroke Patients, the Family Burden, and the Educational Needs of Primary Caregivers (뇌졸중 환자의 자가간호 수행과 가족 부담감 및 교육적 요구에 관한 연구)

  • Cho, Bok-Hee;Kim, Mi-Hyang;Seo, Nam-Sook;So, Hyang-Sook
    • The Korean Journal of Rehabilitation Nursing
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    • v.2 no.2
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    • pp.243-256
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    • 1999
  • The purpose of this study was to identify the degree of self-care activities of stroke patients, the family burden, and the educational needs of primary caregivers. A descriptive survey research was conducted in 97 stroke patients and their respective primary caregivers. Data were collected by the interviews using a structured questionnare from July 26th to August 5th, 1999. NIH stroke status was $12.15{\pm}8.40$, the degree of self-care activities of stroke patients was $26.85{\pm}9.39$. The score of objective burden of primary caregivers was $31.24{\pm}4.81$ and subjective burden was $24.30{\pm}6.99$. The score of the educational needs was $89.78{\pm}9.99$. We present several imformations about clients from these scores as follows: The patients were convalescent and their depentant level of self- care was middle range; The objective burden was higher than the subjective burden; And the educational needs of family caregivers were very high. The Elain Mattis Educational Wants of Family Caregivers of Disabled Adults Questionnaire was used to assess the educational needs of primary caregivers of stroke patients. The results of this research are offered to help nurses understand the feelings of uncertainty about the new and unexpected role that family caregivers face and to help nurses meet the needs of families preparing to care stroke survivors at home.

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Comparison of the Marginal Utility and Disease Burden of Hearing Loss and Other Chronic Diseases

  • Kwon, Oh Deog;Jung, Se Young;Park, Hwa Yeon;Peak, Sue Kyoung;Cho, Su Hwan;Cho, Sang Jin
    • Korean Journal of Family Medicine
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    • v.39 no.6
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    • pp.364-369
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    • 2018
  • Background: Compared with other chronic diseases, hearing loss is generally overlooked from the perspective of disease burden. However, hearing loss is emerging as an important issue in the current society. The objective of this study was to investigate disease burdens and marginal utilities associated with hearing loss and other chronic diseases. Methods: This study analyzed the cross-sectional data of 32,986 participants aged 19 years and older who completed the Korea National Health and Nutrition Examination Surveys between 2009 and 2013. Additionally, this study used the pure tone audiometric test, European Quality of Life-Five Dimensions Questionnaire, and chronic disease status. The data were analyzed using a multiple linear regression method. Results: The data of 23,297 people who underwent a pure tone audiogram and completed the European Quality of Life-Five Dimensions Questionnaire were used in this analysis. The marginal utility of hearing loss ranked fifth among nine chronic diseases. The estimated loss of quality-adjusted life years associated with hearing loss was -93.69 years per 100,000 people, which is similar to other chronic diseases. Conclusion: This study assessed the marginal utilities and public burdens of hearing loss and eight chronic diseases in a South Korean population. Although the values may vary depending on country and race, this study may provide an indispensable foundation for more detailed studies on hearing loss.

The Burden of Main Caregivers in the Family with Schizophrenic Patient (정신분열병환자 가족 주보호자의 부담에 관한 연구)

  • Hur, Bok-Sim;Ryu, So-Yeon;Park, Jong;Kim, Ki-Soon;Kim, Yang-Ok;Kim, Hack-Ryul
    • Journal of agricultural medicine and community health
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    • v.24 no.2
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    • pp.351-368
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    • 1999
  • The objective and subjective burden was evaluated toward 115 main caregivers in the family with schizophrenic patient by interview with structured questionnaire and self-report using Family Burden Scale (FBS) of family with schizophrenic patient in Korea. The results were as follows : 1) The mean age of onset by schizophrenic patient were 23 years old in male and 26 in female. 2) The mean scales of objective and subjective burden were 1.5 and 1.6. 3) By Logistic regression objective burden was significantly affected by family support (P<0.001), religion (P<0.05), occupation (P<0.05). 4) Subjective burden was significantly affected by family support (P<0.01) and family total income (P<0.05). 5) Total objective and subjective burden was significantly affected by family support (P<0.001), religion (P<0.05). In conclusion, this study suggests that main caregivers need family support from other family members. For them religion and social support are also helpful to cope with the burden to take care of the schizophrenic patients.

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A Theory Construction on the Care Experience for Spouses of Patients with Chronic Illness (만성질환자 배우자의 돌봄 경험에 대한 이론 구축)

  • Choi, Kyung-Sook;Eun, Young
    • Journal of Korean Academy of Nursing
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    • v.30 no.1
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    • pp.122-136
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    • 2000
  • Chronic illness requiring attention and management during a long period of time puts great burden onto patients, their family and society. For patients with chronic illnesses, providing social support is the most important, and the fundamental support comes from their spouses. Amount and quality of support from spouses seems to differentiated according to the sex of patients. Female patients tend to believe that their spouses are not very supportive. Therefore, the researchers assessed the burden of husbands of female arthritis patients to discover the factors that result in greater burden. Also, they developed a theoretical model of husbands′ care for their wives through a qualitative research into husbands′ experience. Method 1: The study material was 650 female arthritis patients registered in an arthritis clinic. The questionnaire about the disease experience of female arthritis patients and the burden of husbands were sent. Returned questionnaires numbered 210(32.3%) and 27 were excluded because of inadequate answers. The remaining 183 questionnaires were analyzed. The mean age of the patients was 51 years and the mean age of spouses was 55 years. The mean marital period was 28 years. The average duration since diagnosis was 9.1 years. Education level was varied from primary school to graduate school, and average income/month was 1,517,300 won. Method 2: Initial questionnaire studies on the burden of husbands were performed. Among 183 responding husbands, 23 consented to participate for a qualitative research. Data was obtained by direct and telephone interviews. The mean age of participants was 58 years, and the educational level and socioeconomic status also varied. Result: 1. Husbands′ burden: The average burden was 57.68 with a range of 6-96. 2. Burden and general characteristics: The husband′s burden correlated with the age of the patients, numbers in the family, therapy methods, patient′s level of discomfort, patient′s disease severity, patient′s level of dependence and the husband′s understanding of the level of severity. 3. Linear correlation analysis on burden: The husbands′ burden is explained in 22.5% by husband′s recognition of level of severity and husbands′ age. 4. There were four patterns of the burden on husbands: both objectve burden and subjective burden were high(pattern I), both of objectve burden and subjective burden were low(pattern II), objective burden was high but subjective burden was low(pattern III), objective burden was low but subjective burden was high(pattern IV). The pattern was correlated with the family income, educational level of the patients and their husbands, therapy methods, patient′s level of discomfort, patient′s disease severity, patient′s level of dependence and husband′s understanding of level of severity. 5. The core category of the caring experience of the husbands with arthritis patients was "companionship". The causal factor was the patients′ experience due to symptoms : physical disfigurement, pain, immobility, limitation of house chores, and limitation of social activities. Contextural factors are husbands′ identification of housework and husbands′ concern about the disease. The mediating factors are economic problems, fear of aging, feeling of limitation and family support. The strategy for interaction is mind control and how to solve emotional stress. The "companionship" resulted from caring activities, participation of household activities, helping patients′ to coping with emotional experience. 6. Companionship is established through the process of entering intervention, and caring state of mind. Entering intervention is the phase of participation of therapy and involvement of houseworks. The caring phase consists of decision on therapy, providing therapy, providing direct care, and taking over the household role of wife. Through caring phase, the changing phase set a stage in which husbands consolidate the relationship with their wives, and are reminded of the meaning of marriage. As a result, in changing phase, husbands′ companionship is enhanced. In conclusion, nursing care of chronic illnesses should include a family member especially the spouse. All information on disease shoud be provided to patients and whole family member. Strong support should also be provided to overcome difficulties in taking over role of other sex. Then the quality of life of patients and families will be much improved.

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Cancer Care Burden among Primary Family Caregivers of Iranian Hematologic Cancer Patients

  • Abbasnezhad, Masoomeh;Rahmani, Azad;Ghahramanian, Akram;Roshangar, Fariborz;Eivazi, Jamal;Azadi, Arman;Berahmany, Golshan
    • Asian Pacific Journal of Cancer Prevention
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    • v.16 no.13
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    • pp.5499-5505
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    • 2015
  • Background: Providing care for hematologic cancer patients may lead to many negative complications in different aspects of life in their family caregivers. Based on a wide review of relevant literature, there are limited data about the burden of giving care for hematologic cancer patients on their primary family caregivers in Iran or other Middle Eastern countries. Therefore, the aim of this study was to investigate the cancer care burden on primary family caregivers of hematologic cancer patients, in terms of physical, psychological, social, spiritual, and financial aspects. Materials and Methods: In this descriptive study, 151 primary family caregivers of hematologic cancer patients referred to two cancer care centers in East Azerbaijan Province in northwest of Iran participated. The Financial Distress/Financial Well-being Scale, Hospital Anxiety and Depression Scale, Vaux Social Support Questionnaire, Spiritual Well-being Scale, and SF-36 were used for data collection. Data analysis was performed with SPSS software. Results: The findings of this study indicated that the primary family caregivers experience a high level of financial distress and a significant percentage of them suffered from anxiety and depression. In addition, the physical quality of life in these caregivers was moderate. On the other hand, spiritual health and social support of participants was at an acceptable level. Conclusions: Iranian primary family caregivers of hematologic cancer patients experience many problems in physical, psychological, and financial aspects of their life. Therefore, developing care plans for reducing these problems appears necessary.