• 한국건강관리협회지
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• 제3권1호
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• pp.97-109
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• 2005

Chronic fatigue syndrome(CFS) is a complex, debilitating disorder characterized by at least 6 months of severe persistent of relapsing fatigue and a group of characteristic but nonspecific symptoms. Many researchers have proposed that CFS has a specific cause. However currently no evidence exists that proves either a specific cause of CFS. And there is no diagnostic test for CFS. The diagnosis of chronic fatigue syndrome is based on the patient's history, excluding other illnesses In the absence of consistent biological markers, the diagnosis of CFS arises from operational criteria that do not afford validity. The prognosis is poor and often disability and impairment of daily function and performance are prolonged. A limited understanding of the CFS has complicated the management of this disorder. Therefore, treatment of CFS may be variable and should be tailored to each patient. Therapy should include exercise, diet, good sleep hygiene, antidepressants, and other medications, depending on the patient's presentation. Regular follow-up is key to continue to exclude other medical problems and provide support for patients. Chronic fatigue syndrome is a challenging illness to manage and requires a team approach of caring providers. For the majority of patients this is a chronic illness with the goals of therapy being to improve functional status and to prevent disability. Further understanding of the etiology and pathogenesis of this illness should lead to better specific therapy.

• Journal of Preventive Medicine and Public Health
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• 제31권2호
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• pp.293-309
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• 1998

The purpose of this study is to compare the level of health-related quality of life and relating factor between institutional elderly and community living elderly. The subjects were 390 from Sanatorium or Nursing home and 467 from the community in Kwangju. The results are followed : 1) A comparison of ADL between two groups, institutional elderly and community living elderly, resulted in that community elderly were more significantly independent in the areas of bathing and transfer than institutional elderly. 2) A comparison of IADL between two groups resulted in that : Community elderly were more independent in the areas of using telephone and transportation, food preparation, house keeping, and doing laundry. Institutional elderly were more independent in the area of handling finances. 3) In the case of poor health-related quality of life, institutional elderly showed 2.4 times in the dimension of physical fitness, 1.8 times in daily activity, 2 times in social activity, 2 times in pain, 26.7 times in social support, and 0.4 times in subjective quality of life higher than community elderly There was no significant differences in the rest of dimensions. 4) In institutional elderly, the analysis of variables related to the health-related quality of life resulted in that; The relating factors were sex, education, and chronic illness in the dimension of physical function. Direct contact with family or significant others in the dimension of social activity. Chronic illness in the dimension of pain and perceived health status. Direct or indirect contact with family or significant others over the phone or through letters in the dimension of social support. 5) The analysis of variables related to the health-related quality of life showed that community elderly has more relating variables in each area than institutional elderly. The relating factors were age, sex, and chronic illness in the dimension of physical function. Education and chronic illness in the dimension of emotional status. Age and chronic illness in the dimension of daily activity and social activity Education and chronic illness in the dimension of pain and perceived health status. Sex, education, family size in the dimension of social support. Education and chronic illness in the dimension of subjective quality-of-life. Throughout general daily activity, community elderly showed more satisfactory results than institutional elderly, but in the subjective area of health-related quality of life, such as subjective quality of life, institutional elderly group showed more positive results. And community elderly had more relating factors than institutional elderly. For the health care of the elderly that focused on quality of life, new approaches considering the characteristics of both group, institutional and community living elderly, are needed.

• 대한간호학회지
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• 제45권6호
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• pp.834-845
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• 2015

Purpose: This study was done to develop an empowerment program for people with chronic mental illness and to analyze effects of the program on level of empowerment. Methods: The research was conducted using a nonequivalent control group pretest-posttest design. Participants were 37 people with chronic mental illness (experimental group: 18, control group: 19). The empowerment program was provided for 8 weeks (15 sessions). Data were collected between July 21 and October 17, 2014. Data were analyzed using Chi-square, Fisher's exact test, Sapiro-wilk test, and Repeated measure ANOVA with SPSS/WIN 18.0. Results: Quantitative results show that self-efficacy, interpersonal relationships, attitudes in the workplace, occupational performance capacity, and levels of empowered execute were significantly better in the experimental group compared to the control group. Conclusion: Study findings indicate that this empowerment program for persons with chronic mental illness is effective for improving self efficacy, interpersonal skills, attitudes in the workplace, occupational performance capacity, levels of empowered execute.

• Child Health Nursing Research
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• 제7권4호
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• pp.451-460
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• 2001

Congenital heart disease is now estimated to be the most prevalent chronic illness in children. The overall purpose of study is to enhance our understanding of mother's perception of family stress, perceived social support, and coping who has a child newly diagnosed with congenital heart disease. In this investigation, the relationship between family stress, perceived social support, and coping within the context of a acute, non life- threatening chronic illness in the situation of newly diagnosed as Rolland's typology of chronic illness. The study employed data from a subset of a large longitudinal study, children's chronic illness: parents and family adaptation conducted by M. McCubbin (5 R29 NR02563) which was funded by the NIH. The subject for this study were 92 mothers who have a child under age 12 who was newly diagnosed with congenital heart disease within the last 3-4 months. Results form correlational and regression analysis revealed that perceived social support operated as a resiliency factor between family stress and coping of mothers. Child and family characteristics appeared to be important predictors of perceived social support and mother's coping. Therefore, the findings provide an incremental contribution to the explanation of effects for perceived social support and may challenge resiliency model in previous literature. Further, these findings suggest that perceived social support and coping are both influencing in the resiliency of relatively high risk groups of families who has a child with congenital heart disease.

• Child Health Nursing Research
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• 제12권2호
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• pp.223-232
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• 2006

Purpose: The purpose of this study were to describe of resilience in children with chronic illness and family resilience, and to identify their correlations. Method: Data was collected from 108 children and their families, being treated by hospitals C and K in Seoul, who are diagnosed with nephrotic syndrome, IgA nephritis, diabetes, asthma at least six months ago. Descriptive, t-test, One-way ANOVA, and Pearson's Correlation were done. Result: The mean score of resilience in children was 101.31 and family resilience was 60.14. The variable which showed a statistically meaningful difference in the resilience in children according to a general characteristic was the gender of a child (t=6.209, p<.05), diagnosis (F= 6.315, p<.01), age of a mother (t=2.237, p<.05), and school grade (F=12.838, P<.01). In terms of the family resilience according to a general characteristic, the variable showing a statistically meaningful difference was the order of sibling (F=13.468, p<.01). There was significant positive resilience in children between family resilience (r=.356, p<.01). Conclusions: In this study we proposed the implement programs for the increase of the resilience in children with chronic illness. In order to give a positive effect on the resilience in children, implement for the increase of the family resilience is also proposed.

• 기본간호학회지
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• 제3권1호
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• pp.19-36
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• 1996

The purpose of this study was to provide basic information for developing family-focused nursing interventions for families with chronic illness. The subjects were 68 families of chronically ill patients in hospitalization and 68 families, as a comparison group, who didn't have chronically ill family members. The results of this study were as follows. 1. families with chronic illness showed higher anxiety scores (t=2.28, P=.024) and lower family functioning scores than normal families(the performance of family functioning : t=2.83, P=.005, the satisfaction of family functioning : t=5.76, P=.000) 2. In family caregiver systems, spouses of chronically ill patients showed higher anxiety scores (t=2.72, P=.008) and lower family functioning scores than those of normal families(the performance of family functioning : t=2.28, P=.026, the satisfaction of family functioning : t=4.41, P=.000) : however, the anxiety scores between children of chronically ill patients and those of normal families were no statistically significant differences. with regard to satisfaction of family functioning, children of chronically ill patients showed lower scores than those of normal family(t=3.85, P=.000). 3. In families with chronic illness, there were significantly positive correlations between the perceived importance of family functioning and anxiety(r=.415, P=.001) and between the performance and satisfaction of family functioning(r=.727, P=.001) ; however, there was a negative correlation between satisfaction of family functioning and anxiety(r=-.334, P=.01). In normal families, there was no significant correlation between family functioning and anxiety. Findings of this study suggest that families with chronic illness need family-focused nursing interventions for relieving their anxiety and for improving family functioning. in conclusion, the investigation of family functioning and anxiety provides useful information in family-focused nursing care, especially for spouses of chronically ill patients. This information will contribute to developing the support systems for family caregivers and education programs for managing chronically ill patients.

• Child Health Nursing Research
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• 제4권2호
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• pp.207-220
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• 1998

The purpose of this study was to build a substantive theory about the experience of the maternal uncertainty in childhood chronic illness. The qualitative research method used was grounded theory. The interviewees were 12 mothers who have cared for a child who had chronic illness. The data were collected through in-depth interviews with audiotape recording done by the investigator over a period of nine months. The data were analyzed simutaneously by a constant comparative method in which new data were continuously coded into categories and properties according to Strauss and Corbin's methodology. The 34 concepts were identified as a result of analyzing the grounded data. Ten categories emerged from the analysis. The categories were lack of clarity, unpredictability, unfamiliarity, negative change, anxiety, devotion normalization and burn-out. Causal conditions included : lack of clarity, unpredictability, unfamiliarity and change ; central phenomena : anxiety, being perplexed ; context. seriousness of illness, support ; intervening condition : belief action/interaction strategies devotion, overprotection ; consequences : normalization, burn-out. These categories were synthesized into the core concept-anxiety. The process of experiencing uncertainty was 1) Entering the world of uncertainty, 2) Struggling in the tunnel of uncertainty, 3) Reconstruction of the situation of uncertainty. Four hypotheses were derived from the analysis : (1) The higher the lack of clarity, unpredictability, unfamiliaity, change, the higher the level of uncertainty (2) The more serious the illness and the less the support, the higher the level of uncertainty. (3) The positive believes will influence the devoted care and normalization of the family life. Through this substantive theory, pediatric nurses can understand the process of experiencing maternal uncertainty in childhood chronic illness. Further research to build substantive theories to explain other uncertainties may contribute to a formal theory of how normalization is achieved in the family with chronically ill child.

• Child Health Nursing Research
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• 제21권3호
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• pp.272-284
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• 2015

Purpose: The purpose of the study was to describe the parenting experience of parents of children with chronic illness in Korea. Methods: A conventional contents analysis was used for the study. Twelve mothers of chronically ill children participated in the study. Qualitative data were analyzed using the Morse and Field method. Results: Four categories, 10 subcategories and 42 codes emerged from the data on the parenting experience of parents of children with chronic illness. The four categories were 'Sacrifice and full-engagement within self-mortification', 'Re-normalization of collapsed daily life', 'Paving a new way for independence' and 'Growing together of myself and the family'. Conclusion: Parents of children with chronic illness experienced not only negative aspects such as a confusion but also re-normalization and growing together. Based on the results, health professionals need to develop effective nursing interventions toward positive parenting for these parents and their children with chronic illnesses.

• 사회복지연구
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• 제48권4호
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• pp.91-120
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• 2017

본 연구에서는 WHO의 국제기능장애건강분류틀(ICF)을 기반으로 고령장애인의 만성질환과 다차원적 장애 간의 관계, 공식 비공식 지지와 다차원적 장애 간의 관계를 살펴보고 공식 비공식 지지의 조절효과를 확인하고자 하였다. 이를 위해 만 50세 이상 고령장애인 450명을 대상으로 2014년도 9차 한국복지패널자료를 사용하여 구조방정식모델(structural equation modeling)로 분석하였다. ICF에 근거하여 건강조건은 고령장애인의 만성질환 수준으로 측정하였고 다차원적 장애는 심리 정서적 기능, 일상활동 수행능력, 사회활동 참여로 측정하였으며 환경요인인 공식 지지와 비공식 지지는 각각 공적서비스 이용 총 수와 지각된 사적 사회적 지지 수준으로 측정하였다. 분석 결과, 만성질환은 심리 정서적 기능에 부정적인 영향을 미쳤고 비공식 지지는 심리 정서적 기능과 일상활동 수행능력에 긍정적인 영향을 미쳤다. 반면 공식 지지의 경우, 일상활동 수행능력과 부적 관계를 나타냈고 만성질환과 심리 정서적 기능의 부적 관계에 부정적 영향을 미치는 것으로 나타났다. 연구결과를 바탕으로 고령장애인의 기능수행(functioning) 제고를 위한 실천적 정책적 제언을 제시하고자 하였다.

• 근관절건강학회지
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• 제6권1호
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• pp.100-135
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• 1999

Typical symptoms of rheumatic disease affect overall daily living and cause severe stress. Individuals afflicted with rheumatic disease have many illness-related stresses. Pain was the predominantly perceived stress followed by limitation in mobility, difficulties in carrying out activities of daily living. helplessness, dependency on others, threat to self-esteem, interference in social activity, interference in family relationships. difficulties performing at work, and discomfort of the treatment. Patients with chronic arthritis are subjected to long periods of continuous stress, which may require the management by the health care provider. In these cases, the purpose of the nursing is helping to promote health through supporting patient's coping. Therefore, for the nursing intervention to be effective, it is critical to build a theoretical framework that describes stress-coping for chronic arthritis. Thus, the purpose of this dissertation is to present a theoretical framework which describes the stress-coping processes and to empirically test pathos of this framework for the people with chronic arthritis. The foundation upon which this framework is built in the Erickson, Tomlin, and Swain(1983) theory of Modeling and role-Modeling. The subjects were 275 patients with rheumatoid arthritis or osteoarthritis who visited the outpatient clinic. A hypothetical model of stress-coping was tested by covariance structure analysis with PC-LISREL 8.12 program. As a result, the overall fit was good(Chi-square=94.49, P=0.00, RMR=0.067, GFI=0.95, AGFI=0.91, NNFI=0.93, NFI=0.91) for the hypothetical model. The results of hypothesis testing were as follows : Basic need satisfaction had a statistically significant influence on illness-related experience, emotional stress and coping resources. Internal health locus of control had a statistically significant influence on coping resources. However, independent variables(basic need satisfaction, internal health locus of control, illness-related experience, emotional stress and coping resource) did not have significantly influence on coping. And then, the hypothetical model was modified by considering both the theoretical implication and statistical significance of the parameter estimates. The revised model had a better fit to the data(Chi-square=83.11(P=0.00), RMR=0.061, GFI=0.96, AGFI=0.92, NNFI=0.95, NFI=0.92). Hypothesis emerged from the revised model was tested. The results of hypothesis testing were as follows : Basic need satisfaction had a statistically significant influence on illness-related experience, emotional stress and coping resources. Internal health locus of control had a statistically significant influence on illness-related experience and coping resources. Internal health locus of control, illness-related experience, emotional stress and coping resources had a significantly influence on coping. According to the results of this dissertation, basic need satisfaction and internal health locus of control play a central role in appraisal of illness-related experience and coping resources. And illness related-experience, emotional stress, and coping resources affect on coping activities. In summary, nursing interventions to enhance basic need satisfaction and internal health locus of control will decrease illness related experience and emotional stress and increase coping resources. Increased coping resources will prompt coping activities.