• Journal of Korean Academy of Nursing
• /
• v.43 no.2
• /
• pp.247-255
• /
• 2013

Purpose: This study was done to evaluate the effects of 3 times/week and 5 times/week abdominal meridian massage with aroma oils (AMMAO) on the relief of constipation among hospitalized children with disabilities involving the brain lesions (cerebral palsy, epilepsy, and others). Methods: The participants were 33 hospitalized children with a disability involving the brain (15 were in the 5 times/week of AMMAO group and 18 were in the 3 times/week of AMMAO group). Data were collected from March 21 to May 1, 2011. Chi-square test, t-test, and repeated measures ANOVA with SPSS 18.0 were used to evaluate the effects of AMMAO. Results: While there was no significant difference between the two groups, there was a significant difference within groups between baseline and the end of the intervention period for the following, frequency of suppository use or enemas, amount of stool, and number of bowel movements. Conclusion: The results of this study indicate that AMMAO is an effective nursing intervention in relief of constipation for hospitalized children with a disability involving the brain. Therefore it is recommended that AMMAO be used in clinical practice as an effective nursing intervention for relief of constipation to these children.

• The Journal of Pediatrics of Korean Medicine
• /
• v.24 no.3
• /
• pp.81-91
• /
• 2010

Objectives: The basic cause of developmental disability is congenital weakness, which is a disorder of the kidney according to the Oriental medicine definition. I suggest the oriental medicine music therapy, which can improve congenital weakness and recover the kidney dysfunction. Methods: This study focused autism and Asperger syndrome in terms of Oriental medicine, and also considered view points from the Western medicine. Conclusions 1. The kidney monitors vital elements which were produced from the bone marrow. Therefore, the growth and the development of a skeletal structure are related to the strength and weakness of kidney, which is measured in Qi score. 2. In a case of the deficiency of kidney, an essence due to congenital defect, it shows the symptoms of the developmental disability such as sluggish reaction and physical movements, falling of memory, hearing, and eyesight. 3. For the kidney disorder, "Eum music therapy", one of the oriental medicine music therapies, can promote development of the kidney and kidney-Qi score for the children with developmental disability.

• Journal of Genetic Medicine
• /
• v.19 no.1
• /
• pp.22-26
• /
• 2022

Cerebrotendinous xanthomatosis (CTX) is a rare genetic disease caused by a deficiency of enzymes for the synthesis of bile acid, resulting in the accumulation of cholestanol with reduced chenodeoxycholic acid (CDCA) production and causing various symptoms such as chronic diarrhea in infancy, juvenile cataracts in childhood, tendon xanthomas in adolescence and young adulthood, and progressive neurologic dysfunction in adulthood. Because oral CDCA replacement therapy can effectively prevent disease progression, early diagnosis and treatment are critical in CTX. This study reports the case of CTX in a 10-year-old male who presented with Achilles tendon xanthoma and mild intellectual disability. Biochemical testing showed normal cholesterol and sitosterol levels but elevated cholestanol levels. Genetic testing showed compound heterozygous variants of CYP27A1, c.379C>T (p.Arg127Trp), and c.1214G>A (p.Arg405Gln), which confirmed the diagnosis of CTX. The patient had neither cataracts nor other focal neurologic deficits and showed no abnormalities on brain imaging. The patient received oral CDCA replacement therapy without any adverse effects; thereafter, the cholestanol level decreased and no disease progression was noted. The diagnostic possibility of CTX should be considered in patients with tendon xanthoma and normolipidemic conditions to prevent neurological deterioration.

• Journal of English Language & Literature
• /
• v.56 no.4
• /
• pp.597-618
• /
• 2010

This paper discusses American disability theater's representations of disability identity and disability identity politics. Dramatists John Belluso and Lynn Manning, among others, present characters with disabilities who experience oppressions at multiple, interlocking levels of domination on the basis of disability, race, and ethnicity. In Manning's Shoot, the black, blind hero iterates episodes in which he experienced discrimination and insults in encounters with whites who used derogatory racist words or belittled him and with some school children who taunted him for just being blind. This play, as in Manning's solo performance, Weights, presents narratives of a blind person traversing multiple locations of oppression in "a long litany of losses" in a white-dominated and ableist society. Belluso's Gretty Good Time similarly weaves together stories of disabled women, Gretty and Hideko, who bond together to resist the dominant ideology that reduces them into titillating commodities of mass consumption. Hideko's story serves the two-fold function of both affirming the specificity of her individual experience as an ethnic other and espousing the communal experience of stigmatization she shares with other disabled women like Gretty. In these plays, the intersection of the identity categories of disability, race, and ethnicity highlights the diversity of the body and the fluidity of boundaries, foregounding the specificity of disabled bodies, while at the same time overthrowing the hierarchical binarism between disabled and "normal" bodies.

• Journal of the Korean Home Economics Association
• /
• v.40 no.6
• /
• pp.117-131
• /
• 2002

The purpose of this study was to analyze coping behavior types of mothers of autistic children. Through the use of Q methodology using a sample of 23 pairs of mothers and therapists, four factors were derived that account for the coping strategies of mothers of children with autism. The mothers of the first type have either accepted their child's disability and their own situation. For the second type, the mothers engaged in therapeutic work for their child with a positive attitude. These mothers accepted their child as a family member. The third type shared ambivalent feelings and responses regarding their child's disability. And the last type expressed concerns and difficulties related to the situation. They tried to get social support to deal with the stressful situation. The agreement of mothers'psychological adjustment from the exports'and mothers'perceptive was found to be 52%.

• The Journal of the Korea Contents Association
• /
• v.21 no.2
• /
• pp.185-194
• /
• 2021

This study was conducted to identify the factors that influence students' disability acceptance attitudes in elementary schools in face of integrated education becoming common. For this study, a questionnaire survey was conducted on 472 students, from fourth to sixth grade, in three elementary schools in Jeollanam-do; furthermore a regression analysis was conducted using SPSS 23.0. The survey demonstrated that gender and grade did not have a significant effect on disability acceptance attitudes. Whereas empathy abilities, contact and knowledge of children with disabilities, respectively, influenced disability acceptance attitudes. Consequently, improving students' ability to empathize with others is more important than simply providing knowledge in itself. Thus, there is a need for the implementation of programs and education geared toward promoting empathy. Moreover, contact was found to have a negative impact on disability acceptance attitudes, suggesting the need to promote more positive disability-related experiences to elementary school students.

• The Journal of Korea Assosiation for Disability and Oral Health
• /
• v.7 no.1
• /
• pp.15-20
• /
• 2011

A person with neurological disorder is defined as a person with limitation of ambulation or basic life activity due to the cerebral palsy or traumatic brain damage, stroke. Recently, the DMFT of the children with neurological disorders is similar or lower than the DMFT of the children with no disability. But, this article is about the severe-early childhood caries in children with grade 1 neurological disorder. It is supposed that the primary motor impairment and secondary physical weakness, frequent hospitalization, sugar- rich food and drugs, lack of oral care, delayed dental visit made high caries susceptibility. In case of treatment of the children with severe neurological disorders, dentists should make a thorough caries preventive plan based on individualized caries risk assessment. Also parents and medical doctors should recognize the importance of oral care and do the early dental visit and home care.

• Journal of Nutrition and Health
• /
• v.54 no.5
• /
• pp.474-488
• /
• 2021

Purpose: Malnutrition in children with cerebral palsy (CP) is a significant factor affecting their adequate growth and development. This study aimed at conducting surveys and evaluating the dietary intake of children with CP according to their BMI classification and to thereby highlight the dietary factors affecting the nutritional status of these children. Methods: A total of 16 children were enrolled between the age of four and twelve. These subjects were further classified into three groups, namely underweight, normal and obese, with 6, 8, and 2 children in each group, respectively. The general characteristics, motor disturbances, body composition, feeding problems, eating habits, nutritional intake, dietary variety, and food frequency for children with CP were evaluated. Results: It was observed that motor disturbances tended to increase in underweight children with CP. A significant decrease (p < 0.05) in disturbances related to oral feeding was observed with an increase in obesity. The pattern of eating habits revealed that subjects in the underweight group consumed unbalanced meals, while those in the obese group tended to consume larger meals at a faster pace. The feeding disturbance data revealed that those in the underweight group could not prepare their meals while the obese group had the problem of overeating and consuming an unbalanced diet (p < 0.05). Conclusion: It is necessary for both children with CP, who have a high degree of disability, and their caregivers to take lessons on adequate nutrient intake to prevent malnutrition. Moreover, it is necessary for the caregivers and children with CP having a low degree of disability to take lessons on providing and consuming a balanced diet and to focus on the intake of sufficient calcium in order to prevent obesity.

• Clinical and Experimental Pediatrics
• /
• v.63 no.6
• /
• pp.195-202
• /
• 2020

Developments in next-generation sequencing (NGS) techogies have assisted in clarifying the diagnosis and treatment of developmental delay/intellectual disability (DD/ID) via molecular genetic testing. Advances in DNA sequencing technology have not only allowed the evolution of targeted panels but also, and more currently enabled genome-wide analyses to progress from research era to clinical practice. Broad acceptance of accuracy-guided targeted gene panel, whole-exome sequencing (WES), and whole-genome sequencing (WGS) for DD/ID need prospective analyses of the increasing cost-effectiveness versus conventional genetic testing. Choosing the appropriate sequencing method requires individual planning. Data are required to guide best-practice recommendations for genomic testing, regarding various clinical phenotypes in an etiologic approach. Targeted panel testing may be recommended as a firsttier testing approach for children with DD/ID. Family-based trio testing by WES/WGS can be used as a second test for DD/ID in undiagnosed children who previously tested negative on a targeted panel. The role of NGS in molecular diagnostics, treatment, prediction of prognosis will continue to increase further in the coming years. Given the rapid pace of changes in the past 10 years, all medical providers should be aware of the changes in the transformative genetics field.

• Journal of Korea Entertainment Industry Association
• /
• v.14 no.4
• /
• pp.411-419
• /
• 2020

The purpose of this study was to examine the mediating effect of social support on the relationship between parenting stress and depression among parents of children with a disability. One hundred and fifty parents of children with a disability from Gwangju area were asked to complete a survey including The Parental Stress Scale, The Social Support Scale, and The Depression Scale. The data was analyzed by descriptive statistics, pearson correlation, and multiple regression analysis using SPSS 24.0. The results of the study are as follows: First, the correlation analysis showed statistically significant correlations among parental stress, social support and depression. Second, the simple regression analysis showed the direct effect of parental stress on depression. Third, the multiple regression analysis showed the mediating effect of social support on the relationship between parental stress and depression. This suggests the social support may reduce the negative effect of the parental stress on the depression. Implications, limitations, and suggestions for future study are discussed.