• Title/Summary/Keyword: Cerebral palsy persons

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Parenting experiences among fathers of prematurely-born children with cerebral palsy in South Korea

  • Park, Jisun;Bang, Kyung-Sook
    • Child Health Nursing Research
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    • v.27 no.1
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    • pp.75-85
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    • 2021
  • Purpose: The symptoms and impairments caused by cerebral palsy usually require long-term treatment, resulting in a substantial burden on the family of affected children. This study explored the experiences of fathers with prematurely-born children with cerebral palsy, with a focus on how such experiences influenced their families. Methods: A qualitative case study method was used. Nine subjects were recruited from April 2018 to June 2019 at one hospital, and each was interviewed three times by a neonatal nurse. Results: Five core experiences of fathers were identified: "regret for an insufficient initial response", "confronting my child born as a premature baby", "the position of being a dad who can't do anything", "the process of treatment like a tunnel with no exit", and "a father's getting meaning in life through children". These stories covered an individual's timeline and family interactions. Conclusion: Our findings suggest that fathers of prematurely-born children tend to suppress their emotions; therefore, a novel intervention program to encourage fathers' emotional expression and to support healthier interactions with their families is needed. Moreover, our findings could contribute basic information for the construction of a community-based support system to aid families, including prematurely-born children and other persons with impairments.

Analysis of Korean Qualitative Studies on Cerebral Palsy (뇌성마비에 대한 국내의 질적 연구 분석)

  • Lee, Moonsung;Shin, Daewon;Kim, Buyoung;Yun, Youngju
    • Journal of The Korean Society of Integrative Medicine
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    • v.7 no.1
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    • pp.99-112
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    • 2019
  • Purpose : The purpose of this study was to analyze Korean qualitative research studies on cerebral palsy and provide a basis for future direction of research. Methods : Twenty-six articles were selected by searching 4 Korean databases (NDSL, DBpia, KISS, and RISS) and reviewing the list of additional references. All the articles were analyzed and assessed using the Consolidated criteria for Reporting Qualitative research (COREQ). Results : Seventeen qualitative studies and 9 mixed quantitative and qualitative studies were selected, and methodologies such as case study (42.3 %), constant comparative method (23.1 %) and phenomenology (23.1 %) were used. The studies investigated the effects of interventions (38.5 %), support programs (30.8 %), and life experiences (26.9 %). Among the participants, 50.0 % were persons with disabilities only, 19.2 % were parents only, and 30.8 % were combination of persons with disabilities, parents, teachers, and therapists. The number of participants in most studies was 2-9 (57.7 %). The COREQ evaluation of the selected articles revealed many shortcomings in the studies. Interview guidelines were used only in 26.9 % of the studies. In particular, many articles did not describe in detail the characteristics of researchers and the relationship between researchers and the participants. Conclusion : In future, various research methodologies and research checklists must be used to stimulate high-quality qualitative research with on cerebral palsy.

A Study on the Factors Affecting the Period of Job Maintenance of Persons with Cerebral Palsy (뇌성마비인의 직업유지기간에 영향을 미치는 요인 연구)

  • Kim, Jae Ik;Park, Soon
    • 재활복지
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    • v.22 no.1
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    • pp.87-114
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    • 2018
  • The purpose of this study is to identify through empirical analysis about factors affecting the period of job maintenance of workers with cerebral palsy. Based on this, workers with cerebral palsy are looking for ways to maintain their job continuously. For this purpose, this study identifies the general characteristics and verify the affect of demographic factors, disability-related factors, employment-related factors, and social environment factors on the job maintenance period of workers with cerebral palsy. For the analysis, frequency analysis, descriptivel analysis, T-test and One-way Anova was conducted for 233 persons with cerebral palsy. The results of the study, of 17 variables of the four factors affecting the job maintenance period, 15 variables obtained statistically significant results. First, the demographic variables were age, household income, marital status, and education level. Second, the disability-related variables were disability grade, disability cause, and communication ability. Third, the employment-related variables were wage, employment type, disability-related organizations and companies, job type, job training, and qualification. Fourth, the social environment variables were assistive technology devices, and labor support personnel services.

Diadochokinetic Characteristics in the Subjects with Spastic Cerebral Palsy by Severity: In Terms of Rate, Regularity, Accuracy and Consistency (심한 정도에 따른 경직형 뇌성마비 대상자의 교호운동 특성: 속도, 규칙성, 정확성, 일관성을 중심으로)

  • Nam Hyun-Wook;Ahn Jong-Bok;Kwon Do-Ha
    • MALSORI
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    • no.58
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    • pp.1-18
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    • 2006
  • The purpose of this study was to investigate diadochokinetic (DDK) characteristics in the subjects with spastic cerebral palsy (CP) by severity. DDK characteristics were measured through rate, regularity, accuracy and consistency in Alternate Motion rate (AMR) and Sequential Motion rate (SMR) tasks. The subjects participated in this study included 27 subjects with spastic CP (mild- 9, moderate- 9, severe- 9) and 9 normal persons who are around 11-20 years old. On the result of this study, rate in AMR was significant difference between all spastic groups and normal group, and rate in SMR was significant difference between normal and mild groups and moderate and severe groups. In regularity of the DDK tasks, severe group had significant difference the other groups. Finally, accuracy and consistency of the DDK tasks exhibited significant difference between all spastic groups and normal group. In conclusion, the subjects with spastic CP have a tendency to produce slow and irregular syllable repetition as severity increases, but to produce inaccurate and inconsistent syllable repetition regardless of severity in the DDK tasks.

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Effects of task-oriented training for Gross Motor Function Measure, balance and gait function in persons with cerebral palsy

  • Han, Hyun-Kyung;Chung, Yijung
    • Physical Therapy Rehabilitation Science
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    • v.5 no.1
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    • pp.9-14
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    • 2016
  • Objective: This study was to investigate the effects of Task-oriented training for Gross Motor Function Measure (GMFM), gait and balance function in cerebral palsy. Design: Randomized controlled trials. Methods: Twenty four subjects were recruited by means of a convenience sampling from Kangseo-Gu G rehabilitation center. Subjects were 24 inpatients and were randomly divided into a task-oriented training group and a conventional group. Twelve patients were experimental group who executed the task-oriented training (5 times/wk) for 4 weeks. The task-oriented program mainly focused on the capabilities of independent walking, with the angle of inclination set at 0 degrees and walking at a self-selected comfortable speed. In addition, balance training included the one-legged standing with weight-shifting and task-oriented training. Twelve patients were control group who executed only general conventional therapy (5 times/wk) for 4 weeks. All subjects were evaluated about the motor function, gait and balance function. Subjects have conducted the measured variables, GMFM, GAITRite, PDM Multifunction Force Measuring Plate after treatment. Results: There was statistically significant increase of Gross Motor Function Measure scores of the experimental group and control group after 4 weeks (p<.05). There was statistically significant increase of gait and balance function of the experimental group after 4 weeks of task-oriented training (p<.05). The experimental group showed a significantly improvement in GMFM, gait, and balance compared to the control group (p<0.05). Conclusions: This study proved that task-oriented training after stroke can improve Gross Motor Function Measure, gait and balance. Thus this study can suggest that task-oriented training for gross motor function, gait and balance be effective on the cerebral palsy.

A Survey of the Oral Status in Handicapped (심신장애자의 치과질환 실태보고)

  • Lee, Keung-Ho
    • Journal of the korean academy of Pediatric Dentistry
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    • v.10 no.1
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    • pp.13-23
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    • 1983
  • The purpose of this study was to make a comprehensive study and provide information about the oral status of handicapped. 874 (male: 540, female: 334) persons who are housed by 12 institution aged from 4 to 28 years in Seoul area was examined by considering the DMF rate, periodontal condition and occlusion. The obtained results were as follows: 1. Cerebral palsy, poliomyelitis, mental retardation, and blindness groups had a significant higher DMF rate than that occurring in any of the remaining groups. 2. Prevalence of periodontal disease in blindness, mongolism, cerebral palsy, poliomyelitis groups showed higher than that of the remaining groups. 3. Mongolism group had a significantly higher incidence of malocclusion (69.23%).

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A Study on Donning and Doffing Independence of the Person with Disabilities on Upper-limbs (상지 운동 기능 장애인의 착.탈의 자립성 연구)

  • Shin, Se-Mi;Chun, Jong-Suk
    • The Research Journal of the Costume Culture
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    • v.19 no.1
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    • pp.42-53
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    • 2011
  • The purpose of this study was to investigate donning and doffing independence of the disabled individuals. The subjects of this study were who had kinetic disabilities on upper-limbs. 31 women and 38 children were participated in the survey. They were classified with six groups according to their upper-limbs' kinetic ability levels. Three upper-limbs' kinetic abilities were adopted: Lifting arms up to the chest, twisting shoulder to throw arms toward the back, and buttoning clothes by oneself. The independency of donning and doffing of 14 upper-body garment styles were evaluated by subjects. The donning and doffing independency of 14 garment styles was significantly differentiated by the level of kinetic abilities and garment styles. The person who able to button clothes by oneself could don and doff clothes by oneself. The results also revealed that the independency of donning and doffing was significantly different between cerebral palsy and apoplexy groups. The persons having a stroke of apoplexy were more likely to be able to dress independently than the persons with cerebral palsy. The persons with a paralysed arm were more likely able to wear ready-to-wear clothes of various styles. The donning and doffing independency was also significantly differentiated by the styles of garments. The tight fit style garments were more difficult to be dressed independently than the loose fit style garments. The jacket and shirts, which were buttoned from neck to bottom, were more difficult to be dressed independently than T-shirts.

The Effects of Therapeutic Horseback Riding on Equilibrium for Children with Disabilities

  • Kang, Ok-Deuk;Kang, Anna;Ryu, Youn-Chul;Lee, Wang-Shik
    • Journal of Animal Science and Technology
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    • v.55 no.2
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    • pp.141-146
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    • 2013
  • This study was performed on 26 disabled adolescent participants (16 male, 10 female) with the objective of testing changes in equilibrium after engagement in horseback riding. Participants of total 26 persons were divided into three groups as follows: 6 children with Cerebral Palsy (CP), 14 children with Intellectual Disability (ID) and 6 children with Autism (AT). Participants engaged in therapeutic horseback riding (TR) two times per week for 30 minutes per session. The 26 participants demonstrated a considerable increase in equilibrium ability, with an average increase in equilibrium time of $44.22{\pm}50.70$ sec after TR. Equilibrium also increased according to disability group: CP (P < 0.05), ID (P < 0.001), and AT (P < 0.05). TR should be considered as a possible method for improving functionality in the physically disabled. This data may also be usefully applied to the development of a horseback riding program for the improvement of equilibrium in the disabled.

Dental Treatment of a Patient with Cerebral Palsy under General Anesthesia (뇌성마비 환자의 전신마취 하 치과치료)

  • Chung, Jun-Min;Seo, Kwang-Suk;Yi, Young-Eun;Han, Hee-Jung;Han, Jin-Hee;Kim, Hye-Jung;Shin, Teo-Jeon;Kim, Hyun-Jeong;Yum, Kwang-Won;Chang, Ju-He
    • Journal of The Korean Dental Society of Anesthesiology
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    • v.8 no.1
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    • pp.22-28
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    • 2008
  • Background: Cerebral palsy (CP) is non-progressive disorder of motion and posture. In CP patient, there are difficulties in dental treatment because of uncontrolled movement of limb and head, and conjoined disabilities such as cognitive impairment, sensory loss, seizures, communication and behavioral disturbances. It is reported that CP patients have high incidence in caries and a higher prevalence of periodontal disease. But, despite the need for oro-dental care, these patients often are unlikely to receive adequate treatment without sedation or general anesthesia because of uncontrolled movements of the trunk or head. Methods: We reviewed the 58 cases of 56 patients with CP who underwent outpatient general anesthesia for dental treatment at the clinic for the disabled in Seoul National University Dental Hospital. Results: The mean age was 19 (2-54) years. The number of male patient was 40 and that of female was 18. They all had severe spastic cerebral palsy and 22 had sever mental retardation, 15 epilepsy, 8 organic brain disorder, 1 blindness, 2 deafness and cleft palate. For anesthesia induction, 14 cases was needed physical restriction who had sever mental retardation and cooperation difficulty, but 44 cases showed good or moderate cooperation. Drugs used for anesthesia induction were thiopental (37 cases), sevoflurane (14 cases), ketamine (3 cases ) and propofol (4 cases). All patients except one were done nasotracheal intubation for airway management and 4 cases were needed difficult airway management and 1 patient already had tracheostomy tube. Mean total anesthetic time was $174{\pm}56$ min and staying time at PACU was $88{\pm}39$ min. There was no death or long term hospitalization because of severe complications. Conclusion: If general anesthesia is needed, pertinent diagnostic tests and workup about anomaly, and appropriate anesthetic planning are essential for safety.

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Needs Analysis for Home Rehabilitation Services by Disabled Person in the Rural Areas (농촌 재가 장애인의 가정방문 재활서비스 욕구도 분석)

  • Yi, Chung-Hwi;Lee, Hyun-Ju;Park, Kyoung-Hee;Ahn, Duck-Hyun
    • Physical Therapy Korea
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    • v.9 no.2
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    • pp.61-81
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    • 2002
  • The purposes of this research were to investigate home care rehabilitation services in rural areas and to collect basic data about disabled persons necessary when for carrying out rehabilitation services. Respondents were selected from six of a total of eight townships (Myon) and one town (Eup) in the Wonju city area. Wonju is in Kangwon Province (Do). Of a total of 338 names provided by the Myon offices, 298 persons were located and included registered and non-registered persons. Conditions included stroke, spinal cord injury, and cerebral palsy in addition to disabilities classified as first, second or third degree, in the case of registered cases. Respondent demographic characteristics, medical characteristics, rehabilitation service needs, willingness to receive rehabilitation service and individual opinions regarding rehabilitation services were analysed by frequency and percentage. The results were as follows: 1) Rehabilitation services received by disabled persons living at home in the rural areas surrounding Wonju city were medical rehabilitation (41.7%), diagnosis (36.5%), rehabilitation assistive devices (7.6%), social assistance (7.1%), rehabilitation counseling (3.0%), vocational rehabilitation (1.8%), educational rehabilitation (1.6%) and housekeeping services (0.5%). The majority of rehabilitation services were medical rehabilitation provided at hospitals and oriental medicine hospitals. 2) Sixty point eight percent of respondents expressed their willingness to receive home care rehabilitation services. Needs expressed were highest for medical rehabilitation (27.0%), followed by social assistance (19.4%), medical examination (12.4%), physician-generated diagnosis in the home setting (11.6%), sociopsychological rehabilitation (9.3%), vocational rehabilitation (7.6%), rehabilitation engineering (6.0%), educational rehabilitation (3.3%), and housekeeping services (3.3%). 3) Rehabilitation service needs were analyzed by severity classification: 65.8% of first degree, 62.7% of second degree and 55.6% of third degree disability classification, and 62.7% of non-registered disabled individuals responded that rehabilitation service was necessary. 4) Rehabilitation service needs were also analyzed by diagnosis: 62.6% of stroke, 85.5% of amputation, 60.0% of spinal cord injury and 52.4% of traumatic brain injury respondents answered positively that they were willing to receive rehabilitation service if it were to be provided. Rehabilitation service utilization data of disabled individuals living at home in rural areas were investigated and their rehabilitation needs analyzed. This critical information can be used when community-based rehabilitation programs for disabled persons living at home are planned for provision out of a public health center or when community-based rehabilitation welfare policy is formulated.

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