• 지역사회간호학회지
• /
• 제10권2호
• /
• pp.435-454
• /
• 1999

The caregiving experiences of 100 family menbers of outpatients with schizophrenia and schizoaffective disorders were investigated for the presence of positive(positive family-patient relationship. patient' contribution to the family) and negative caregiving experience(objective and subjective burden) and their predictors. This study attempts to make the analysis of caregiving experience more useful by expanding the focus to incoporate these positive aspects of the experience of family caregiver. Objective burden consists of two elements: 'disruption of family life', 'care'(amount of caregiving related to activity of daily living). Subjective burden is defined as emotional reactions to the care giving and it comprised of 6 emotional subdimensions such as 'stigma', 'grief'. 'worry', 'pity', 'fear', 'despair'. Also we investigate the severity of patients' disturbing behaviors into two categories, positive and negative disturbing behaviors and patient' contribution to the family as a predictors of positive and negative caregiving experiences. This study use Pearson's correlation coefficient, Hierardhical regressions in the SAS Program. The results are as follows: 1. Respondents reported moderate level of objective burden 'disruption of family life' (mean = 2.48, range = 1-4), and 'care' (mean=2.54, range = 1-4), and slightly high level of total subjective burden(mean = 2.19, range = 1-4). Mean scores for the measure of the severity of behavioral disturbance indicated that the caregiver experienced negative disturbing behaviors around almost 'somtimes'(mean=2.28, range = 1-4), and positive disturbing behaviors 'almost not frequent'(mean=2.78. range=1-4). So they reported that they perceived patient's negative disturbing behaviors more than positive disturbing behaviors. Mean scores for the measure of the patient' contributions (mean = 1.99. range = 1-4) indicated that caregivers experienced these contributions a little. It means that there should be a positive aspect of possibilities of patient' family roles that can be developed in the daily life. Mean scores for the measure of the positive family-patient relationship indicated that caregivers experienced moderate level of positive family-patient relationship(mean=2.52, range = 1-4). 2. Hierardhical regression analysis 1) Hierardhical regression of 'disruption of family life' showed that the interaction between positive disturbing behaviors and patient' contributions (B = .20. p = .022) and caregiver's educational level(B=.06. p=.000) were 'significant and Hierardhical regression of 'care' showed that 'negative disturbing behaviors'(B= .35. p= .007). 'patient' contributions'(B= .28, p= .019). 'family income'(B=-.l1. p=.096) were significant. 2) Hierardhical regression of 'total subjective burden', 'stigma', 'grief', 'worry', 'pity'. 'fear', 'dispair' showed that 'positive disturbing behaviors'(B=.51. p=.000). 'negative disturbing behaviors' (B = .17, p = .026), 'caregiver's educational level'(B = .03. p=.036), 'family income'(B=.08. p=.041) were significant predictors of 'total subjective burden': 'positive disturbing behaviors'(B=.32. p=.066). 'negative disturbing behaviors'(B=.24, p=.096) 'durations of illness'(B= .03. p= .079) were significant predictors of 'stigma' 'negative disturbing behaviors'(B=.28. p=.005). 'patient sex'(B=-.32. p=.022). 'positive disturbing behaviors'(B=.28. p=.020), 'patient age'(B=.02. p=.010), 'caregiver age'(B=-01, p= .002) were significant predictors of 'grief' 'negative disturbing behaviors'(B= .28, p= .005). 'patient sex'(B= -.32. p=.039), 'caregiver age'(B=-.02, p= .023). 'caregiver's educational level'(B= .04, p = .044) were significant predictors of 'worry' 'patient sex'(B=-.46. p=.005). 'negative disturbing behaviors'(B= .28. p=.018), 'caregiver age'(B=-.01, p=.037) were significant predictors of 'pity' 'positive disturbing behaviors'(B=.83. p=.000). 'patient' contributions' (B = .22, p =.017). 'family income'(B=.09. p=.65) were significant predictors of 'fear' 'positive disturbing behaviors'(B=.49, p=.001). 'negative disturbing behaviors'(B= .24. p=.057) 'patient sex'(B=-.4l, p=.017), 'family income'(B=.14, p=.047) were significant predictors of 'dispair'. 3) Hierardhical regression of 'positive relationship' showed that 'patient contributions'(B=.32, p=.000). 'negative disturbing behaviors'(B= .24, p= .005), 'patient sex'(B=-.23, p=.036).

• 보건행정학회지
• /
• 제24권1호
• /
• pp.71-84
• /
• 2014

Background: Informal care is increasingly recognized as placing a significant burden on the lives of family caregivers. The purpose of this study is to investigate factors related to family caregivers' burden with the community-dwelling disabled elderly under the long-term care insurance system, using the Stress Process Model developed by Pearlin (1990). Methods: Total 1,233 family caregivers with the disabled elderly, using the long-term care services in their home from May to June 2009, completed questionnaires finally. The questionnaire of this study consists of a total of 32 questions, including 11 questions related to background and context, 17 questions related to objective stressors, and 4 questions related to coping resourses. Family caregivers' burden is measured by the Korean Revised Caregiving Appraisal Scale (K-RCAS, Cronbach's alpha=0.86). To investigate factors related to family caregivers' burden, multiple regression analysis was conducted. Results: The average score of caregivers' burden was 22.0 (${\pm}6.12$). In multiple regression analysis, there were statistically significant factors affecting on the family caregivers' burden, that are related to background and context (region, living status, education level, relationship with beneficiary), objective stressors (duration of caregiving), coping resourses (caregiver's health status). Conclusion: This study found that family caregivers experience a considerable burden. The findings suggest that policies must be taken to relieve family caregivers of their duties temporarily, and to support them with counselling and education.

• 대한가정학회지
• /
• 제34권4호
• /
• pp.145-160
• /
• 1996

The purpose of this study was to identify caregiving situations and to examine resources for adjustment among family caregivers of the elderly with dementia. Thereby the study can provide the basic information for the development of education programs for family caregivers through in-depth interview. The main result of this study was as follows : 1) The major problems identified by family caregivers I caring for the elderly with dementia were related to care recipient's toileting and to care recipient's confusion and wandering. 2) The family caregiver expressed feelings of burden including chronic fatigue, depression, guilt and frustration. 3) The factors influencing the adjustment of family caregivers for demented elderly were quality of relationship, motivation for caregiving, circumstances of caregiving, social support and coping strategies.

• 한국융합학회논문지
• /
• 제9권8호
• /
• pp.379-392
• /
• 2018

본 연구는 치매노인보호자의 부양부담이 대인관계문제에 미치는 영향에서 가족지지의 조절효과를 검증하고, 이를 바탕으로 사회복지적 함의를 제시하는 것을 목적으로 한다. 이를 위해 수도권 7곳, 지방 11곳에 위치한 주간보호센터 및 치매지원센터를 이용하는 치매노인의 보호자 중 자녀 및 며느리 341명을 대상으로 자기보고식 설문조사를 실시하였고, 본 연구에서는 불성실한 응답을 제외한 326명을 최종 분석에 사용하였다. 연구의 가설을 검증하기 위하여 빈도분석, 기술통계 분석과 다중회귀분석을 사용하였다. 분석 결과, 치매노인보호자의 50.9%가 높은 부양부담을 경험하고 있으며, 43.6%가 고위험의 대인관계문제를 가지고 있는 것으로 나타났다. 회귀분석을 실시한 결과, 부양부담은 대인관계문제에 정적인 영향관계를 가지는 것으로 검증되었다. 또한, 가족지지는 부양부담과 대인관계문제간의 관계를 조절하는 것으로 확인되었다. 이들 바탕으로 하여 부양부담으로 인해 대인관계문제를 겪고 있는 치매노인보호자들을 위한 가족 및 대인관계 개선 프로그램 도입 등의 실천적, 정책적 개입 방안을 제언하였다.

• 한국치위생학회지
• /
• 제19권5호
• /
• pp.845-858
• /
• 2019

Objectives: This study aims to contribute to devising systems for family caregivers of dementia patients by examining the state of oral care of dementia patients, and depression and social support among family caregivers of dementia patients. Methods: Family caregivers of dementia patients in the metropolitan area were selected in this study. The inclusion criteria were individuals who have provided care for a dementia patient at home for at least six months and those who come in contact (including phone calls) with the patient at least twice a week. Results: Oral health knowledge of the elderly, caregiving burden, depression, and social support were examined. The mean scores for oral health knowledge of the elderly and caregiving burden were $57.11{\pm}16.94$ out of 100 and $17.33{\pm}8.61$ out of 48, respectively. Further, the mean caregiving behavior score, depression score, and social support score were $8.49{\pm}13.71$ out of 100, $5.11{\pm}3.05$ out of 10, and $72.75{\pm}17.03$ out of 100, respectively. Factors affecting oral health knowledge of the elderly were examined. The results showed that the level of oral health knowledge of the elderly increased with an increasing perception of a need for oral health education (p<0.05), caregiving burden (p<0.01), and social support (p<0.01). Conclusions: These findings suggest that developing and popularizing oral care intervention programs for family caregivers of dementia patients are necessary to ensure systematic oral care for dementia patients.

• Perspectives in Nursing Science
• /
• 제3권1호
• /
• pp.47-60
• /
• 2006

BACKGROUND: Social, legal, and economic factors have changed the delivery of care to elderly who are frail and/or chronically ill. Increasing number of the elderly are now treated in the community, while living with or in close proximity to their family. It is evident that families play a major role of support for elderly persons in our society. This paper provides a review and analysis of studies that have investigated informal caregiving issues encompassing physical, psychological, emotional, and social domains. RESULTS OF THE REVIEW: Family caregiving often interfered with workplace and other responsibilities, creating physical, emotional, and financial stress for caregivers. Relatively high volumes of research addressed caregiving issues in the families of Alzheimer patients and in the areas of emotional and psychological impact of caregiving. Few studies explicitly investigated the role of informal caregivers in the management of other chronic conditions such as stroke or depression or physical consequences of long-term caregiving. While most studies were focused on negative aspects of caregiving, a few studies found it rewarding. Often the burden, stress, and socio-economic effects on the family caregiving for an elderly person were not sufficiently appreciated. CONCLUSIONS: Positive outcomes for both the caregiver and the care recipient are more likely to occur when effective levels of collaboration exist between health professionals and caregivers. As a first step, a better understanding of the caregiving experience such as caregiver characteristics, care recipient characteristics, and social stigma is important for nurses to minimize the burden of care so that appropriate interventions can be developed. In addition, further studies are needed to examine the role and needs of informal caregivers in the care of increasing number of frail and/or chronic ill elderly treated in the community.

• 한국지역사회생활과학회지
• /
• 제22권1호
• /
• pp.35-51
• /
• 2011

This study examined how caregiving experiences of spouses and adult children were different to each other in terms of caregiver characteristics, the impairment level of the elderly, caregiving time, caregiver burden, the effects of long-term care services, etc. Data were collected from 321 spouses and 324 adult children who cared for the functionally and/or cognitively impaired elderly using long-term care services. The main results are as follows. (1) Caregiver characteristics differed significantly between spouses and adult children. (2) Adult children cared for the more severely impaired elderly in terms of IADL, cognitive impairment, and behavior problems while spouses spent more time helping in ADL activities. (3) Spouse caregivers experienced greater overall burden, worry and strain, and financial burden compared to adult child caregivers. (4) Long-term care services were effective in reducing caregiver burden and improving family relations. Additionally, relations between adult child caregivers and the elderly was more improved than relations between spouse caregivers and the elderly after using long-term care services. Based on these findings, the differential experiences between spouse caregivers and adult child caregivers were discussed.

• 대한간호학회지
• /
• 제30권1호
• /
• pp.202-212
• /
• 2000

The purpose of this study was to identify the relationship between the burden of family with the mentally ill and professional needs. Data collection period was from June 29, 1998 to July 30, 1998. The subjects for the study was 134 family members of psychiatric in-patients and out-patients in Taejon and Chungnam. The questionnaire developed by OK-KYUNG YANG to measure the family burden and professional needs was used for this study. The tools used for this study were composed of General characteristics(30 items), family burden(43 items), professional needs(26 items). The data was analyzed by using on SPSSWIN program and included percentage, mean, S.D., t-test, ANOVA and Pearson correlation coefficient. The results of the analysis were as follows; The mean score of family burden was 134.26, which is higer than the mean score of the instrument. The mean score of professional need, the family caregiver who supporting of mentally ill patients, was .48 which is lower than the mean score of the instrument. Family burden was statistically correlated with professional needs(${\gamma}$=.6139, P<.001). There were statistically differences in family burden for respondent's relation, location of living, most care money giver, substant care money giver. There were statistically significant difference in professional need for family age, marriage status, substant care money giver, information status. The conclusion that can be drawn from this study is that addressing professional needs would contribute to reduce burden of the family caregivers with mentally ill. Therefore, Nursing interventions are needed to reduce family burden.

• 디지털융복합연구
• /
• 제13권8호
• /
• pp.559-567
• /
• 2015

본 연구는 루게릭환자 및 그 가족을 대상으로 현재 질환과 관련한 실태를 파악하고 부양부담을 경감시키는 요인과 필요한 서비스들을 밝히는데 목적을 두었다. 연구결과 루게릭환자 및 그 가족의 인구사회학적 특성이나 질환 및 수발과 관련한 요인, 활동지원서비스 관련 요인 어느 것에서도 부양부담을 경감시키는데 영향을 미치는 요인은 없는 것으로 나타났다. 다만 환자와 주부양자의 관계가 배우자가 아니거나, 이들의 학력이 고졸이하인 경우, 질병의 최초진단시기에 따라서만 부양부담에 차이가 있는 것으로 나타났다. 이러한 연구결과를 토대로 제안하면, 현재 제공되고 있는 서비스의 한계를 인식하고, 루게릭이라는 질환에 맞는 의료적 지원과 더블어 개별화되고 전문화된 복지서비스를 함께 지원할 수 있는 융복합적인 정책지원이 필요하다고 볼 수 있다.

• 지역사회간호학회지
• /
• 제16권3호
• /
• pp.260-269
• /
• 2005

Purpose: This study were to understand the caregiving situation of families with the demented elderly and to develop a self-help program for them. Method: A self-help program was designed to increase caregivers' confidence and skills in problem solving. In addition, it was designed to provide information about the demented elderly. The self-help program of this study was composed of nine sessions. Result: Family caregivers of elderly patients with dementia obviously experience high level of stress. which often leads the caregivers to negative outcomes such as depression, interference with social activities and health difficulties. That is, caring is stressful for caregivers because the demands of the caregiving situation tend to overwhelm the caregivers' coping resources. Therefore, families with demented elderly persons need assistances in order to be relieved from their care burden. Conclusion: The self-help program includes the understanding of dementia, the family caregiving experiences of the demented elderly persons, the time for self-care, the search for helping, the improving of interpersonal relations and communications.