• Title/Summary/Keyword: care burden

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Burden and Quality of Life in Caregivers of Patients with Rare and Incurable Disease (재가 희귀.난치성질환 돌봄 제공자의 부담감과 삶의 질)

  • Choi, Kyung-Ja;Baek, Hee-Chong
    • Research in Community and Public Health Nursing
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    • v.17 no.3
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    • pp.364-375
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    • 2006
  • Purpose: The purpose of the study was to investigate burden and the qualify of life in caregivers who are taking care of home-based rare and incurable disease patients. Methods: The subjects of this study were 300 caregivers of rare and incurable disease patients registered at five health centers in Seoul. A survey was conducted by mail and visit in person during the period from the 25th of March to the 12th of May 2005. Collected data were analyzed through t-test, ANOVA, Pearson's correlation coefficient. Result: The mean burden of caregivers was 3.42, and the mean qualify of life of caregivers was 2.71. Burden and QoL showed significant differences according to caregivers' characteristics such as sender, age, relation to the patient, academic qualification, religion, occupation, monthly household income and perceived health condition. Caregivers' burden was in an inverse correlation with their quality of life. Conclusions: According to the results of this study, rare and incurable disease caregivers' burden and their quality of life were in a significant correlation with each other. In order to improve caregivers' quality of life by reducing their burden, we need to reestablish comprehensive policies for rare and incurable disease management including nursing intervention strategies for caregivers.

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A Study on the Factors Affecting Sense of Well-being of Stroke Survivor Family Care Taker (뇌졸중 환자 가족원의 안녕감 영향요인에 대한 연구)

  • 백영주;정미영;안은희
    • Journal of Korean Academy of Nursing
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    • v.31 no.2
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    • pp.315-327
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    • 2001
  • This was a descriptive study clarifying the factors affecting family caregivers' sense of well-being. This study was conducted with 131 caregivers using structured self-reporting questionnaires and directly interviewing adult patients who had been under treatment in two general hospitals. The hospitals were located in M city from Aug. 10, 2000 until Sep. 2, 2000. The collected data were analyzed using SAS PC+ program, and the data were tested using descriptive statistics, t-tests, ANOVA, Pearson's Correlation Coefficient, and Stepwise Multiple Regression. The results of this study are as follows; 1) The variables affecting the caregivers' sense of burden were age (F=3.76, p=.0063), education level (F=4.67, p=.0015), monthly income (F=2.49, p=.0466), amount of assistance provided (F=4.19, p=.0037), and the relationship with patient before disease (F=9.49, p=.0001). 2) The variables affecting caregivers' sense of well-being were age (F=9.54, p=.0001), residing with patient (t=11.38, p=.0010), the period of caregiving (F=10.52, p= .0001), education level (F= 2.79, p=.0290), monthly income (F=3.04, p=.0196), and relationship with patient before disease (F= 10.51, p=.0001). Also, all of the variables which showed statistical significance. 3) In viewing the relationship between activities of daily living (ADL) and the senses of burden and well-being, a negative relation- ship between activities of daily living (ADL) and a sense of burden was found (r=-.640, p=.000). However, the relationship between activities of daily living (ADL) and a sense of well-being had a positive correlation (r= .232, p=.008). Also the relationship between the sense of burden and the sense of well-being was revealed to have a negative correlation (r=-.614, p=.000). 4) A sense of burden was the most important indicator to the well-being of the caregivers who took care of stroke patients (R2 =.36). In addition to this, living with the patient (45%), activities of daily living (51%), relationship with patient before disease (53%), and the family's monthly income accounted for 56% of the sense of well-being of the caregivers.

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Childrearing Attitude and Burden of Employed and Unemployed Mothers and Temperament and Health Related Variables of Their Preschool Children (취업모와 미취업모의 양육태도, 양육부담감 및 학령전기 자녀의 기질과 건강관련 변인 비교)

  • Bang Kyung-Sook
    • Child Health Nursing Research
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    • v.10 no.2
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    • pp.217-224
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    • 2004
  • Purpose: This comparative descriptive study was conducted to determine the effects of maternal employment on the maternal child-rearing attitude, child-rearing burden, and temperament and health related variables of their preschool children. Method: Samples were recruited in child care centers in Seoul, Daejeon, and Suwon. 209 mothers with children age of three to six participated. Result: Employed mothers showed more positive child-rearing attitude, but there was no significant difference in child-rearing burden, Also, maternal attitude and child-rearing burden were influenced by satisfaction on the employment state. Children's temperament subscales were not different in two groups. Breast feeding and compliance on vaccination were done better by unemployed mothers. However, home safety, experience of accident and hospitalization of children were not affected by maternal employment. Conclusion: Maternal employment has positive influence in some aspects. This study provides basic data for parent counseling and anticipatory guidance for employed mothers.

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The relationship between precarious work and unmet dental care needs in South Korea: focus on job and income insecurity (한국 노동시장 불안정성과 미충족 치과의료의 관련성: 고용과 소득 불안정성을 중심으로)

  • Che, Xianhua;Park, Hee-Jung
    • Journal of Korean Academy of Oral Health
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    • v.42 no.4
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    • pp.167-174
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    • 2018
  • Objectives: The aim of this study was to analyze the accessibility of dental care services among individuals with precarious employment in South Korea. Methods: We used the $9^{th}$ wave of the Korean Health Panel data (2015) and included 7,736 wage and non-wage earners in our study. We determined precariousness in the labor market as a combination of employment relationship and job income, and categorized individuals based on this into the following four groups: Group A comprising those who report job and income security, Group B comprising those who experience job insecurity alone, Group C comprising those who report a stable job but low income, and Group D comprising those who experience both job and income insecurity. Accessibility to dental care services was determined by experience of unmet dental care needs and unmet dental care needs caused primarily by financial burden. Logistic regression analyses were used to assess the effect of precarious work on access to dental care services. Results: Individuals with job insecurity (Group B; OR=1.445; 95% CI=1.22-1.70) and both job and income insecurity (Group D; OR=1.899; 95% CI=1.61-2.24) were more likely to have unmet needs than the comparison group. Both groups B and D were also 2.048 (95% CI=1.57-2.66) times and 4.435 (95% CI =3.46-5.68) times more likely, respectively, to have unmet dental care needs caused by financial burden. Education status, health insurance, and health status were all also effective factors influencing unmet dental care needs. Conclusions: Unstable employment and low income resulted in diminished access to dental care services. Therefore, governments should consider health policy solutions to reduce barriers preventing individuals with employment and income instability from accessing adequate dental care.

Relations between Perceived Burden and Social Support of Stroke Patient호s Family Caregiver (뇌졸중 환자의 가족 간호자가 지각하는 부담감과 사회적 지지와의 관계 분석)

  • 홍여신;서문자;김금순;김인자;조남옥;최희정;정성희;김은만
    • Journal of Korean Academy of Nursing
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    • v.30 no.3
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    • pp.595-605
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    • 2000
  • The purpose of this study was to describe the perceived burden of the stroke patient's caregiver and related factors to analyze relationships between perceived burden and social supports. A convenient sample of 225 caregivers who take care for a stroke patient at home participated in this study. Caregiver's perceived burden was measured by the objective and subjective burden scale developed by Montgomery (1985). Related factors of burden were studied in terms of the patient's instrumental activties of daily living, cognitive function, caregiver's demographic variables and caregiver's illness intrusiveness. The results were as follows: (1) The mean of objective burden score was 4.5, and subjective burden score was 3.1. These scores show that caregivers perceive moderate level of burden. (2) Caregivers' objective burden was significantly related to caregivers's illness intrusiveness (r=.62), patient's IADL (r=-.33), and patient's cognitive function (r=-.15). The subjective burden was related to the caregiver's illness intrusiveness (r=.29), the patient's IADL (r=.24), and the caregiver's age(r=.23). (3) The percentage of stroke caregivers who perceived physical support was 49.1%. The percentage of those who perceived emotional support was 61.0%, and those who perceived financial support totaled 37.6%. (4) Caregivers who received any type of social supports perceived lower subjective burden, and caregivers who received physical or psychological support perceived lower objective burden. These results emphasized the necessity of a rehabilitation programs for stroke patients and support program for family caregivers.

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Study on the Comparison of Emotion between the Mothers with Low-birth Weights and Normal Infants and the Effect of Home Visiting for the Low-birth Weights (저체중출생아 어머니와 정상신생아 어머니의 정서와 지지 비교 및 보건소 저체중출생아 가정방문간호의 효과에 대한 연구)

  • Bang, Kyung-Sook;Kim, Yong-Soon;Park, Jee-Won
    • Korean Parent-Child Health Journal
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    • v.5 no.1
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    • pp.75-89
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    • 2002
  • This study was conducted to compare the emotional state between the mothers with low-birth-weights and mothers with normal infants, and to analyze the effects of home visiting for the low-birth-weights in one city. Data were collected from 51 mothers with low-birth-weights and 90 mothers with normal infants to compare emotional state, and from 26 mothers with low-birth weights to evaluate the effect of home visiting care. Summaries of results were as follows; 1. In mothers with low-birth-weights, social support form others was significantly lower than those of mothers with normal infants. Although the differences were not significant, mothers with low-birth-weights have more stress and child rearing burden, and less maternal self-esteem than those of mothers with normal infants. 2. Mothers with low-birth-weights, the more burden, postpartum depression, and the less husbands' support they felt. When they had lower maternal self-esteem and lower husbands' support, child rearing burden was higher. Also there was significant negative correlation between maternal self-esteem and postpartum depression. 3. In mothers with low-birth-weights, the score of post-intervention stress, care-giving burden, and postpartum depression were somewhat decreased, and maternal self-esteem was increased than pre-intervention data, although they were not statistically significant. 4. Mothers' satisfaction on the home-visiting care was considered to be high. In summary, mothers with low-birth-weights had lower social support even though they experienced more stress than mothers with normal infants. Therefore, public health nurse in community should pay more attention to them.

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The study on the maternal burden of caretaking, the support and educational need for the caretaking activities of the infants′ mother (영아어머니의 자녀돌봄의 부담감과 지지, 교육 및 상담요구에 관한 조사연구)

  • Han Kyung Ja
    • Child Health Nursing Research
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    • v.3 no.2
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    • pp.228-240
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    • 1997
  • It is important to asess the risk factors of parenting and provide early intervention for promotion of the maternal caretaking ability. The purpose of the study was to identify the maternal burden of caretaking, the supporting and the educational need for the caretaking activities of the mother of infant. Sixty three mothers of infants who visited the wellbaby clinic of S university hospital and one health center during the period of November 1st, to 30th in 1996 comprised the subjects of this study, Data were gathered through the instruments that were developed by researcher. Statistical analysis of this study was used ANOVA and Pearson correlation. The results were as follows : 1) The mean score of the maternal burden of caretaking was 22.06. The maternal burden of caretaking was significantly high in the mothers who had vaginal delivery compare with the mothers who had caeserean section and in the muthers who gave artificial feeding compare with the group of breast or mixed feeding. 2) The mean score of the support need for the caretaking activities was 30.69. The support need for the caretaking activities was significantly high in the mothers who had the second child, compare with the mothers who had first or third child. And the support need for the caretaking activities was significantly high in the mothers who had caretaking help compare with the mothers who had no caretaking help. The specific subjects of 'mother-infant interaction', 'immunization' and 'prevention of accident' on the support need for the caretaking activities were relatively high. 3) The mean score of the educational need of caretaking activities was 29.3. The educational need of caretaking activities was significantly high in the mother who had the second child compare with the mothers who had first or third child. And the educational need of caretaking activities was significantly high in the mothers who had caretaking help compare with the mothers who had no caretaking help. The specific subjects of 'mother-infant interaction', 'emergency care' and 'prevention of accident' on educational need of caretaking were relatively high. 4) The maternal burden of caretaking was not correlated with the support need or the educational need of caretaking activities. But the support need of caretaking activities was significantly correlated with the educational need of caretaking activities. 5) The support and educational need of caretaking activities were significantly high in the mothers who wanted home care for caretaking their infants. Through the study, it was found that there is considerable maternal burden of caretaking as well as the support and educational need on the caretaking activities in the mothers whose child is young. Therefore developing the systematic and effective program is needed to meet the mother's need. The results of this study will be useful resources to develop the program. On the other hand, it can be recommanded that home health care will be one of the approach to support the mothers caretaking activities.

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A Study on the Degree of Burden and Depression in Family Caregivers of Patients with Stroke (뇌졸중 환자가족이 인지한 부담감 및 우울정도에 관한 연구)

  • 이강이;송경애
    • Journal of Korean Academy of Nursing
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    • v.26 no.4
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    • pp.853-867
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    • 1996
  • This study was designed and undertaken to identify the degree of burden and depression in family caregivers of patients with stroke and to determine whether burden was directly related to depression. The data were collected from October 23th to November 20th, 1995. The subjects in this study were 80 caregivers, that is, one family member and 80 patients with stroke who were hospitalized in one oriental medicine hospital located in Taejon City. The questionnaires consisted of questions regarding burden(13 item, 6 point scale) and depression(20 item, 4 point scale). Data were analyzed using percentages, means, t-test, ANOVA and Peason-correlation coefficients, done with the SAS program. The results of this study are as follows : 1. The score for family caregiver's burden was higher than the mid level for the 13 items. 2. The score for of family caregiver's depression was relatively low. 3. The relationship between burden and depression showed a significant inverse correlation. 4. In the relationships between total burden and general characteristics of the family caregivers : there were no significant differences. But, in the relationship between objective burden and general characteristics of the family caregivers ; age and education had statistically significant differences. That is, the 40's group felt more objective burden than any other age group and the high education group more than the illiterate group. 5. In the relationship between depression and general characteristics of the family caregivers ; sex, education and monthly income had statistically significant differences. That is, female caregivers felt more depression than males, and the lower the level of education and the lower the monthly income, the higher the degree of depression. 6. In the relationships between burden and general charateristics of the stroke patients, only subjective burden according to the patients' sex was significantly different. That is, caregivers felt more subjective burden when caring for male patients than for female patients. 7. In the relationships between depression and general charateristics of the stroke patients, only the patients' economic status showed a statistically significant difference. That is, caregivers felt more depression in case of patients' low economic status.

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A Study on the Association between Healthcare Utilization and the Burden of Families Caring for the Elderly in the Last 6 Months of Life (노인의 사망 전 6개월간 의료이용수준과 간병가족의 가족부담과의 관련성)

  • Yi, Jee-Jeon;Lee, Hee-Na;Ohrr, Hee-Choul;Jung, Hye-Young;Yi, Sang-Wook
    • Journal of Preventive Medicine and Public Health
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    • v.36 no.4
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    • pp.332-338
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    • 2003
  • Objective : To investigate the relationship between medical expenses and the burden of families caring for the elderly in the last 6 months of life, and to evaluate the factors relating to the burden of family caregivers. Methods : The families of 301 persons older than 65 years, who died between 1 July and 31 December 2001, and were registered in Resident-based- Health Insurance Programs in Seoul, were interviewed. The medical expenses and length of stay among the elderly were collected from Korean Health Insurance Corporations. Results : 31 percents of the elderly had no medical expenses in the last 6 months of life. On average, the objective burden (4.92) was higher than the subjective burden (3.35). Families caring for male elderly had a higher burden. With increasing age af death, the objective burden was significantly increased. The burden on a family seemed to be influenced more by the family income than the property of the elderly. With increasing total health care costs, the objective burden on the family caregivers was significantly increased, but with increasing medical expenses, the subjective burden was significantly decreased. Conclusion : An association between healthcare utilization and burden on families was observed. The reason for the decreasing subjective burden when medical expenses were decreased was unclear. Further research will be needed.

Influence of the Caregiver Burden on the Oral Health-related Quality of Life of the Spouse of an Elderly Person with Dementia at Home (재가 치매노인 배우자의 부양부담감이 구강건강관련 삶의 질에 미치는 영향)

  • Sung, Kiwol
    • Journal of Korean Public Health Nursing
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    • v.34 no.3
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    • pp.429-443
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    • 2020
  • Purpose: This study examined the influencing factors of caregiver burden on the oral health-related quality of life of the spouse of an elderly person with dementia at home. Methods: The participants were 115 spouses of dementia patients registered at dementia safety centers in five health centers in D city. Data were collected from June through December in 2019, using questionnaires of Oral Health Impact Profile (OHIP-49) and Burden Interview (BI). The data were analyzed using an independent t-test, one-way ANOVA, Pearson's correlation, and stepwise multiple regression analysis using the IBM SPSS Statistics 25.0 Program. Results: A negative correlation was observed between the oral health-related quality of life and caregiver burden (r=-37, p<.001). The caregiver burden (β=-.28, p=.001), subjective health status (β=.39, p<.001), and dental clinic visit (β=-.25, p=.002) explained 33.0% of the variance in the oral health-related quality of life. Conclusion: The development of nursing care for spouses of dementia patients will be needed to reduce the caregiver burden and enhance subjective health status and dental clinic visit, which influence the oral health-related quality of life of spouse of elderly people with dementia at home.