• The Korean Journal of Rehabilitation Nursing
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• v.11 no.1
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• pp.25-31
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• 2008

Purpose: This study was implemented to investigate perceived illness intrusiveness in stroke patients by the characteristics of primary caregivers. Method: Retrospective cross-sectional survey design was used. The subjects were 225 stroke patients and their primary caregivers. Demographic variables, relationship variables, burden, depression and support were measured as primary caregivers' characteristics. Data were analyzed with SPSS win 14+. T-test, ANOVA and correlation test were used depending on variables. Result: Demographic variables such as age, gender, relation with patients, and living status were not related significantly with illness intrusiveness. But primary caregivers' burden, depression and support were related significantly with perceived illness intrusiveness of stroke patients. That is, burden, depression and quantitative support of primary caregivers were significantly positively correlated with perceived illness intrusiveness of stroke patients. On the other hand, qualitative support was negatively correlated with perceived illness intrusiveness. Conclusion: Primary caregivers' characteristics such as burden, depression and support were found to be correlated with stroke patients perception such as illness intrusiveness. So, it is recommended that nursing intervention targeting burden, depression and support of primary caregivers must be developed to reduce illness intrusiveness of stroke patients.

• Child Health Nursing Research
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• v.18 no.4
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• pp.184-191
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• 2012

Purpose: The purpose of this study was to provide basic data for nursing interventions to assist primary caregivers of young children by determining the degree stress and fatigue that caregivers were under due to parenting young children. Methods: Participants were primary caregivers (181 mothers and 160 grandmothers) of young children. Results: 1) Mean score for degree of parenting stress was 2.61 (${\pm}.69$) and for fatigue, 1.97 (${\pm}.54$). 2) There was a significant difference in degree of parenting stress according to primary caregivers' age, employment status, income, whether the children were wanted babies, health status of the children and caregivers, personality of the children, and benefits from, and satisfaction with costs of childcare. Likewise, there was a significant difference in degree of fatigue according to relationship of primary caregivers to the children, primary caregivers' age, religion, income, whether the children were wanted babies, health status of the children and caregivers, personality of the children, and benefits from, and satisfaction with costs of childcare. 3) Stress and fatigue perceived by the primary caregivers were significantly correlated (r=.554 p<.001). Conclusion: To alleviate more effectively primary caregivers' parenting stress and fatigue, early nursing intervention and educational programs need to be developed.

• Journal of Korean Academy of Nursing
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• v.37 no.2
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• pp.213-220
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• 2007

Purpose. The purpose of this review is to explore cultural influences on the experiences of Korean, Korean American, and Caucasian American family caregivers caring for frail older adults in terms of the selection of a primary caregiver, caregiving motivation, support/help-seeking, and negative emotional responses (depression and burden). Methods. Seven electronic databases were searched to retrieve studies from 1966 to 2005. Thirty-two studies were identified. Results. This review supported cultural influences on the selection of primary caregiver, caregiving motivation, and support/help-seeking among the three caregiver groups. In Korean caregivers, the major primary caregivers were daughters-in-law while among Korean American and Caucasian American caregivers, the major primary caregivers were daughters or spouses. As a major caregiving motivation, Caucasian American care￢givers reported filial affection while Korean caregivers and Korean American caregivers reported filial obligation. Korean caregivers reported higher extended family support, while Caucasian American caregivers reported higher utilization of formal support. Korean caregivers showed the highest levels of depression followed by Korean American caregivers and Caucasian American caregivers. Conclusion. In order to develop culturally appropriate interventions and policies, more research is needed to further explain these differences among the three groups, especially regarding support/help-seeking and negative emotional responses.

• Quality Improvement in Health Care
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• v.25 no.1
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• pp.29-42
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• 2019

Purpose: The aim of the present study was to identify the relationship between educational needs and the caregiving burden of primary caregivers with stroke patient. Methods: This cross-sectional and descriptive study was conducted in 2016 with 115 primary caregivers for stroke patients at a university hospital. The caregiving burden and educational needs were investigated using structured questionnaires via interviews. Data were analyzed with descriptive statistics, the t-test or ANOVA, and Pearson's correlation analysis using IBM SPSS Statistics version 23.0. Results: The scores of caregiving burden and educational needs of primary caregiver with stroke patient were $77.65{\pm}1.66$ and $123.33{\pm}2.37$, respectively. The caregiving burden was associated with health status in primary caregivers' general characteristics. The caregiving burden and educational needs of primary caregivers have a significant correlation (r = .44, p <.001). Conclusions: Educational needs of primary caregivers with stroke patient are associated with their caregiving burden. Therefore, it is necessary to develop a primary caregiver centered intervention program considering educational needs to improve their caregiving burden. Also, to promote quality of nursing, there is the need to increase the educating competency of nurse and nursing professionalism of clinical nurse using various educational training program.

• The Korean Journal of Rehabilitation Nursing
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• v.8 no.1
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• pp.20-30
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• 2005

Purpose: The purpose of this study was to investigate the stress level and health status of primary caregivers living with demented elderly. Method: The subject was 92 primary caregivers who had been taking care of demented elderly at home. The research tools were a stress questionnaire and health status questionnaire. The data were collected through direct interview with a questionnaire in the B city, from February to March 2004. The data were analyzed by t-test, ANOVA, Pearson's correlation coefficients and Scheffe test using SPSS/PC 11.0 program. Results: The primary caregivers living with demented elderly showed slightly high level of stress and moderate level of health status. Moreover, there was a significant correlation between the stress level and the mental and the physical health status. Conclusion: Based on the results, we recommend the development of an intervention program to decrease the stress level of primary caregivers living with demented elderly for improving their health status.

• Asian Pacific Journal of Cancer Prevention
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• v.16 no.13
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• pp.5499-5505
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• 2015

Background: Providing care for hematologic cancer patients may lead to many negative complications in different aspects of life in their family caregivers. Based on a wide review of relevant literature, there are limited data about the burden of giving care for hematologic cancer patients on their primary family caregivers in Iran or other Middle Eastern countries. Therefore, the aim of this study was to investigate the cancer care burden on primary family caregivers of hematologic cancer patients, in terms of physical, psychological, social, spiritual, and financial aspects. Materials and Methods: In this descriptive study, 151 primary family caregivers of hematologic cancer patients referred to two cancer care centers in East Azerbaijan Province in northwest of Iran participated. The Financial Distress/Financial Well-being Scale, Hospital Anxiety and Depression Scale, Vaux Social Support Questionnaire, Spiritual Well-being Scale, and SF-36 were used for data collection. Data analysis was performed with SPSS software. Results: The findings of this study indicated that the primary family caregivers experience a high level of financial distress and a significant percentage of them suffered from anxiety and depression. In addition, the physical quality of life in these caregivers was moderate. On the other hand, spiritual health and social support of participants was at an acceptable level. Conclusions: Iranian primary family caregivers of hematologic cancer patients experience many problems in physical, psychological, and financial aspects of their life. Therefore, developing care plans for reducing these problems appears necessary.

• Journal of Korean Academy of Fundamentals of Nursing
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• v.16 no.3
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• pp.272-281
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• 2009

Purposes: The purposes of this study were to identify factors related to burden and well-being in primary caregivers of patients who have had a stroke and examine the correlation between burden and well-being of the caregivers. Methods: Between April 2006 to June 2007 data were collected using self-report questionnaires and interviews with 85 primary caregivers of stroke patients in C University Hospital. Data were analyzed using t-test, ANOVA, Duncan test and Pearson's correlation with SPSSWIN 15.0. Results: Factors related to burden of primary caregivers were sex and activities of daily living of the patients, and age, education level and satisfaction with income of the caregivers. The factors related to well-being of primary caregivers were sex of patients, and age and education level of caregivers as well as cohabitation with the patient. A negative correlation was found between burden and well-being of the caregivers (r= -.393, p<.001). Conclusion: These results indicate a need to develop a nursing intervention program for caregivers and education program for other family members to reduce caregiver burden. These programs should lead to improvements in the well-being of the caregiver.

• Journal of Korean Academy of Fundamentals of Nursing
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• v.18 no.2
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• pp.237-246
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• 2011

Purpose: Family-caregivers of stroke patients usually go through hardship and life style changes during the protracted course of a family member's rehabilitation. There is need for programs to educate family-caregivers to better manage the medical crisis. In this study an evaluation was done of the degrees of burden and well-being experienced by primary family-caregivers following video-guided education (VGE) on rehabilitation and family lifestyle changes. Method: Fifty-eight primary family-caregivers of stroke patients on a neurological ward were divided into VGE (29) and control (29) groups. VGE was started within 7 days of patient admission. Interventions included VGE, counseling, and demonstration - re-demonstration. The control group received standard education but not VGE. Data were analyzed using Chi-square test, t-test, ANCOVA, and Pearson correlation coefficients with the SAS program. Results: The VGE group had a significantly lower score for total burden (F=7.19, p=.010) and for sub-scale of time-dependent burden (F=8.44, p=.005) than the control group. There was a negative correlation between primary family-caregiver burden and well-being (r=-.7151, p<.001). Conclusion: Results suggest that the rehabilitation program using VGE was an effective nursing intervention to reduce the burden of primary family-caregivers of stroke patients.

• Korean Journal of Child Studies
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• v.6 no.2
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• pp.1-20
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• 1985

The relationship between home environment variables for infants and toddlers and the nature of primary caregivers were examined in the present study. The purpose of the study was to explore the possibility of home stimulation deprivation when infants were not cared by their own mothers. Primary caregivers were classified into mothers, blood related adults, and unrelated adults. The home environment was assessed with the Korean version of HOME (Home Observation for Measurement of the Environment) by means of interview and observation. The subjects of this study were 126 infants aged 3 to 36 months and their primary caregiver, adults who provided more than 8 hours day-time care for infants at home. The results were as follows : 1) The primary caregiver had an effect on the infants' home environmental stimulation. That is, the group of mothers as primary caregivers had the highest HOME scores, the second highest were blood related adults, and the unrelated adults were the last. 2) There were no sex differences in HOME scores. 3) There were significant relationships between the educational level of the caregiver and HOME. That is, the higher educational levels showed higher HOME scores.

• Korean Journal of Adult Nursing
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• v.18 no.5
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• pp.746-759
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• 2006

Purpose: This study was designed to systematically explore and elicit information about terminally ill cancer patients' and primary family caregivers' subjectivity of death. Method: Using Q-methodology, 21 terminally ill cancer patients and 19 primary family caregivers sorted 40 statements during personal interviews. Results: The results of this study show that terminally ill cancer patients have four factors ('Attachment to life', 'Hope for heaven', 'Resignation to reality', 'Avoidance of pain') of response and primary caregivers have four factors('Dependence on religion', 'Faithfulness to reality', 'Obedience to fate', 'Agony of reality'). Comparing the subjectivities of death of terminally ill cancer patients and primary family caregivers, 'Hope for heaven' and 'Dependence on religion' reveal the similarities of their outlook. On the other hand, 'Attachment to life', 'Resignation to reality', 'Avoidance of pain', 'Faithfulness to reality', 'Obedience to fate', 'Agony of reality' reveals different aspects of their outlook. The group of terminally ill cancer patients and their families divided into four types. Type A was 'Attachment to life and Agony of reality', type B was 'Attachment to life and Obedience to fate', type C was 'Hope for heaven and Dependence on religion' and type D was 'Resignation to reality and Faithfulness to reality'. The positive group was C or 'Hope for heaven and Dependence on religion'. Conclusion: There are significant differences found in the subjective structure of death among terminally ill cancer patients and primary family caregivers. Therefore, it is necessary to develop an individualized nursing intervention for terminally ill cancer patients and family caregivers.