Quality Improvement in Health Care (한국의료질향상학회지)

Korean Society for Quality in Health Care (한국의료질향상학회)
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The Relationship Between Educational Needs and the Caregiving Burden in Stroke Patients' Primary Caregivers

뇌졸중 환자를 돌보는 주 보호자의 교육 요구도와 돌봄부담과의 관계

  • Kim, Un-Kyeung (Department of Neurosurgery, Soonchunhyang University Cheonan Hospital) ;
  • Yu, Hye-Yon (School of Nursing, College of Medicine, Soonchunhyang University)
  • 김은경 (순천향대학교 부속 천안병원 신경외과 병동) ;
  • 유혜연 (순천향대학교 의과대학 간호학과)
  • Received : 2019.03.04
  • Accepted : 2019.06.09
  • Published : 2019.06.30
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Abstract

Purpose: The aim of the present study was to identify the relationship between educational needs and the caregiving burden of primary caregivers with stroke patient. Methods: This cross-sectional and descriptive study was conducted in 2016 with 115 primary caregivers for stroke patients at a university hospital. The caregiving burden and educational needs were investigated using structured questionnaires via interviews. Data were analyzed with descriptive statistics, the t-test or ANOVA, and Pearson's correlation analysis using IBM SPSS Statistics version 23.0. Results: The scores of caregiving burden and educational needs of primary caregiver with stroke patient were $77.65{\pm}1.66$ and $123.33{\pm}2.37$, respectively. The caregiving burden was associated with health status in primary caregivers' general characteristics. The caregiving burden and educational needs of primary caregivers have a significant correlation (r = .44, p <.001). Conclusions: Educational needs of primary caregivers with stroke patient are associated with their caregiving burden. Therefore, it is necessary to develop a primary caregiver centered intervention program considering educational needs to improve their caregiving burden. Also, to promote quality of nursing, there is the need to increase the educating competency of nurse and nursing professionalism of clinical nurse using various educational training program.

Keywords

References

  1. Jaracz K, Grabowska-Fudala B, Gorna K, Kozubski W. Caregiving burden and its determinants in Polish caregivers of stroke survivors. Archives of Medical Science. 2014;10(5):941-50.
  2. Pucciarelli G, Ausili D, Galbussera AA, Rebora P, Savini S, Simeone S, et al. Quality of life, anxiety, depression and burden among stroke caregivers: a longitudinal, observational multicentre study. Jourmal of Advanced Nursing. 2018;74(8);1875-87. https://doi.org/10.1111/jan.13695
  3. Hong SE, Kim CH, Kim EJ, Joa KL, Kim TH, Kim SK, et al. Effect of a caregiver's education program on stroke rehabilitation. Annals of Rehabilitation Medicine. 2017;41(1):16-24. https://doi.org/10.5535/arm.2017.41.1.16
  4. Camak DJ. Addressing the burden of stroke caregivers: a literature review. Journal of Clinical Nursing. 2015;24(17-18):2376-82. https://doi.org/10.1111/jocn.12884
  5. Jeong YG, Myong JP, Koo JW. The modifying role of caregiver burden on predictors of quality of life of caregivers of hospitalized chronic stroke patients. Disability and Health Journal. 2015;8(4):619-25. https://doi.org/10.1016/j.dhjo.2015.05.005
  6. Kruithof WJ, Post MW, van Mierlo ML, van den Bos GA, de Man-van Ginkel JM, Visser-Meily JM. Caregiver burden and emotional problems in partners of stroke patients at two months and one year post-stroke: Determinants and prediction. Patient Education and Counseling. 2016;99(10):1632-40. https://doi.org/10.1016/j.pec.2016.04.007
  7. Tsai YH, Lou MF, Feng TH, Chu TL, Chen YJ, Liu HE. Mediating effects of burden on quality of life for caregivers of first-time stroke patients discharged from the hospital within one year. BMC Neurology. 2018;18(1):50. https://doi.org/10.1186/s12883-018-1057-9
  8. Jeong YG, Jeong YJ, Kim WC, Kim JS. The mediating effect of caregiver burden on the caregivers' quality of life. Journal of Physical Therapy Science. 2015;27(5):1543-7. https://doi.org/10.1589/jpts.27.1543
  9. Wang M, He B, Wang Y, Wu F, Chen X, Wang W, et al. Depression among low-income female muslim uyghur and kazakh informal caregivers of disabled elders in far western China: influence on the Caregivers' Burden and the Disabled Elders' Quality of Life. Public Library of Science. 2016;11(5):e0156382.
  10. Kim CG, Park HA. Development and evaluation of a web-based education program to prevent secondary stroke. Journal of Korean Academy of Nursing. 2011;41(1):47-60. https://doi.org/10.4040/jkan.2011.41.1.47
  11. Young DK, Ng PY, Kwok T. Predictors of the health-related quality of life of Chinese people with major neurocognitive disorders and their caregivers: the roles of self-esteem and caregiver's burden. Geriatrics & Gerontology International. 2017;17:2319-28. https://doi.org/10.1111/ggi.13065
  12. Yang L, Zhao Q, Zhu X, Shen X, Zhu Y, Yang L, et al. Effect of a comprehensive healtheducation program on pre-hospital delay intentions in high-risk stroke population and caregivers. Quality of Life Research. 2017;26(8):2153-60. https://doi.org/10.1007/s11136-017-1550-4
  13. Kim SS, Roh YS. Development of an instrument measuring caregiving consequences for the family of stroke patients. Journal of Korean Clinical Nursing Research. 2005;10(2):33-44.
  14. Erdfelder E, Faul F, Buchner A. GPOWER: A general power analysis program. Behavior Research Methods, Instruments, & Computers. 1996; 28(1):1-11. https://doi.org/10.3758/BF03203630
  15. Cohen J. Statistical power analysis for the behavioral sciences. 1988 (2nd ed.). Hillsdale, NJ: Lawrence Erlbaum Associates.
  16. Yoo SH. The educational needs of family-caregivers of stroke patient in admission and discharge. Seoul, Korea: Yonsei University; 2003.
  17. Quinn K, Murray C, Malone C. Spousal experiences of coping with and adapting to caregiving for a partner who has a stroke: a meta-synthesis of qualitative research. Disability and Rehabilitation. 2014;36(3):185-98. https://doi.org/10.3109/09638288.2013.783630
  18. Boaro N, Velji K. Review: counselling and education may improve outcomes in caregivers of patients with stroke. Evidence-Based Nursing. 2005;8(4):119. https://doi.org/10.1136/ebn.8.4.119
  19. Menon B, Salini P, Habeeba K, Conjeevaram J, Munisusmitha K. Female caregivers and stroke severity determines caregiver stress in stroke patients. Annals of Indian Academy of Neurology. 2017;20(4):418-24. https://doi.org/10.4103/aian.AIAN_203_17
  20. Kim HR, Ryu SY. The associated factors with caregiving burden of stroke patient's caregivers. The Journal of the Korean Public Health Association. 2002;28(2):137-48.
  21. McLennon SM, Bakas T, Jessup NM, Habermann B, Weaver MT. Task difficulty and life changes among stroke family caregivers: relationship to depressive symptoms. Archives of Physical Medicine and Rehabilitation. 2014;95(12):2484-90. https://doi.org/10.1016/j.apmr.2014.04.028
  22. Chung ML, Bakas T, Plue LD, Williams LS. Effects of self-esteem, Ooptimism, and perceived control on depressive symptoms in stroke survivor-spouse dyads. Journal of Cardiovascular Nursing. 2016;31(2):E8-16.
  23. Godwin KM, Swank PR, Vaeth P, Ostwald SK. The longitudinal and dyadic effects of mutuality on perceived stress for stroke survivors and their spousal caregivers. Aging Ment Health. 2013;17(4):423-31. https://doi.org/10.1080/13607863.2012.756457
  24. Cheng HY, Chair SY, Chau JPC. Effectiveness of a strength-oriented psychoeducation on caregiving competence, problem-solving abilities, psychosocial outcomes and physical health among family caregiver of stroke survivors: a randomised controlled trial. International Journal of Nursing Studies. 2018;87:84-93. https://doi.org/10.1016/j.ijnurstu.2018.07.005
  25. Koyanagi A, DeVylder JE, Stubbs B, Carvalho AF, Veronese N, Haro JM, et al. Depression, sleep problems, and perceived stress among informal caregivers in 58 low-, middle-, and high-income countries: a cross-sectional analysis of community-based surveys. Journal of Psychiatric Research. 2018;96:115-23. https://doi.org/10.1016/j.jpsychires.2017.10.001
  26. McPherson CJ, Wilson KG, Chyurlia L, Leclerc C. The caregiving relationship and quality of life among partners of stroke survivors: a cross-sectional study. Health and Quality of Life Outcomes. 2011;9:29. https://doi.org/10.1186/1477-7525-9-29
  27. Bakas T, Austin JK, Jessup SL, Williams LS, Oberst MT. Time and difficulty of tasks provided by family caregivers of stroke survivors. Journal of Neuroscience Nursing. 2004;36(2):95-106. https://doi.org/10.1097/01376517-200404000-00007
  28. Kim OW. Caregiver's burden and educational needs of acute stroke patient. Daejeon, Korea: Eulji University; 2009.
  29. Jaracz K, Grabowska-Fudala B, Gorna K, Jaracz J, Moczko J, Kozubski W. Burden in caregivers of long-term stroke survivors: Prevalence and determinants at 6 months and 5 years after stroke. Patient Education and Counseling. 2015;98(8):1011-6. https://doi.org/10.1016/j.pec.2015.04.008
  30. Creasy KR, Lutz BJ, Young ME, Stacciarini JM. Clinical implications of family-centered care in stroke rehabilitation. Rehabilitation Nursing. 2015;40(6):349-59. https://doi.org/10.1002/rnj.188