• 제목/요약/키워드: Illness Experience

검색결과 256건 처리시간 0.02초

홧병 환자의 가족붕괴 경험 (The Experience of Family Breakdown of Hwabyung Patient)

  • 채선옥;박영숙
    • 성인간호학회지
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    • 제19권3호
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    • pp.470-482
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    • 2007
  • Purpose: This study aimed to describe the experience of family breakdown of Hwabyung patients in a socio-cultural context. Methods: Data for this study came from 5 participants, 2 family members and 1 friend of participant by interviews and participant observations from January 2006 to April 2007. Sociology of everyday lives analyzing method were adopted. Results: There were two processes of family breakdown ; sudden on set and progressive processes. The sudden breakdown was unpredictable death of a husband, the significant family member. On the other hand, their family structure and function were broken down through the husband, who repeatedly destructive and malicious behaviors. The experience of family breakdown of middle-aged women with Hwabyung in a socio-cultural context was weakened or severed family-relationships, exhaustion of economic sources, and the breakdown of participant's body. Participant's experience of family breakdown were influenced by Korean culture, the patriarchal social system and the clan-centered family system. Conclusion: Hwabyung is the result of a clan-centered family system and patriarchal system. The approach to Hwabyung should involve not only the person with the illness but also their family.

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심장이식환자의 체험: 현상학적 연구 (The Lived Experience of Patients with Heart Transplantation: A Phenomenological Study)

  • 황영희;이명선
    • 대한간호학회지
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    • 제47권1호
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    • pp.110-120
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    • 2017
  • Purpose: The purpose of this study was to describe the lived experience of patients with heart transplantation in Korea. Methods: Individual indepth interviews and a focus group interview were used to collect the data from nine patients who had heart transplantations in 2015. All interviews were audio-taped and verbatim transcripts were made for the analysis. Data were analyzed using Colaizzi's phenomenological method. Results: Among the nine participants, eight were men. Mean age was 57.30 years. Six theme clusters emerged from the analysis. 'Joy of rebirth obtained by good luck' describes the pleasure and expectation of new life after narrow survival. 'Suffering from adverse drug effects' illustrates various psychosocial difficulties, such as low self-esteem, helplessness, alienation, and burnout, arising from the side effects of medications. 'Body and mind of being bewildered' illustrates disintegrated health and haunting fear of death. 'Alienation disconnected with society' describes isolated feeling of existence due to misunderstandings from society. 'Suffering overcome with gratitude and responsibility' includes overcoming experience through various social supports and suitable jobs. Finally, 'acceptance of suffering accompanied with new heart' illustrate changed perspective of life itself. Conclusion: The findings in this study provide deep understanding and insights of the lived experience of heart related illness for these patients and should help in the development of tailored-interventions for patients with heart transplantation.

장기 혈액투석 수혜자들의 생활경험에 관한 연구 (A Study of the Lived Experiences of Clients Receiving Long-Term Hemodialysis)

  • 신미자
    • 대한간호학회지
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    • 제27권2호
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    • pp.444-453
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    • 1997
  • The purpose of this study was to construct a grounded theory as the basis for nursing intervention by describing and analysing the holistic lived experiences of clients receiving long-term hemodialysis. The subjects of this study were fifteen persons receiving regular hemodialysis regimen at artificial kindey treatment centers in two different university hospitals, and who were able to participate in conversation and were available for long and dup interviews. Eight of the subjects were male and seven were female and their ages ranged from 30's to 60's. The length of the hemodialysis experience ranged from two months to six years. The collection and analysis of data were done in accordance with the grounded theory methodology of Strauss & Corbin. The method to collect the data mainly depended. on long and deep interviews, participant observation and focused group interviews and the equipment used to collect data were a portable tape recorder and field notes. The study is summarized as follows : 1. The meaning of holistic lived experiences of clients receiving long -term hemodialysis was found to be uncertainty. which was identified as the core category. 2. The main categories following the core category were found to be shock, ambiguity, social support and quality of life. 3. Through the main category the type of behavior newly formed by clients receiving long-term hemodialysis was found to be as follows. That is to say, in the circumstances of shock caused by the identified fact and the ambiguity of hemodilysis they formed a quality of life based on social support, which was found to be a kind of chaotic phenomenon. 4. The lived experiences of clients receiving long-tern hemodialysis was found to include nine categories : emotional shock, feelings of isolation, burden, unclearness, dependency, help from others, coping strategies, maintenance of self-esteem and transitional life. 5. The intervening factors influencing each category are as follows : 1) The factors influencing 'emetional shock' were found to be set age, the level of knowledge received in advance, locus of control, the period of struggle against the disease before hemodialysis and whether any serious illness existed. 2) The factors influencing 'feelings of isolation' were found to be religion and the length of the hemodialysis experience. 3) The factors influencing 'burden' were found to be sex, economic situation, employment status and the length of the hemodialysis experience. 4) The factors influencing 'unclearness' were found to be sex, age, religion. economic situation, the length of the hemodiaysis experience, whether they had had a transfusion and whether there were any complications. 5) The factors influencing 'help from others' were found to be religion. economic situation, past experiences and whether family members lived together. 6) The factors influencing 'coping strategies' were foung to be age, level of education, experiences of illness and locus of control. 7) The factors influeruing 'maintenance of self-esteem' were found to be the length of the hemodialysis experience and self-actualization. 8) The factors influencing 'transitional life' were found to be age, religion, economic situation, employment status. locus of control. past experiences and whether there was a plan for a kidney transplant.

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말기환자를 간호하는 간호사의 고통 경험 (Nurses호 Painful Experiences through Terminal Patient)

  • 조계화;한희자
    • 대한간호학회지
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    • 제31권6호
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    • pp.1055-1066
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    • 2001
  • The Purpose of this study is to understand the meaning and the essence of suffering as viewpoint and to find the meaning and structure of the experience from encounters with patients in their terminal stages of illness. Method: A descriptive design based on the phenomenological approach model developed by Collaizzi was used. The period of data collection was from August to November of 2000. Data collection was conducted by open-ended and audio-taped interviews. The participants were nine female nurses who were willing to take part in this study. Results: Results of this study were classified into five main categories. The main category clusters were "difficulty in experiencing suffering," "professional challenges to expert nurses," "formation of empathic relationships," "expanding consciousness through suffering," and "alleviation of the patient's suffering." Conclusion: In conclusion, the implications for providing nursing care to end-stage patients in the throes of suffering is both rewarding and stressful. However, sharing these research results may help other nurses discover and experience deeper meanings in their own practice and careers.deeper meanings in their own practice and careers.

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만성질환자 배우자의 돌봄 경험에 대한 이론 구축 (A Theory Construction on the Care Experience for Spouses of Patients with Chronic Illness)

  • 최경숙;은영
    • 대한간호학회지
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    • 제30권1호
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    • pp.122-136
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    • 2000
  • Chronic illness requiring attention and management during a long period of time puts great burden onto patients, their family and society. For patients with chronic illnesses, providing social support is the most important, and the fundamental support comes from their spouses. Amount and quality of support from spouses seems to differentiated according to the sex of patients. Female patients tend to believe that their spouses are not very supportive. Therefore, the researchers assessed the burden of husbands of female arthritis patients to discover the factors that result in greater burden. Also, they developed a theoretical model of husbands′ care for their wives through a qualitative research into husbands′ experience. Method 1: The study material was 650 female arthritis patients registered in an arthritis clinic. The questionnaire about the disease experience of female arthritis patients and the burden of husbands were sent. Returned questionnaires numbered 210(32.3%) and 27 were excluded because of inadequate answers. The remaining 183 questionnaires were analyzed. The mean age of the patients was 51 years and the mean age of spouses was 55 years. The mean marital period was 28 years. The average duration since diagnosis was 9.1 years. Education level was varied from primary school to graduate school, and average income/month was 1,517,300 won. Method 2: Initial questionnaire studies on the burden of husbands were performed. Among 183 responding husbands, 23 consented to participate for a qualitative research. Data was obtained by direct and telephone interviews. The mean age of participants was 58 years, and the educational level and socioeconomic status also varied. Result: 1. Husbands′ burden: The average burden was 57.68 with a range of 6-96. 2. Burden and general characteristics: The husband′s burden correlated with the age of the patients, numbers in the family, therapy methods, patient′s level of discomfort, patient′s disease severity, patient′s level of dependence and the husband′s understanding of the level of severity. 3. Linear correlation analysis on burden: The husbands′ burden is explained in 22.5% by husband′s recognition of level of severity and husbands′ age. 4. There were four patterns of the burden on husbands: both objectve burden and subjective burden were high(pattern I), both of objectve burden and subjective burden were low(pattern II), objective burden was high but subjective burden was low(pattern III), objective burden was low but subjective burden was high(pattern IV). The pattern was correlated with the family income, educational level of the patients and their husbands, therapy methods, patient′s level of discomfort, patient′s disease severity, patient′s level of dependence and husband′s understanding of level of severity. 5. The core category of the caring experience of the husbands with arthritis patients was "companionship". The causal factor was the patients′ experience due to symptoms : physical disfigurement, pain, immobility, limitation of house chores, and limitation of social activities. Contextural factors are husbands′ identification of housework and husbands′ concern about the disease. The mediating factors are economic problems, fear of aging, feeling of limitation and family support. The strategy for interaction is mind control and how to solve emotional stress. The "companionship" resulted from caring activities, participation of household activities, helping patients′ to coping with emotional experience. 6. Companionship is established through the process of entering intervention, and caring state of mind. Entering intervention is the phase of participation of therapy and involvement of houseworks. The caring phase consists of decision on therapy, providing therapy, providing direct care, and taking over the household role of wife. Through caring phase, the changing phase set a stage in which husbands consolidate the relationship with their wives, and are reminded of the meaning of marriage. As a result, in changing phase, husbands′ companionship is enhanced. In conclusion, nursing care of chronic illnesses should include a family member especially the spouse. All information on disease shoud be provided to patients and whole family member. Strong support should also be provided to overcome difficulties in taking over role of other sex. Then the quality of life of patients and families will be much improved.

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결혼이주 일본여성의 만성질환 시부모 돌봄 경험 (The Lived Experience of Japanese Marriage-Immigrants' Caring for Parents-in-law with Chronic Illness)

  • 최미숙;김미영;양복순
    • 한국간호교육학회지
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    • 제20권2호
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    • pp.255-265
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    • 2014
  • Purpose: The study was done to explore lived experience of Japanese women taking care of chronically ill parents-in-law at home under the Korean family culture emphasizing filial piety. Method: van Manen's Hermeneutic Phenomenology research method was applied to conduct in-depth analysis on the meaning and nature of those experiences. This method derives the universal and fundamental aspect of human being. Results: There were 8 essential themes derived from the Japanese marriage-immigrants' experiences taking care of parents-in-law with chronic diseases as followings: 'stuck in a situation in which I am obligated to take care of the parent-in-law', 'hard to be the only person responsible to take care of the parent-in-law', 'unaccustomed to the Korean filial duty culture', 'the adverse effect of Korean-Japan history on taking care of the parent-in-law', 'refusing to let the taking care of the parent-in-law to be a shackle of my life', 'starting to be willing to take care of the parent-in-law', 'following through with my own way of taking care of the parent-in-law without being swayed by what others say', 'growing in the process of taking care of the parent-in-law'. Conclusion: The study results broadened ground to understand the experiences taking care of chronically ill parent-in-law from Japanese marriage-immigrants' social and cultural perspectives.

지각된 낙인이 정신장애인의 삶의 만족과 자아존중감에 미치는 영향 (Effects of Perceived Stigma on Life Satisfaction and Self-Esteem of the Mental Illness)

  • 서미경;김정남
    • 한국사회복지학
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    • 제56권4호
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    • pp.173-194
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    • 2004
  • 수정된 낙인이론에 의하면 정신장애인에 대한 일반인의 낙인은 사회화과정에서 정신장애인에게 내면화되어 사회적응에 부정적 영향을 미치게 된다. 이런 이론적 전제를 가지고 본 연구는 지역사회에서 생활하는 정신장애인 377명을 대상으로 지각된 낙인이 삶의 만족과 자아존중감에 영향을 미치는 경로를 분석하였다. 그 결과 첫째, 지각된 낙인은 삶의 만족에 직접적 효과를 갖기도 하지만 차별경험을 매개로 한 간접적 효과를 가지기도 한다. 둘째, 지각된 낙인이 자아존중감에 미치는 직접적 효과는 없지만 차별경험과 차별상황에 대한 내재적 귀인을 매개로 한 간접적 효과가 있는 것으로 나타났다. 이러한 결과를 바탕으로 지각된 낙인의 부정적 효과를 줄이기 위해서는 일반인을 대상으로 한 교육과 정보제공도 중요하지만 정신장애인과 그 가족이 주도하는 낙인극복캠페인을 통해 스스로를 옹호하고 권한부여 하는 프로그램이 필요하다.

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간호대학생의 공감능력과 정신질환자에 대한 편견 및 차별행동과의 관계 (The relationship between empathy, discriminatory behaviors and prejudice of nursing college students against the mental illness)

  • 송정희
    • 산업융합연구
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    • 제17권2호
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    • pp.63-70
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    • 2019
  • 본 연구는 간호대학생의 공감능력과 정신질환자에 대한 편견 및 차별행동을 파악하고 이들 사이의 관련성을 분석하고자 시행되었다. 연구대상자는 K도에 위치한 2개 대학에 재학 중인 간호 대학생 281명이었다. 연구결과 간호대학생의 공감능력은 편견 및 차별행동과 음의 상관관계, 편견과 차별행동은 양의 상관관계가 있는 것으로 나타났으며 대상자의 봉사활동 경험 유무 등에 따라 공감능력에 차이가 있는 것으로 나타났다. 정신 질환자에 대한 차별행동은 대상자의 연령, 학년에 따라 차이가 있었다. 간호 대학생들의 차별행동 및 편견을 감소시키기 위해서는 공감능력을 향상시킬 수 있는 다양한 프로그램 등이 필요할 것이며 또한 대상자의 특성을 고려한 체계적인 교육 및 실습과정이 필요할 것이다. 이는 미래의 전문직 간호사로서 간호 대학생들의 인식 및 태도를 개선하는데 기여할 것으로 생각된다.

농촌 골관절염 여성의 질병 경험과 관리 실태조사 (A Survey on Experience and Illness Management of Rural Women with Osteoarthritis)

  • 손정태;박상연
    • 기본간호학회지
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    • 제13권3호
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    • pp.419-427
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    • 2006
  • Purpose: This descriptive survey was done to assess how rural women with osteoarthritis perceive their symptoms, what are their treatment preferences, and how they manage their illness. Method: Individual interviews were carried out with 205 women with osteoarthritis living in rural areas. Structured questionnaires were used and the interviewers were 7 trained research assistants. Descriptive statistics were used for data analysis with SPSS win 11.5 program. Results: Of the respondents, 68.8% were overweight and 15.1% were obese, 86.9% reported pain in the knees, low back, and shoulders and the average pain score was 66.06. Those knowing the exact diagnosis accounted for 73.7% of the respondents but only 49.7% reported receiving medical treatments, and 40.2% who received treatment adhered to their prescription. Folk medicines were used by 14.1% of the respondents, but 65.2% among them reported that folk medicines were not effective. Exercise 2.03 times per week was reported by 17.1% of the respondents and 48.6% reported preferring to walk. Conclusion: Women with osteoarthritis in rural areas need a rehabilitative care program focused on exercise. The community health care system in the rural area should deliver optimal health care for this population. The results of this study can be used as a basis for planning intervention programs for women with osteoarthritis in the rural area.

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한국 요실금 여성노인의 생애이야기-내러티브 분석적 접근 (The Life Stories of Elderly Korean Women with Urinary Incontinence: A Narrative Study Approach)

  • 이봉숙;이명선
    • 대한간호학회지
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    • 제39권2호
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    • pp.237-248
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    • 2009
  • Purpose: The purpose of this study was to investigate the experience of urinary incontinence (UI) for elderly Korean women using a narrative approach. Methods: The data were collected using individual in-depth interviews with 15 communitydwelling elderly women who had UI for at least 1 yr. The narratives of the life stories of these women were analyzed from the actor’s perspective, motivation and purpose of actions, and action toward goal achievement. Also the narratives on UI were analyzed according to cognition, behavior, and evaluation of UI. Results: Three major types of the life stories emerged from the analysis. First, the conquest narrative type reflects active characteristics of narrators within the circumstances of the sociocultural context. Second, the patience narrative is characterized as having flexibility between self determination for goal achievement and the boundary of the sociocultural context. Lastly, the compliance narrative reflected characteristics of narrators who easily adapt their way of life to circumstances. In terms of UI, the narrators in all three types lacked awareness of UI as an illness condition. Three different reasons are specifically identified according to the narrative types. Conclusion: The results of this study indicate that the concept and the illness behaviors related to UI in elderly Korean women with UI were closely related to the way of women's lives within the sociocultural and historical context.