• Title/Summary/Keyword: Caring burden

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Factors Affecting the Quality of Life of Family Caregivers of Patients with Parkinson Disease (파킨슨병 환자 가족의 삶의 질에 미치는 영향요인)

  • Kim, Gyuri;Kim, Minju
    • Journal of muscle and joint health
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    • v.26 no.2
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    • pp.102-110
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    • 2019
  • Purpose: The purpose of this study was to investigate the factors affecting the quality of life of family caregivers of patients with Parkinson disease in Korea. Methods: A total of 162 family caregivers of patients with Parkinson disease who were visiting the D hospital in B city completed questionnaires, including general and disease-specific characteristics, family burden, patient-caregiver relationship satisfaction, family support and quality of life. Data were analyzed with t-test, ANOVA with $Scheff{\acute{e}}$ test, Pearson's correlation coefficient, and multiple regression analysis using SPSS 23.0. Results: The average score of the quality of life was $85.54{\pm}17.74$ (range: 26~130) among family caregivers of patients with Parkinson disease. Stepwise multiple regression analysis revealed that fifty percent of the quality of life was explained by family support, family burden, and patient-caregiver relationship satisfaction. Conclusion: Family support, family burden, and patient-caregiver relationship satisfaction were identified as factors affecting the quality of life of family caregivers of patients with Parkinson disease. Therefore, it is necessary to develop a program to enhance family support and reduce family burden to improve the quality of life of family members caring for patients with Parkinson disease.

A Study on Health as Expanding Consciousness of the Low-income Elderly Living Alone (저소득 독거노인의 의식확장으로서의 건강연구)

  • Shim, Moon-Suk
    • Research in Community and Public Health Nursing
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    • v.16 no.2
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    • pp.157-166
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    • 2005
  • Purpose: This study was to explore health experiences of the low-income elderly living alone reflected in Newman's Health as expanding consciousness theory. Method: The researcher used Newman's praxis methodology because it is good for showing the process of interaction between the researcher and the low-income elderly living alone. Results: The significant characteristics of early health experience during a participant's lifetime were demonstrated that blamed themselves, being burden of themselves hopeless of their lives. However, after a turning point in health experience. The health experience of most of the participants evolved as expanding consciousness. Conclusion: This study has provided support for Newman's theory of health. Most of the participants recognized meanings in their patterns and authentic caring relationships with the nurse as researcher, pattern recognition as a nursing practice was a meaningful transforming process in the participant-nurse partnership. This participatory approach expands the scope of sharing health experience with the elderly living alone and with caring community people.

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Mothers' Experiences of Caring for Children with Precocious Puberty: A Q-Methodological Approach (성조숙증 아동 어머니의 돌봄 경험: Q 방법론적 접근)

  • Lee, Hye Jin;You, Mi-Ae
    • Journal of Korean Academy of Nursing
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    • v.50 no.2
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    • pp.255-270
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    • 2020
  • Purpose: This study explored experiences of mothers caring for children with precocious puberty. Methods: Q-methodology was used for analyzing individual subjectivity. Seventy Q-statements were selected and scored by 50 participants on an 11-point scale. The collected data were analyzed using the PC QUANL program. Results: The following eight types of care experiences of mothers of children with precocious puberty were identified: Type I-1: hypersensitive and best-result oriented, Type I-2: treatment burden, Type II-1: treatment-oriented, Type II-2: self-blame, Type III-1: accepting and compliant, Type III-2: treatment confused, Type IV-1: serious and engaged, and Type IV-2: naturalism-oriented. Conclusion: These results can help develop specific education programs based on types of care experiences for the promotion of care among mothers of children with precocious puberty.

Efficiency of Public Hospitals and Their Social Role (공공병원의 效率性과 사회적 역할)

  • 정형선;이기호
    • Health Policy and Management
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    • v.6 no.2
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    • pp.1-13
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    • 1996
  • To evalate the efficiency of public and private hospitals, the author used Data Envelopment Analysis(DEA), a mathematical linear programming method calculating the of ficiency of a unity(DMU: Decision Making Unit) in relation to the other units in analysis. DEA was applied to thirty three (10 public and 23 private) general hospitals wiwith 160 to 299 beds. In respect to productivity, public hospitals appeared to be a little more efficient than private ones, even though it's statisticansignificant. However, the efficiency score for profitability conversed that these contrary results were due to the caring of more medical protection patients in public hospitals, who brought less revenlue to te hospital than other patients. Public hospitals' superiority to private counterparts in productivity, which are aguged mainly based on cared patients, suggests that the former contributes so much positively to social utility. In particular, the fact that public hospitals are caring more medical protection patients, namely the poverty group whom the society should bear a burden of by all means, seems to be desirable in respect of role of publi hospitals.

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Moderating Effect of Family Resilience and Social Support on Relationship between Burden of Care for Families with Mentally Disabled and Quality of Life (정신장애인 가족의 보호부담과 삶의 질과의 관계에서 가족탄력성과 사회적 지지의 조절효과)

  • Lee, Yu-Ri;Choi, Hee-Chul
    • The Journal of the Korea Contents Association
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    • v.17 no.11
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    • pp.229-241
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    • 2017
  • The purpose of this study is to examine the Influence of burden of care for families of the mentally disabled on the quality of life and the moderating effect of family resilience and social support. This study carried out a survey of 102 families of the mentally disabled registered in the mental health centers and social rehabilitation facilities in Seoul, Gyeonggi and Incheon areas. As a result, first, the burden of caring for families of the mentally disabled has a negative impact on the quality of life. Second, family resilience has a moderating effect on the relationship between the burden of care and the quality of life of families of the mentally disabled. The subscales of family resilience were all buffered. Finally, social support has proved to be moderating in the relationship between the burden of care and the quality of life. Based on the results of this study, it was suggested that the need for providing information for improving the resilience of the family is needed, and the institutional support to mitigate the economic burden of the mental disabled family's social support network is needed.

Subjective and Objective Caregiver Burden in Parkinson's Disease

  • Kim, Keum-Soon;Kim, Bog-Ja;Kim, Kyung-Hee;Choe, Myoung-Ae;Yi, Myung-Sun;Hah, Yang-Sook;Chung, Sun-Ju;Kwon, So-Hi
    • Journal of Korean Academy of Nursing
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    • v.37 no.2
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    • pp.242-248
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    • 2007
  • Purpose. Parkinson's disease (PD) is a common neurodegenerative disorder characterized by motor disabilities and increasing dependence on others for daily life activities with consequent impact on patients' and caregivers' quality of life. The aim of this study was to elucidate the burden on primary caregivers of patients with PD, and identify related factors. Methods. A cross-sectional descriptive study. Seventy-six primary caregivers of PD patients in a neurology out-patient clinic, Seoul, Korea completed structured questionnaires, of which 68 were analyzed. The structured self-report questionnaire included (1) demographic information on the caregivers, (2) information regarding the disease characteristics of the patients, and (3) the subjective and objective caregiver burdens as assessed on Montgomery, Gonyea, & Hooyman's scale. Results. The mean age of the caregivers was 54.56 years, and spouses represented the largest proportion (47.0%). Caregivers of PD patients experienced high levels of burden (mean scores on the subjective and objective burdens were 45.22 and 34.90, respectively), which were comparable to the caregiver burdens in stroke, and higher than the caregiver burdens in general chronic disease. Older caregivers and spousal caregivers experienced significantly higher burdens (p=.004 and p=.019, respectively). A greater motor disability and higher modified Hoehn and Yahr grade were related to higher caregiver burden (p=.001 and p=.018, respectively). Conclusion. Caring for PD patients is associated with a high level of caregiver burden. Therefore, healthcare professionals should identify the burden of caregivers who look after PD patients and develop comprehensive management strategies both for patients and their caregivers.

Factors Influcing Elderly Care Burden of A Working Family in Korean Nursing Facilities: A Convergence Approach (한국 요양시설을 이용하는 직장인 가족의 노인 돌봄 부담감에 영향을 미치는 요인)

  • Sung, Kyung Mi;Kim, Eun Jeong
    • Journal of Digital Convergence
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    • v.18 no.2
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    • pp.333-342
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    • 2020
  • The purpose of this study was to identify factors influencing elderly care burden of a working family. Methods: A descriptive correlational design was used. Participants was 153 family member of elderly at five nursing facilities. Data were collected through self-reported questionnaires from July to October 2019. Data were analyzed using an independent t-test, one-way ANOVA, Pearson's correlation, and hierarchical multiple regression analysis with the SPSS WIN 25.0 program. Analysis result, explaining 20,8% of the variance, which indicated that subjects for giving care, monthly admission fee, burden of expenses, and satisfaction for fee service were significant predictors of working family's care burden. Various individual characteristics significantly influenced working family's care burden in aspects of emotional, social, economical, and physical burdens. Therefore, interventions to decrease working family's care burden must focus on their individual factors.

The Influence of Family Aggregation with Disabilities on Life Satisfaction: The Mediating Effect of Caregiving Burden (장애가족 가족응집성이 삶 만족에 미치는 영향: 부양부담 매개효과)

  • Shin, Kyung-An
    • Journal of Industrial Convergence
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    • v.19 no.3
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    • pp.97-105
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    • 2021
  • The purpose of this study was to determine the effect of family cohesion and burden of support on life satisfaction of disabled families and ultimately support the satisfied life of disabled families. The study investigated the factors that influence the life satisfaction of the disabled family through a questionnaire survey as a disabled family caring for a disabled family. As a result of the study, life satisfaction of families with disabilities was as low as 2.278 on a 5-point scale, and the burden of support was 3.432, indicating that they felt a relatively high burden of support. However, family cohesion was relatively good at 3.664, showing that support to lower the burden of support was needed to increase life satisfaction. Based on these findings, the researcher makes the following suggestions to increase the life satisfaction of disabled families. First, the need for support to alleviate the burden of caregivers for the disabled. Second, expanding support for people with disabilities receiving care. Third, there is a need to strengthen support for families with disabilities. However, as this study was conducted centered on Gyeonggi-do, there is a need for follow-up research as the study has limitations.

Nurses' Experience with Caring for COVID-19 Patients in a Negative Pressure Room Amid the Pandemic Situation (팬데믹 상황에서 음압병실 근무 간호사의 COVID-19 환자 간호 경험)

  • Noh, Eun-Young;Chai, Young Jun;Kim, Hyun Jeong;Kim, Eunjin;Park, Yeon-Hwan
    • Journal of Korean Academy of Nursing
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    • v.51 no.5
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    • pp.585-596
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    • 2021
  • Purpose: The purpose of this study was to explore nurses' experience with caring for COVID-19 patients in a negative pressure room amid the spread of the pandemic. Methods: This study was a qualitative research, and focus group interviews were used to collect data. Three focus groups comprising 19 nurses were interviewed from February 17 to 25, 2021. All interviews were recorded and transcribed verbatim with the consent of the participants. The verbatim transcripts were scrutinized using thematic analysis. Results: Two main themes emerged from the analysis: 'Struggling in an isolated space' and 'Limitations of nursing infrastructure and system'. The nurses caring for COVID-19 patients experienced anxiety and fear about the infection, physical exhaustion, emotional burnout, and a sense of duty as a nurse. They also acknowledged the lack of guidelines, increased task and burden, limitations of nursing care, and the demand for improving the limitations of the nursing system. Conclusion: The results of this study demonstrate that nurses caring for COVID-19 patients encounter physical and emotional problems within the limited healthcare system. The study suggests that comprehensive interventions are needed for nurses. Furthermore, detailed guidelines, strengthening of nursing personnel, and improvements to the nursing system are vital to effectively cope with the pandemic. The government and medical institutions should be aware of the needs of nurses and what they are going through, and make efforts to improve the quality of life of healthcare workers and create a safe healthcare environment.