Journal of Hospice and Palliative Care

Korean Society for Hospice and Palliative Care (한국호스피스완화의료학회)
권호 표지
DOI QR코드

DOI QR Code

Content Analysis of Online Resources Regarding Needs for Advance Care Planning

  • Minju Kim (College of Nursing, Dong-A University) ;
  • Jieun Lee (Department of Nursing, Choonhae College of Health Science)
  • Received : 2023.10.03
  • Accepted : 2024.07.16
  • Published : 2024.09.01
Download PDF
⟨ Previous Next ⟩

Abstract

Purpose: This study aimed to investigate advance care planning needs expressed online. Methods: This study collected data from online community posts and healthcare news sites. The search keywords included "death," "euthanasia," "life-sustaining medical care," "life-sustaining treatment," "advance directives," "advance medical directives," and "advance care planning." Data collection spanned from February 2018 to February 14, 2020. Out of 2,288 posts, 1,190 were included in the final analysis. Data analysis was conducted using NVivo 12, a qualitative data analysis software program. Results: Content analysis categorized patients' advance care planning needs into eight themes, 11 theme clusters, and 33 meaningful statements. Similarly, care providers' advance care planning needs were categorized into eight themes, 14 theme clusters, and 42 meaningful statements. The identified themes of care needs included life-sustaining medical care, decision-making related to life-sustaining medical care, physical care, environmental care, supportive and spiritual care, respect, preparing for death, and family. Conclusion: This study identified care needs from the perspectives of patients and their families. The findings may serve as preliminary data for future research and clinical applications.

Keywords

Acknowledgement

This study was conducted with support from the National Research Foundation of Korea (NRF-2018R1D1A3B07040377). This study work was supported by Dong-A University Foundation Grant in 2022.

References

  1. Ministry of Health and Welfare. Act on hospice and palliative care and decisions on life-sustaining treatment for patients at the end of life [Internet]. Sejong: Korean Law Information Center; 2023 [cited 2023 Oct 20]. Available from: https://www.law.go.kr/.
  2. Aging with Dignity. Five wishes : Advance directive form [Internet]. Tallahassee, FL: Aging with Dignity; 2023 [cited 2023 Aug 10]. Available from: https://www.fivewishes.org.
  3. Kim SN, Kim SY, Jo MJ. The degree of the demand for caring at the end of life in the home life of the elderly residing in the community and the attitude regarding the prior life-prolonging medical treatment decision. KACM 2022;44:31-55.
  4. Lee JE, Lee J, Lee H, Park JK, Park Y, Choi WS. End-of-life care needs for noncancer patients who want to die at home in South Korea. Int J Nurs Pract 2020;26:e12808.
  5. Delgado-Guay MO, Rodriguez-Nunez A, De la Cruz V, Frisbee-Hume S, Williams J, Wu J, et al. Advanced cancer patients' reported wishes at the end of life: a randomized controlled trial. Support Care Cancer 2016;24:4273-81. https://doi.org/10.1007/s00520-016-3260-9
  6. Lankarani-Fard A, Knapp H, Lorenz KA, Golden JF, Taylor A, Feld JE, et al. Feasibility of discussing end-of-life care goals with inpatients using a structured, conversational approach: the go wish card game. J Pain Symptom Manage 2010;39:637-43. https://doi.org/10.1016/j.jpainsymman.2009.08.011
  7. Oo NM, Scott IA, Maggacis R, Rajakaruna N. Assessing concordance between patient preferences in advance care plans and in-hospital care. Aust Health Rev 2019;43:425-31. https://doi.org/10.1071/AH18011
  8. Kim HA, Park JY. Changes in life-sustaining treatment in terminally ill cancer patients after signing a do-not-resuscitate order. Korean J Hosp Palliat Care 2017;20:93-9. https://doi.org/10.14475/kjhpc.2017.20.2.93
  9. Keum BS, Min SJ, Lee YH, Han YJ. 2021 Survey on the internet usage [Internet] Daegu: National Information Society Agency; c2022 [cited 2023 Aug 26]. Available from: https://doc.msit.go.kr/SynapDocViewServer/viewer/doc.html?key=880c5cd8ec5d41f98d9a89647ba7fc95&convType=img&convLocale=ko&contextPath=/SynapDocViewServer.
  10. Kim DJ, Lee S. A study of consumer perception on fashion show using big data analysis. Journal of Fashion Business 2019;23:85-100. https://doi.org/10.12940/JFB.2019.23.3.85
  11. Kim JH, Lee YH. The differences between SNS addiction proneness and internet addiction in college students: Focusing on anonymity in online, narcissism, depression, anxiety, and adjustment to college life. Korean Journal of Youth Studies 2018;25:27-52. https://doi.org/10.21509/KJYS.2018.10.25.10.27
  12. Bengtsson M. How to plan and perform a qualitative study using content analysis. NursingPlus Open 2016;2:8-14. https://doi.org/10.1016/j.npls.2016.01.001
  13. Kato Cotta. Web crawling and scraping using Python. Translated by Yoon IS. PaJu:Wikibook;2018.
  14. Ryan Mitchell. Web scraping with Python. Translated by Han SY. 2nd ed. Seoul:Hanbit Media;2019.
  15. Sandelowski M. Whatever happened to qualitative description? Res Nurs Health 2000;23:334-40. https://doi.org/10.1002/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G
  16. Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measure to achieve trustworthiness. Nurse Educ Today 2004;24:105-12. https://doi.org/10.1016/j.nedt.2003.10.001
  17. Kim M, Kim M. We want more than life-sustaining treatment during end-of-life care: Focus-group interviews. Int J Environ Res Public Health 2021;18:4415.
  18. Current status of life-sustaining treatment system [Internet]. Seoul: National Agency for Management of Life-Sustaining Treatment; 2023 [cited 2023 Aug 26]. Available from: https://www.lst.go.kr/comm/monthlyStatistics.do.
  19. Chung BY, Cho YH. The meaning of dignified with death. Korean J Hosp Palliat Care 2017;20:100-10. https://doi.org/10.14475/kjhpc.2017.20.2.100
  20. Yoo YS. A phenomenological study on the good death recognized by the bereaved elderly. Journal of Community Welfare 2017;62:1-31. https://doi.org/10.15300/jcw.2017.62.3.1
  21. Lee MS, Kim YJ. Good death recognized by the elderly. The Journal of the Korea Contents Association 2013;13:283-99. https://doi.org/10.5392/JKCA.2013.13.06.283
  22. 2022 Population trend survey [Internet]. Daejeon: Statistics Korea; 2023 [cited 2023 Aug 26]. Available from: https://kostat.go.kr/board.es?mid=a10301020300&bid=204&act=view&list_no=423833.
  23. Ku IH. The meaning of death and its moral problems for modern human being. Philosophical Investigation 2004;16:59-82.
  24. Kim BH, Kim JH. Perception level of hospice and palliative care and premise of a PR campaign. Advertising Research 2018;116:180-223. https://doi.org/10.16914/ar.2018.116.180