Pediatric Gastroenterology, Hepatology & Nutrition

  • 제26권5호
  • /
  • Pages.239-248
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  • 2023
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  • 2234-8646(pISSN)
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  • 2234-8840(eISSN)
대한소아소화기영양학회 (The Korean Society of Pediatric Gastroenterology, Hepatology and Nutrition)
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Anxiety, Depression, and Quality of Life in Parents of Adolescents with Inflammatory Bowel Disease: A Longitudinal Study

  • Satomi Nomura (Division of Gastroenterology, Center for Pediatric Inflammatory Bowel Disease, National Center for Child Health and Development) ;
  • Yuri Hirano (Division of Gastroenterology, Center for Pediatric Inflammatory Bowel Disease, National Center for Child Health and Development) ;
  • Ichiro Takeuchi (Division of Gastroenterology, Center for Pediatric Inflammatory Bowel Disease, National Center for Child Health and Development) ;
  • Hirotaka Shimizu (Division of Gastroenterology, Center for Pediatric Inflammatory Bowel Disease, National Center for Child Health and Development) ;
  • Katsuhiro Arai (Division of Gastroenterology, Center for Pediatric Inflammatory Bowel Disease, National Center for Child Health and Development)
  • 투고 : 2023.05.26
  • 심사 : 2023.07.21
  • 발행 : 2023.09.15
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초록

Purpose: The parents of adolescents with inflammatory bowel disease may experience impaired mental health and quality of life. This longitudinal study aimed to verify whether the mental health and quality of life of the parents of adolescents with inflammatory bowel disease declined when their children had active disease. Methods: Sociodemographic data, parental anxiety, depression, and quality of life were analyzed using validated questionnaires for each variable. After the baseline survey, the second and follow-up surveys were conducted at 3 and 12 months, respectively. The active disease group comprised eight parents whose children had active disease during the baseline and second surveys. The remission group comprised 14 parents whose children remained in remission during both surveys. The improved group comprised nine parents whose children experienced active disease at baseline and remission during the second survey. Parental mental health and quality of life were compared among the groups. Results: Significantly higher levels of anxiety were observed in the active disease group in all surveys (p<0.050). Although depression levels and quality of life did not differ significantly among the three groups, pairing the active disease group with other groups showed some large effect sizes. Conclusion: Parents tended to experience decreased mental health and quality of life when their adolescents experienced active inflammatory bowel disease. Consequently, our hypothesis was partially verified. Therefore, parents need support when their children have active disease; this finding highlights the need for parental support systems.

키워드

과제정보

This work was supported in part by a Grant-in-Aid from the National Center for Child Health and Development of the Ministry of Health, Labor, and Welfare, Japan (2019A-3 to KA).

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