Journal of Korean Academy of Nursing (대한간호학회지)

Korean Society of Nursing Science (한국간호과학회)
권호 표지
DOI QR코드

DOI QR Code

Diabetes Self-Management Experience of Patients with Diabetes: Focused on the Visually Impaired

당뇨 환자의 당뇨 자가관리 경험: 시각장애인을 중심으로

  • Chang, Sun Ju (College of Nursing.The Research Institute of Nursing Science, Seoul National University) ;
  • Lee, Kyoung-eun (College of Nursing, Seoul National University) ;
  • Yang, Eunjin (College of Nursing, Seoul National University) ;
  • Kim, Hee Jung (College of Nursing, Seoul National University)
  • Received : 2020.09.22
  • Accepted : 2020.12.08
  • Published : 2021.02.28
Download PDF
⟨ Previous Next ⟩

Abstract

Purpose: This study aimed to understand and describe the diabetes self-management experience of visually impaired people with diabetes. Methods: Ten participants were recruited through a website used by the visually impaired from February to March 2020. Data were collected through two focus group interviews conducted in June 2020; each group consisted of five participants. All interviews were recorded with the consent of the participants and transcribed verbatim. The transcribed data were analyzed using qualitative content analysis. Results: Seven categories were as follows; a two-faced, lifelong companion, an unprepared encounter, struggle to live, love-hate relationship with family, strategies to adapt, lessening attention to self-management, the desire to learn properly. Conclusion: It can be concluded that the visually impaired have fewer opportunities for receiving diabetes self-management education than general diabetic patients. Consequently, plans to improve the education available to such patients are required. Additionally, psychological counseling and diabetes education for patients' families are necessary, and improving the perception of medical workers regarding the visually impaired will be prove useful.

Keywords

Acknowledgement

We wishes to express thanks to our interviewees for participating in this study even though their mobility difficulties.

References

  1. Korean Diabetes Association (KDA). Diabetes fact sheet in Korea 2020 [Internet]. Seoul: Korean Diabetes Association; c2020 [cited 2020 Nov 15]. Available from: https://www.diabetes.or.kr/pro/news/admin.php?category=A&code=admin-&number=1992&mode=view.
  2. Park JH. Fundamental principles for diabetes mellitus management. Public Health Weekly Report. 2019;12(36):1359-1363.
  3. Hilliard ME, Riekert KA, Ockene JK, Pbert L. The handbook of health behavior change. 5th ed. New York (NY): Springer Publishing Company; 2018. p. 310-324.
  4. Song M, Lee M, Shim B. Barriers to and facilitators of self-management adherence in Korean older adults with type 2 diabetes. International Journal of Older People Nursing. 2010;5(3):211-218. https://doi.org/10.1111/j.1748-3743.2009.00189.x
  5. Song M. Diabetes self-management education in the community. The Journal of Korean Diabetes. 2014;15(2):98-103. https://doi.org/10.4093/jkd.2014.15.2.98
  6. Kim JY, Kang MW, Seo WY, Lee JW. Chronic diseases, health behaviors, and mortality in persons with disabilities: An analysis of the National Health Insurance Service-Health Screening (NHIS-HEALS) database. Health and Social Welfare Review. 2020;40(2):121-150. https://doi.org/10.15709/hswr.2020.40.2.121
  7. Kim YA, Park KH, Oh IH, Hwang BY, Lee SJ, Lee JW, et al. Analysis of diabetes status and management model of the disabled. Goyang: National Cancer Center; 2017 Nov. Report No.: 11-1532000-002236-01.
  8. Willis JR, Doan QV, Gleeson M, Haskova Z, Ramulu P, Morse L, et al. Vision-related functional burden of diabetic retinopathy across severity levels in the United States. JAMA Ophthalmology. 2017;135(9):926-932. https://doi.org/10.1001/jamaophthalmol.2017.2553
  9. Gopalakrishnan S, Muralidharan A, Susheel SC, Raman R. Improvement in distance and near visual acuities using low vision devices in diabetic retinopathy. Indian Journal of Ophthalmology. 2017;65(10):995-998. https://doi.org/10.4103/ijo.IJO_52_17
  10. Kim SH, Lee YH, Oh UC, Hwang JH, Oh MA, Lee MG, et al. National survey of persons with disabilities 2017. Sejong: Korea Institute for Health and Social Affairs; 2017 Nov. Report No.: Policy Report. 2017-90.
  11. Williams AS. A focus group study of accessibility and related psychosocial issues in diabetes education for people with visual impairment. The Diabetes Educator. 2002;28(6):999-1008. https://doi.org/10.1177/014572170202800614
  12. Kaminsky TA, Mitchell PH, Thompson EA, Dudgeon BJ, Powell JM. Supports and barriers as experienced by individuals with vision loss from diabetes. Disability and Rehabilitation. 2014;36(6):487-496. https://doi.org/10.3109/09638288.2013.800592
  13. Heinemann L, Drossel D, Freckmann G, Kulzer B. Usability of medical devices for patients with diabetes who are visually impaired or blind. Journal of Diabetes Science and Technology. 2016;10(6):1382-1387. https://doi.org/10.1177/1932296816666536
  14. Rees G, O'Hare F, Saeed M, Sudholz B, Sturrock BA, Xie J, et al. Problem-solving therapy for adults with diabetic retinopathy and diabetes-specific distress: A pilot randomized controlled trial. BMJ Open Diabetes Research and Care. 2017;5(1):e000307. https://doi.org/10.1136/bmjdrc-2016-000307
  15. Bu X, Chen H, Lu Q. Effects of targeted nursing intervention on rehabilitation of diabetic patients with diabetic retinopathy. International Journal of Clinical and Experimental Medicine. 2019;12(5):5646-5653.
  16. Ministry of Health and Welfare (MOHW), Korea Health Promotion Institute (KHPI). Health plan 2020, 2016-2020 [Internet]. Sejong, Seoul: Ministry of Health and Welfare, Korea Health Promotion Institute; c2015 [cited 2020 Nov 15]. Available from: https://khealth.or.kr/board/view?pageNum=1&rowCnt=10&menuId=MENU00829&maxIndex=99999999999999&minIndex=99999999999999&schType=0&schText=&categoryId=&continent=&country=&upDown=0&boardStyle=&no1=0&linkId=559210.
  17. Lim AS. Gait training for patients with diabetes. The Korean Journal of Visual Impairment. 1996;12:75-84.
  18. Lim AS. The strategies of teaching orientation and mobility skills to viseally impaired persons with diabetes. The Journal of Special Education: Theory and Practice. 2001;2(1):73-86.
  19. Jeon E. Needs assessment of health education for adults with lately visual impairments using focus group interview. Journal of Digital Convergence. 2019;17(2):319-328. https://doi.org/10.14400/JDC.2019.17.2.319
  20. Jeon E, Ha T. Status of health care in acquired vision impairments. The Korean Journal of Rehabilitation Nursing. 2020;23(1):69-79. https://doi.org/10.7587/kjrehn.2020.69
  21. Krueger RA, Casey MA. Focus groups: A practical guide for applied research. 5th ed. Los Angeles (CA): Sage Publications; 2015. p. 7-15.
  22. Choi S. Structural equation modeling of self-management behavior in older adults with type 2 diabetes mellitus [dissertation]. Seoul: Seoul National University; 2012. p. 1-129.
  23. Ludlow AJP. Self-efficacy, self-care and glycemic control in individuals with noninsulin dependent diabetes mellitus [master's thesis]. St. John's (NL): Memorial University of Newfoundland; 1993. p. 1-138.
  24. Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qualitative Health Research. 2005;15(9):1277-1288. https://doi.org/10.1177/1049732305276687
  25. Guba EG, Lincoln YS. Effective evaluation: Improving the usefulness of evaluation results through responsive and naturalistic approaches. San Francisco (CA): Jossey-Bass; 1981. p. 104.
  26. Williams RA, Brody BL, Thomas RG, Kaplan RM, Brown SI. The psychosocial impact of macular degeneration. Archives of Ophthalmology (Chicago, Ill. : 1960). 1998;116(4):514-520. https://doi.org/10.1001/archopht.116.4.514
  27. Casten RJ, Rovner BW, Tasman W. Age-related macular degeneration and depression: A review of recent research. Current Opinion in Ophthalmology. 2004;15(3):181-183. https://doi.org/10.1097/01.icu.0000120710.35941.3f
  28. Tang JM. Factors influencing self-care in elderly patients with type 2 diabetes in China [dissertation]. Seoul: Seoul National University; 2020. p. 1-115.
  29. Lee KA. Management of type 2 diabetes mellitus in adolescents and young adults. The Journal of Korean Diabetes. 2020;21(1):6-10. https://doi.org/10.4093/jkd.2020.21.1.6
  30. Alma MA, van der Mei SF, Melis-Dankers BJ, van Tilburg TG, Groothoff JW, Suurmeijer TP. Participation of the elderly after vision loss. Disability and Rehabilitation. 2011;33(1):63-72. https://doi.org/10.3109/09638288.2010.488711
  31. Brunes A, Heir T. Visual impairment and depression: Age-specific prevalence, associations with vision loss, and relation to life satisfaction. World Journal of Psychiatry. 2020;10(6):139-149. https://doi.org/10.5498/wjp.v10.i6.139
  32. Lee JH, Jeon HJ, Kim KA, Nam HW, Woo JT, Ahn KJ, et al. Diabetes education recognition program. The Journal of Korean Diabetes. 2012;13(4):219-223. https://doi.org/10.4093/jkd.2012.13.4.219
  33. Lee SH, An HS, Song MS, Hong J. A qualitative inquiry on medical service improvement and support needs based on medical service and self-determination experiences of people with disabilities. Korean Journal of Physical, Multiple & Health Disabilities. 2019;62(4):67-101. https://doi.org/10.20971/kcpmd.2019.62.4.67
  34. Yeom JA, Kim YS. A study on the recognition of staffs and users toward the services of welfare centers for individuals with visual impairments. The Korean Journal of Visual Impairment. 2018;34(1):87-108. https://doi.org/10.35154/kjvi.2018.34.1.87
  35. Gudlavalleti AG, Gilbert C, Shukla R, Gajiwala U, Shukla A, Murthy GVS, et al. Establishing peer support groups for diabetic retinopathy in India: Lessons learned and way ahead. Indian Journal of Ophthalmology. 2020;68(Suppl 1):S70-S73. https://doi.org/10.4103/ijo.IJO_1928_19
  36. Kang Y. Glucose management using continuous glucose monitors. The Journal of Korean Diabetes. 2019;20(1):42-46. https://doi.org/10.4093/jkd.2019.20.1.42
  37. Gu MJ. New insulin injection recommendations. The Journal of Korean Diabetes. 2016;17(4):261-265. https://doi.org/10.4093/jkd.2016.17.4.261
  38. Park CY, Jang N, Kim HS. Cost-effectiveness of continuous glucose monitoring for type 1 diabetes mellitus: Systematic review. Journal of Health Technology Assessment. 2020;8(1):43-47. https://doi.org/10.34161/johta.2020.8.1.007
  39. Disease Experience Storytelling Research Group. People who overcome diabetes. Seoul: Hanbit Publishing Network; 2015. p. 203-208.
  40. Shim JW, Han SH. Preventive health examination, health behavior, and psychological health in visual disabilities. Journal of The Korean Ophthalmological Society. 2012;53(12):1870-1878. https://doi.org/10.3341/jkos.2012.53.12.1870
  41. Kim KS, Han KL. Mediator for socialization to sports of visually-impaired people halfway. Korean Journal of Sociology of Sport. 2008;21(1):41-60. https://doi.org/10.22173/jksss.2008.21.1.41
  42. McDonnall MC, Crudden A. Factors affecting the successful employment of transition-age youths with visual impairments. Journal of Visual Impairment & Blindness. 2009;103(6):329-341. https://doi.org/10.1177/0145482X0910300603