DOI QR코드

DOI QR Code

Family's Perception of Proxy Decision Making to Authorize Do Not Resuscitate Order of Elderly Patients in Long Term Care Facility: A Q-Methodological Study

심폐소생 금지 대리 결정에 대한 요양병원 노인 환자 가족의 인식 유형: Q 방법론적 접근

  • Cho, Hyeon Jin (Department of Nursing, Dong-A University Daesin Intermediate Care Hospital) ;
  • Kang, Jiyeon (College of Nursing, Dong-A University)
  • 조현진 (동아대학교 대신요양병원 간호부) ;
  • 강지연 (동아대학교 간호학부)
  • Received : 2020.08.04
  • Accepted : 2020.12.21
  • Published : 2021.02.28

Abstract

Purpose: This study aimed to distinguish and describe the types of perceptions of do not resuscitate (DNR) proxy decisions among families of elderly patients in a long-term care facility. Methods: This exploratory study applied Q-methodology, which focuses on individual subjectivity. Thirty-four Q-statements were selected from 130 Q-populations formed based on the results of in-depth interviews and literature reviews. The P-samples were 34 families of elderly patients in a long-term care hospital in Busan, Korea. They categorized the Q-statements using a 9-point scale. Using the PC-QUANL program, factor analysis was performed with the P-samples along an axis. Results: The families' perceptions of the DNR proxy decision were categorized into three types. Type I, rational acceptance, valued consensus among family members based on comprehensive support from medical staff. Type II, psychological burden, involved hesitance in making a DNR proxy decision because of negative emotions and psychological conflict. Type III, discreet decisions, valued the patients' right to self-determination and desire for a legitimate proxy decision. Type I included 18 participants, which was the most common type, and types II and III each included eight participants. Conclusion: Families' perceptions of DNR proxy decisions vary, requiring tailored care and intervention. We suggest developing and providing interventions that may psychologically support families.

Keywords

References

  1. Ramsey CP. Young adult African American family members' perceptions, knowledge, attitudes, and utilization toward advance directives. The ABNF Journal: Official Journal of the Association of Black Nursing Faculty in Higher Education, Inc. 2013;24(2):51-59.
  2. Kim HS, Shin SR. The influence of social support among community dwelling elderly and their attitude towards the withdrawal of life-sustaining treatment: A mediating effect of self-esteem. Korean Journal of Adult Nursing. 2017;29(4):373-381. https://doi.org/10.7475/kjan.2017.29.4.373
  3. Lee M, Yi M. Experiences of families in the intensive care unit: Interactions with health care providers. Korean Journal of Adult Nursing. 2017;29(1):76-86. https://doi.org/10.7475/kjan.2017.29.1.76
  4. Choi JY, Jang SG, Kim CJ, Lee I. Institutional ethics committees for decisions on life-sustaining treatment in Korea: Their current state and experiences with their operation. Korean Journal of Medical Ethics. 2019;22(3):209-233. https://doi.org/10.35301/ksme.2019.22.3.209
  5. National Law Information Center. Act on hospice and palliative care and decisions on life-sustaining treatment for patients at the end of life [Internet]. Sejong: Korea Ministry of Government Legislation; c2018 [cited 2020 May 18]. Available from: https://elaw.klri.re.kr/kor_mobile/viewer.do?hseq=49372&-type=part&key=38.
  6. Heo DS. Current status of proxy decisions on DNR in Korea [Internet]. Seoul: Medicine in society; c2017 [cited 2020 Jul 22]. Available from: https://blog.naver.com/dsheokr/221156923099.
  7. National Agency for Management of Life-Sustaining Treatment. Institutional Ethics Committee registration status [Internet]. Seoul: Korea National Institute for Bioethics Policy (KONIBP); c2019 [cited 2019 Nov 19]. Available from: https://www.lst.go.kr/comm/monthlyStatistics.do.
  8. Kim K, Huh J. Problems with the decision to end life of unrepresented persons and the tasks of the ethics committee. Korean Journal of Medicine and Law. 2020;28(1):7-34. https://doi.org/10.17215/kaml.2020.06.28.1.7
  9. Handy CM, Sulmasy DP, Merkel CK, Ury WA. The surrogate's experience in authorizing a do not resuscitate order. Palliative & Supportive Care. 2008;6(1):13-19. https://doi.org/10.1017/S1478951508000035
  10. Moon JY, Ahn H. Suggestion on how to balance between physicians' authority and patients' autonomy: Review of debate on patient self-determination act (1990). Korean Journal of Medical Ethics. 2019;22(2):161-173. https://doi.org/10.35301/ksme.2019.22.2.161
  11. Kim SH. Family surrogates' decision regret and psychological stress about end-of-life cancer treatments: Path analysis. Journal of Korean Academy of Nursing. 2018;48(5):578-587. https://doi.org/10.4040/jkan.2018.48.5.578
  12. Yoon SE, Nam EI, Lee SN. End-of-life care practice in dying patients with do-not-resuscitate order: A single center experience. Korean Journal of Hospice and Palliative Care. 2018;21(2):51-57. https://doi.org/10.14475/kjhpc.2018.21.2.51
  13. Kim Y. Signification and challenges of the act on life-prolongation determination - with focus on patient-oriented medical care. Korean Journal of Health Communication. 2018;13(1):53-61. https://doi.org/10.15715/kjhcom.2018.13.1.53
  14. Torke AM, Sachs GA, Helft PR, Montz K, Hui SL, Slaven JE, et al. Scope and outcomes of surrogate decision making among hospitalized older adults. JAMA Internal Medicine. 2014;174(3):370-377. https://doi.org/10.1001/jamainternmed.2013.13315
  15. Torke AM, Moloney R, Siegler M, Abalos A, Alexander GC. Physicians' views on the importance of patient preferences in surrogate decision-making. Journal of the American Geriatrics Society. 2010;58(3):533-538. https://doi.org/10.1111/j.1532-5415.2010.02720.x
  16. Fritsch J, Petronio S, Helft PR, Torke AM. Making decisions for hospitalized older adults: Ethical factors considered by family surrogates. Journal of Clinical Ethics. 2013;24(2):125-134.
  17. Tseng, YP, Huang, LH, Huang, TH, Hsu, LL, Hsieh, SI. Factors associated with the do-not-resuscitate decision among surrogates of elderly residents at a nursing home in Taiwan. International Journal of Gerontology. 2017;11(2):95-99. https://doi.org/10.1016/j.ijge.2016.07.004
  18. Kang DY, Shim HW. Attitude of elderly people on life support care -Q methodological approach-. Journal of the Korea Contents Association. 2015;15(12):355-369. https://doi.org/10.5392/JKCA.2015.15.12.355
  19. Yoon YM, Sung KS, Kim EJ. Systematic review of studies on withdrawal of life-sustaining treatment in South Korea. Korean Journal of Converging Humanities. 2017;5(3):57-75. https://doi.org/10.14729/converging.k.2017.5.3.57
  20. Kim H, Lee J. Discussion on withdrawing of life sustaining treatment. Dong-A Law Review. 2019;82:371-403. https://doi.org/10.31839/DALR.2019.02.82.371
  21. Kim HG. Q methodology: Philosophy, theories, analysis, and application. Seoul: CommunicationBooks; 2008. p. 118.
  22. Kang AR. Over 70,000 discontinued life-sustaining treatments [Internet]. Seoul: Yonhapnews; c2019 [cited 2020 Jul 24]. Available from: https://www.yna.co.kr/view/AKR20191122072000017?input=1195m.
  23. Kim H, Deatrick JA, Ulrich CM. Ethical frameworks for surrogates' end-of-life planning experiences: A qualitative systematic review. Nursing Ethics. 2017;24(1):46-69. https://doi.org/10.1177/0969733016638145
  24. Park J, Song JA. Knowledge, experience and preference on advance directives among community and facility dwelling elderly. Journal of the Korean Gerontological Society. 2013;33(3):581-600.
  25. Coffey A, McCarthy G, Weathers E, Friedman MI, Gallo K, Ehrenfeld M, et al. Nurses' knowledge of advance directives and perceived confidence in end-of-life care: A cross-sectional study in five countries. International Journal of Nursing Practice. 2016;22(3):247-257. https://doi.org/10.1111/ijn.12417
  26. Han S. Social worker's knowledge of advance life sustaining care directives and experience of aids end of life care decision making process: Geriatric hospital and long term care facility. Studies on Life and Culture. 2016;42:287-329.
  27. Park EH, Kim NY. The influence of nursing professionalism, attitudes toward advance directive, and death anxiety on terminal care performance of nurses in long-term care hospitals. Korean Journal of Adult Nursing. 2018;30(2):183-193. https://doi.org/10.7475/kjan.2018.30.2.183
  28. Ministry of Health and Welfare. 2018 Heath care professional license registration and continuing education [Internet]. Sejong: Ministry of Health and Welfare; c2018 [cited 2020 Aug 4]. Available from: http://www.korea.kr/archive/expDocView.do?docId=38000.
  29. Kim CJ. Two conceptions of autonomy in surrogate decision-making for life-sustaining treatment: An examination of article 18 of the hospice, palliative care, and life-sustaining treatment decision-making act. Korean Journal of Medical Ethics. 2017;20(1):56-77. https://doi.org/10.35301/ksme.2017.20.1.56
  30. Baggs JG, Norton SA, Schmitt MH, Dombeck MT, Sellers CR, Quinn JR. Intensive care unit cultures and end-of-life decision making. Journal of Critical Care. 2007;22(2):159-168. https://doi.org/10.1016/j.jcrc.2006.09.008
  31. Han SS. Doctor's and nurses' perception and experiences of DNR. Journal of Korean Academy of Nursing Administration. 2005;11(3):255-264.
  32. Wendler D, Rid A. Systematic review: The effect on surrogates of making treatment decisions for others. Annals of Internal Medicine. 2011;154(5):336-346. https://doi.org/10.7326/0003-4819-154-5-201103010-00008
  33. Han S. A case study on hospice team's experience of the decision of patients' hospice and life sustaining treatments. Health and Social Welfare Review. 2019;39(1):453-484.
  34. Tseng YP, Huang LH, Hsu LL, Huang TH, Hsieh SI, Chi SF, et al. The family surrogates' psychological experience of making a do-not-resuscitate decision for older relatives: A qualitative study. Contemporary Nurse. 2018;54(2):195-207. https://doi.org/10.1080/10376178.2018.1478232
  35. Chiang CC, Chang SC, Fan SY. The concerns and experience of decision-making regarding do-not-resuscitate orders among caregivers in hospice palliative care. American Journal of Hospice and Palliative Medicine. 2021;38(2):123-129. https://doi.org/10.1177/1049909120933535
  36. Sulmasy DP, Hughes MT, Yenokyan G, Kub J, Terry PB, Astrow AB, et al. The trial of ascertaining individual preferences for loved ones' role in end-of-life decisions (TAILORED) study: A randomized controlled trial to improve surrogate decision making. Journal of Pain & Symptom Management. 2017;54(4):455-465. https://doi.org/10.1016/j.jpainsymman.2017.07.004
  37. Gonella S, Basso I, De Marinis MG, Campagna S, Di Giulio P. Good end-of-life care in nursing home according to the family carers' perspective: A systematic review of qualitative findings. Palliative Medicine. 2019;33(6):589-606. https://doi.org/10.1177/0269216319840275
  38. Lee SJ. A study on the perception and attitude of 'do not resuscitate' in adults. Journal of the Korea Convergence Society. 2019;10(6):393-399. https://doi.org/10.15207/JKCS.2019.10.6.393
  39. Shin K, Mok JH, Lee SH, Kim EJ, Seok NR, Ryu SS, et al. The current status of medical decision-making for dying patients in a medical intensive care unit: A single-center study. Korean Journal of Critical Care Medicine. 2014;29(3):160-165. https://doi.org/10.4266/kjccm.2014.29.3.160