References
- Creative Commons. 2016. CC0. https://creativecommons.org/share-your-work/public-domain/cc0/ [cited 2016.8.8].
- Candela, L., Castelli, D., Manghi, P., & Tani, A. (2015). Data journals: A survey. Journal of the Association for Information Science and Technology, 66(9), 1747-1762. https://doi.org/10.1002/asi.23358
- Doshi, J. A., Hendrick, F. B., Graff, J. S., & Stuart, B. C. (2016). Data, Data Everywhere, but Access Remains a Big Issue for Researchers: A Review of Access Policies for Publicly-Funded Patient-Level Health Care Data in the United States. eGEMs, 4(2). [cited 2016.8.8]. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4827788/
- Eschenfelder, K. R., & Johnson, A. (2014). Managing the data commons: Controlled sharing of scholarly data. Journal of the Association for Information Science and Technology, 65(9), 1757-1774. https://doi.org/10.1002/asi.23086
- Gitter, D. M. (2010). Application of Data Access Policies Designed for Genomewide Association Studies to Smaller Scale Databases. The John Marshall Law School Review of Intellectual Property Law, 10(3). [cited 2016.8.8]. http://repository.jmls.edu/ripl/vol10/iss3/3/
- Kaye, J., & Hawkins, N. (2014). Data sharing policy design for consortia: challenges for sustainability. Genome medicine, 6(1). [cited 2016.8.8]. http://www.ncbi.nlm.nih.gov/pubmed/24475754
- Nicol, A., Caruso, J., & Archambault, E. (2013). Open data access policies and strategies in the european research area and beyond. Science-Metrix. http://www.science-metrix.com/pdf/SM_EC_OA_Data.pdf [cited 2016.8.8].
- NIH. 2016. Certificate of Confidentiality. https://humansubjects.nih.gov/coc/index [cited 2016.8.8].
- OECD. 2015. Making open scienc a reality. http://www.oecd-ilibrary.org/science-and-technology/making-open-sciencea-reality_5jrs2f963zs1-en [cited 2016.8.8].
- Paltoo, D. N., Rodriguez, L. L., Feolo, M., Gillanders, E., Ramos, E. M., Rutter, J., ... & Caulder, M. (2014). Data use under the NIH GWAS data sharing policy and future directions. Nature genetics, 46(9), 934. https://doi.org/10.1038/ng.3062
- Ramos, E. M., Din-Lovinescu, C., Bookman, E. B., McNeil, L. J., Baker, C. C., Godynskiy, G., ... & Starks, V. L. (2013). A mechanism for controlled access to GWAS data: experience of the GAIN Data Access Committee. The American Journal of Human Genetics, 92(4): 479-488. https://doi.org/10.1016/j.ajhg.2012.08.034
- Pampel, H., & Dallmeier-Tiessen, S. (2014). Open research data: From vision to practice. In Opening science (pp. 213-224). Springer International Publishing.
- Pampel, H., Vierkant, P., Scholze, F., Bertelmann, R., Kindling, M., Klump, J., ... & Dierolf, U. (2013). Making research data repositories visible: the re3data. org registry. PloS one, 8(11), e78080. [cited 2016.8.8]. http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0078080
- Scientific Data. 2016a. Data policies. [cited 2016.8.8]. http://www.nature.com/sdata/policies/data-policies#repo-suggest
- Scientific Data. 2016b. For Authors. [cited 2016.8.8]. http://www.nature.com/sdata/publish/for-authors#aims-scope
- Shabani, M., Knoppers, B. M., & Borry, P. (2015). From the principles of genomic data sharing to the practices of data access committees. EMBO molecular medicine, 7(5), 507-509. https://doi.org/10.15252/emmm.201405002
- Sydes, M. R., Johnson, A. L., Meredith, S. K., Rauchenberger, M., South, A., & Parmar, M. K. (2015). Sharing data from clinical trials: the rationale for a controlled access approach. Trials, 16(1). [cited 2016.8.8]. https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-015-0604-6
- TNA. 2016. Open Government License for public sector information.[cited 2016.8.8]. http://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/