DOI QR코드

DOI QR Code

Impact Factors for Health of Family Caregivers of Hospice Patients

호스피스 환자 가족돌봄제공자의 건강상태 영향 요인

  • Received : 2014.02.01
  • Accepted : 2014.04.21
  • Published : 2014.06.01

Abstract

Purpose: This study was conducted to explore predictors of health status of family caregivers of hospice patients. Methods: This study included 118 family caregivers of patients who were admitted to the hospice ward of three general hospitals in D city. The collected data were analyzed by frequency, percentage, t-test, one-way ANOVA, Pearson's correlation coefficients, and stepwise multiple regression using the SPSS WIN 18.0 program. Results: The mean score for overall health of family caregivers was 2.68 (${\pm}0.42$). Mean scores for variables related to health were 2.55 (${\pm}0.37$) for sleep quality, 1.91 (${\pm}0.41$) for anxiety and 2.78 (${\pm}0.33$) for hope. Variables such as sleep quality, gender, anxiety and hope explained 59.8% of variance among family caregivers' health conditions. Conclusion: These results suggest the need for nurses to search for ways to promote health of hospice patients' family caregivers, such as improving the quality of sleep, easing their anxiety and encouraging hope.

목적: 본 연구는 호스피스 환자 가족돌봄제공자의 수면의 질, 불안, 희망 및 건강상태의 관계를 확인하여 이들의 건강상태를 높이기 위한 중재를 위한 기초 자료를 제시하기 위함이다. 방법: 연구대상자는 D시에 소재한 3개 호스피스 병동에 입원한 환자를 주로 돌보는 가족 118명이다. 수집된 자료는 SPSS program version 18.0을 이용하여 서술통계, One-way ANOVA, Pearson correlation coefficients, 단계적 다중회귀분석 등을 실시하였다. 결과: 호스피스 환자의 가족돌봄제공자는 각각 4점 만점인 척도로 측정한 결과 수면의 질은 평균평점 2.55, 불안은 1.91, 희망은 2.78, 건강상태는 2.68로 나타났다. 회귀분석 결과 건강상태에 유의한 영향을 미치는 주요 요인은 수면의 질(${\beta}=0.526$), 성별(${\beta}=-0.195$), 불안(${\beta}=-0.232$) 및 희망(${\beta}=0.169$)으로 나타났다. 모형의 설명력은 59.8% (F=44.510, P<0.001)이었고, 그 중에서 수면의 질이 47.3%를 차지하였다. 결론: 결론적으로 호스피스 환자를 돌보고 있는 가족의 건강상태를 높이기 위해서 간호사는 수면의 질을 높이고, 불안을 감소시키고, 희망을 높이는 방안을 모색해야 할 것이다.

Keywords

References

  1. Proot IM, Abu-Saad HH, Crebolder HF, Goldsteen M, Luker KA, Widdershoven GA. Vulnerability of family caregivers in terminal palliative care at home; balancing between burden and capacity. Scand J Caring Sci 2003;17:113-21. https://doi.org/10.1046/j.1471-6712.2003.00220.x
  2. Ahn EJ, Lee YS. Burnout and burden of family care-givers for caring of terminal patients with cancer. J Korean Oncol Nurs 2005;5:40-51.
  3. Hwang JG, Kim YH. Family support perceived by cancer patients, family caregivers’ burden and physical & psychological health. Fam Relat 2005;10:173-98.
  4. Grunfeld E, Coyle D, Whelan T, Clinch J, Reyno L, Earle CC, et al. Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers. CMAJ 2004;170:1795-801. https://doi.org/10.1503/cmaj.1031205
  5. Choi ES, Kim, KS. Experiences of family caregivers of patients with terminal cancer. J Korean Acad Nurs 2012;42:280-90. https://doi.org/10.4040/jkan.2012.42.2.280
  6. Northouse LL, Katapodi MC, Schafenacker AM, Weiss D. The impact of caregiving on the psychological well-being of family caregivers and cancer patients. Semin Oncol Nurs 2012;28:236-45. https://doi.org/10.1016/j.soncn.2012.09.006
  7. Blum K, Sherman DW. Understanding the experience of caregivers: a focus on transitions. Semin Oncol Nurs 2010;26;243-58. https://doi.org/10.1016/j.soncn.2010.08.005
  8. Glajchen M. Physical well-being of oncology caregivers: an important quality-of-life domain. Semin Oncol Nurs 2012;28:226-35. https://doi.org/10.1016/j.soncn.2012.09.005
  9. Langford DJ, Lee K, Miaskowski C. Sleep disturbance interventions in oncology patients and family caregivers: a comprehensive review and meta-analysis. Sleep Med Rev 2012;16:397-414. https://doi.org/10.1016/j.smrv.2011.07.002
  10. Grbich C, Parker D, Maddocks I. The emotions and coping strategies of caregivers of family members with a terminal cancer. J Palliat Care 2001;17:30-6.
  11. Waldrop DP. Caregiver grief in terminal illness and bereavement: a mixed-methods study. Health Soc Work 2007;32:197-206. https://doi.org/10.1093/hsw/32.3.197
  12. Keidel GC. Burnout and compassion fatigue among hospice caregivers. Am J Hosp Palliat Care 2002;19:200-5. https://doi.org/10.1177/104990910201900312
  13. Benzein EG, Berg AC. The level of and relation between hope, hopelessness and fatigue in patients and family members in palliative care. Palliat Med 2005;19:234-40. https://doi.org/10.1191/0269216305pm1003oa
  14. Hudson PL, Thomas K, Trauer T, Remedios C, Clarke D. Psychological and social profile of family caregivers on commencement of palliative care. J Pain Symptom Manage 2011;41:522-34. https://doi.org/10.1016/j.jpainsymman.2010.05.006
  15. Kim DS, Moon WH, Ahn SY, Oh HS, Kwon KH, Park MK, et al. Meta-analysis of the research findings concerning functional relationships of explanatory variables to hope. J Korean Acad Nurs 2004;34:673-84. https://doi.org/10.4040/jkan.2004.34.5.673
  16. Truitt M, Biesecker B, Capone G, Bailey T, Erby L. The role of hope in adaptation to uncertainty: the experience of caregivers of children with Down syndrome. Patient Educ Couns 2012:87:233-8. https://doi.org/10.1016/j.pec.2011.08.015
  17. Duggleby W, Holtslander L, Kylma J, Duncan V, Hammond C, Williams A. Metasynthesis of the hope experience of family caregivers of persons with chronic illness. Qual Health Res 2010;20:148-58. https://doi.org/10.1177/1049732309358329
  18. Jung JG, Kim JS, Kim JJ, Kang DS, Kim SM, Lee DH, et al. Quality of life among family caregivers of terminal cancer patient. Korean J Hosp Palliat Care 2006;9:1-10.
  19. Lee HW, Kim CN, Park MH. Effect of informational support by hospice team on family caregivers of terminally ill cancer patient. J Korean Acad Community Health Nurs 2001;12:175-86.
  20. Kim H, Rose K. Sleep disturbances in family caregivers: an overview of the state of the science. Arch Psychiatr Nurs 2011;25: 456-68. https://doi.org/10.1016/j.apnu.2011.02.007
  21. Pawl JD, Lee SY, Clark PC, Sherwood PR. Sleep loss and its effects on health of family caregivers of individuals with primary malignant brain tumors. Res Nurs Health 2013;36:386-99. https://doi.org/10.1002/nur.21545
  22. Kim SY, Kim JM, Kim SW, Kang HJ, Shin IS, Shim HJ, et al. Determinants of a hopeful attitude among family caregivers in a palliative care setting. Gen Hosp Psychiatry 2014;36:165-71. https://doi.org/10.1016/j.genhosppsych.2013.10.020
  23. Oh JJ, Song MS, Kim SM. Development and validation of Korean sleep scale A. J Korean Acad Nurs 1998;28:563-72.
  24. Zung WW. A rating instrument for anxiety disorders. Psychosomatics 1971;12:371-9. https://doi.org/10.1016/S0033-3182(71)71479-0
  25. Lee JH. Development of the Korean form of Zung's self-rating anxiety scale. Youngnam Univ Med J. 1996;13:279-94.
  26. Nowotny ML. Assessment of hope in patients with cancer: development of an instrument. Oncol Nurs Forum 1989;16:57-61.
  27. Choi SS. Correlational study on spiritual wellness, hope and perceived health status of urban adults [dissertation]. Seoul: Younsei Univ.; 1990. Korean.
  28. Lee SJ. An application effect of rhythmic movement program for the health promotion in the elderly [dissertation]. Seoul: Kyung Hee Univ.; 2000. Korean.
  29. Song RY, Ahn SH. Effect of lumbar stabilization exercise on back pain, physical fitness, sleep, and depression in middle-aged women with chronic back pain. J Korean Acad Adult Nurs 2008;20:269-79.
  30. Han YI, Sohn SK. Quality of sleep in hospitalized patients with lung cancer. Korean J Hosp Palliat Care 2005;8:1-7.
  31. Lee HS. Factors of sleep disturbance and sleep patterns according to age in older hospitalized women patients. J Korean Acad Fundam Nurs 2011;18:186-94.
  32. Rowe MA, McCrae CS, Campbell JM, Benito AP, Cheng J. Sleep pattern differences between older adult dementia caregivers and older adult noncaregivers using objective and subjective measures. J Clin Sleep Med 2008;4:362-9.
  33. Kim, HS. Effects of aromatherapy and hand massage on anxiety of the institutionalized elderly [dissertation]. Seoul: Hanyang Unive.; 2008. Korean.
  34. Cho SH. The effects of aroma hand massage on stress response in hospitalized elderly patients [dissertation]. Pusan: Kosin Univ.;2005. Korean.
  35. Wittenberg-Lyles E, Demiris G, Oliver DP, Burt S. Reciprocal suffering: caregiver concerns during hospice care. J Pain Symptom Manage 2011;41:383-93. https://doi.org/10.1016/j.jpainsymman.2010.04.026
  36. Jo KW. The relationship among personality, hope and quality of life of breast cancer patients. J Korean Acad Soc Nurs Edu 2004;10:115-24.
  37. Park MH. Hope, self-empowerment and existential spiritual well-being of middle aged women. J Korean Acad Soc Nurs Edu 2003;9:222-43.
  38. Herth K. Hope in the family caregiver of terminally ill people. J Adv Nurs 1993;18:538-48. https://doi.org/10.1046/j.1365-2648.1993.18040538.x
  39. Joad AS, Mayamol T, Chaturvedi M. What does the informal caregiver of a terminally ill cancer patient need? A study from a cancer centre. Indian J Palliat Care 2011;17:191-6. https://doi.org/10.4103/0973-1075.92335
  40. Chang HY, Chiou CJ, Chen NS. Impact of mental health and caregiver burden on family caregivers' physical health. Arch Gerontol Geriatr 2010;50:267-71. https://doi.org/10.1016/j.archger.2009.04.006
  41. Kim KB, Lee EJ. A study on emotional status, physical status, and family support of parents with cardiac disease children. Korean J Child Health Nurs 2001;7:267-79.
  42. Tracy J, Fowler S, Magarelli K. Hope and anxiety of individual family members of critically ill adults. Appl Nurs Res 1999;12: 121-7. https://doi.org/10.1016/S0897-1897(99)80023-8
  43. Simpson C, Carter P. Short-term changes in sleep, mastery & stress: impacts on depression and health in dementia caregivers. Geriatr Nurs 2013;34:509-16. https://doi.org/10.1016/j.gerinurse.2013.07.002
  44. Kang YH, Kim MY, Lee GJ, Jung DY, Ma RW. A study of social support, loneliness, sleep quality, and perceived health status among community-dwelling older adults. J Korean Public Health Nurs 2012;26:303-13. https://doi.org/10.5932/JKPHN.2012.26.2.303
  45. Kim CN. A correlation study on spiritual wellbeing, hope and perceived health status of the rural elderly. J Korean Public Health Nurs 2004;18:342-57.

Cited by

  1. Enduring Through the Suffering of Life vol.17, pp.6, 2015, https://doi.org/10.1097/NJH.0000000000000191
  2. A Phenomenological Study of Experiences of Family Care Givers for Their Terminal Cancer Patient Receiving Hospice Services at the Hospital vol.52, pp.None, 2014, https://doi.org/10.16975/kjfsw.2016..52.002