장애청소년의 자기결정 경험에 대한 질적 연구

A Qualitative Study on the Self-determination Experience of Youth with Disabilities

이 연구는 장애청소년의 자기결정 경험에 대한 실체이론 개발을 목적으로 하였다. 이 연구목적을 달성하기 위해 20대 초반의 지체 뇌병변 장애 대학생 10명과 면접을 실시하였으며 근거이론을 사용하여 그 결과를 분석하였다. 분석결과, 107개의 개념과 39개의 하위범주 및 16개의 범주가 도출되었으며, 장애청소년의 자기결정 경험의 중심현상은 "장애를 딛고 자기실현 열망"하기였다. 자기결정은 "욕구와 장애물의 인식", "문제해결", "성장 인식"의 단계를 거쳐 가는 과정이었으며, 자기결정의 유형은 "돌파형", "다전략형", "온건형", "수용형"으로 구분되었다. 이 연구를 통해 청소년기 장애인 자기결정의 특수성을 심도 있게 이해할 수 있었으며, 장애청소년의 자기결정을 증진시키기 위한 방법으로 제도적 보완, 유형에 따른 지원 차별화, 합리적 전략의 교육, 성과 결혼 주제의 공론화가 필요함을 알 수 있었다.

This study explored how young people with disabilities experience self-determination in their lives. This study employed a grounded theory approach involving 10 undergraduate students with cerebral palsy or physical disabilities, in their early 20's, and individual interviews. The experience relating self-determination of the participants seemed to start with "wanting to do things at their will as they grow up". The participants reported experiencing "yearning to attain self-actualization overcoming disabilities" in the context of "disability-related social limitation", "divided opinions between the participants and their parents", and "limitation in financial and psychological resources". The emerging strategies to attain self-actualization included "active coping", "avoiding confrontation", and "conditional acceptance". Intervening conditions to formation of the strategies included ”challenging spirits towards prejudice about disability", "autonomous tendencies", "taking the most of social support" and "parenting attitudes of their parents". In the process of seeking to attain self-actualization, these participants experienced "self-maturation" and "the sense of guilt towards their parents". The findings emerged from the study was that there are three stages in the process young people went through in self-determination. The stages consist of "perceiving their needs and obstacles for self-determination", "problem solving", and "perceiving their growth". In addition, four self-determination patterns are derived from this data: "breaking through", "multi-strategic", "moderate", and "acceptive". This study suggested some theoretical and prctical implications needed to facilitate self-determination of youth with disabilities.