• Title/Summary/Keyword: registry

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Standards Registry for Data and Metadata on Earthquake and Volcanic Disaster- Strategies and Directions in Implementation: Implications for Geomorphological Studies (지진 화산 재해 관련 데이터 및 메타데이터 표준 등록소의 개발 방향과 과제: 지형조사 분야에 대한 시사)

  • Chang, Eunmi;Park, Yongjae;Park, Kyeong
    • Journal of The Geomorphological Association of Korea
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    • v.27 no.1
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    • pp.91-102
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    • 2020
  • Earthquakes and volcanic information can vary in type and extent, from raw data to processed data. In order to be able to analyzed and modeled, information needs to be opened in any formats and provided with metadata from the Korea Meteorological Agency and related data production organizations. We propose the metadata and data registry related to volcanic disasters in a form that can be used in conjunction with the Korea Meteorological Administration system that manages earthquake and volcanic data in Korea. The standard registry refers to a virtual system that checks the standards developed for over 20 years in the field of geographic information and receives information registration to grasp the location of geographical features. It is not only data from natural disasters such as earthquakes and volcanoes, but also national environmental survey results, and the cooperation system with other organizations dealing with national land information is also important, so a registry that creates and operates standards is necessary. Therefore, creating and operating the standard registry is necessary and expected to contribute to academic openness and data-driven policy.

Utilizing a Model Registry to Secure Interoperability Among Urban Domain Information Models (도메인 정보 모델 간의 상호운용성 확보를 위한 모델 레지스트리 활용방안)

  • Won Wook Choi;Sang Ki Hong
    • The Transactions of the Korea Information Processing Society
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    • v.13 no.2
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    • pp.18-25
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    • 2024
  • This study proposes the utilization of a model registry to secure interoperability among urban domain information models. It reviews urban information and data sharing along with related standards and standardization activities. By analyzing registry use cases in the context of Spatial Data Infrastructure (SDI), it presents the concept of a model registry for facilitating information sharing and exchange among urban domain information models. An use case linking urban domain information models using the model registry is developed with a prerequisite of seamless implementation of smart city services. The paper discusses technical requirements and outlines technology implementation and validation through prototype development, highlighting them as future research tasks.

Surveillance Evaluation of the National Cancer Registry in Sabah, Malaysia

  • Jeffree, Saffree Mohammad;Mihat, Omar;Lukman, Khamisah Awang;Ibrahim, Mohd Yusof;Kamaludin, Fadzilah;Hassan, Mohd Rohaizat;Kaur, Nirmal;Myint, Than
    • Asian Pacific Journal of Cancer Prevention
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    • v.17 no.7
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    • pp.3123-3129
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    • 2016
  • Background: Cancer is the fourth leading cause of death in Sabah Malaysia with a reported age-standardized incidence rate was 104.9 per 100,000 in 2007. The incidence rate depends on non-mandatory notification in the registry. Under-reporting will provide the false picture of cancer control program effectiveness. The present study was to evaluate the performance of the cancer registry system in terms of representativeness, data quality, simplicity, acceptability and timeliness and provision of recommendations for improvement. Materials and Methods: The evaluation was conducted among key informants in the National Cancer Registry (NCR) and reporting facilities from Feb-May 2012 and was based on US CDC guidelines. Representativeness was assessed by matching cancer case in the Health Information System (HIS) and state pathology records with those in NCR. Data quality was measured through case finding and re-abstracting of medical records by independent auditors. The re-abstracting portion comprised 15 data items. Self-administered questionnaires were used to assess simplicity and acceptability. Timeliness was measured from date of diagnosis to date of notification received and data dissemination. Results: Of 4613 cancer cases reported in HIS, 83.3% were matched with cancer registry. In the state pathology centre, 99.8% was notified to registry. Duplication of notification was 3%. Data completeness calculated for 104 samples was 63.4%. Registrars perceived simplicity in coding diagnosis as moderate. Notification process was moderately acceptable. Median duration of interval 1 was 5.7 months. Conclusions: The performances of registry's attributes are fairly positive in terms of simplicity, case reporting sensitivity, and predictive value positive. It is moderately acceptable, data completeness and inflexible. The usefulness of registry is the area of concern to achieve registry objectives. Timeliness of reporting is within international standard, whereas timeliness to data dissemination was longer up to 4 years. Integration between existing HIS and national registration department will improve data quality.

Metadata Registry Management System for Science and Technology Information (과학기술정보를 위한 메타데이타 레지스트리 관리 시스템)

  • Jeong Dongwon;Shin Dongkil;Jeong Eunju;Kim Young-Gab;Lee Jeong Oog;Baik Doo-Kwon
    • Journal of KIISE:Computing Practices and Letters
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    • v.10 no.6
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    • pp.472-483
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    • 2004
  • Many metadata registry management systems have been developed, which are based on ISO/IEC ll179. However, they do not follow the international standard, ISO/IEC ll179 nor provide some of mandatory functions. It is difficult to a develop metadata registry management system for domestic environment because of their hidden implementations. The goals of this paper are to solve the problems of the existing systems and to develop a metadata registry management systems for accumulation of primitive technologies. This paper also shows the metadata registry building process for the science and technology information field using the developed system. This system consists of Metadata Registry Layer, Core Component Layer, Extension Layer, and Service Interface Layer. The developed metadata registry management system follows ISO/IEC ll179 and contains mandatory functions for practical use. Therefore, it can be used as a guideline for building metadata registries and a development process of metadata registry management systems. We can easily reuse its components for development of metadata registry management systems in various fields because the system is designed and implemented based on the component-based development methodology. It also decreases time and cost for developing systems.

Design and Implementation of Sensor Registry Data Model for IoT Environment (IoT 환경을 위한 센서 레지스트리 데이터 모델의 설계 및 구현)

  • Lee, Sukhoon;Jeong, Dongwon;Jung, Hyunjun;Baik, Doo-Kwon
    • KIPS Transactions on Software and Data Engineering
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    • v.5 no.5
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    • pp.221-230
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    • 2016
  • With emerging the Internet of Things (IoT) paradigm, the sensor network and sensor platform technologies have been changed according to exploding amount of sensors. Sensor Registry System (SRS) as a sensor platform is a system that registers and manages sensor metadata for consistent semantic interpretation in heterogeneous sensor networks. However, the SRS is unsuitable for the IoT environment. Therefore, this paper proposes sensor registry data model to register and manager sensor information in the IoT environment. We analyze Semantic Sensor Network Ontology (SSNO) for improving the existed SRS, and design metamodel based on the analysis result. We also build tables in a relational database using the designed metamodel, then implement SRS as a web application. This paper applies the SSNO and sensor ontology examples with translating into the proposed model in order to verify the suitability of the proposed sensor registry data model. As the evaluation result, the proposed model shows abundant expression of semantics by comparison with existed models.

Radiotherapy and Concurrent Chemo-Radiotherapy in Locally Advanced Hypopharyngeal Cancers - A Hospital Registry Based Analysis

  • Sharma, Jagannath Dev;Krishnatreya, Manigreeva;Das, Ashok Kumar;Bhattacharyya, Mouchumee;Hazarika, Munlima;Kataki, Amal Chandra;Baishya, Nizara;Nandy, Pintu
    • Asian Pacific Journal of Cancer Prevention
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    • v.16 no.11
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    • pp.4723-4726
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    • 2015
  • Background: The survival of patients with hypopharyngeal cancer is low amongst head and neck cancer cases. The incidence rates of hypopharyngeal cancers in our population are amongst the highest in the world and there are limited data available on the literature on varied responses to first course of treatment with radiotherapy (RT) and concurrent chemo-radiotherapy (CRT) in our population. Materials and Methods: Clinical characteristics and initial responses to treatment in patients who had received radiotherapy and chemo-radiotherapy in a regional cancer center from January 2010 to December 2013 were evaluated. The data were obtained from the hospital cancer registry, and analysis was carried using descriptive statistics. Pearson's chi-square was used to test for differences in the variables and p<0.05 was considered statistically significant. Results: A total of 554 patients were included in the analysis, 411 (74.2%) receiving RT and 143 (25.8%) being given CRT. There was significantly lower number of patients above 70 years with a higher proportion of patients below 50 years who had received CRT (p<0.05). Some 79.3% and 84.6% of patients in the RT and CRT groups respectively presented with a favorable performance status, and in the RT group 240 (58.4%) showed complete response (CR), and in the CRT group 103 (72.0%) showed CR at the first follow-up (p<0.05). Conclusions: Concurrent chemo-radiotherapy gives better short term response to treatment in locally advanced hypopharyngeal cancers.

A Study of the Cause-of-Death reported on Official Death Registry in a Rural Area (일부 농촌지역 사망신고자료에 기재된 사인에 관한 연구 -사망신고사인과 조사사인의 비교-)

  • Nam, Hae-Sung;Park, Kyeong-Soo;Sun, Byeong-Hwan;Shin, Jun-Ho;Sohn, Seok-Joon;Choi, Jin-Su;Kim, Byong-Woo
    • Journal of Preventive Medicine and Public Health
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    • v.29 no.2 s.53
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    • pp.227-238
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    • 1996
  • This study was conducted to evaluate the accuracy of the official death registry in rural area. The base data used for the study was 379 deaths registered during the period of 1993 and 1994 in 4 rural townships of Chonnam province. The interview survey for cause-of-death was performed on the next of kin and/or neighbor. Additional medical informations were collected from hospitals and medical insurance associations for the purpose of verification. The underlying cause-of-death of 278 cases presumed by the survey was compared to the cause on official death registry. There was a prominent disagreement of cause-of-death between the survey data and the registry data(agreement rate: $38.9\sim44.6%$, according to disease classification method). These results may be caused by extremely low rates of physicians' certification, which were mostly confined to the poisoning and injury. Symptoms, signs, and ill defined conditions on death registry could be classified into circulatory disease(32.3%), neoplasm(21.2%), digestive disease(7.1%), injury and poisoning(7.1%) and so on. These results suggest that careful attention and verification be required on utilization of death registry data in rural area.

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Population-Based Cancer Registration in Indonesia

  • Wahidin, Mugi;Noviani, Rini;Hermawan, Sofia;Andriani, Vita;Ardian, Ardi;Djarir, Hernani
    • Asian Pacific Journal of Cancer Prevention
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    • v.13 no.4
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    • pp.1709-1710
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    • 2012
  • Cancer is a major public health problem in Indonesia, becoming the 7th largest cause of death based on a national survey in 2007, accounting for 5.7 of all mortality. A cancer registry was started in 1970, but it was partial and was stopped mainly because no government body was responsible. Realizing the above situation, the Indonesian government established the Sub Directorate of Cancer Control within the Ministry of Health, with responsibility for developing a national cancer control program, including a cancer registry. A sustainable cancer registry was then started in 2007 within Jakarta Province, first hospital-based but then expanded to be population-based. Steps of cancer registration in Jakarta are data collection, data verification, data validation, data management and analysis, and data publication. Data collection is conducted by health facilities (hospitals, laboratories, primary health centers) at the district/municipal level, with reports to the provincial level. Data are collected passively by holding meetings every three months in the district/municipality. Verification of data is the responsibility of the medical doctor or pathologist in each data source. Data validation is conducted by a team in the cancer registry, consisting of district/municipal/province health officers, pathologists, and registrars. Data management and analyses are conducted by a cancer registry team at the provincial level, assisted by the national team. We use software named Indonesian Cancer Registry System (SRIKANDI) which is adopted from CanReg4 IARC. Data from the population-based cancer registry in Jakarta Province showed the leading cancers among females in 2005-2007 to be breast cancer, cervical cancer, ovarian cancer, colorectal cancer and among males are bronchus and lung cancer, colorectal cancer, liver cancer, pharyngeal cancer, and prostate cancer. The leading childhood cancers are leukaemia and retinoblastoma.

Building Linked Big Data for Stroke in Korea: Linkage of Stroke Registry and National Health Insurance Claims Data

  • Kim, Tae Jung;Lee, Ji Sung;Kim, Ji-Woo;Oh, Mi Sun;Mo, Heejung;Lee, Chan-Hyuk;Jeong, Han-Young;Jung, Keun-Hwa;Lim, Jae-Sung;Ko, Sang-Bae;Yu, Kyung-Ho;Lee, Byung-Chul;Yoon, Byung-Woo
    • Journal of Korean Medical Science
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    • v.33 no.53
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    • pp.343.1-343.8
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    • 2018
  • Background: Linkage of public healthcare data is useful in stroke research because patients may visit different sectors of the health system before, during, and after stroke. Therefore, we aimed to establish high-quality big data on stroke in Korea by linking acute stroke registry and national health claim databases. Methods: Acute stroke patients (n = 65,311) with claim data suitable for linkage were included in the Clinical Research Center for Stroke (CRCS) registry during 2006-2014. We linked the CRCS registry with national health claim databases in the Health Insurance Review and Assessment Service (HIRA). Linkage was performed using 6 common variables: birth date, gender, provider identification, receiving year and number, and statement serial number in the benefit claim statement. For matched records, linkage accuracy was evaluated using differences between hospital visiting date in the CRCS registry and the commencement date for health insurance care in HIRA. Results: Of 65,311 CRCS cases, 64,634 were matched to HIRA cases (match rate, 99.0%). The proportion of true matches was 94.4% (n = 61,017) in the matched data. Among true matches (mean age 66.4 years; men 58.4%), the median National Institutes of Health Stroke Scale score was 3 (interquartile range 1-7). When comparing baseline characteristics between true matches and false matches, no substantial difference was observed for any variable. Conclusion: We could establish big data on stroke by linking CRCS registry and HIRA records, using claims data without personal identifiers. We plan to conduct national stroke research and improve stroke care using the linked big database.

Descriptive Report on Pattern of Variation in Cancer Cases within Selected Ethnic Groups in Kamrup Urban District of Assam, 2009-2011

  • Sharma, Jagannath Dev;Kalita, Manoj;Barbhuiya, Jamil Ahmed;Lahon, Ranjan;Sharma, Arpita;Barman, Debanjana;Kataki, Amal Chandra;Roy, Barsha Deka
    • Asian Pacific Journal of Cancer Prevention
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    • v.15 no.15
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    • pp.6381-6386
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    • 2014
  • Background: The global burden of cancer is continuously increasing. According to recent report of the National Cancer Registry Programme (NCRP) on time trends it is estimated that future burden of cancer cases for India in 2020 will be 1,320,928. It is well known that knowledge of the incidence of cancer is a fundamental requirement of rational planning and monitoring of cancer control programs. It would help health planners to formulate public health policy if relevant ethnic groups were considered. North East-India alone contains over 160 Scheduled Tribes and 400 other sub-tribal communities and groups, whose cancer incidence rates are high compared to mainland India. As since no previous study was done focusing on ethnicity, the present investigation was performed. Materials and Methods: In this paper PBCR-Guwahati data on all cancer registrations from January 2009 to December 2011 for residents of the Kamrup Urban District, comprising an area of 261.8 sq. km with a total population of 900,518, including individual records with information on sex, age, ethnicity and cancer site are provided. Descriptive statistics including age adjusted rates (AARs) were taken as provided by NCRP. For comparison of proportional incidence ratios (PIR) the Student's t test was used, with p<0.05 considered as statistically significant. Results and Conclusions: Differences in leading sites of Kamrup Urban District since from the beginning of the PBCR-Guwahati were revealed among different ethnic groups by this study. The results should help policy makers to formulate different strategies to control the level of burden as well as for treatment planning. This study also suggests that age is an important factor of cancer among different ethnic populations as well as for overall population of Kamrup District of Assam.