• 한국사회복지학
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• 제67권3호
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• pp.227-252
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• 2015

본 연구는 20세 이상 성인기 자폐성 장애인을 자녀로 둔 부모의 돌봄 경험의 총체적 의미를 이해하기 위해, 7명의 부모를 심층 면담하고 질적 사례연구 방법을 활용하여 분석 하였다. 분석 결과, 부모들의 돌봄 경험은 '수용 경험', '기대 경험', '절망 경험', '저항 경험'이란 4가지 핵심 주제아래, '현실 인정', '긍정 체험', '호전 현상', '더 나은 삶의 질을 제공해주고 싶은 욕구', '세상을 향한 기대', '힘에 부치는 일상', '심리적 소진', '예기 불안', '방어 심리', '복지에 대한 불신', '부당한 처사에 맞서기', '적극적으로 나서기'란 12개 하위 범주를 구성되었다. 이를 통해 부모들의 돌봄 경험은 장애 자녀에 대한 수용과 기대, 절망과 저항이 복잡하게 얽혀 있는 역동적 경험이라는 것을 알 수 있었다. 따라서 성인기 자폐성 장애인 부모들을 지지하기 위해서는 이들의 절망감 해소, 긍정의 힘을 실어주는 것, 건강한 저항의 목소리를 낼 수 있도록 하는 것이 필요하다고 보았다. 이를 바탕으로 성인기 자폐성 장애인 부모와 그 자녀를 지원하기 위한 사회복지적 개입 방안을 제언하였다.

• 동의신경정신과학회지
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• 제16권2호
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• pp.25-34
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• 2005

Background and Objectives There was no clinical data except literary study on mutual correlation with autistic disorder in Western medical diagnosis and five kinds of flaccidity in infants(五軟), five kinds of retardation(五遲) in Oriental medical diagnosis. This study was performed to investigate the correlation of five kinds of flaccidity in infants(五軟), five kinds of retardation(五遲) to the children with autistic disorder and to set the time table for clinical diagnosis of developmental retardation by making a comparative study of normal developmental children so we can treat the children with autistic disorder in good time. Method We made the comparative study of interview sheets recorded by parents of total 163 children who were diagnosed as autistic disorder who visited HaeMa Oriental Medical Clinic with interview sheets recorded by parents of generally accepted normal developmental children(263) and then we took statistics. Results : 1. There was significant correlation with speech and walking among five kinds of flaccidity in infants(五軟), five kinds of retardation(五遲) in autistic disorder statistically and clinically in comparison with normal children. 2. There wasn't significant correlation with growth time of tooth among five kinds of flaccidity in infants(五軟), five kinds of retardation(五遲) on diagnosis of autistic disorder in comparison with normal children. 3. There was significant correlation with retardation of times going to toilet by oneself (it does not consist in five kinds of flaccidity in infants(五軟), five kinds of retardation(五遲).) in both of autistic disorder. Conclusion Autistic disorder was significantly correlated with the faculty of speech(語遲), retardation in walking out(行遲) of five kinds of flaccidity in infants(五軟), five kinds of retardation(五遲). We need to concrete the index of diagnosis, because it is so difficult to measure times and register retardation in tooth eruption(齒遲), retardation in hair-growing(髮遲), debility of neck and nape(頭項軟), flaccidity of extremities(手軟) and flaccidity of muscle(肌肉軟). And we can also use times going to toilet by oneself as one of diagnostic criteria because of its significant correlation. It is required to make early diagnosis of five kinds of flaccidity in infants(五軟), five kinds of retardation(五遲) using these criteria, and to treat them early by oriental medicine.

• Child Health Nursing Research
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• 제21권4호
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• pp.331-338
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• 2015

Purpose: This study was done to identify differences in the life transition process of parents caring for children with autism according to parents' socio-demographic characteristics. Methods: Participants were 194 parents caring for children with autism. Data were collected from December 2013 to February 2014 through self-report questionnaires, and analyzed using descriptive statistics, t-test, ANOVA with SPSS/WIN 20.0. Results: Mean scores for despairing or accepting phases were higher than those for denying or wandering phases in the life transition process. According to parents' gender, educational level, and job, there were some significant differences in the denying and wandering phases. Differences in denying phase by education (p=.033), job (p=.004) were significant. Respondents with higher educational level, and having a job showed a lower level of denying than other respondents. Wandering phase differed significantly by gender (p=.009) and job (p=.001). Mothers and those who did not have a job showed a higher level of wandering than fathers and those who had a job. However, there was no difference in the despairing or accepting phases. Conclusion: The life transition phase of parents with autistic children needs to be assessed to provide differentiated and intensive support program and help them move to the accepting phase.

• 재활복지공학회논문지
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• 제6권1호
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• pp.75-81
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• 2012

본 연구는 자폐성 장애 아동의 승마재활 치료에 가장 영향을 미치는 학부모의 인식은 어느 정도이며 치료효과에 대한 목적의식은 어떠한지 또한 앞으로 재활승마 치료에 대해 가지는 기대에 대해 알아보고자 하였다. 자폐성 장애 아동의 부모로 100명을 연구대상으로 설문지를 연구도구로 사용하였다. 분석방법은 빈도분석(Frequency Analysis), 교차분석Chi-square Analysis)을 활용하여 각각 분석하였다. 재활승마 치료에 대한 학부모의 인지도에서 재활승마에 대한 인식이 있고, 아동이 재활승마의 경험이 없으며, 6세~10세 학부모의 응답에서 재활승마가 효과가 있을 것이라고 응답하였다. 이해도에서 재활승마는 주로 말을 타는 신체운동이고, 치료와 운동을 겸비한 전문영역으로 구체적인 도움을 주는 방법이라고 하였으며, 재활승마는 바람직하지 못한 행동을 교정 및 개선하는 방법으로 이용되고 재활기관에서 재활승마가 필요한 것으로 이해하고 있었다. 기대도에서 재활승마 치료사가 갖추어야 할 가장 중요한 요소는 치료학(작업치료, 물리치료, 언어치료) 전공자여야 한다고 나왔고, 재활승마는 개별치료, 주 2~3회가 적당하다고 하였다.

• 대한약침학회지
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• 제19권1호
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• pp.28-36
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• 2016

Objectives: The purpose of this study is to achieve a vision for autistic children and their parents aimed at generating interest in ideas such as "Sanitas Per Aquam" (SPA), massage and music therapy, which has begun to have widespread use and to attract attention. Methods: This cross-sectional, descriptive study was carried out with autistic children and their parents from February to April 2015 in $Mu{\breve{g}}la$, Turkey. The study was began by interviewing experts in the field and by developing a suitable assessment questionnaire. In order to direct the flow of conversation between the researchers and the autisitc children and their parents, the researchers conducted semi-structured face to face interviews in a form that had been determined by using reports in the literature and the opinions of experts in the field. Results: Forty two boys (84%) and eight girls (16%) with autism participated in our study. Children in the 0 - 7 age group spent long time in the bathroom (P = 0.001). Boys liked to be hugged more than girls (P = 0.01). Children ages 0 - 7 years liked bright lighting while those 15 years of age and older liked gloomy lighting (P = 0.009). Except for these statistically significant sex- and age-related differences, no other statistically significant differences were noted in the parameters of this study. Although the result was not statistically significant, more children with mild autism disorder obeyed commands like inhale or exhale (P = 0.051). Conclusion: Treatment for autism spectrum disorders is not yet fully possible, so many studies are being done to alleviate some symptoms and to improve the quality of life for individuals with autism and their families. As a result of our study, whether touching the areas the children want touched and listening to their favorite music are required to stimulate the brain remain as questions in our minds.

• Journal of the Korean Academy of Child and Adolescent Psychiatry
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• 제17권2호
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• pp.91-97
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• 2006

The effects of the Attachment Promotion Therapy (APT) program for the autistic children were reviewed by 8 papers. The program was consisted with play activity centered mother-child interaction, educational activity for parents, lecture, video-feedback, and support. APT program was effective to improve the attachment behaviors and attachment security. And the mother's behaviors to her child became more child-centered, positively responsive, expressive supportively. Ninety six point seven percent of the mothers were satisfied with the APT program. They described that it was helpful to understand their children's developmental limitation and strength, to learn how to play with their children, to make supportive social network among the mothers, to minimize familial conflicts, and to make them much more comfortable with their children. They thought the APT Program was to be a steppingstone of the further educational program. APT program is an effective early intervention to promote social development and decrease autistic problems.

• 대한간호학회지
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• 제42권6호
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• pp.861-869
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• 2012

Purpose: The purpose of this research was to develop a scale to measure the life transition process of parents of children with autism, against the backdrop of a lack of research on this topic. Methods: Seventy preliminary items were drawn from previous qualitative research, and content validity was tested by three professors as well as three parents of children with autism. A questionnaire survey was also done between August 2011 and February 2012. Data were collected from 207 parents of children with autism and analyzed using descriptive statistics, item analysis, Cronbach's alpha, Pearson correlation coefficients, and factor analysis with the SPSS Win 15.0 program. Results: Twenty-nine items were selected to constitute the appropriate measuring scale and categorized into 5 factors explaining 63.2% of the total variance. The 5 factors were named; stages of denial (5 items), wandering (6 items), devotion (7 items), frustration (3 items), and finally acceptance (8 items). Cronbach's alpha for the 29 items was .80. Conclusion: The results of this study not only suggest assessment criteria for the life transition process of parents who have children with autism but also provide basic directions for program development to provide differentiated support and care at each stage.

• 대한간호학회지
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• 제44권5호
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• pp.563-572
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• 2014

Purpose: The study was done to identify the construct validity and reliability of the life transition scale (LTS) for parents who have children with autism. Methods: Exploratory factor analysis (EFA) and confirmative factor analysis (CFA) were conducted to identify the most adequate measurement model for structural validity. Convergent validity and discriminant validity were also conducted for structural validity. Data were collected from 208 parents through self-reported questionnaires and analyzed with SPSS/WIN 15.0 and AMOS 20.0 version. Results: A four factor-structure was validated (${\chi}^2$=541.23, p<.001, GFI=.82, RMSEA=.07, IFI=.89, CFI=.89, PNFI=.73, Q (${\chi}^2/df$)=2.20) at the 3rd order of EFA and CFA, and factors were named as denying, wandering, despairing, and accepting. Both convergent and determinant validity for LTS were 100%. Cronbach's alphas for the reliability of each structure were .77-.90 and .83 for total structure. Conclusion: The four structures, 24-item instrument showed satisfactory reliability and validity. LTS has the potential to be appropriate for assessing the transition process of life for parents who have children with autism and provides basic directions for differentiated support and care at each stage.

• Journal of the Korean Academy of Child and Adolescent Psychiatry
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• 제15권2호
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• pp.132-142
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• 2004

반응성 애착 장애에 관한 미국과 영국으로부터의 대부분 논문들은 국외에서 입양한 탈억제형(Disinhibited Type) 반응성 애착장애를 보고하였다. 터키와 한국에서만 반응성 애착장애의 억제형(Inhibited Type) 아동들에 대한 보고를 하고 있는데 대부분 친부모에 의해 양육되고 있으며 그들의 증세는 자폐장애와 매우 유사하다. 반응성 애착장애의 치료, 특히 억제형의 치료에 대한 논문은 매우 드문 상태이기 때문에 저자는 1987년부터 한국의 반응성 애착장애 아동들을 치료해 온 경험을 이 논문에 자세히 기술하였다. 반응성 애착장애 환자와 그 부모들을 치료하기 위해서는 세가지 중요한 영역이 반드시 포함되어야 한다：1) 반응성 애착장애 아동에게 치료적인 환경을 조성해 주어야 한다. 2)개별 놀이치료, 엄마 놀이치료, 형제 놀이치료, 또래 놀이치료, 집단 놀이치료를 통해 반응성 애착장애 아동과 그 엄마와의 사이에 애착을 형성시켜 주어야 한다. 3) 언어치료, 인지치료, 치료교육등을 통하여 뒤진 발달을 촉진시켜 주어야 한다. 이 치료방법은 미국이나 영국을 포함한 서구에서의 다른 치료 방법보다 우리나라 환자들에게 좀더 쉽게 좀더 효과적으로 적용될 수 있을 것이다.

• 디지털융복합연구
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• 제11권10호
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• pp.123-131
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• 2013

본 연구의 목표는 초등부 자폐성장애 아동들의 적응행동 향상을 위해 적응행동기술을 지원하기 위한 스마트 콘텐츠의 개발 방향을 제시하는 것이다. 특수학교 교사 및 장애학생 교육기관 전문가들의 AHP설문을 통해 스마트 콘텐츠의 개발의 필요성 및 효과에 대한 적응행동기술의 중요도를 도출하였다. 또한 어떠한 적응행동기술 분야가 스마트 콘텐츠로 개발하기에 적합한지 앱개발 전문가들의 토론과 설문을 통해 그 중요도를 도출하였다. 분석결과 스마트 콘텐츠로 개발에 적합하고 그 효과가 높은 적응행동 기술은 언어이해, 시간이행 및 엄수, 이동기술, 옷입기, 개인위생이었다. 본 연구를 토대로 교육당국은 단편적인 교육용 스마트 콘텐츠 개발보다는 효과적이고 활용도가 높은 자폐성장애 아동들의 특성 및 특수교사나 부모의 요구에 맞는 스마트 콘텐츠 개발 및 지원체계를 구축하고자 노력해야 한다.