• 가정과삶의질연구
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• 제26권6호
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• pp.209-225
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• 2008

This study has been designed to develop integrated supportive service works for the families of disabled children registered in the D-Healthy Family Support Center. The service works are intended to improve family members' health and their growth potentials, and cover service programs of family education, counselling, culture solidarity, and information networks. There are two topics covered in this study; first, this study is to develop integrated supportive service programs for the families of disabled children, and second, the study is also to construct comprehensive strategies and plans for effective services after evaluating practical service programs. In this study, 31 families with one or more disabled children have been selected through stratified random sampling, and all the family members were observed for program effects of integrated service items developed from previously validated indices. For analysis, eight question items were made for interview and each item denotes satisfaction score ranging from 1(very dissatisfied) to 5(very satisfied) on the Likert's five point scale. Mean value of each item was counted after the program, and satisfaction scores were compared over the programs implementation. Overall, the satisfaction scores range 4.1 to 4.6, indicating relatively high satisfaction over most service program. Therefore, it is finally proposed that a longitudinal strategy model offer high quality service programs consistently for the target families, as a goal of achieving comprehensive cooperation and support exchanges between community and healthy family support center be schematized.

• 대한간호학회지
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• 제29권2호
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• pp.238-247
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• 1999

The purpose of this study was to describe the relationship between family stress and adaptation in families with a disabled child through literature review using McCubbin's Double ABCX family crisis framework. The literature review focused on (1) family stress and factors affecting family stress, (2) the critical individual, familial and social resources which families acquire and employ over time in managing crisis situation. (3) the changes in definition and meaning families develop in an effort to make sense out of their predicament. (4) the coping strategies families employ. and (5) the range of outcomes of these family efforts The results showed that families reported financial difficulties and the burden of care-giving demands as major family stressors. Siblings of disabled children manifested depressive symptoms and social isolation. but was not consistent study results. The parents' views of the cause of the disabling condition fundamentally affected their behavior toward their disabled child. Especially. the fathers' views of the child's characteristics made the greatest contribution to positive changes in the mothers' perceptions. The term perceived social support refers to the cognitive appraisal by individuals that they are cared for and valued, that significant others are available to them if needed, and that they are satisfied with their interpersonal relationships. The perceived social support was more protective than social support source. network size and network density. Parental adaptation was found to be related to the child's communication competence rather than family coping strategies proposed by Lazarus and Folkman. One study results showed that there was no difference in depressive symptoms and physical health between mothers with a disabled child and those without all though mothers with a disabled child had negative attitudes and perceived themselves as having significantly less social support and lower family functioning. But a longitudinal study revealed decreases in the negative impact of the child and increases in sibling and overall family adaptation.

• 한국가족관계학회지
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• 제21권1호
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• pp.3-27
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• 2016

Objective: The purpose of this study was to explore the essence of disabled parents' experiences of raising children. Method: Five families, which were composed with parents with physical disabilities and children, were participated into this study. One-time interview was conducted with mother of each family and it was recorded, coded, and analysed using method of Giorgi's phenomenological study. Result: Three superordinate themes, nine subordinate themes, and 22 concepts were derived. The essence of disabled parents' experiences of raising children was "disabled parents' growth with their children despite of prejudice." This represented that even though disabled parents faced with diverse kinds of difficulties, they put their heart and soul into raising their children and they encouraged their children to have their feet on the ground firmly. Finally, disabled parents went out into the world with their children. Conclusion: The current study illustrated how those stories about raising children could be interpreted from the perspective of the family relation, and suggested possible ways to support disabled parents for raising children.

• Child Health Nursing Research
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• 제3권1호
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• pp.42-51
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• 1997

Although a family-centered approach to health care for developmentally disabled children has been advocated, existing systems of care have not adequately addressed the support needs of the family system and the essential role that parents play in the daily care of these children. The overall purpose of this research is to examine family system adaptation to the care of a developmetally disabled child using the Resiliency Model of Family Stress, Adjustement, and Adaptation Framework. Relationships among family system demands (stressors, strains, transitions, child's illness factors) and family system strengths and capabilities(resource of social support) were examined to determine their separate and combined contribution to explanining the variability in family system outcomes (family system coping ). The subject for this study was 46 families who have a child with developmental disabilities(mental retardation and / or autism) from three special educational programs in Seoul, Korea. Results from correlation and hierachial regression analysis revealed that perceived social support operated as a resiliency factor between family stress and coping. Child and family characteristics appeared to be important predictors of perceived social support and coping. In summary, there is evidence that the resource of social support as a family strength and capability was found to improve the family coping. These findings also must be viewed within the context that sample of families of children with disabilities was relatively small and eligible families from support group of special educational program.

• 산업융합연구
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• 제18권6호
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• pp.139-146
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• 2020

중증장애인의 돌봄은 비장애 가족에 비해 전 생애주기에 돌봄이 필요하다. 이런 이유로 중증장애 가족의 돌봄자는 일상적인 스트레스는 물론 가족 전체에 부정적인 감정을 가질 우려가 높다. 장애가족 역시 장애인을 중심으로 이루어지는 생활에서 비 장애자녀나 부부간의 어려움을 경험하는 비율이 높다. 특히 우리나라의 급격한 고령화는 장애 돌봄자의 노령화와 함께 노인장애인의 삶에도 영향을 미친다. 연구는 질적 연구방법을 통해 장애인 돌봄자의 과거와 현재 경험을 통한 현실적 지원에 대한 대안을 탐색하였으며, 미래에 대한 희망과 기대를 다음과 같이 도출하였다. 첫째, 장애 영유아에 대한 장애확인 후 지원체계나 제도에 대한 정보전달이 등급판정 기관에서부터 제공. 둘째, 장애유형이나 개별특성에 적합한 '맞춤형 돌봄지원'의 사회, 정치, 제도, 경제적 차원에서의 제공. 셋째, 비장애 자녀대상의 프로그램의 제공과 장애인을 포함하거나 혹은 장애가족만을 위한 힐링 프로그램의 제공. 넷째, 성인장애인을 위한 휴식과 쉼을 제공하는 공간과 프로그램의 제공. 다섯째, 장애인 노화연령을 반영한 노인장기요양제도 적용과 장애인 커뮤니티케어의 제도화이다. 이러한 대안제시를 통해 연구는 성인과 노인 장애인의 삶의 질 향상을 위한 논의점의 제시에 연구의 의의를 두고 있다.

• 한국사회복지학
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• 제4권
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• pp.121-137
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• 1983

• 가정과삶의질연구
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• 제26권5호
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• pp.75-89
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• 2008

The purpose of this study is to understand the physical accessibility of the child care centers for disabled children in Japan. Fifteen centers located in Tokyo, Japan were surveyed through sketching, measuring, taking pictures, and observation. To understand the user's needs. the directors of the centers were interviewed. As a result,the followings suggestions were proposed. First, when the entrance of the center is close to the road, careful design for the entrance area is required to secure the safety of children using wheelchairs. If possible, a fence or door between the corridor and entrance is necessary. Second, most aspects of accessibility are pretty well designed. But a canopy over the entrance area is required to escape the rain. Third, a wider corridor space is desirable for storing and driving wheelchairs and for special equipment for the disabled. Forth, because the emergency exits were installed but not used, the new and safer emergency exits should be installed. These results will be a good case reference for developing Korean design guidelines for the children with disabilities.

• 한국융합학회논문지
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• 제10권5호
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• pp.297-311
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• 2019

본 연구는 복지관을 이용하는 장애부모를 둔 비장애 아동들을 대상으로 현상학적 연구방법을 통해 장애부모를 둔 비장애 아동의 행복한 삶의 본질적 의미를 밝히고자 시도되었다. 그 결과 행복한 삶과 관련된 76개 의미 있는 진술, 20개의 주제 8개의 범주가 도출 되었으며 아동이 행복한 삶의 본질적인 의미로는 '부모님이 행복해 하는 삶', '부모가 인정받는 삶', '부모님이 건강한 삶' '다른 가족과 다를 것이 없는 삶' 4개의 범주로 나타났고, 아동이 행복한 삶을 살기 조건으로는 '경제적으로 안정된 삶', '장애에 대한 인식이 긍정적인 사람과의 만남의 삶' '함께 여행하는 삶', '아동으로 인정받는 삶' 으로 나타났다. 이를 통해 볼 때 아동들에게는 이 시기가 중요한 만큼 더욱더 행복한 삶을 느낄 수 있는 개입방안과 장애인을 바라보는 인식개선 및 옹호자의 역할이 절실히 필요하다고 본다.

• 대한가정학회지
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• 제20권4호
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• pp.143-153
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• 1982

The objectives of this study were as follows: 1) To describe the group of selected disabled homemakers in terms of demographic and medical variables related to organizational activities in the home and family participation in household activities. 2) To identify those demograhpic and medical variables that were related to organizational activities in the home and family participation in household activities. 3) To identify relationship between organizational activities in the home and family participation in household activities. Questionnaires were given to the selected disabled homemakers living in Seoul. The sample was small(N=35) and it was not random; therefore generalizations could not be made to the population as a whole. Data were analyzed by mean, Kruskal-Wallis one-way analysis of variance by ranks, and Spearman rank correlation coefficients. Homemaker's organizational activities were measured by 16 items about physical and mental activities from Mumaw's Organizational Activities Index. Family participation in household activities was measured by 8 items about how often family members participated in two areas of household activities: house chores and extra-activities. The results were as follows: 1) The homemaker's higher organizational activities scores were associated with younger homemaker, higher the level of education, small households, and higher the economic status. The homemaker without children performed better organizational household activities. The homemaker with shorter the duration of disability performed better organizational activities. The homemaker who needed crutches for mobility performed better organizational household activities. 2) The homemaker who was younger, higher the level of education, with smaller households, and lower the economic level was helped by husband. Husband helped better the homemaker with shorter the duration of disability in household activities. 3) Factors affecting children's participation in disabled homemaker's house chores and extra-activities were the age of homemaker and the marital status. The homemaker was single and older, the children were more helpful. 4) Task standardization score was the highest among the factors of homemaker's organizational activities and families with a disabled homemaker participated more extensively than families with abled homemaker. 5) Significant intercorrelation was found between the dependent variables.

• 한국식생활문화학회지
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• 제27권5호
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• pp.459-468
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• 2012

The purpose of this study was to investigate the effects of eating habits and food preferences on the adoptive behavior of children with intellectual disabilities. Survey questionnaires were distributed to six special education schools located in the Daegu-Kyungbuk area, and data were collected from 552 families and teachers with intellectually disabled students. Identification of eating habits began with a factor analysis, and the results were a five-factor solution. Among the five patterns, factors 1 and 2 were significantly related with behavior problems of intellectually disabled children. Further, food preferences of the children were significantly related with adoptive behavior problems. The findings of this study clearly indicate that eating habits as well as food preferences are important factors in identifying adoptive behavior problems in intellectually disabled children. Based on the findings of this study, similarities and differences in eating habits are discussed, and implications for children are provided.