• 제목/요약/키워드: families of children with disabilities

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부모 사후 장애자녀의 미래계획은 있는가?: 장애자녀를 가진 부모의 미래 주거지 및 보호자 계획을 중심으로 (Preparing for the Future of Children with Disabilities - Focusing on parents' plans of residence and guardians for children with disabilities after the death of a parent -)

  • 정은혜;김미옥
    • 한국가족복지학
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    • 제56호
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    • pp.251-277
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    • 2017
  • 이 연구는 최근 탈시설화에 대한 논의가 증가하는 상황에서, 장애자녀를 둔 부모의 시설입소 의향에 대한 미래계획을 탐색하고 이를 통해 시설입소를 예방하는 방안을 논의하고자 한 것이다. 이를 위해 독립변인은 장애자녀, 가족, 사회요인으로 구성하였으며, 종속변인으로서 미래계획은주거지 및 보호자로 구분하여 그 영향을 살펴보았다. 첫째, 장애인의 부모사후 '미래 주거지 계획'에서는 장애인의 의사소통수행능력이 높을수록 미래의 주거지로서 시설입소를 선택할 의향이낮아졌으며, 가족의 긍정성이 높고 양육부담이 낮을수록 부모사후 시설입소 의향이 낮아지는 것으로 나타났다. 둘째, 장애인의 부모 사후 '미래 보호자계획' 또한 장애인의 의사소통수행능력이높을수록, 가족의 긍정성이 높을수록 부모 사후 시설입소에 대한 의향이 낮아지는 것으로 분석되었다. 이를 통해, 장애자녀의 의사소통능력과 가족의 긍정성이 부모사후 시설입소를 결정하는데중요한 요인으로 나타나서, 시설입소를 예방하기 위해서는 이에 대한 지원방안 마련이 필요함을알 수 있었다. 다만, 본 연구에서 사회 요인은 부모 사후 미래계획에 대한 유의도가 낮은 것으로나타났으나, 변수구성 등의 한계로 후속연구의 필요성을 제기하였다. 이러한 결과를 통해 이 연구는 부모 사후, 장애자녀의 주거지 및 보호자에 대한 미래계획의 중요성과 시설입소예방을 위한사회복지적 함의를 논의하고 있다.

장애아동가족의 복원모델 연구 (A Resiliency Model for Families of Children with Disabilities)

  • 오승아;이양희
    • 아동학회지
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    • 제22권2호
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    • pp.113-132
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    • 2001
  • In order to develop a model for better understanding of causal relationships in resiliency factors in families of children with disabilities, 200 families participated in this adaptation of the Resiliency Model of McCubbin and McCubbin(1993). The 6 latent variables included in the hypothesized model were family stress, family hardiness, family schema, community support, family problem-solving communication, and family adaptation. The models were developed on the basis of confirmatory factor analysis and compared using covariance structure modeling (LISREL). Adequate fitness of the model was observed. Family stress showed negative effect on family schema and on family hardiness. Family schema showed positive effect on community support and on family hardiness. Family hardiness showed positive effect on family problem-solving communication, and family problem-solving communication showed positive effect on family adaptation.

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장애 아동 (Children with Disabilities)

  • 정계숙;박명화;노진형
    • 아동학회지
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    • 제30권6호
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    • pp.375-389
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    • 2009
  • The study examined some statistics of children with disabilities, relevant research and education, and welfare policies undertaken for the last three decades. The changed perceptions regarding children with disabilities have led education and legislation to great improvement. As a result, the number of children who are registered as having disabilities has been increased. Also, children who received any benefits of education and welfare have been consistently risen. The noticeable features of the existing studies are summarized as follows : An increase in number, a variety of the contents, specification of the topics, and a close connection to the basic studies. In spite of the progression and improvement observed in the areas of education and welfare policy making, more practical approaches are needed in order to reflect various needs of children with disabilities and their families.

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장애아동 가족의 수입, 내구력, 누적 스트레스, 의사소통, 가족적응에 대한 구조모델검증 (Families of Children with Disabilities: The Test of a Structural Model of Family Income, Hardiness, Pile-up Stress, Communication and Family Adaptation)

  • 오승아
    • 대한가정학회지
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    • 제40권9호
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    • pp.175-189
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    • 2002
  • The purpose of this study was to test a structural model about family income as causally related to family hardiness, pile-up stress, communication, and family adaptation in families of children with disabilities. 250 families of children with disabilities participated as subjects. The models were developed on the basis of confirmatory factor analysis and compared using covariance structure modeling(LISREL). Adequate fitness of the model was observed. Family income showed negative effect on pile-up stress and positive effect on family adaptation. Pile-up stress showed negative effect on family hardiness. Family hardiness showed positive effect on family communication, and family communication showed positive effect on family adaptation.

Parental Involvement and Education of Children with Intellectual Disabilities in Saudi Arabia

  • Bagadood, Nizar H.
    • International Journal of Computer Science & Network Security
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    • 제22권3호
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    • pp.259-265
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    • 2022
  • This research aims to increase understanding of family participation in special education programs, to gain a deeper understanding of the programs themselves, and to determine the consequences of the research findings. It addresses the opportunities for families to participate in their children's learning journey and focuses on enhancing the experience of families participating in the education of students with intellectual disabilities. This study interviews four teachers of students with intellectual disabilities, and three important themes emerge from their discussion of whether parents should participate in special education programs for their children. The findings of this study have several important implications for future practice.

장애 영유아 부모의 지역사회자원 활용에 대한 사례연구: 서울 북부를 중심으로 (A Case Study on the Utilization of Community Resources by Parents of Children with Disabilities: Focusing on the Northern Part of Seoul)

  • 유정현;정가윤;서민경
    • Human Ecology Research
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    • 제57권2호
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    • pp.257-270
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    • 2019
  • This study the presents survey results of a families living with children with disabilities in northern Seoul (Nowon-gu and Dobong-gu) that provides various educational services. This study investigates the current usage and needs of community resources for children with disabilities by the families in the inclusive and segregated care as well as education centers to provide information for the effective implementation of the current system. A total of 109 surveys were distributed and 62 (57%) were returned. 44 families in the 14 inclusive care and education centers as well as 18 families in the 2 segregated care and education centers participated in this study. They were asked to report on access to community resources that include compulsory education, family support, medical treatment, counseling services, commuting support, ways to gain necessary information, current use, and further needs for community resources for their children. Research results indicated that families in two different types of child care centers needed differentiated community services. Parents who use a segregated child care center demanded physical accessibility and increased numbers of highly qualified teachers; however, parents who use the inclusive child care center require the unified information system for the community resources. Survey findings are discussed related to differences between the two types of child care centers. Implications for sharing comprehensive information through child care teachers and directors of child care centers and future research are also discussed.

발달장애아 가족의 정보빈곤 양상에 관한 연구 (Information Poverty Viewed Through the Families of Children With Developmental Disabilities)

  • 서옥연;장덕현
    • 한국비블리아학회지
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    • 제19권2호
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    • pp.107-128
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    • 2008
  • 이 연구는 정신적 장애의 일종인 발달장애아를 둔 가족의 정보빈곤 양상을 묘사하고자 한 사례연구이다. 일반적으로 장애인들은 가족에 대한 의존이 높다. 발달장애와 같은 정신적 장애인의 경우는 생활의 모든 것을 절대적, 배타적으로 가족에게 의존한다. 정보의 관점에서 볼 때에도 본인의 정보요구에 대한 정확한 인지가 없고 정보활용능력이 부족한 정신적 장애인은 정보중개자로서의 가족의 역할에 지대한 영향을 받는다. 따라서 가족은 일상 속에서 장애아의 교육과 치료를 위한 정보적 도움을 절실하게 필요로 한다. 이러한 배경에서 이 연구는 발달장애아를 둔 가족의 삶 속에서 나타나는 일상적 고민과 정보요구 그리고 그에 대한 대처 양상을 통해 정보추구행태에 나타나는 특성을 살펴보았다. 또한 그 과정에서 그들에게 노정되어 있는 정보빈곤의 양상과 그러한 정보빈곤을 만들어낸 내 외적 요인을 파악하고자 하였다.

A Discussion on Home-Institutions' Relations with Reference to Children with Intellectual Disabilities in Saudi Arabia

  • Bagadood, Nizar H.;Saigh, Budor H.
    • International Journal of Computer Science & Network Security
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    • 제22권3호
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    • pp.266-272
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    • 2022
  • Private specialized institutions differ from public ones in that they mostly act independently. This paper reports a study designed to assess the provision of specialized institutions for children with intellectual disabilities in Saudi Arabia. The approach taken in this study was qualitative, involving a case study strategy that enabled the researcher to gain rich and in-depth information based on the shared experiences of participants comprising institution leaders, educators and families from two specific specialized settings, one public and one private. The study aimed to examine the existing disparities in service delivery so as to develop a clear picture of the service quality provided by public specialized institutions for children with intellectual disabilities in Saudi Arabia. The results suggest that the weak relationship with inpatient and specialized institutions is a consequence of the parents' poor responsiveness, which may result in these institutes developing a negative impression of the parents. Conversely, the lack of active initiative on the part of the public specialized institutions led to a negative parental attitude towards these institutions. A sensible approach to resolving this problem might be to recognize that these institutions have a significant responsibility to encourage parents of children with intellectual disabilities to become involved in their children's learning, to promote positive attitudes.

장애아동의 행동에 대한 어머니의 귀인 성향과 양육행동 (A Study of Maternal Attributions and Parenting Behaviors of Children with Developmental Disabilities)

  • 장현숙;유애란
    • 가정과삶의질연구
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    • 제22권2호
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    • pp.13-21
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    • 2004
  • This study examined the role of maternal attribution in parenting behaviors of mothers who have a child with developmental disabilities. Using an attributional model, it assessed whether maternal attributions about the child's knowledge, capacity, expectation, and responsibility for behavior problems have effects on maternal behaviors of affect, authoritarian control, and overprotect. The sample consisted of 161 mothers of elementary children with developmental disabilities. Multivariate regression analysis revealed that maternal attribution about the child's capacity for misbehavior had positive influence on maternal affect and negative influence on authoritarian control behaviors, and that maternal attribution of responsibility for misbehavior positively influenced maternal authoritarian control and overprotect behaviors. Also, maternal attribution about the child's knowledge for misbehavior had negative influence on maternal overprotect behaviors. In addition, such background factors as number of disability, maternal education, and job of mother were significant predictors for maternal attribution, while maternal self-esteem was a strong significant predictor for mothering behaviors. The findings suggest the importance of maternal attributions in parenting.

중증장애 가족의 돌봄과 미래기대 (Care and future expectations of families with severe disabilities)

  • 신경안
    • 산업융합연구
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    • 제18권6호
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    • pp.139-146
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    • 2020
  • 중증장애인의 돌봄은 비장애 가족에 비해 전 생애주기에 돌봄이 필요하다. 이런 이유로 중증장애 가족의 돌봄자는 일상적인 스트레스는 물론 가족 전체에 부정적인 감정을 가질 우려가 높다. 장애가족 역시 장애인을 중심으로 이루어지는 생활에서 비 장애자녀나 부부간의 어려움을 경험하는 비율이 높다. 특히 우리나라의 급격한 고령화는 장애 돌봄자의 노령화와 함께 노인장애인의 삶에도 영향을 미친다. 연구는 질적 연구방법을 통해 장애인 돌봄자의 과거와 현재 경험을 통한 현실적 지원에 대한 대안을 탐색하였으며, 미래에 대한 희망과 기대를 다음과 같이 도출하였다. 첫째, 장애 영유아에 대한 장애확인 후 지원체계나 제도에 대한 정보전달이 등급판정 기관에서부터 제공. 둘째, 장애유형이나 개별특성에 적합한 '맞춤형 돌봄지원'의 사회, 정치, 제도, 경제적 차원에서의 제공. 셋째, 비장애 자녀대상의 프로그램의 제공과 장애인을 포함하거나 혹은 장애가족만을 위한 힐링 프로그램의 제공. 넷째, 성인장애인을 위한 휴식과 쉼을 제공하는 공간과 프로그램의 제공. 다섯째, 장애인 노화연령을 반영한 노인장기요양제도 적용과 장애인 커뮤니티케어의 제도화이다. 이러한 대안제시를 통해 연구는 성인과 노인 장애인의 삶의 질 향상을 위한 논의점의 제시에 연구의 의의를 두고 있다.