The nutritional status is important for the physical and mental development of children. Children should have sufficient nutrient intake, specially for the developmentally disabled children. In spite of the importance not much research has been done for their food habit and nutritional status. In this study, nutritional status of the disabled children were examined, the number of children studied is 50 children in Seoul between 5 to 6 years old, of whom 11 were austism, 5 were mentally retarded children and 8 were down\\`s syndrome. In order to get the data questionnaires about the food habit and other related factors, and two days food records were used. Their mean height was 108.8$\pm$21.0cm and their average weight was 19.5$\pm$4.6kg. The proportion of study subject with problems of the food habits was 36%, without keeping the regular meal time was 16%, and having snacks 2-4 time daily was 56%. They chose confectionery and fruits as their favorite snacks. The proportion of study subject with the sensitivity to the food colors and smells when they ate was 54%, unskilled using spoon and fork was 58%, and having medications was 20%. When we asked them whether their parents used the food as compensation means or not, 32% of them said that they did it often or sometimes. For the nutrient intake, energy was 1,703 $\pm$ 511kcal, carbohydrate was 242.5 $\pm$ 69.3g, protein was 61.3 $\pm$ 17.5g, lipid was 50.0 $\pm$ 24.4g. As the nutrient intake, it was compared with RDA. The intake of vitamin A and calcium were below RDA. Intake of protein was more than 150% of RDA. The proportion of subject with more than 125% of RDA was 72% for the phosphorus, 62% for the protein, 60% for the Vitamin A and calcium were below 0.75 and that of the others was above 0.75. The mean adequacy ratio(MAR) was 0.88. As we sum up the results of the research, the developmentally disabled children were shorter and lighter than the reference, were having medications, had excessive appetites, and had unbalanced diets. Also they had the bad food habit. As for the nutritional intake, vitamin A and calcium intake were a little less than RDA, and protein and phosphorus intake were too much. With the results of the above research for the disabled children, we can conclude that there are need to take some necessary measures for those children. To establish some programs measures for their better food environment, it is thought that much more research should be done in the future. (Korean J Nutrition 34(2) : 188-197, 2001)
The purpose of this study was to compare parenting stress between mothers who have young children with and without disabilities. The subjects of this study were 100 mothers who take care of disabled children and 123 mothers who take care of non-disabled children. The children's ages were from 3 to 6 years. The results of this study were as follows; First, the mothers who have disabled children have more parenting stress than those who have ordinary children. Second, the mothers who have developmentally disabled children had more parenting stress than mothers who had other disabled children. Children's and mothers' ages had an influence on the parenting stress of the ordinary mothers. The mothers who had children with and without disabilities got less parenting stress as the mothers received more higher parenting efficacy, parent role satisfaction, marital satisfaction and family support.
The purpose of this study was to investigate the effect of caregiving burden of a developmentally disabled child on marital conflict and to examine the moderating effects of social support and social activities. For the purpose, a total of 124 mothers of developmentally disabled children who were enrolled at specialized school in Incheon were surveyed from May 15, 2011 to May 31, 2011 by using self-reported questionnaires. Our analysis on the data suggested as follows: first of all, the burden from caregiving a developmentally disabled child was a significant predictor of marital conflict. In addition, informal social support and participation in social activities moderated the relationship between the caregiving burden and marital conflict. Based on the findings, we provide measures to resolve the family problems of those with a disabled child.
Purpose: The purpose of this study was to investigate the perceived social support of mothers with disabled children. Method: This study was a cross-sectional, descriptive study using a questionnaire survey which included the standardized measure: personal resource Questionnaire 2000. Results: The participants were 98 mothers, each with one with disabled children. Of the 98 participant's children, 39.8% suffered mental retardation, 34.7% was developmentally disability, 16.3% was brain diseases and 9.2% was multiple disabled. The mean age of the disabled children was 8.2 years and of their mothers was 38 years. The order of the life events for which the need help for the subjects required help were 'when anger and frustration arise happened', 'difficulties in human relationship' and 'emergency situations'. The personal resources were spouse (38.1%), friends (20.9%) and parent (12.9%). The mean score of perceived social support was 5.48 out of a total of 7, indicating a slightly high on social support score. Significant differences were found in the level of perceived social support according to the school grade of disabled child's school grade (F=4.04, p= .02) and the mother having a job presence of mothers (t=2.49, p= .01). Conclusion: These findings indicate a need for nursing intervention programs for mothers with disabled children, including anger management, methods of human relationship, support for leisure time and long term illness and providing information.
Although a family-centered approach to health care for developmentally disabled children has been advocated, existing systems of care have not adequately addressed the support needs of the family system and the essential role that parents play in the daily care of these children. The overall purpose of this research is to examine family system adaptation to the care of a developmetally disabled child using the Resiliency Model of Family Stress, Adjustement, and Adaptation Framework. Relationships among family system demands (stressors, strains, transitions, child's illness factors) and family system strengths and capabilities(resource of social support) were examined to determine their separate and combined contribution to explanining the variability in family system outcomes (family system coping ). The subject for this study was 46 families who have a child with developmental disabilities(mental retardation and / or autism) from three special educational programs in Seoul, Korea. Results from correlation and hierachial regression analysis revealed that perceived social support operated as a resiliency factor between family stress and coping. Child and family characteristics appeared to be important predictors of perceived social support and coping. In summary, there is evidence that the resource of social support as a family strength and capability was found to improve the family coping. These findings also must be viewed within the context that sample of families of children with disabilities was relatively small and eligible families from support group of special educational program.
Journal of Family Resource Management and Policy Review
/
v.18
no.2
/
pp.103-119
/
2014
This study focuses on the relationship between time management behavior and parenting stress of mothers with developmentally disabled children. The participants of this study were 162 mothers whose children have developmental disabilities and attend pre-school and social welfare centers for early education. This study investigates the time management behaviors of the participants, and whether these behaviors have an effect on their time management satisfaction and parenting stress. The findings were as follows: 1) The time management behaviors of the participants were lower than average, scoring 2.87 out of 5. The order of dimensional scores from highest to lowest were sequencing, planning, recording habits, evaluating, and setting goals. 2) Time management satisfaction and parenting stress for the participants exhibited a negative correlation. 3) Adaptation behaviors of the children and time management behaviors of the mothers were factors that had significant effects on the mothers' parenting stress. These results showed the importance of time management for mothers with developmentally disabled children.
For the purpose of clarifying to what degree the mothers of developmentally delayed children are involved in treating their child at home. 193 mothers were sampled from 220 mothers of developmentally delayed children below 12 years of age who have visited one of four institutions: the Rehabilitation Hospital of Yonsei Medical Center, Inchon Severance Hospital, Disabled Welfare Center in Myongil-dong, and Nambu Disabled Welfare Hall. The study period was from Mar. 25, 1995 through Apr. 15, 1995. A questionnaire survey was conducted listing the characteristics of the developmentally delayed children, their mothers, mother's satisfaction with their therapists, and the actual conditions of the home treatment. 1. The mothers who treat their child at home for more than 31 minutes a day show a high involvement score, while the mothers of those who give treatment for less than 30 minutes a. day show a low involvement score. That is, the longer the treatment, the greater the involvement score. This indicates a statistically significant result(p<0.01). 2. In cases where a child's father is involved in the home treatment, his/her mother discloses a statistically high involvement score(p<0.001). 3. The result of analysis of cases where other family members, relatives or friends (fathers excepted) reveals a statistically significant high involvement score(p<0.05) for the mother. 4. Mothers in general represent a statistically significant high involvement in home treatment. In the meantime, the mothers in a nuclear family show a higher involvement home treatment than mothers in an extended family(p<0.01). 5. Among those respondents who think that home treatment is helpful and that mothers' involvement in home treatment is helpful, the mothers record a statistically significant high involvement score(p<0.05). When seen from the above perspectives, it seems of much significance that fathers and other relatives or family members play an important role in enhancing the involvement of mothers in home treatment. One point to note here is that providing a long home treatment time is crucial. Therefore, it is recommended that family members have access to rehabilitation treatment for training developmentally delayed children or their care giver; and moreover, we needed to carry out family training or at least arrange for meetings between the family members and medical personnel involved in the child's rehabilitation.
Journal of rehabilitation welfare engineering & assistive technology
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v.2
no.1
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pp.1-4
/
2009
In this paper, I will report the cases of children who are able to study at kindergarten or elementary school because they learned how to move by themselves using a moving aid before school age, and I will also discuss the development of a mobility device which allows severely disabled preschoolers to practice moving around by themselves safely and easily at home and institutions.
Many studies have shown that the parents of developmentally disabled children are adversely affected by the experience of raising a child of this type. However, the range of reactions to parenting a handicapped child is quite varied and is presumably affected by a wide variety of variables. This study examined a number of demographic and psychosocial variables to determine which particular combination could best predict the current level of stress and coping behavior of mothers. Among predictor variables, marital satisfaction and dysfunctional attitude are variables that I am particularly interested in which can mediate parental stress. Five variables are found to be related to the stress of mothers, that is, level of disability, level of needed help, marital satisfaction, type of disability, father's education level. Also variables that affect four different types of stress (which are four factors of QRS-F) are analysed and the results presented. Among these variables, some are pre-determined and some are intervenable. We should make an effort to make changes in those intervenable variables such as marital satisfaction, beliefs and attitude about disability, and level of needed help. In future research we need to search and clarify the beliefs and attitude that help mothers adjust to a life with a disabled child. Also governmental support and policy making to reduce the burden of these mothers should be accompanied as well.
Purpose: The purpose of this study was to investigate the health education needs of mothers who are nurturing children with disabilities. Method: A descriptive study was done and the participants were 108 mothers of children with disabilities such being mentally challenged, developmentally delayed or having a disability involving brain damage. The questionnaire was a health education need assessment with 11 categories(58 items) developed by Han et al. The data were analyzed using SPSS program. Results: The mean score for health education needs of the mothers of children with disabilities was 3.83 (SD=0.58) out of a maximum 5. The health education need for acquisition of knowledge and information had the highest score (4.40±0.54) followed by health education needs for cognitive development and learning (4.31±0.64), interpersonal relationships (4.04±0.65) and behavior and emotion (4.04±0.79). There were significant differences between the children's sex (t=2.08, p=.04), birth order (t=2.17, p=.03), grade of disability (F=3.32, p=.02) and sex education suitable to the child's in age. Conclusion: The health education needs of mothers of children who are disabled were very high and varied. Therefore, it was important to develop comprehensive education programs which include this content and provide opportunities for mothers of children with disabilities to receive this education.
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