• Asian Pacific Journal of Cancer Prevention
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• v.13 no.8
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• pp.4141-4145
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• 2012

In this study, the aim was to examine the effects of caring burdens of family caregivers of cancer patients on their quality of life in the east of Turkey. Data were collected at the Chemotherapy unit of Yakutiye Research Hospital of Ataturk University. Participants were 18 years old and older. The sample included 190 family caregivers who were living in the same flats with the patients during caregiving. Data were collected using a questionnaire that included socio-demographic questions for family caregivers and the Burden Interview, and the Caregiver Quality of Life Index-Cancer (CQOLC) Scale. SPSS version 14.0 was used to analyse the data. Descriptive statistics were computed for demographic variables of family caregivers. Pearson correlation analysis was used to analyze the relationship between the care burden and quality of life, linear logistic regression analysis was applied to determine the effect care burdens have on the quality of life, and logistic regression analysis was employed to determine the effect descriptive characteristics and care-related properties have on the quality of life. The score mean of the burden interview of caregivers was $36.6{\pm}11.2$; and their score mean of CQOLC was $81.4{\pm}17.3$. This study concluded that there was a negative relationship between caring burdens and the quality of life (p<0.001); descriptive characteristics, caring-related properties, and caring burden variables were all significant predictors of the quality of life. It is recommended that caregivers are given support by being offered training about providing care.

• Korean Journal of Adult Nursing
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• v.26 no.2
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• pp.191-202
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• 2014

Purpose: This study was aimed to survey the actual caregiving conditions of family caregivers who are caring patients with rare and incurable diseases using home ventilators at home, and to clarify any factors affecting their burdens and quality of life. Methods: A questionnaire survey was performed by the 159 subjects, and the questionnaires contained the actual conditions of caregiving activities, and caregiver's burdens and quality of life. The collected data was analyzed by ANOVA, Pearson's correlation, and stepwise linear regressions. Results: The mean of burden scores was 3.55 out of 5, and influencing variables included the relationships with patient (spouse), respite (moderate), health status, and diagnosis (non ALS), with the explanatory power of 30.0%. The mean of the quality of life was 2.58 point, and the influencing variables included burdens, health status, and respite (enough), with the explanatory power of 39.0%. Conclusion: In order to improve the quality of life among family caregivers caring for patients with using a home ventilator, it is required to develop strategies for reducing caregiving burdens as well as to introduce family respite welfare systems to family caregivers.

• Research in Community and Public Health Nursing
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• v.21 no.4
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• pp.439-447
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• 2010

Purpose: This study was to describe the burden of aged parents caring for adult children with disabilities and related factors. Methods: The subjects were 123 caregivers aged over 65 who were caring for 18-year-old or older children with disabilities. The research tool of this study was a structured questionnaire on family burden. Data were collected from June 3 to 25, 2010, and analyzed by Cronbach's alpha, mean, standard deviation, t-test, and ANOVA using SAS 9.2 program. Results: The major findings of this study were as follows. Elderly parents caring for adult children with disabilities perceived a moderate level of burden. The burden from concern over their children's future was highest, and economic and physical burdens were higher when the parents were younger. Burden was significantly different according to parents' characteristics such as gender, perceived health status, disease, the costs of caring for disabled children, and children's characteristics such as disability rating, health status, and ADL. Conclusion: In order to reduce the burden of elderly parents caring for adult children with disabilities, we need to improve their health status and assess comprehensive policies.

• Journal of Korean Public Health Nursing
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• v.15 no.1
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• pp.125-147
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• 2001

The objective of study is to investigate the degree of burden of family who care for the elderly with dementia and to find out the factors related to the family burden as a pilot study. The number of subjects was total 137 and they were the families who were caring for elderly with dementia. The data was analyzed by SPSS/PC, t-test ANOVA. The results were as follows: 1. The score of family burden who were caring for elderly with dementia was 2.90 and the score of burden was high in case of the limitation of indivisual social activities. which was 3.09 and the lowest score was in case of the health of physical and limited which was 2.58 2. There was the correlation the level of dementia and the degree of burden of family who care for the elderly with dementia in character of dementia (p<0.05). 3. There was the correlation between the abnormal activities of the elderly with dementia and the degree of burdens of family (r=0.330). 4. There was the correlation between ADL of the elderly with dementia and the degree of burdens of family (r=-0.330). 5. The service duration had statistically significant correlation with burden In the character of family (P<0.05). 6. The using facility had statistically significant correlations with burden in the character of socity (P<0.05).

• Korean Journal of Human Ecology
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• v.23 no.2
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• pp.205-217
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• 2014

This study examined attitudes of grandmothers who had experience in grandchild care in order to explore their subjectivity. Research questions were 1) to categorize the attitudes toward grandchild care, and 2) to analyze each type's characteristics and elucidate the analyses. The results are as follows. Grandmothers' attitudes toward grandchild care were categorized into three types: (1) adjusting-to-role-change type, (2) recognizing-the-role-burdens type, (3) enjoying-the-traditional-role type. Type 1, the adjusting-to-role-change type was aware of positive facets of grandchild care, and actively accepted the caring responsibility, but did not think it was a grandmother's duty to care for the grandchildren or that it was the sole pleasure in a grandmother's life. Type 2, the recognizing-the-role-burdens type, had a negative view regarding grandchild care, perceiving the cost too high relative to the reward. On the other hand, Type 3, the enjoying-the-traditional-role type considered grandchild care as a pleasure and a duty, and downplayed negative aspects such as having no time to herself, assuming the traditional grandmother role and enjoying it. These results imply that the attitudes of grandmothers nowadays are undergoing a change from the traditional grandmother role attitude.

• Journal of Korean Academy of Nursing
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• v.37 no.2
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• pp.242-248
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• 2007

Purpose. Parkinson's disease (PD) is a common neurodegenerative disorder characterized by motor disabilities and increasing dependence on others for daily life activities with consequent impact on patients' and caregivers' quality of life. The aim of this study was to elucidate the burden on primary caregivers of patients with PD, and identify related factors. Methods. A cross-sectional descriptive study. Seventy-six primary caregivers of PD patients in a neurology out-patient clinic, Seoul, Korea completed structured questionnaires, of which 68 were analyzed. The structured self-report questionnaire included (1) demographic information on the caregivers, (2) information regarding the disease characteristics of the patients, and (3) the subjective and objective caregiver burdens as assessed on Montgomery, Gonyea, & Hooyman's scale. Results. The mean age of the caregivers was 54.56 years, and spouses represented the largest proportion (47.0%). Caregivers of PD patients experienced high levels of burden (mean scores on the subjective and objective burdens were 45.22 and 34.90, respectively), which were comparable to the caregiver burdens in stroke, and higher than the caregiver burdens in general chronic disease. Older caregivers and spousal caregivers experienced significantly higher burdens (p=.004 and p=.019, respectively). A greater motor disability and higher modified Hoehn and Yahr grade were related to higher caregiver burden (p=.001 and p=.018, respectively). Conclusion. Caring for PD patients is associated with a high level of caregiver burden. Therefore, healthcare professionals should identify the burden of caregivers who look after PD patients and develop comprehensive management strategies both for patients and their caregivers.

• Journal of the Korean Home Economics Association
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• v.34 no.5
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• pp.293-306
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• 1996

An educational program for parent caregiving families has been developed with a view to help mitigate burdens of those who provide caring services for their aged parents and to meet the needs of both the caregiving middle-aged daughter-in-law and the parent. The program has been applied to a small group of people who at least one living aged parent. The effectiveness of the program has been evaluated by taking pre- and posttests. The result of the tests strongly suggest that the program has been effective in improving participatns' knowledge on aging process, confict solving and relationship with parent.

• Korean Institute of Interior Design Journal
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• v.14 no.4 s.51
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• pp.70-78
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• 2005

The considerable increase of the elderly with dementia is expected annually and when we think about the family members' and the patients' suffering, it could be painful. Above all things, it imposes heavy economic burdens on the family members that have patients who suffer from diseases of age like dementia or paralysis that caring them at home and also, it is not desirable for those old people in point of physical or environmental circumstances for medical care. Thus, it is needed urgently that the expansion of specified facilities and improvement of services for these old people. Under this present condition, it is the special feature that the subject of research is people/facilities that offer services, not the elderly with dementia-the main user of those facilities. Thus, it is the time that we need various accessing plans that can grasp the patiences' activities and specialties and solve these problems in view of designing interior space. So, I tried to make designs that manage the elderly with dementia effectively and adequate to run facilities with considerations on the state of domestic specialized long-term care facilities for the elderly with dementia and researched guiding principles on physical healing surroundings with analysis that focused on the patients' activities, especially.

• Journal of Korean Academy of Nursing
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• v.31 no.4
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• pp.669-680
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• 2001

Purpose: This study is used to investigate the correlation among a stroke patient family's health, burden and quality of life. Method: Data was collected from one hundred twenty family care-givers registered at K and H Hospital in Seoul. Questionnaire data was drawn up by personal interviews aided by the staff nurses. The analyses of collected data are based on the rate of 100 percentage to the average, t-test, ANOVA, DMR, Pearson Correlation. Result: (1) The influential factors on physical health proved to be age, sex, academic career, matrimonial status, present occupation, economic situation, the relationship with the patient, the patient-caring term, and the family-formation. The psychological health issues were age, final academic career, matrimonial status, the relation with patient and the family-formation. Burdens were shown to be age, matrimonial status, the relation with patient, and the patient-caring term. The quality of life was determined by age, final academic career, matrimonial status, and the relationship with the patient, the patient- caring term, and the family-formation. (2) The rate of the physical condition was 2.87, the psychological condition 2.43, the sense of burden 3.08, and the quality of life was 2.42. (3) The rate of correlation between the burden and the quality of life was (r= -.547), the psychological health and the burden was (r= -.531), the physical health and the burden was (r= -.263), physical health and quality of life was (r= .301), psychological health, and quality of life was (r= .413). Conclusion: It follows from this study that there is a very close correlation among the stroke patient family's health, the burden, and quality of life. Therefore it is necessary that we should find various nursing intervention ways in order to mitigate the burden of family when caring for the stroke patients.

• Journal of Families and Better Life
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• v.20 no.2
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• pp.97-111
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• 2002

Despite the substantial increase of the elderly population in Korea, welfare policies such as housing programs have not been developed enough to meet the diverse needs of the aging people. Particularly, caring for elderly dementia patients is becoming a serious social problem in Korean society. Families are still primarily responsible for taking care of the elderly dementia patients, and thus are suffering from tremendous caregiving burdens. In many Western countries, group homes, which are small-scale care facilities with home-like atmosphere, have become common housing alternatives for elderly dementia patients. Group homes effectively create a therapeutic environment while helping reduce the elder care burdens for the families. This article proposes to review group homes as a housing option for the elderly with dementia in Korea. The purpose of this article is to make suggestions for housing policies, separately or as a part of more general welfare policies. Based on the questionnaire survey conducted on 912 persons currently residing in Seoul and five different provinces, various possible policies and suggestions to promote establishing group homes and other facilities for elderly dementia patients are discussed in this article.