• Title/Summary/Keyword: adolescent survivors of childhood cancer

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Social Adjustment of Adolescent Cancer Survivors: A Concept Analysis

  • Oh, Su-Mi;Lee, Hyejung;Kim, Sue;Kim, Sanghee;Lyu, Chuhl Joo
    • Child Health Nursing Research
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    • v.25 no.3
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    • pp.290-302
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    • 2019
  • Purpose: This study aimed to identify the attributes of social adjustment among adolescent cancer survivors using concept analysis and to propose a definition of the concept. Methods: In accordance with the hybrid model of concept analysis, this study employed a three-phase circular process comprising theoretical, fieldwork, and final analysis phases. A thorough literature review was conducted using MEDLINE, Embase, and Korean databases, followed by qualitative fieldwork with seven participants. The results derived from the theoretical and fieldwork phases were integrated into the final analysis phase. Results: Four attributes of social adjustment were found in adolescent cancer survivors: having harmonious relationships with friends, having harmonious relationships with boy/girlfriends, fulfilling their present roles, and planning for and expecting future roles. The following definition of social adjustment of adolescent cancer survivors is proposed: "the conquering of difficulties arising from the continuum of childhood cancer and the achievement of the developmental tasks of typical adolescents." Conclusion: Social adjustment of childhood cancer survivors is crucial for integrating them into society. The findings of this study provide a basis for developing an instrument to measure the social adjustment of adolescent cancer survivors and for developing of interventions that target this group.

Research trends related to childhood and adolescent cancer survivors in South Korea using word co-occurrence network analysis

  • Kang, Kyung-Ah;Han, Suk Jung;Chun, Jiyoung;Kim, Hyun-Yong
    • Child Health Nursing Research
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    • v.27 no.3
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    • pp.201-210
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    • 2021
  • Purpose: This study analyzed research trends related to childhood and adolescent cancer survivors (CACS) using word co-occurrence network analysis on studies registered in the Korean Citation Index (KCI). Methods: This word co-occurrence network analysis study explored major research trends by constructing a network based on relationships between keywords (semantic morphemes) in the abstracts of published articles. Research articles published in the KCI over the past 10 years were collected using the Biblio Data Collector tool included in the NetMiner Program (version 4), using "cancer survivors", "adolescent", and "child" as the main search terms. After pre-processing, analyses were conducted on centrality (degree and eigenvector), cohesion (community), and topic modeling. Results: For centrality, the top 10 keywords included "treatment", "factor", "intervention", "group", "radiotherapy", "health", "risk", "measurement", "outcome", and "quality of life". In terms of cohesion and topic analysis, three categories were identified as the major research trends: "treatment and complications", "adaptation and support needs", and "management and quality of life". Conclusion: The keywords from the three main categories reflected interdisciplinary identification. Many studies on adaptation and support needs were identified in our analysis of nursing literature. Further research on managing and evaluating the quality of life among CACS must also be conducted.

Grieving among Adolescent Survivors of Childhood Cancer: A Situational Analysis (청소년 소아암 생존자의 슬픔: 상황분석)

  • Jin, Juhye
    • Child Health Nursing Research
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    • v.20 no.1
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    • pp.49-57
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    • 2014
  • Purpose: The purpose of this qualitative study was to explore how adolescent survivors of childhood cancer grieve the death of cancer peers. Methods: Data were obtained from Korean adolescents with cancer between the ages of 13 and 18 (N=12) through semi-structured interviews (face-to-face, telephone, and Internet chatting), observations of the social dynamics of participants in self-help groups, and retrieval of personal Web journals. Based on the grounded theory methodology, data collection and analysis were conducted simultaneously, and constant comparative methods were used. Clarke's situational analysis was adopted, and this paper focused on presenting "how to" and "what we can learn" from this analytic strategy. Results: Mapping examples were visualized using of three modes of maps. Adolescent cancer survivors coped with reminders of the "darkness" that ultimately featured their overall grief. Additionally, adolescents' encounters and avoidance of grief were triggered by introspection and interactions with family and friends. Conclusion: Situational analysis provided an efficient way to analyze the experiences of adolescent survivors of childhood cancer by systematizing possible information within the relational social contexts of the research phenomenon.

Content Analysis on Psychosocial Adjustment of Adolescent Survivors of Leukemia (백혈병 생존 청소년의 심리사회적 적응에 대한 내용분석)

  • You, Mi-Ae
    • Child Health Nursing Research
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    • v.12 no.3
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    • pp.304-313
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    • 2006
  • Purpose: This study was done to describe psychosocial adjustment of adolescents who have survived childhood acute lymphocytic leukemia (ALL). Method: Out of a total of 16 adolescents ($11{\sim}20$ years old) registered at the Pediatric Oncology Clinic at one university affiliated hospital, 13 adolescents agreed to participate in this study. The data were collected through in-depth interviews using a semi-structured questionnaire. The contents of the interviews were analyzed using the inductive content analysis method. Result: Three main categories were identified 'personal characteristics', 'coping patterns', and 'interpersonal relationship'. Personal characteristics included self-praise, self-confidence, altruism, being worrisome, and being difficult. Coping patterns included positive thinking, activeness, and avoidance. Interpersonal relationship included appreciation, intimacy, burdened by over protectiveness, and feelings of regret and equality as peers. Conclusion: The results indicate that adolescents who have survived childhood cancer have both positive and negative experiences. It is suggested that care providers identify and support the strengths of the adolescents in order to help them to adjust more positively after the experience of childhood cancer.

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Rapping as a Means of Improving Self-Expression: A Case Study of Adolescent Survivors of Childhood Cancer (소아암 완치 청소년의 자기표현 경험을 위한 랩 만들기 사례)

  • Choi, Jieun
    • Journal of Music and Human Behavior
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    • v.16 no.2
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    • pp.27-51
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    • 2019
  • This case study aimed to investigate changes in self-expression following participation in a rap making program with adolescent survivors of childhood cancer. The rap making program was constructed based on the contextual support music therapy model. Three adolescent survivors of childhood cancer participated in six 80-minute individual sessions. During the sessions, each participant engaged in the following tasks: song discussion, lyric creation, and rapping over a selected beat. At pre and posttest, the Self-Expression Scale was completed by participants. Their verbal expressions lyrics were observed during the sessions, and individual interviews with the participants were conducted at the completion of the program. The results demonstrated that the mean rating of the Self-Expression Scale increased after the rap making intervention. Analysis of the participants' verbal expressions and lyrics demonstrated that participants were experiencing difficulties adjusting to school that they wanted to resolve. Furthermore, the analysis of the interviews at posttest found that participants experienced positive changes in self-perception, self-expression, and expectations for their future, compared to the pretest when the participants expressed negative self-perceptions due to difficulties in interpersonal relationships at school and physical limitations. This indicates that rap making can be an effective resource for providing this population with the means to recognize positive attributes about themselves and improve self-expression.

Healthy lifestyle interventions for childhood and adolescent cancer survivors: a systematic review and meta-analysis

  • Kyung-Ah Kang;Suk Jung Han;Jiyoung Chun;Hyun-Yong Kim;Yerin Oh;Heejin Yoon
    • Child Health Nursing Research
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    • v.29 no.2
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    • pp.111-127
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    • 2023
  • Purpose: This study investigated the effects of healthy lifestyle interventions (HLSIs) on health-related quality of life (HR-QoL) in childhood and adolescent cancer survivors (CACS). Methods: Major databases were searched for English-language original articles published between January 1, 2000 and May 2, 2021. Randomized controlled trials (RCTs) and non-RCTs were included. Quality was assessed using the revised Cochrane risk-of-bias tool, and a meta-analysis was conducted using RevMan 5.3 software. Results: Nineteen studies were included. Significant effects on HR-QoL were found for interventions using a multi-modal approach (exercise and education) (d=-0.46; 95% confidence interval [CI]=-0.84 to -0.07, p=.02), lasting not less than 6 months (d=-0.72; 95% CI=-1.15 to -0.29, p=.0010), and using a group approach (d=-0.46; 95% CI=-0.85 to -0.06, p=.02). Self-efficacy showed significant effects when HLSIs provided health education only (d=-0.55; 95% CI=-0.92 to -0.18; p=.003), lasted for less than 6 months (d=-0.40; 95% CI=-0.69 to -0.11, p=.006), and were conducted individually (d=-0.55; 95% CI=-0.92 to -0.18, p=.003). The physical outcomes (physical activity, fatigue, exercise capacity-VO2, exercise capacity-upper body, body mass index) revealed no statistical significance. Conclusion: Areas of HLSIs for CACS requiring further study were identified, and needs and directions of research for holistic health management were suggested.

Discrepancy between Parent and Child Report on Quality of Life and Behavioral Problems in Child and Adolescent cancer survivors and Healthy Control Group (소아암 생존자 집단과 건강통제 집단의 삶의 질과 문제행동 비교 및 부모보고와 자기보고의 차이 연구)

  • Kim, M.H.;Chung, C.M.;Rhee, M.A.;Ryu, C.J.;Won, S.C.;Shin, Y. J.
    • Korean Journal of Health Psychology
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    • v.16 no.3
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    • pp.483-500
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    • 2011
  • Since the introductionof modern therapies, more children with cancer have survived their illness. As a result, an interest in the degree of adjustment achieved by cancer survivors has increased. In this study, quality of life and behavior problemsof child and adolescent cancer survivors were compared with those of healthy controls. Also, the patternsof the discrepancy between parent-report and self-report were compared. Childhood cancer survivors aged 8-18 and their mothers were participated in the study. Parent and self report versions of PedQL were administered to assess the quality of life. K-CBCL and K-YSR were further completed to assess internalizing and externalizing behavior problem. Results suggested that cancer survivors generally showed lower quality of life in physical and social domains and more internalizing behavior problem than healthy control group. However, the results were affected by the domain, age group, and informant. The pattern of discrepancy between parent and self report was similar. All parents reported higher levelsof quality of life and lower levels of behavior problems compared to the self reports of their siblings. In assessing internalizing problem behaviors, cancer survivor group showed greater discrepancy than the healthy control group.The implications, limitations, and directions for future research were also discussed.

Measurement Properties of Self-Report Questionnaires Measuring the Social Adjustment for Youth after Treatment of Childhood Cancer: Systematic Review (소아암 치료 종료 후 청소년의 사회적응 자가 보고 설문지의 측정 속성: 체계적 문헌고찰)

  • Oh, Su-Mi;Park, Sun-Young;Lee, Hye-Jung;Lee, Ju Hee
    • Child Health Nursing Research
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    • v.24 no.1
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    • pp.78-90
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    • 2018
  • Purpose: The purpose of this study was to evaluate measurement properties of self-report questionnaires measuring the social adjustment for youth after treatment of childhood cancer. Methods: Social adjustment measurement tools were identified through a two-stage systematic review. First, we searched for articles using self-report questionnaires to measure the social adjustment of youth after the treatment of childhood cancer. The appropriate tools were listed and categorized. Second, using methodological filters, we searched 5 electronic databases for articles examining the measurement properties of the tools when used with youth after the treatment of childhood cancer. The quality of these papers was then evaluated using the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) checklist. Results: Eight tools were frequently used to measure social adjustment. Eight studies investigated the measurement properties of 4 of these tools. The PedsQL 4.0 and MMQL-AF had moderate to strong evidence in some domains, but the rest of the domains had a lack of evidence. The SF-36 and KIDSCREEN-27 were validated for only a few areas. Conclusion: We found a lack of evidence regarding the measurement properties of these tools. More research is required on the measurement properties of tools for use in this population.