• 제목/요약/키워드: a brother of the disabled

검색결과 2건 처리시간 0.017초

장애형제를 둔 비장애형제의 질적 연구 동향 및 향후 과제 (Trends in Qualitative Research and Future Tasks of Non-Disabled Brothers with Disabilities)

  • 임효정;김민지
    • 한국융합학회논문지
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    • 제12권7호
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    • pp.243-252
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    • 2021
  • 본 연구는 장애 형제를 둔 비장애 형제들의 경험에 대한 질적 연구의 동향을 분석하기 위해 최근 10년 동안 국내 학술지 중 등재지 또는 등재후보 학술지에 발표된 논문을 RISS 등 검색사이트를 통해 분석하여 17편의 논문을 선정하였다. 이후 17편의 논문을 연구 참여자, 연구 방법, 연구 주제 등에 따라 분석하였다. 그 결과, 질적 연구 방법 중 현상학적 연구 방법의 연구가 가장 많이 시도되었으며 참여자의 연령은 20대를 포함한 연구가 많았다. 또한 비장애형제의 출생순위나 성별, 장애 유형 등을 구분하지 않는 연구들이 많아 향후 이를 세분화한 연구가 필요함을 알 수 있었다. 향후 연구과제에 주는 시사점은 다음과 같다. 비장애 형제의 경험을 심층적으로 탐구하고 이해하는 현상학적 연구를 넘어 이론화를 시도하여 실제 정책에 반영할 수 있는 근거이론 등 다양한 연구 방법이 시도되어야 하며 참여대상의 세분화도 이루어져야 할 것이다. 또한, 비장애 형제들이 원하는 동질적 집단에 관한 연구와 지원도 요청되고 있다는 것을 확인하였다.

뇌성마비아 어머니의 경험 (Lived experience of mothers who have child with cerebral palsy)

  • 이화자;김이순;이지원;권수자;강인순;안혜경
    • Child Health Nursing Research
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    • 제2권1호
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    • pp.93-111
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    • 1996
  • The purpose of the study is to identify the lived experience of mothers who have children with cerebral palsy in order to understand their agony. Moreover, the result of study was to find some nursing intervention for disabled children and their mothers. For this purpose, ten mothers who are willing to cooperate with this research were selected at random from those who have children with the cerebral palsy, currently using the municipal facilities for the handicapped with cerebral malfunction. Data collection was done from October 4, 1994 th December 31, 1994. The data were collected by asking the mothers mentioned above with some unstructured open-ended questions, recorded on the tapes with permission by the interviewee in order to prevent missing of the interviewed contents. These collected data have been substantiated and properly analyzed on the basis of phenomenological approach initiated by Colaizzi's method. The results and validity are proved to be credible by means of the individual checking of the interviewed mothers. The results of this study are as follows : 1. When the mother is first informed of the diagnosis of cerebral palsy on her child, she usually misses the crucial timing needed for proper treatment of the child's disorder because she is notified through the doctor's indifference and his apparently inactive, matter-of-fact attitude. At first she suspects the doctor's diagnosis and tries to attribute it to the unknown cause from a certain genetic problem and then she quickly wants to deny the whole situation that her child is really suffering from the cerebral palsy. The reality is too much for her to accept as it is and she would not believe her child is abnormal. Therefore, she even attempts depend on the power of God for its solution. 2. The mother, who goes thorough this kind of uncommon experiences, is totally devoted to the treatment and care of the child and completely ignores her own life and happiness. At the same time, she feels sorry for her other normal children she believes having not enough care and concern. Also, she feels sorry for the sick child when the child's brothers or sisters show special concern for the patient out of sympathy. It is sorry and not satisfied for her that the child is growing with abnormality and neighbor other around have inappropriate attitudes. Likewise, she is discontent with her husband's lack of concern about the child's treatment. She believes that the health care system in this society isn't fulfilling its due purpose. In the state of her utmost distress and anxiety, she always feels the need of competent consultants, and is angry about that her child is treated as an abnormal being, she is trying to hide the child from other people and to make him or her disappear, if possible. Although she doesn't have harmonious relation with her husband, she id happy when he shows his affection for the child and she feels relieved and thankful when the relatives don't mention about the child's condition Since the child's overall status of health is continuously in unstable conditions, requiring her all-time readiness for an emergency, she feels guilty of her child's illness toward the fEmily members as if it was her own fault to have borne such an abnormal child and she feels responsible for the child morally and financially if necessary Because her life is centered on taking care of the child, she cannot afford to enjoy her own life and happiness. She is a lonely mother, fatigued, with no proper relationship with other people around her. With this sense of guilt and responsibility as a mother of an unusual disease, she has no choice but to grieve her destiny from which she is not allowed to escape. 3. Nevertheless, the mother with the child suffering from the cerebral palsy does not easily give up the hope of getting her child cured and she believes that in the long run, though slower than hoped, her abnormal son or daughter will be eventually cured to become a normal sibling someday. This kind of hope is sustained by the mother's strong faith coming from observing the progress of other similar children getting better. Sometimes she is encouraged to have this faith by other mothers who share the same painful experiences, believing that her child will improve even more rapidly than others with the same palsy. Full of hope, she painstakingly waits for the child's healing. Moreover, she plans to have another child. she thinks that the patient child's brothers and sisters only can truly understand and look after the patients. However, when she notices that the progress of other children under the treatment does not look so hopeful, she is distressed by the thoughts that her child may never get well. Too, she is worried that the patient's brother or sister will be born as the same invalid with the cerebral disease. She is discouraged to have another baby as much as she is encouraged to. She is also troubled by the thought that in case she has another baby, she will have to be forced. to neglect the patient child, especially when she does have an extra hand or some reliable person to help her with taking care of the patient.

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