• 제목/요약/키워드: The Mother of a Handicapped Child

검색결과 11건 처리시간 0.021초

장애아동 어머니가 지각하는 배우자의 협력정도가 양육스트레스에 미치는 영향: 양육효능감의 매개효과 (The Influence of the Degree of Cooperation of the Spouse Perceived by the Mother of a Handicapped Child on Parenting Stress: Mediating Effect of Parenting Efficacy)

  • 고강호
    • 한국콘텐츠학회논문지
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    • 제18권9호
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    • pp.273-283
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    • 2018
  • 본 연구는 장애아동을 양육하고 있는 어머니가 지각하는 배우자의 협력정도가 양육스트레스에 미치는 영향을 살펴보고, 배우자의 협력정도와 양육스트레스 사이에서 양육효능감의 매개효과가 있는지 확인하는데 목적이 있다. 이러한 목적을 달성하기 위하여 장애아 전담어린이집을 이용하고 있는 장애아동 어머니 145명의 설문응답 자료를 분석하였다. 그 결과, 첫째, 장애아동 어머니가 지각하는 배우자의 협력정도는 양육효능감에 직접적인 영향을 미치는 것으로 나타났다. 둘째, 장애아동 어머니가 지각하는 배우자의 협력정도는 양육스트레스에 직접적인 영향을 미치는 것으로 나타났다. 셋째, 장애아동 어머니가 지각하는 배우자의 협력정도와 양육스트레스 사이에서 양육효능감의 매개효과가 나타났다. 즉, 장애아동 양육과정에서 어머니는 배우자의 협력을 많이 받는다고 지각할수록 양육효능감이 높아지고, 높아진 양육효능감은 양육스트레스 감소에도 영향을 미치는 것으로 볼 수 있다.

장애아 어머니의 양육 스트레스에 관한 생태학적 연구 (An Ecological Study on Parenting Stress of Mothers with Handicapped Children)

  • 하수민;윤종희
    • 대한가정학회지
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    • 제40권10호
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    • pp.191-200
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    • 2002
  • The purpose of the study was to investigate parenting stress of mothers with handicapped children. The study employed an ecological model. Data were collected from 142 mothers of handicapped children enrolled in early childhood education classes at welfare facilities in Seoul, Korea. The main results of the study were as follows: 1. The parenting stress of subject mothers was at a severe level. 2. The hierarchical regression analysis yielded the results that mother's depression(β=.383, p<.001), the degree of child's handicap(β=.307, p<.001), child's age(β=.274, p<.01), and mother's participation at parent education program(β=.176, p<.05) were significant factors in explaining mothers' parenting stress. The research model explained 45% of variance.

장애아 어머니의 부담감과 사회적지지에 관한 연구 (A Study of Burden and Social Support in Mothers of Handicapped Children)

  • 전화연;권혜정;김상진
    • 대한물리치료과학회지
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    • 제4권2호
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    • pp.439-452
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    • 1997
  • Mothers of handicapped children experience many problems and difficulties related to the child's prolonged dependency and demands for special care. Social support can be identified as stress-relieving factor, social support is considered to decrease the amount of negativeness in an individual or family. This study attempted to identify the level of burden and social support in mothers of children who are handicapped, and to determine whether social support is an effective strategy for burden relief in these mothers. The method used in the study was a correlational descriptive survey using a questionnaire. The subjects for the study were 42 mothers who have the handicapped children, between two to twelve years of age, being treated at S General Welfare House for Handicapped and S Rehabilitation Center in Seoul. The data were collected during 1 month from March 20 to April 20, 1996. The instruments used for this study was a structured questionnaire which was the Burden scale developed by Suh Mihae and Oh Kasil(1993) and the PRQ(Personal Resource Questionnaire) scale developed by Brandt & Weinert(1981). The collected data were analyzed using the SPSS computer program, yielding frequencies, percentiles, means, standard deviations, $x^{2}$-test, Pearson's correlation coefficienct, t-test and ANOVA. The results of this study are as follows ; 1)The range of age in the subjects was $29{\sim}44$ years, the range age in the handicapped children was $2{\sim}12$ years. 2) The mean score of burden, for the mothers of the handicapped children was 2.75(standard deviation was 0.47) of a possible total of 5. 3) The mean score of social support, for the mothers of the handicapped children was 4.99 (standard deviation was 0.59) of a possible total of 7. 4) There was an negative correlations hip between burden level and the social support, but there was no statistically significant correlationship between burden level and the social support(r = -.2252, p = .076) 5) In the general characteristics influencing on the burden level was significantly related with the sex(t = - 2.87, p = .007) and the degree of child's handicap level(F = 11.8680, p = .000l). In the general characteristics influencing on the social support was significantly related with the family(husband) support(F = 3.5199, p = .0240). There were significant differences in the mother's levels of burden depending upon the severity of child's handicap. In other words, the degree of mother's burden was directly proportionate to the degree of child's handicap level. There were significant differences in the mother's levels of social support depending upon the family(husband) support. In conclusion, on the basis of the results of this study, there was no statistically significant correlationship between burden level and the social support. Above results suggest that strategies for the intervention programs in diminishing the mother's burden and reinforcing the social support.

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간호 학생의 장애아 돌봄의 경험 (The Experience of Caring by Nursing Students in Handicapped Children)

  • 정향미
    • Child Health Nursing Research
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    • 제3권2호
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    • pp.203-218
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    • 1997
  • Caring is the essence and it is the central and unifying domain for the body of knowledge and practice in nursing. However a clear conceptualization of what caring in nursing does not yet exist. The purpose of this study is to research the phenomenon of caring by obtaining verbal description of the experience of caring in handicapped children, to provide basic information for developing theory of caring, and to teach the humanism centered education. The study design was a descriptive study using phenomenological method. The subjects for this study were 26 nursing students who cared for handicapped children in S rehabilitation center from August, 24 to October. 29 1994. Van kamm's phenomenological method was used for the analysis of the datas. The results are as follows : The experience of caring was classified with 15 common elements and 61 descriptive expressions from 120 raw data. The common elements were , , , , , , , , , , , , , .

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운동발달장애아 어머니와 아버지의 스트레스 비교 (Comparison of Stress Between the Mother and Father Who Have Children)

  • 송주영
    • 한국전문물리치료학회지
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    • 제5권2호
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    • pp.65-80
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    • 1998
  • Parents of handicapped children are experiencing difficulties in their children's care, social isolation, change of life style and lirnited leisure time. Because the parents should take care of the children's daily life, they have lots of psychological and physical stress. Chronic stress of parents puts stress to the other family members and affects the development of children with handicap. The purpose of this study were to identify the level of stress in each of parents of children with motor problem, the characteristics of the children and general information related with the children, and to analyse the stress by reasons. Specially organized questionnaire were used for an investigation method. "Test of stress in mother who has children with chronic illness" by Kim Hee-soon were modified and used. The questionnaire answered by 43 mothers and 35 fathers were analyzed. Data analysis includes frequency analysis, Pearson correlation coefficients, paired-samples t-test and MANOV A by SPSSWIN. The results were as follows: 1) Degree of handicap was most moderate (46.5%), level of motor development was most pull to walk (34.9%), and combined handicap was 69.8%. 2) Sexual distribution represented that 51.2% male and 48.8% female. The cost of physical therapy was 69.8% in no more than 100,000 won. 3) The mean of age, for the mother was 32.8 years and 35.3 years. Level of motor development that mother and father expect was 88.4%, 83% walk alone. 4) Both mother and father experienced stress in other of Part II (changes in father was the illness status of the child and difficulty in taking care of child), Part III (prognosis of the child's condition), Part I (social-personal relationships and the responsibility of the care givers). In the total score of stress, mother's stress is indicated higher level than father's stress. 5) There was no correlationship between characteristics and stress of mother and father. 6) There was no statistically significant difference between characteristics and related general information of children with handicap and stress of mother and father. As a results, the mother of children with handicap are experiencing more stress than the father. Both of parents have the most difficulties in the changes in the illness status of the child and difficulty in taking care of child. This study can be used as resources of education, therapy and counselling for children with handicap and their parents. This study, also, can be used to encourage the quality of Iife for the children with handicapped and their family.

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장애아 어머니의 불확실성, 사회적 지지 및 무력감 (Uncertainty, Social Support & Powerlessness in Mothers of Handicapped Children)

  • 박은숙;오원옥
    • Child Health Nursing Research
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    • 제5권2호
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    • pp.151-166
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    • 1999
  • The purposes of this study were to measure the degree of perceived uncertainty, social support & powerlessness, to examine the relationship between the perceived uncertainty, social support & powerlessness and then to find the predictors of powerlessness in mother's of handicapped children. The subjects of this study consist of 102 mothers of handicapped children, registered at rehabilitation & handicapped children school. Data was collected from September 1998 to March 1999. The tools used in this study were Mishel's the Parents' Perception of Uncertainty Scale (28 item, 4 likert scale), Miller's Powerlessness measurement Scale(28 itewt 4 likert scale) & Cohen's Interpersonal Support Evaluation List (40 items, 4 likert scale). Data was analyzed by t-test, ANOVA, Duncan comparison, Pearson Correlation coefficient & Stepwise multiple regression Results of this study are summarized as follows : 1. Mothers perceived their uncertainty to be slightly high(Mn 2.50). The degree of perceived uncertainty by the four components were followed as : lack of clarity(2.69), unpredictability(2.56), ambiguity(2.56) & lack of information(2.46). The degree of perceived uncertainty of the mothers of handicapped children revealed to be influenced significantly by age of children, admission experience, disability types of children. 2. The degree of mothers' powerlessness was measured to be slightly high(Mn 2.14). The degree of perceived powerlessness of the mothers with handicapped children revealed to be influenced significantly by age of children, duration of illness admission experience,8E marital status of the mothers. 3. Mothers perceived their social support to be slightly high(Mn 2.71). The degree of perceived social support revealed to be influenced significantly by sex of children, married state of mothers. 4. Mothers' uncertainty was related positively to the mothers' powerlessness(r=.33, p=.0008). And also mothers' powerlessness was related inversely to social support(r=-.50, p=.0001). But, mothers' uncertainty was not related to social support significantly. 5. To analyze the variables which affect powerlessness, stepwise regression was implemented. As a result, about 61% of the powerlessness were explained by social support, marital status of the mothers and perceived uncertainty. Based upon these results, it is recommended that the nurses, who are caring handicapped children and their families, provide various support programs for them to overcome their difficulties. Also programs which decrease the uncertainty & powerlessness used social support multidimensionally & individually are recommended to be developed.

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장애아동 보호자의 구강건강에 관한 인식도와 장애아동 치아우식경험과의 관련성 (The relationships between the realities of child's dental caries and guardian's acknowledgments and managements)

  • 구남희;이형숙;박천만
    • 한국치위생학회지
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    • 제1권1호
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    • pp.1-17
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    • 2001
  • This study was tried to suppose the necessity for the participations of the guardians or parents into dental health educations and for developing an educational program on the control of denial health in order to improve the dental health of handicapped children. For this research, it was investigated by a survey on the actual condition of dental health with an object of handicapped children, and simultaneously by analyzing the relationships between the realities of child's dental caries and guardian's acknowledgments and managements with regard to the dental health of the children. The 209 children and their guardians being in special school for the handicapped were surveyed about the actual conditions of dental health from 15 May to 30 June 2000. 1. The average of DT, MT, FT and DMFT index were 2.46, 0.13, 1.18 and 3.78, respectively. 2. As the parents' educational level (p<0.05) and economical incomes were high, the proportions the DMFT index were low (p<0.05). As the father of the handicapped children had a duty, the DMFT index were lower than the opposite case that the father had no duty. However. in the case of their mother, the presence of the duty has not showed any relationships with the DMFT index. And it was revealed that there was a tendency that the lower age of the parents showed the lower proportions (p<0.05) and index (p<0.001). 3. There was no meaningful differences for the DMFT index in the comparison between the children who can brush themselves or not, even though the children who can brush themselves showed relatively and slightly lower DMFT index than the children who can't do it themselves. 4. More frequent observations on the children's dental conditions by the parent resulted in the lower DMFT index(p<0.01). 5. As the parent had relatively more knowledges about the dental disease. the DMFT index were low. Therefore, as it was considered form these results, the parent should be required more positive participations for the improvement of their children's dental health. For promoting this participations, it must be required the development of educational programs and political services for the parent or guardians in order to improve the attendance into the educations.

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뇌성마비아 어머니의 경험 (Lived experience of mothers who have child with cerebral palsy)

  • 이화자;김이순;이지원;권수자;강인순;안혜경
    • Child Health Nursing Research
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    • 제2권1호
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    • pp.93-111
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    • 1996
  • The purpose of the study is to identify the lived experience of mothers who have children with cerebral palsy in order to understand their agony. Moreover, the result of study was to find some nursing intervention for disabled children and their mothers. For this purpose, ten mothers who are willing to cooperate with this research were selected at random from those who have children with the cerebral palsy, currently using the municipal facilities for the handicapped with cerebral malfunction. Data collection was done from October 4, 1994 th December 31, 1994. The data were collected by asking the mothers mentioned above with some unstructured open-ended questions, recorded on the tapes with permission by the interviewee in order to prevent missing of the interviewed contents. These collected data have been substantiated and properly analyzed on the basis of phenomenological approach initiated by Colaizzi's method. The results and validity are proved to be credible by means of the individual checking of the interviewed mothers. The results of this study are as follows : 1. When the mother is first informed of the diagnosis of cerebral palsy on her child, she usually misses the crucial timing needed for proper treatment of the child's disorder because she is notified through the doctor's indifference and his apparently inactive, matter-of-fact attitude. At first she suspects the doctor's diagnosis and tries to attribute it to the unknown cause from a certain genetic problem and then she quickly wants to deny the whole situation that her child is really suffering from the cerebral palsy. The reality is too much for her to accept as it is and she would not believe her child is abnormal. Therefore, she even attempts depend on the power of God for its solution. 2. The mother, who goes thorough this kind of uncommon experiences, is totally devoted to the treatment and care of the child and completely ignores her own life and happiness. At the same time, she feels sorry for her other normal children she believes having not enough care and concern. Also, she feels sorry for the sick child when the child's brothers or sisters show special concern for the patient out of sympathy. It is sorry and not satisfied for her that the child is growing with abnormality and neighbor other around have inappropriate attitudes. Likewise, she is discontent with her husband's lack of concern about the child's treatment. She believes that the health care system in this society isn't fulfilling its due purpose. In the state of her utmost distress and anxiety, she always feels the need of competent consultants, and is angry about that her child is treated as an abnormal being, she is trying to hide the child from other people and to make him or her disappear, if possible. Although she doesn't have harmonious relation with her husband, she id happy when he shows his affection for the child and she feels relieved and thankful when the relatives don't mention about the child's condition Since the child's overall status of health is continuously in unstable conditions, requiring her all-time readiness for an emergency, she feels guilty of her child's illness toward the fEmily members as if it was her own fault to have borne such an abnormal child and she feels responsible for the child morally and financially if necessary Because her life is centered on taking care of the child, she cannot afford to enjoy her own life and happiness. She is a lonely mother, fatigued, with no proper relationship with other people around her. With this sense of guilt and responsibility as a mother of an unusual disease, she has no choice but to grieve her destiny from which she is not allowed to escape. 3. Nevertheless, the mother with the child suffering from the cerebral palsy does not easily give up the hope of getting her child cured and she believes that in the long run, though slower than hoped, her abnormal son or daughter will be eventually cured to become a normal sibling someday. This kind of hope is sustained by the mother's strong faith coming from observing the progress of other similar children getting better. Sometimes she is encouraged to have this faith by other mothers who share the same painful experiences, believing that her child will improve even more rapidly than others with the same palsy. Full of hope, she painstakingly waits for the child's healing. Moreover, she plans to have another child. she thinks that the patient child's brothers and sisters only can truly understand and look after the patients. However, when she notices that the progress of other children under the treatment does not look so hopeful, she is distressed by the thoughts that her child may never get well. Too, she is worried that the patient's brother or sister will be born as the same invalid with the cerebral disease. She is discouraged to have another baby as much as she is encouraged to. She is also troubled by the thought that in case she has another baby, she will have to be forced. to neglect the patient child, especially when she does have an extra hand or some reliable person to help her with taking care of the patient.

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중증장애아동 어머니의 낮병원 및 보육서비스 이용 경험에 관한 연구 (A Study on Experience of Day Hospital and Day Care Service Use of The Mothers with Severely Disabled Children)

  • 전지혜;원영미
    • 한국보육학회지
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    • 제19권1호
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    • pp.159-174
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    • 2019
  • 본 연구는 중증장애아동의 주 양육자인 어머니가 낮병원과 보육서비스 기관 이용을 통해 자녀와 본인의 삶에 어떤 변화를 경험했는지, 어려움이 있었다면 무엇인지 알아보고, 중증장애아동의 의료적 욕구와 발달과업에 대한 욕구를 모두 충족시킬 수 있는 정책적 실천적 개선점을 논의하고자 하였다. 연구대상은 1년 이상 낮병원 이용 경험이 있고, 어린이집 또는 유치원을 이용한 장애아동 어머니 9명을 눈덩이 표집방법으로 모집하여 포커스그룹 면담 또는 개별면담을 실시하였다. 분석결과 중증장애아동 어머니는 자녀가 성장함에 따라 낮병원외의 기관을 알게 되고 이용하게 되면서 차츰 삶의 균형을 찾아가기 시작했다. 처음으로 자녀와 떨어져 지내며 걱정을 보이기도 했지만, 차츰 긍정적으로 생각하며 자녀와 떨어져 있는 시간에 적응하고 있었다. 연구 참여자들은 중증장애아동인 자녀도 낮병원 외에 어린이집이나 유치원을 이용하게 되면서 표정이 밝아지거나, 웃는 모습을 보이는 등 다양한 경험을 긍정적으로 하고 있다고 느꼈다. 이를 통해 연구 참여자들은 주변사람과의 쉼을 느끼고 재충전 되는 경험을 했다. 본 연구 결과를 통해 수요자 관점에서의 보육, 복지, 의료에 대한 종합적 정책적 제언을 논의하였다.

발달장애 아동을 위한 어머니 건강교육프로그램이 자녀 건강관리행위와 양육스트레스에 미치는 효과 (The Effect of the Health Education Program for Mothers with Developmental Disabled Children on Health Care Behavior and Parenting Stress)

  • 김혜영
    • 한국산학기술학회논문지
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    • 제17권6호
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    • pp.338-346
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    • 2016
  • 본 연구는 발달장애 아동을 가진 어머니를 대상으로 한 건강교육프로그램을 개발하고 건강관리행위와 양육스트레스 수준을 비교하여 효과를 검정한 비동등성 사전사후 대조군 실험설계 연구이다. 연구대상자는 발달장애 아동의 어머니로 실험군 28명과 대조군 26명으로 총 54명이다. 건강교육프로그램은 전문가 집단 토론과 선행연구들을 토대로 하여 개발하였으며, 프로그램 적용은 주 2회 교육으로 총 4주간 이루어졌다. 프로그램의 전반 2주간은 신체적 건강교육 내용이며, 후반 2주간은 사회심리적 교육내용으로 구성하였다. 사전, 사후, 추후를 통해 자료 수집을 하였으며, 수집된 자료는 repeated measure ANOVA를 통해 분석하였다. 연구결과 프로그램 적용 전, 프로그램 적용 후, 그리고 4주후에 따라 건강관리행위 수준은 향상되고, 양육스트레스는 유의하게 감소하는 것을 확인하였다. 또한 실험군이 대조군에 비해 유의한 차이를 보였다. 이러한 결과는 본 연구를 통해 개발된 건강교육프로그램이 대상자의 건강요구에 적합하였고, 건강관리행위 수준 향상과 양육스트레스를 감소시키는 데 효과적임을 알 수 있었다. 향후에도 발달장애 아동의 건강증진을 위해 다양한 건강교육프로그램 개발과 연구가 지속되어야 할 것이다.