• Title/Summary/Keyword: Supportive care needs

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Supportive Care Needs of Iranian Cancer Survivors and Relationships with Social Support

  • Faghani, Safieh;Mohammadian, Robab;Rahmani, Azad;Mohajjel-Aghdam, Ali-Reza;Hassankhani, Hadi;Azadi, Arman
    • Asian Pacific Journal of Cancer Prevention
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    • v.16 no.15
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    • pp.6339-6345
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    • 2015
  • Background: Assessment of supportive care needs of cancer survivors and identifying factors affecting such needs is important for implementation of any supportive care programs. So, the aims of present study were to investigate the supportive care needs of Iranian cancer survivors and relationships with social support. Materials and Methods: In this descriptive-correlational study two hundred and fifty cancer survivors participated via convenient sampling methods. The Supportive Care Needs Survey (SCNS-SF34) and Multidimensional Scale of Perceived Social Support (MSPSS) were used for data collection. SPSS software was applied and univariate regression was used for examine relationships of supportive care needs with social support. Results: Participants demonstrated many unmet supportive care needs, especially in health system and information and psychological domains. In addition, participants reported that family members and significant others were their main source of support. Also, social support has a significant correlation with all domains of supportive care needs. Conclusions: There is an indispensable need for establishment of supportive care programs for Iranian cancer survivors. In addition, family members of family members of such survivors are an important resource to help develop such programs.

Un-met Supportive Care Needs of Iranian Breast Cancer Patients

  • Abdollahzadeh, Farahnaz;Moradi, Narges;Pakpour, Vahid;Rahmani, Azad;Zamanzadeh, Vahid;Mohammadpoorasl, Asghar;Howard, Fuchsia
    • Asian Pacific Journal of Cancer Prevention
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    • v.15 no.9
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    • pp.3933-3938
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    • 2014
  • Background: Assessment of supportive needs is the requirement to plan any supportive care program for cancer patients. There is no evidence about supportive care needs of Iranian breast cancer patients. So, the aims of present study were to investigate this question and s predictive factors. Materials and Methods: A descriptive-correlational study was conducted, followed by logistic regression analyses. The Supportive Care Needs Survey was completed by 136 breast cancer patients residing in Iran following their initial treatment. This assessed needs in five domains: psychological, health system and information, physical and daily living, patient care and support, and sexuality. Results: Patient perceived needs were highest in the health systems and information (71%), and physical and daily living (68%) domains. Logistic regression modeling revealed that younger participants have more un-met needs in all domains and those with more children reported fewer un-met needs in patient care and support domains. In addition, married women had more un-met supportive care needs related to sexuality. Conclusions: The high rate of un-met supportive care needs in all domains suggests that supportive care services are desperately required for breast cancer patients in Iran. Moreover, services that address informational needs and physical and daily living needs ought to be the priority, with particular attention paid to younger women. Further research is clearly needed to fully understand supportive care needs in this cultural context.

Predictive Factors of Supportive Care Needs in Patients with Hematologic Malignancy (혈액암 환자의 지지적 간호 요구도 예측요인)

  • Jung, Ah-Rang;Yi, Myung-Sun
    • Korean Journal of Adult Nursing
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    • v.23 no.5
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    • pp.460-471
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    • 2011
  • Purpose: This study was designed to investigate the levels of anxiety, depression, physical symptoms, and supportive care needs in patients with hematologic malignancy and to identify predictive factors of supportive care needs. Methods: The data were collected from 100 subjects undergoing treatments during 2010 in Korea. The questionnaires included the Hospital Anxiety-Depression Scale, the M. D. Anderson Symptom Inventory, and the Supportive Care Needs Survey-Short Form 34. The data were analyzed using descriptive statistics, t-test, ANOVA, Pearson correlation, and stepwise multiple regression. Results: Forty percent of the subjects had anxiety and 58% had depression. Thirty-eight percent of the subjects reported to have moderate-to-severe levels of physical symptoms. The most severe physical symptom was lack of appetite, followed by fatigue and pain. In terms of supportive care needs, the health system and information domain showed the highest among all domains. Supportive care needs had a significant positive correlation with anxiety, depression, and physical symptoms. And its predictive factors were identified as anxiety, physical symptoms and marital status, with the explanatory power of 48.9%. Conclusion: These findings demonstrate that anxiety and physical symptoms should be assessed and treated to meet the supportive care needs of patients with hematologic malignancies.

Analysis of the educational needs of nurses in the neonatal intensive care unit for developmental supportive care (발달지지간호에 대한 신생아집중치료실 간호사의 교육요구도 분석)

  • Shin, Da-Ae;Bang, Kyung-Sook
    • The Journal of Korean Academic Society of Nursing Education
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    • v.27 no.3
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    • pp.261-273
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    • 2021
  • Purpose: This study used a descriptive investigative design to identify educational needs for developmental supportive care for the purpose of establishing a developmental supportive care education program for nurses in neonatal intensive care units. Methods: A survey was conducted on 93 nurses working in neonatal intensive care units located in a metropolitan area, and the collected data were analyzed using descriptive statistics and a paired t-test with the SPSS 25.0 program. For the purpose of analyzing educational needs, we further analyzed data through an importance-performance analysis (IPA) and the Borich needs assessment and the locus for focus models. Results: The average importance of the developmental supportive care of nurses in neonatal intensive care units was 3.74±0.78 out of 5, and the average performance was 3.46±0.81 out of 5. A t-test on the difference between the IPA and Borich needs assessment showed the highest educational need in the categories of 'individualized care', and 'I serve on the Developmental Care Committee at my institution'. In addition, according to the results of deriving the priorities of educational needs using the Borich needs assessment and the locus for focus model, the highest priority was 'I provide appropriate pain management when noxious procedures are necessary'. Conclusion: These findings can be used as basic data to design a developmental supportive care program suitable for nurses in neonatal intensive care units to meet the educational needs for developmental supportive care.

Analysis of the supportive care needs of the parents of preterm children in South Korea using big data text-mining: Topic modeling

  • Park, Ji Hyeon;Lee, Hanna;Cho, Haeryun
    • Child Health Nursing Research
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    • v.27 no.1
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    • pp.34-42
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    • 2021
  • Purpose: The purpose of this study was to identify the supportive care needs of parents of preterm children in South Korea using text data from a portal site. Methods: In total, 628 online newspaper articles and 1,966 social network service posts published between January 1 and December 31, 2019 were analyzed. The procedures in this study were conducted in the following order: keyword selection, data collection, morpheme analysis, keyword analysis, and topic modeling. Results: The term "yirundung-yi", which is a native Korean word referring to premature infants, was confirmed to be a useful term for parents. The following four topics were identified as the supportive care needs of parents of preterm children: 1) a vague fear of caring for a baby upon imminent neonatal intensive care unit discharge, 2) real-world difficulties encountered while caring for preterm children, 3) concerns about growth and development problems, and 4) anxiety about possible complications. Conclusion: Supportive care interventions for parents of preterm children should include general parenting methods for babies. A team composed of multidisciplinary experts must support the individual growth and development of preterm children and manage the complications of prematurity using highly accessible media.

A Relation between Family Values and Needs for Care-Support Family Policy (가족가치관과 돌봄노동지원정책 욕구의 관련성 연구)

  • Byun, Joo-Soo;Chin, Mee-Jung
    • Journal of Families and Better Life
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    • v.26 no.5
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    • pp.259-277
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    • 2008
  • Traditional familism and family value is known as the value that most Koreans share with. Strong family solidarity and family-centered perception among Koreans influences other social values and ideology. Under the family value, caring for family members is family responsibility instead of government responsibility. Previous studies argued that the family value played a role to impede the development of family policy in Korea. The aim of this study was to explore a relation between the family value and the needs for care-support family policy. This study investigated how the family value were related to the specific needs for care-support family policy. The data were drawn from the Seoul Families Survey conducted on 2006 by Seoul Women and Family Foundation. The survey data consisted of 2,500 married males and females living in Seoul. The statistical techniques used for analysis were frequencies, means, t-test, ANOVA, crosstabs, multiple regression models, and multinomial logit models. The major findings of this study were as followings. First, while the traditional familism appeared to be held at a certain level, the general attitudes towards cohabitation, divorce, and single-parent family seemed to be less traditional. Second, the familism was found to be partly associated with the needs for the care-support family policy. The respondents who had less traditional value on arriage and child-rearing showed the higher level of needs for daycare center. This finding implied that nontraditional attitudes were related to the needs for an alternative care service such as caring through facilities rather than to the needs for supportive or complementary services. Lastly, the respondents who had higher level of traditional familism showed a higher preference for direct economic service (supportive service) than for other types of service in child care. And the less traditional their attitudes towards marriage and child-rearing, the more likely they are to prefer flexible child care services and programs to other types of child care services. These results implied that the family value was partly influential to family policy. However, it is worthy to note that the family value was related to family policy preference rather than to family policy needs. In other words, traditional family value appeared to influence the types of family policy rather than the level of needs for family policy.

Support Needs for Health Promotion of Community-Dwelling People with Disabilities: Perspectives of Operators Managing Disability Supportive Housing (지역사회 거주 장애인의 건강관리 향상을 위한 지원 요구 분석: 장애인지원주택 운영 관리자의 관점에서)

  • Nam, Hye Jin;Lee, Haesun;Park, Han Nah;Lee, Sujin;Kim, Bohye;Yoon, Ju Young
    • Journal of Korean Academy of Nursing
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    • v.54 no.2
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    • pp.211-223
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    • 2024
  • Purpose: Recent studies have focused on policies aimed at supporting the independence of individuals with disabilities in communities. As part of this initiative, supportive housing, integrated care, and residential spaces offer tailored services based on individual needs and autonomy. The attitudes and knowledge of the administrators supporting supportive housing residents regarding health management can influence the well-being of individuals with disabilities. Therefore, this study aimed to explore the challenges faced by supporting housing workers in enhancing the self-management skills of individuals with disabilities. Methods: In this qualitative study, focus group interviews were conducted in August 2023 with nine administrators working to support housing in Seoul. Qualitative content analysis was used to analyze the interview data. Results: The needs and challenges in enhancing the self-management skills of individuals with disabilities were as follows: (1) the complexity of health management challenges, (2) bidirectional strategies for strengthening health management capabilities, and (3) support for systematic health management. Additionally, eight subthemes were derived. Conclusion: By investigating the difficulties experienced and identifying the necessary support requirements for supportive housing workers, this study seeks to uncover insights and identifies areas for improvement and strategies for health management. This study acknowledges the educational and institutional support necessary to improve the health and quality of life of individuals with disabilities residing in supportive housing.

University Students' Recognition of Family Support and Care's Socialization in the Elderly (대학생의 노인부양과 Care의 사회화에 대한 인식)

  • Jung, Hye-Sun;Lee, Jong-Ryol;Park, Chun-Man
    • Health Policy and Management
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    • v.21 no.1
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    • pp.93-114
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    • 2011
  • This study was conducted to identify college students' supportive attitude toward the elderly and their awareness of the socialization of care for the elderly, since they will have the responsibility for and the support of the aged society in the near future. This study was also conducted to analyze the factors which affect the socialization of elderly care, and to contribute to building a care system which promotes ahealthy and happy lifestyle for the elderly. After conducting a survey of 1,100 students from13 universities around the entire country, I have analyzed 1,089 data forms, and omitted 11 data entries which had errors or were not answered. 1. Those surveyed are 1,089 students from 13 universities around the entire country. Regional distributions are as follows : 263 students from 4 universities in Daegu and Kyongsangbuk Do(24.2%), 291 students from 3 universities in Busan and Kyongsangnam Do(26.7%), 272 students from 2 universities in Jeolla Do(25.0%), 263 students from 4 universities in Seoul and Gyeonggi Do. Males are 51.7% and females are 48.3% of these students. 2. Instrumental supportive sense level is high in men and emotional supportive sense level is higher in women. Also emotional supportive sense is higher in groups of those having more family members and coming from agricultural regions. 3. The sense of living with aged parents is higher in those living with grandparents than those living separate. The sense of living with sons and daughters after aging is stronger in the students from the Science and Engineering Departments than in the Social and Human Sciences Departments; also higher for men than women. 4. Recognition of elderly care socialization is higher in those from Social and Human Sciences Departments than from Science and Engineering Departments; higher in the case of upper classmenand aged groups, groups having fewer family members than more family members, and in the case of living separated from grandparents. 5. The factors affecting the sense of living with grandparents were family cohesion and instrumental supportive sense. The factors affecting the sense of elderly care socialization were family cohesion, instrumental supportive sense, and emotional supportive sense. From the results it is concluded that to insure a healthy and happy lifestyle for aged people, elderly care socialization offered by society and the country must provide desirable, appropriate care services based on the centralized support system of the family. In order to do this, we propose that elderly care needs inter-family and inter-generational fusion programs to improve family cohesion and care recognition. Also, elderly care is in urgent need to build a strong Family and Health Welfare System for care socialization.

Experiences of Treatment-Related Side Effects and Supportive Care with Korean Medicine in Women with Breast Cancer - A Focus Group Study (유방암 환자의 항암 치료 부작용 및 한의학적 보완치료 경험에 관한 포커스 그룹 연구)

  • Han, Sola;Jang, Bo-Hyoung;Hwang, Deok-Sang;Suh, Hae Sun
    • The Journal of Korean Obstetrics and Gynecology
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    • v.30 no.1
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    • pp.85-94
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    • 2017
  • Objectives: To explore experiences of treatment-related side effects and supportive care among Korean breast cancer survivors (BCS). Methods: Focus group interview was conducted with six Korean women with breast cancer. Participants were recruited through snow-balling. Interview was audio-recorded and transcribed verbatim. NVivo-11 was used to code the data into themes. Results: Two major themes were identified: (1) experiences of Western medicine, including treatment, side effects, needs and costs; (2) experiences of supportive care with Korean medicine, including the same as above. All participants experienced Western medicine in treatment phase and reported impairment of physical, emotional, and social functioning during and after Western medicine treatment. Only three participants used Korean medicine after treatments end. The negative responses from Western medicine doctors were the most important factor keeping participants from accessing Korean medicine when treatment-related side effects occurred. For this reason, some participants used Korean medicine without disclosure. Participants usually acquired information about Korean medicine from online community or other BCS, which was another important factor because it raised concerns about side effects and credibility of Korean medicine. High cost was also reported as barrier in using Korean medicine. During the cancer treatment, participants tended to endure their treatment-related side effects. Conclusions: Korean BCS may be at high risk of physical or emotional distress during treatment period. Findings suggest that there is a high need for supportive care to relieve treatment-related side effects and improve patients' quality-of-life. Furthermore, developing a systematic guidance or credible information sources should be warranted to help patients find the best supportive care options including Korean medicine.

Psychoeducational Approach to Distress Management of Newly Diagnosed Patients with Breast Cancer (진단 직후 유방암환자의 디스트레스 관리를 위한 심리교육프로그램의 효과)

  • Park, Jin-Hee;Chun, Mison;Jung, Yong Sik;Bae, Sun Hyoung;Jung, Young-Mi
    • Journal of Korean Academy of Nursing
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    • v.48 no.6
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    • pp.669-678
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    • 2018
  • Purpose: The purpose of this study was to examine the effects of integrated psychoeducational program for distress management of newly diagnosed patients with breast cancer. Methods: A quasi-experimental trial was conducted. The participants consisted of 47 female patients with breast cancer assigned to an intervention group (n=25) and control group (n=22). The intervention group participated in integrated psychoeducational program, consisting of individual face-to-face education and telephone-delivered health-coaching sessions. Data were collected at three time points: pre-intervention (T1), post-intervention (T2), and 6-month follow-up (T3). Study instruments were Distress thermometer, Supportive Care Needs Survey Short Form 34 and Functional Assessment of Cancer Therapy-Breast. Results: Compared with the control group, breast cancer patients in the intervention group reported lower distress and supportive care needs than the control group. The intervention group reported higher quality of life (QOL) overall and higher emotional well-being than the control group. Conclusion: These findings indicate that the integrated psychoeducational program is an effective intervention for reducing distress and supportive care needs and increasing QOL of newly diagnosed patients with breast cancer. Oncology nurses need to provide psychoeducational intervention to support patients with breast cancer in managing their distress and helping them adjust to their life.