• Title/Summary/Keyword: Parents with cerebral palsy

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Reliability between Parents and Therapists of the Manual Ability Classification System for Children with Cerebral Palsy (뇌성마비 아동 사물조작 능력 분류 체계의 부모-치료사 간의 신뢰도)

  • Kim, Jang-Gon
    • PNF and Movement
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    • v.7 no.2
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    • pp.21-26
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    • 2009
  • Purpose : The aim of this study was to determine the reliability of parents and therapists-assessed manual ability using the Manual Ability Classification System (MACS) for children with cerebral palsy Methods : Subjects were 136 children with cerebral palsy using rehabilitation programs in 16 welfare centers. Reliability was determined using the intraclass correlation coefficient (ICC). Parents and therapists assessed manual ability of children using MACS. Result : The 136 children (Male 73, Female 63) mean age was 7y 5mo years [range 3y 11mo - 13y 5mo]. The overall agreement between parents-assessed and therapists- assessed MACS was good (ICC = 0.84, 95% confidence interval 0.77-0.88). Conclusion : The MACS offers a reliable method for population-based research and communicating about the manual ability of children with CP.

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Using Canadian Occupational Performance Measure - On the Effects of Sensory Integration Treatment to the Daily-Life Task Performance of a Child with a Cerebral Palsy (감각통합치료가 뇌성마비 아동의 일상생활 기능에 미치는 효과 - 캐나다 작업수행 측정을 이용하여 -)

  • Kwon, Boon-Jung;Park, Ji-Young
    • The Journal of Korean Academy of Sensory Integration
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    • v.1 no.1
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    • pp.53-59
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    • 2003
  • Objective : The objective of this case study is to search the effects of sensory integration treatment. First we have taken a child with a cerebral palsy and given him/her sensory integration treatment. Then, we intended to look into whether the child performed his daily-life tasks and how satisfactory the parents were with the treatment. Methods : We have chosen a child with a cerebral palsy and tested his sensory integration functions. Applying the 30 minutes-sensory integration treatment twenty times to the child, we compared the result of the treatment using Canadian Occupational Performance Measure. We counseled the parents of the child before and after the treatment. Results : We have rated the problems with the degrees of importance referring to the parents. Important problems include controlling eliminations, having meals, moving by self, interacting with peer groups, and performing delicate hand-movements. The score of the in the performance is 1.2 and the score of the degree in the satisfaction is 1.4 compared with the total score. Conclusion : We have concluded that the sensory integration treatment has the effective result to the daily-life task performances of a child with a cerebral palsy, a kind of sensory integration dysfunction and satisfies the child's parents after this case study.

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Research on the Quality of Life of the Parents by Functions, Activities, Participation, and Environmental Factors of Children with Cerebral Palsy Using ICF-CY Checklist

  • Kwon, Hyun Sook;Son, Sung Min
    • The Journal of Korean Physical Therapy
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    • v.30 no.1
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    • pp.35-40
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    • 2018
  • Purpose: This study examined whether the quality of life of parents of children with cerebral palsy is affected by the functions, activities, participation, and environmental factors using an ICF-CY check list. Methods: This study recruited in 26 parents of children with cerebral palsy. The functions, activities, participation, and environmental factors of the children were evaluated using ICF-CY checklist. To measure the quality of life of parents, this study used world health organization quality of life (WHOQOL-BREF), which was composed of a total of 26 questions. The GMFCS (gross motor function classification system) was used to assess the degree of disability in the children. Multiple regression analysis was performed to examine the effects of the ICF-CY checklist on the quality of life. Correlation analysis was performed to examine the correlation between GMFCS and WHOQOL. Results: The functions, activities, participation, and environmental factors were significantly different from WHOQOL-BREF. On the other hand, the contextual factor showed a significant difference in the neuromusculoskeletal and movement-related functions (b7), and service, systems, and policies (e5)(p<0.05). Conclusion: This study suggests that the functions and environmental factors affect the quality of life of parents of children with cerebral palsy. Therefore, these findings suggest that contextual factors, such as neuromusculoskeletal and movement-related functions (b7), and service, systems and policies (e5), which can be facilitators, should be considered for improving the quality of life of parents of children with cerebral palsy.

Systematic Review on Occupational Therapy for Children with Cerebral Palsy (뇌성마비아동을 위한 작업치료에 대한 체계적 고찰)

  • Hong, Eun-Kyoung
    • The Journal of the Korea Contents Association
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    • v.13 no.6
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    • pp.318-330
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    • 2013
  • The purpose of this study was to present results and methods of occupational therapy for children with cerebral palsy using systematic review. This study was searched form papers published from Jan, 2003 to Dec, 2012 using PubMed E-Data base. Key words using on the search were 'occupational therapy' OR 'exercise therapy' OR 'activities of daily living' OR 'splints' OR 'self-help devices' OR 'early intervention(education)' OR 'parents/education' OR 'parents/psychology' OR 'professional family relations' OR 'play and playthings' OR 'upper extremity' AND 'cerebral palsy'. Eighteen studies were included in this review. Methods on occupational therapy for children with cerebral palsy were splint 26.2%, parent education 26.2%, environmental modification 9.6%, training of sensorimotor function 19.0%, activities of daily living 19.0%. Results on occupational therapy for children with cerebral palsy were significant difference on splint 40.0%, parent education 42.9%, environmental modification 40.0%. Results of this study will provide evidences based on occupational therapy.

The Effects of Parent's Participation and Satisfaction Degree on Physical Therapy for the Improvement of Motor Function in Cerebral Palsy Patients (부모의 물리치료 참여 및 만족도가 뇌성마비 아동의 운동기능 호전에 미치는 영향)

  • Lee, So-Young;Kim, Yong-Nam;Kang, Jeong-Il
    • The Journal of Korean Physical Therapy
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    • v.17 no.4
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    • pp.575-588
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    • 2005
  • Family and parents which serve as a primary group for the children's development also play important role in their cerebral palsy children's treatment. This study wants to know how the parents' participation in their children's physical therapy and satisfaction degree have an impact on their children's improvement of the motor function. For that purpose, a home made self filling survey was conducted of 156 cerebral palsy children's parents whose children were treated in 4 university general hospitals and 3 welfare centers from the 1st of April 2004 to the 31th of march 2005. The gross motor function was employed to evaluate the cerebral palsy children's motor function improvement. In this study, those questioned were divided into two groups according to the time of treatment. 'Group A' is consist of the patients whose parents attended to the treatment more than one hour at home. The patients who belonged to 'Group B' were treated less than one hour at home. The general features of the cerebral palsy children and their parents and the characteristics of their physical disability, the parents' participation and their satisfaction degree were examined by survey. Evaluating the difference between two groups' motor function according to their parents participation degree in the physical therapy leads to the following results. First, 'Group A' was better than 'Group B' in their satisfaction degree with the physical therapy and participation degree. Statistically 'Group A' was superior to 'Group B' in the requirements of the information and education for the children with cerebral palsy. Second, after two months of treatment, 'Group A' showed more statistically significant improvement than 'Group B' in every items as like lying in item 1, sitting in item2, crawling and kneeling in item 3, standing in item 4, walking,running, jumping in item 5. Third, parents' participation in physical therapy and satisfaction degree have some relevance to their children' motor function improvement. The satisfaction degree is related to motor function like crawling and kneeling in item 3, walking,running, jumping in item 5. It is showed that the parents' participation degree and information about handicapped children.

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Research On General Attitude Of Parents Toward Their Cerevral Palsy Children (뇌성마비환자 부모들의 일반적인 개념조사)

  • Kim, Keun-Jo
    • Journal of Korean Physical Therapy Science
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    • v.4 no.3
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    • pp.491-498
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    • 1997
  • This Research has been made through the questionnaire(enquete) sent to parents whose children are under cerebral palsy treatment in the hospitals of Daejon, Daegu and Pusan area and in other social welfare organizations such as Korea C.P. Welfare institution and Social Welfare Corporation during the period of Februay to August 1997. Form this research, we have obtained following results : 1. Mostly, the blood type of parents of cerebral palsy children is "0" type in father side (24 persons : 30%) and "A" type in mother side(28 persons : 35%), 2. For their(parents) baby-delivery, it shows that the nature delivery was adoped in most cases i. e. 50 persons(62.5%). 3. The birth weight of cerebral palsy children appears to be less than 2.4Kg in most cases(24 persons : 30%) 4. Most of parents positively want to take a medical treatment for their children with hope, but parents of 5 patients(6.3%) have a negative attitude against medical treatment and its cure. 5. Parents of 25 patients (31.7%) appear to have a sense of shame about the fact that their children are C.P. patients. 6. The 65 parents(81.3%) are depending on medical treatment and physical therapy as a means of cure.

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Comparison of Nutrient Intakes between Disabled Children(Mental Retardation, Autism and Cerebral Palsy) and Non-disabled Children - Comparison According to the Types of Handicap - (정신지체, 자폐 및 뇌성마비 아동과 비장애아동의 영양소 섭취량 비교)

  • 김은경;김은경;김은미
    • Korean Journal of Community Nutrition
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    • v.9 no.2
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    • pp.121-134
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    • 2004
  • Purpose of this study was to compare nutrient intakes of disabled children and non-disabled children. Subjects consisted of 86 disabled children from a special education school and 127 non-disabled children from an elementary school in Seoul. Nutrient intakes were assessed by modified 24-hr recall method, with the help of children's parents and teachers. Almost all nutrient intakes (energy, protein, fat, carbohydrates, vitamin B$_1$ and niacin) of children with cerebral palsy were significantly lower than those of other groups. But nutrient intakes per body weight of children with cerebral palsy were not significantly different with those of other groups. There was no significant difference between disabled and non-disabled children in almost % RDA (rate of actual intake to RDA) except of energy %RDA in children with cerebral palsy. NARs (nutrient adequacy ratio) for energy and vitamin B$_1$ of children with cerebral palsy were significantly lower than those of children with autism and mental retardation, and non-disabled children. The proportions of energy, carbohydrate and protein intakes from lunch were significantly higher than those from breakfast and dinner in children with mental retardation and autism. The nutrient intakes of disabled children were different between other groups according to the type of handicap. For example, children with cerebral palsy had the risk of undernutrition. On the other hand, autistic children had the tendency of overnutrition. These results suggest that nutrition educational programs and educational materials for disabled children, their teachers and their parents should be developed considering the type of handicap.

Motor delay : cerebral palsy (운동발달 장애)

  • Park, Ho Jin
    • Clinical and Experimental Pediatrics
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    • v.49 no.10
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    • pp.1019-1025
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    • 2006
  • Motor delay, when present, is usually the first concern brought by the parents of children with developmental delay. Cerebral palsy that is the most common motor delay, is a nonspecific, descriptive term pertaining to disordered motor function that is evident in early infancy and is characterized by changes in muscle tone, muscle weakness, involuntary movements, ataxia, or a combination of these abnormalities. A wide range of causative disorders and risk factors have been identified for cerebral palsy, and broadly classified into 5 groups; perinatal brain injury, brain injury related to prematurity, developmental abnormalities, prenatal risk factors, and postnatal brain injury. Delay in attaining developmental milestones is the most distinctive presenting complaint in children with cerebral palsy. A detailed history and thorough physical and neurologic examinations are crucial in the diagnostic process. The clinician should be cautious about diagnostic pronouncement unless the findings are unequivocal. Several serial examinations and history review are necessary. All children with cerebral palsy should undergo a neuroimaging study, preferably MRI, because an abnormality is documented on head MRI(89%) and CT(77%). The high incidence rates for mental retardation, epilepsy, ophthalmologic defects, speech and language disorders and hearing impairment make it imperative that all children with cerebral palsy be screened for mental retardation, ophthalmologic and hearing impairments, and speech and language disorders; nutrition, growth, and swallowing also should be closely monitored.

A Survey of Parents Perceptions of Home Exercise Program for Children with Disabilities Caused by COVID-19 (COVID-19로 인한 장애 아동의 가정운동 프로그램에 관한 부모들의 인식 조사)

  • Park, Cheol-Man;Kim, Myung-Chul
    • Journal of The Korean Society of Integrative Medicine
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    • v.9 no.4
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    • pp.225-235
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    • 2021
  • Purpose: Since coronavirus disease 2019 (COVID-19) spread around the world, non-face-to-face services have emerged as the new normal. The functioning of children with developmental disabilities and cerebral palsy improves when parents, therapists, and institutions cooperate. We aimed to investigate the difficult environment of pediatric physical therapy caused by COVID-19, and grasp parents' perceptions of home exercise programs. We intend to design home exercise programs for pediatric treatment in the future and create a non-face-to-face pediatric rehabilitation service system based on our findings. Methods: The first survey was conducted on 30 parents who had children with cerebral palsy and developmental disabilities. It was produced after consultation with relevant experts and discussion with the research team, based on a survey conducted in a previous study. The second survey was produced by revising and supplementing the opinions of parents who completed the first survey and consulting experts. Thereafter, an online survey was conducted on 118 parents who had children with cerebral palsy and developmental disabilities. Results: 61.01 % of the parents reported that they were anxious or afraid for their children to be treated for infectious diseases. 83.90 % of the parents reported that the role of parents had increased. 50.00 % of the parents complained of a lack of skill. 85.59 % of the parents reported that they needed a home exercise program provided by the organization. As a non-face-to-face exercise management method, 35.59 % of the parents wanted a real-time video recording electronically mailed to them, and 34.75 % wanted real-time education using video conferencing programs such as zoom. Conclusion: The threat of COVID-19 has further emphasized the importance of social cooperation and management, leading organizations to enter a new era of non-face-to-face rehabilitation services. It is necessary to collect and systematize related studies to reflect more diverse opinions and improve the perceptions of therapists and parents.

Effect of Home Activity Support Program on Daily Living Performance Skills in Children with Cerebral Palsy and their Parents

  • Ko, Seok-Ho;Kim, Jae-Eun;Koo, Jung-Wan
    • Physical Therapy Rehabilitation Science
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    • v.11 no.1
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    • pp.24-31
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    • 2022
  • Objective: This study attempted to find out if it changes the child's ability to perform daily life activities when visiting the familiar environment and daily living space of children with cerebral palsy and conducting a home activity support program for children and parents. Design: Randomized Controlled Trial Methods: Among 22 children aged 3 to 12 years old, they were assigned to the intervention group and control group. Of these, 12 boys and 10 girls participated in the study. Gross motor function measure and upper extremity function evaluation were used to measure the physical function of children with cerebral palsy, and self-care skills, mobility and social functions were evaluated in the pediatric evaluation of disability inventory. In addition, a parenting sense of competence was used to find out the efficacy of parents in raising children. After the pre-evaluation, basic rehabilitation treatment and intervention programs were applied to the intervention group, and only basic rehabilitation treatment was performed to the control group, and post-evaluation was performed 8 weeks later. Results: As a result of the study, among the items that measured the gross motor function, upper limb function, and daily life performance ability of the intervention group in the difference between the intervention group and the control group, statistically improved in personal processing and movement (p<0.05). In addition, the parenting sense of competence children in the intervention group was statistically significant (p<0.05). Conclusions: The home activity support program will help strengthen the ability of cerebral palsy children to perform daily life as a way to set mutually agreed goals with their families or children and achieve them in a familiar environment.