• 보건의료산업학회지
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• 제6권3호
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• pp.171-182
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• 2012

We tried to look for parenting stress and social support of parents who look after children with mental retardation, intellectual disability, physical disability, and deafness. We also tried to know type and severity of parenting stress and inform a necessity of a resource and social support through the study. We subjected parents who have children with disability and visit 7 medical centers to treat in the 4 cities. The parents filled out the questionnaire. We analysed the scale of parenting stress and social support using Likert 5 point scale. As a result of parenting stress and social support according to general characteristics by type of disability, parenting stress was very high regardless of type of disability. However, the parents who have children with disability had lower social support. In detail, the parents who have children with mental retardation had the highest parenting stress, and the parents who have children with deafness had the lowest parenting stress. In the social support, the parents who have children with mental retardation received high social support, and the parents who have children with intellectual disability received low social support.

• 동의생리병리학회지
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• 제19권2호
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• pp.568-572
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• 2005

This study is aiming for evaluating the factors influencing rehabilitation medical desire in parents (RMDP) with developmental disability children. This study was made with a randomized sample of 156 parents, who were given a questionnaire about how they feel medical needs for their children. The results of the study were as follows: The RMDP is significantly high in relatively the older aged parents group(p<.01). The RMDP is significantly high in severe disability group(p<.01). The RMDP is significantly high in the more spend group of monthly medical cost(p<.05). The group difference of RMDP by monthly income or movement type of disability is not significant(p>.05). It is thought that medical staff need to be actively involved in parents group with developmental disability children to improve motivation, who is relatively the younger than 35 years old or has mild to moderate disability degree of child.

• International journal of advanced smart convergence
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• 제9권1호
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• pp.54-62
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• 2020

According to the Ministry of Health and Welfare, "Status of Registered Persons with Disabilities", the number of people with disabilities is 2,494,460 as of 2015. The lowest rates of children with disabilities were intellectual disabilities (23%) and mental disorders (33.3%). The highest rates of screening were blindness (97%), heart failure (94.4%), and hearing impairment (92.7%). 65.2% of visually impaired people who have already had a disability at the time of marriage, and the remaining 34.8% can be thought to be the cause of high incidence of disability after marriage. 'SID (Seed in the Dark)' project was designed to recapture the visually impaired parent's desire for attachment and the space difficulties of the blind who want to be a normal parent to their children through a visual impairment of a father with 7-year-old daughter. Using Gear VR(Virtual Reality), the general public was able to feel the surroundings as if they had no vision and focused on the hearing. Especially, We expressed the sound wave visually and added the hilarious game element which grasps the terrain of the maze by sound wave like a 'blind person who perceives the surroundings by sound' and catches up with daughter. People with disabilities who are far from mental illness often have a form of family with children. The fact that the rate of childbirth is high means that there is relatively little problem in daily life. It is wondered that the rate of blindness among the visually impaired, which accounts for 10% of the total disabled, is the highest at 97%. This is because, in the case of the visually impaired, the obstacle is often caused by aging, accidents, or diseases due to inherited causes rather than the visual disorder. In particular, However, the fact that there is an obstacle in vision that accounts for 83% of the body's sensory organs causes other difficulties in the nursing process of children who are non-disabled. Parents do not know the face of child when their visual impairment is severe. Parents are extremely anxious about worry that they will be lost or abducted if their children are not by their side. And that the child recognizes the disability of his or her parents other than the other parents easily and takes it as a deficiency. Since visually impaired parents are mentally mature parents with non-disabled people, they may want their children not to feel deprived of their disability. The number of people with visual impairments has been increasing since 2001, and people with impairments often become disabled. In addition, there is much research on the problem of nondisabled parents who have children with disabilities, while there is relatively little interest and research on the problem of nondisabled child rearing of parents with disabilities.

• 대한감각통합치료학회지
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• 제1권1호
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• pp.1-8
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• 2003

Objective : To describe the sensory-based behaviors of children with developmental disorders as reported on the JSI-2. Methods : The scores of children with disability were compared with those of children without disability. JSI-2 was completed by parents of 38 children with disability 3 through 6 years of age and 36 children without disability 3 through 6 years of age. Results : The scores of children with disability were significantly different from that of children without disability for 6 of 8 factors, including vestibular, tactile, auditory, visual and other. There is no significant differences of age or sex. Conclusion : From this study, it is found that children with disability have deficit in a variety of sensory processing abilities as measured by JSI-2. Further research is needed to replicate and develop these findings.

• 한국콘텐츠학회논문지
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• 제16권10호
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• pp.492-502
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• 2016

본 연구는 대전, 충남 북 등의 지역에서 장애아동을 양육하는 327명의 부모를 대상으로 양육스트레스가 삶의 질에 미치는 영향을 살펴보고, 이 과정에서 복지서비스 인식의 조절효과를 검증하고자 하였다. 본 연구에서는 자료분석을 위하여 PASW Statistics 18.0을 이용하였다. 주요 연구결과는 다음과 같다. 첫째, 양육스트레스는 발달장애아동의 부모가 유의미하게 더 높게 나타났으며, 복지서비스 인식은 지체장애아동의 부모가 유의미하게 더 높은 것으로 나타났다. 삶의 질은 지체 장애아동의 부모가 더 높은 것으로 나타났으나, 집단별로 유의미한 차이는 없는 것으로 나타났다. 둘째, 삶의 질에 영향을 미치는 요인을 분석한 결과, 조사대상자들의 양육스트레스, 복지서비스 인식, 부모의 성별, 장애정도, 거주지역이 공통적 요인으로 나타났으며, 부모의 교육수준은 발달장애아동의 부모 그리고 장애아동의 연령은 지체장애아동의 부모에서만 영향을 미치는 것으로 나타났다. 셋째, 양육스트레스와 복지서비스 인식의 상호작용 효과를 분석한 결과, 복지서비스 인식은 모든 집단에서 유의미한 조절효과를 갖는 것으로 나타났다. 이러한 실증적인 연구결과에 기초하여 아동의 장애유형에 따른 맞춤형 방안을 제시하였고, 실질적인 장애인복지정책 수립을 위한 유용한 기초자료를 제공했다는데 본 연구의 의의가 있다.

• 한국산학기술학회논문지
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• 제16권11호
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• pp.8046-8056
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• 2015

본 연구는 장애아 부모의 삶의 만족도에 영향을 미치는 요인에 관한 연구에 목적이 있다. 설문조사 자료는 수도권 특수학교, 경기도 특수학교, 주간보호소, 장애인 복지관, 특히 한국장애인 부모회에서 전국에 있은 지회, 지부를 통하여 장애인 부모님을 대상으로 389부의 자료를 수집하였다. 통계분석은 SPSS 19.0 프로그램을 활용하여 요인분석, 신뢰도분석, 장애아 부모의 환경요인이 삶의 만족도에 미치는 영향을 분석하기 위하여 인구사회학적 특성을 통제변수로 하고, 환경요인을 독립변수로 하여 위계적 회귀분석을 실시하였다. 연구결과는 인구사회학적 특성의 종교유무와 월평균 소득이 삶의 만족도에 정(+)적인 영향을 미쳤고, 환경요인 모두가 삶의 만족도에 유의한 영향을 미치는 것으로 나타났다. 즉, 가족지지, 장애정도, 사회네트워크, 개인성격은 장애아 부모의 삶의 만족도에 정(+)적인 영향을 미쳤으며, 이들 요인의 상대적 영향력은 가족지지, 장애정도, 사회네트워크, 개인성격의 순으로 높았다. 이 결과는 장애아 부모가 가족으로부터 정서적 지지와 도움을 받고 아이의 장애정도가 낮을수록, 장애아 부모와의 모임이나 장애복지 관련 각종 프로그램에 참여할수록, 그리고 긍정적인 성격을 갖고 있을수록 삶의 만족도가 높아지는 것으로 해석할 수 있다.

• 한국산학기술학회논문지
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• 제20권6호
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• pp.421-429
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• 2019

본 연구는 아동발달센터에서 치료 및 훈련을 받는 발달장애를 가진 아동의 부모를 대상으로 사회적지지, 장애수용, 경제적 안정감, 가족기능 간의 관계를 규명하는데 그 목적을 두었다. 이를 위하여 S시 소재 아동발달센터를 이용하는 발달장애 아동의 부모 252명을 대상으로 설문조사를 실시하였다. 사회적지지와 가족기능 간의 관계에서 장애수용의 매개 효과와 사회적지지, 장애수용과 가족기능 간의 관계에서 경제적 안정감의 조절효과를 검증하기 위하여 매개효과 3단계 검증 절차와 위계적 다중회귀분석을 활용하였다. 본 연구 결과는 다음과 같다. 첫째, 조절변인인 경제적 안정감의 조절효과를 확인한 결과 사회적 지지와 가족기능 및 장애수용과 가족기능간의 관계 모두 경제적 안정감의 조절효과는 없는 것으로 나타났다. 둘째, 사회적 지지와 가족기능간의 관계를 장애수용이 매개하는지 검증한 결과, 사회적 지지와 가족기능의 관계를 장애수용이 부분매개하는 것으로 나타났다. 본 연구는 발달장애를 가진 아동의 가정이 제대로 기능할 수 있도록 돕는 프로그램 개발에 기초자료를 제공하였다는 점에서 의의가 있다.

• 지역사회간호학회지
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• 제21권4호
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• pp.439-447
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• 2010

Purpose: This study was to describe the burden of aged parents caring for adult children with disabilities and related factors. Methods: The subjects were 123 caregivers aged over 65 who were caring for 18-year-old or older children with disabilities. The research tool of this study was a structured questionnaire on family burden. Data were collected from June 3 to 25, 2010, and analyzed by Cronbach's alpha, mean, standard deviation, t-test, and ANOVA using SAS 9.2 program. Results: The major findings of this study were as follows. Elderly parents caring for adult children with disabilities perceived a moderate level of burden. The burden from concern over their children's future was highest, and economic and physical burdens were higher when the parents were younger. Burden was significantly different according to parents' characteristics such as gender, perceived health status, disease, the costs of caring for disabled children, and children's characteristics such as disability rating, health status, and ADL. Conclusion: In order to reduce the burden of elderly parents caring for adult children with disabilities, we need to improve their health status and assess comprehensive policies.

• Child Health Nursing Research
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• 제26권3호
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• pp.338-347
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• 2020

Purpose: The Life Transition Scale (LTS) consists of 24 items that assess the life transition process of parents of autistic children. This study aimed to examine the validity and reliability of the LTS in parents of children with a wide spectrum of disabilities. Methods: Data were collected from 260 parents of children with disabilities through self-report questionnaires. Validity was examined using exploratory and confirmative factor analysis to determine the factor structures of the LTS; socio-demographic differences in LTS scores were examined using the t-test or ANOVA. Reliability was examined using Cronbach's α coefficient. Results: A four-factor structure was validated (χ²=640.0, p<.001, GFI=.81, RMSEA=.07, NNFI=.89, CFI=.89, PNFI=.74, Q [χ²/df]=2.60). The validity of the LTS was verified by exploratory factor analysis, with factor loading ranging from .30 to .80. There were significant differences in the accepting phase according to children's and parents' age and the type of disability, and in the wandering phase according to parental gender, educational level, job, and socioeconomic status. The Cronbach's αs for the reliability of each of the four structures were acceptable, within a range of .80~.90. Conclusion: The LTS is a valid and reliable measurement to assess the life transition process of parents with disabled children.

• 호스피스학술지
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• 제5권2호
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• pp.54-63
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• 2005

The purpose of this study is to examine the requirement for child life support specialist and fetal education for children with cancer. This research presented was composed with three chapters : First chapter, I presented the purpose, scope and definitions of this research. Second chapter, I defined about hospice care service for children with cancer and kind of pediatric cancer. And general characteristics of children with cancer, a understanding character of death and dietary therapy. Lastly, I defined and investigated about spiritual care. Third chapter, I concluded with some of findings and final suggestions based on the results. According to the developmental stages children with cancer are disability of communication competence and more dependence on their parents, therefore parents' decision making were more difficulty. And parents with a child who suffers from a cancer needs a counseling in order to discover the meaning of life. Parents' psychological experience about the caring for their child suffering from pediatric cancer was equal to broken hearts due to shadow of the child's death from time to time. In other words a parents with a child who suffers from a cancer needs comprehensive services such as hospice, consultor as well as wide experienced pediatrician and nurse. Child life support specialist can help them recover and improve their o주 potential strength in behalf of overcoming their difficulties. And pastoral counseling can help them reduce the fear and anxiety about unknown world and death. The systematically developed a school-based counseling program would help children adjust to the difficulties after a perfect cure because of children adjusted to school well when they have good peer relationships.