• The Korean Journal of Health Service Management
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• v.6 no.3
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• pp.171-182
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• 2012

We tried to look for parenting stress and social support of parents who look after children with mental retardation, intellectual disability, physical disability, and deafness. We also tried to know type and severity of parenting stress and inform a necessity of a resource and social support through the study. We subjected parents who have children with disability and visit 7 medical centers to treat in the 4 cities. The parents filled out the questionnaire. We analysed the scale of parenting stress and social support using Likert 5 point scale. As a result of parenting stress and social support according to general characteristics by type of disability, parenting stress was very high regardless of type of disability. However, the parents who have children with disability had lower social support. In detail, the parents who have children with mental retardation had the highest parenting stress, and the parents who have children with deafness had the lowest parenting stress. In the social support, the parents who have children with mental retardation received high social support, and the parents who have children with intellectual disability received low social support.

• Journal of Physiology & Pathology in Korean Medicine
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• v.19 no.2
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• pp.568-572
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• 2005

This study is aiming for evaluating the factors influencing rehabilitation medical desire in parents (RMDP) with developmental disability children. This study was made with a randomized sample of 156 parents, who were given a questionnaire about how they feel medical needs for their children. The results of the study were as follows: The RMDP is significantly high in relatively the older aged parents group(p<.01). The RMDP is significantly high in severe disability group(p<.01). The RMDP is significantly high in the more spend group of monthly medical cost(p<.05). The group difference of RMDP by monthly income or movement type of disability is not significant(p>.05). It is thought that medical staff need to be actively involved in parents group with developmental disability children to improve motivation, who is relatively the younger than 35 years old or has mild to moderate disability degree of child.

• International journal of advanced smart convergence
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• v.9 no.1
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• pp.54-62
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• 2020

According to the Ministry of Health and Welfare, "Status of Registered Persons with Disabilities", the number of people with disabilities is 2,494,460 as of 2015. The lowest rates of children with disabilities were intellectual disabilities (23%) and mental disorders (33.3%). The highest rates of screening were blindness (97%), heart failure (94.4%), and hearing impairment (92.7%). 65.2% of visually impaired people who have already had a disability at the time of marriage, and the remaining 34.8% can be thought to be the cause of high incidence of disability after marriage. 'SID (Seed in the Dark)' project was designed to recapture the visually impaired parent's desire for attachment and the space difficulties of the blind who want to be a normal parent to their children through a visual impairment of a father with 7-year-old daughter. Using Gear VR(Virtual Reality), the general public was able to feel the surroundings as if they had no vision and focused on the hearing. Especially, We expressed the sound wave visually and added the hilarious game element which grasps the terrain of the maze by sound wave like a 'blind person who perceives the surroundings by sound' and catches up with daughter. People with disabilities who are far from mental illness often have a form of family with children. The fact that the rate of childbirth is high means that there is relatively little problem in daily life. It is wondered that the rate of blindness among the visually impaired, which accounts for 10% of the total disabled, is the highest at 97%. This is because, in the case of the visually impaired, the obstacle is often caused by aging, accidents, or diseases due to inherited causes rather than the visual disorder. In particular, However, the fact that there is an obstacle in vision that accounts for 83% of the body's sensory organs causes other difficulties in the nursing process of children who are non-disabled. Parents do not know the face of child when their visual impairment is severe. Parents are extremely anxious about worry that they will be lost or abducted if their children are not by their side. And that the child recognizes the disability of his or her parents other than the other parents easily and takes it as a deficiency. Since visually impaired parents are mentally mature parents with non-disabled people, they may want their children not to feel deprived of their disability. The number of people with visual impairments has been increasing since 2001, and people with impairments often become disabled. In addition, there is much research on the problem of nondisabled parents who have children with disabilities, while there is relatively little interest and research on the problem of nondisabled child rearing of parents with disabilities.

• The Journal of Korean Academy of Sensory Integration
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• v.1 no.1
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• pp.1-8
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• 2003

Objective : To describe the sensory-based behaviors of children with developmental disorders as reported on the JSI-2. Methods : The scores of children with disability were compared with those of children without disability. JSI-2 was completed by parents of 38 children with disability 3 through 6 years of age and 36 children without disability 3 through 6 years of age. Results : The scores of children with disability were significantly different from that of children without disability for 6 of 8 factors, including vestibular, tactile, auditory, visual and other. There is no significant differences of age or sex. Conclusion : From this study, it is found that children with disability have deficit in a variety of sensory processing abilities as measured by JSI-2. Further research is needed to replicate and develop these findings.

• The Journal of the Korea Contents Association
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• v.16 no.10
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• pp.492-502
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• 2016

This study examined the effects of parenting stress on the quality of life in parents of children with disability, and moderating effects of welfare service perception in the process. This study conducted a survey to 327 parents who rear such children in Chungnam, Chungbuk and Daejeon provinces. This study utilized SPSS 18.0 for analysis, and the main results of this study were as follows. First, the level of parenting stress is shown higher level in parents who rear the children with developmental disabilities. The level of welfare service perception and quality of life is shown higher level in parents who rear the children with physical disabilities. Second, common influential factors of life quality were parenting stress, welfare service perception, sex of parents, disability degree and residential area. For parents who rear the children with developmental disabilities, education level of parents and for parents who rear the children with physical disabilities, age of Children show to be influential. Third, welfare service perception is shown to be statistically significant so that moderating effects is found in the relationship between the parenting stress and quality of life. Based on such empirical analysis results, this study suggested concrete and comprehensive working strategies to improve quality of life in parents of children with disabilities.

• Journal of the Korea Academia-Industrial cooperation Society
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• v.16 no.11
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• pp.8046-8056
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• 2015

The purpose of this study is the study of factors affecting the life satisfaction of disabled children parents. Survey data metropolitan area and Gyeonggi-do special schools, day shelter, Disabled Welfare, especially on the national branch in Korea Funny disabled parent meetings, through 389 branches were collected material wealth targeting parents with disabilities. Statistical analysis SPSS 19.0 program utilizes factor analysis, reliability analysis. And parents of children with disabilities and environmental factors are the demographic characteristics in order to analyze the impact on life satisfaction as a control variable, and the environmental factors as independent variables were performed hierarchical regression analysis. Results are crazy and the positive(+) influence a religious presence and the average monthly income of demographic characteristics in the satisfaction of life, environmental factors all had significant influence on life satisfaction. In other words, family support, disability, social networks, personal nature had a positive(+) influence on life satisfaction of disabled children parents, the relative influence of these factors include family support, disability, social networks, net of personality. It was in. The result is handicapped parents receive emotional support and help from family, the lower the degree of disability of the child, as participation in meetings or disability welfare various programs and handicapped parents, and the more it has a positive character increased satisfaction in life that can be interpreted.

• Journal of the Korea Academia-Industrial cooperation Society
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• v.20 no.6
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• pp.421-429
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• 2019

This study seeks to discuss the effects of social support, acceptance of disability, and the sense of economic stability on the part of parents of children with developmental disabilities who are receiving treatment and training at a child development center has on family function. A survey was given to 252 parents of children who were using the child development center in S city. In the relationship between social support and family function, the mediating effects of the disability acceptance and the social support, the disability acceptance and the family function were used to verify the adjustment effect of the economic stability. The results of this study are as follows. First, as a result of checking the moderating effect of economic stabilization, social support, family function, disability acceptance and family function did not show any effect on economic stability. Second, as a result of verifying whether the relationship between social support and family function is mediated by disability acceptance, disability acceptance partially mediated the relationship between social support and family function. This study is significant in that it provided basic data for the development of a program to help children with developmental disabilities function properly.

• Research in Community and Public Health Nursing
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• v.21 no.4
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• pp.439-447
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• 2010

Purpose: This study was to describe the burden of aged parents caring for adult children with disabilities and related factors. Methods: The subjects were 123 caregivers aged over 65 who were caring for 18-year-old or older children with disabilities. The research tool of this study was a structured questionnaire on family burden. Data were collected from June 3 to 25, 2010, and analyzed by Cronbach's alpha, mean, standard deviation, t-test, and ANOVA using SAS 9.2 program. Results: The major findings of this study were as follows. Elderly parents caring for adult children with disabilities perceived a moderate level of burden. The burden from concern over their children's future was highest, and economic and physical burdens were higher when the parents were younger. Burden was significantly different according to parents' characteristics such as gender, perceived health status, disease, the costs of caring for disabled children, and children's characteristics such as disability rating, health status, and ADL. Conclusion: In order to reduce the burden of elderly parents caring for adult children with disabilities, we need to improve their health status and assess comprehensive policies.

• Child Health Nursing Research
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• v.26 no.3
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• pp.338-347
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• 2020

Purpose: The Life Transition Scale (LTS) consists of 24 items that assess the life transition process of parents of autistic children. This study aimed to examine the validity and reliability of the LTS in parents of children with a wide spectrum of disabilities. Methods: Data were collected from 260 parents of children with disabilities through self-report questionnaires. Validity was examined using exploratory and confirmative factor analysis to determine the factor structures of the LTS; socio-demographic differences in LTS scores were examined using the t-test or ANOVA. Reliability was examined using Cronbach's α coefficient. Results: A four-factor structure was validated (χ²=640.0, p<.001, GFI=.81, RMSEA=.07, NNFI=.89, CFI=.89, PNFI=.74, Q [χ²/df]=2.60). The validity of the LTS was verified by exploratory factor analysis, with factor loading ranging from .30 to .80. There were significant differences in the accepting phase according to children's and parents' age and the type of disability, and in the wandering phase according to parental gender, educational level, job, and socioeconomic status. The Cronbach's αs for the reliability of each of the four structures were acceptable, within a range of .80~.90. Conclusion: The LTS is a valid and reliable measurement to assess the life transition process of parents with disabled children.

• Korean Journal of Hospice Care
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• v.5 no.2
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• pp.54-63
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• 2005

The purpose of this study is to examine the requirement for child life support specialist and fetal education for children with cancer. This research presented was composed with three chapters : First chapter, I presented the purpose, scope and definitions of this research. Second chapter, I defined about hospice care service for children with cancer and kind of pediatric cancer. And general characteristics of children with cancer, a understanding character of death and dietary therapy. Lastly, I defined and investigated about spiritual care. Third chapter, I concluded with some of findings and final suggestions based on the results. According to the developmental stages children with cancer are disability of communication competence and more dependence on their parents, therefore parents' decision making were more difficulty. And parents with a child who suffers from a cancer needs a counseling in order to discover the meaning of life. Parents' psychological experience about the caring for their child suffering from pediatric cancer was equal to broken hearts due to shadow of the child's death from time to time. In other words a parents with a child who suffers from a cancer needs comprehensive services such as hospice, consultor as well as wide experienced pediatrician and nurse. Child life support specialist can help them recover and improve their o주 potential strength in behalf of overcoming their difficulties. And pastoral counseling can help them reduce the fear and anxiety about unknown world and death. The systematically developed a school-based counseling program would help children adjust to the difficulties after a perfect cure because of children adjusted to school well when they have good peer relationships.