• 지역사회간호학회지
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• 제22권4호
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• pp.389-398
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• 2011

Purpose: This study of this study was to identify factors influencing the burden of main family caregivers who take care of elderly patients with brain and spinal diseases. Methods: This was conducted as descriptive research and data were collected from 255 main family caregivers who were taking care of elderly patients with brain and spinal diseases from 4 hospitals in Daegu and Gyeongbuk Province. Stepwise-multiple regression was used to identify the influencing factors of burden felt. Results: As the score of burden felt by the main family, economic, social, physical, interdependent and emotional burdens were high in order. Factors influencing burden felt by main family care givers taking care of elderly patients with brain and spinal diseases were changed relation with patient after hospitalization, daily life ability, marital status, education and family caregiver's personality (explanatory power of 24.6%). Family caregivers felt a heavier burden when their relation with the patient was changed negatively or when the patient's activity of daily living was low. Conclusion: Based on these results, we need to develop coping measures and interventional programs for reducing the burden felt by the main family caregivers of elderly patients with brain and spinal diseases.

• 대한간호학회지
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• 제37권5호
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• pp.724-735
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• 2007

Purpose: The purpose of this study was to explore and describe the experiences of the family caregivers using a nursing home for their elderly family members. Method: Participants for this study were 1 man and 9 women caregivers. Data was collected through in-depth interviews from October, 2005 to April, 2006 and analyzed using Strauss and Corbin's grounded theory methodology. Results: "Finding a way to live together" emerged as a core category and it reflected expanding consciousness allowing them to see each other in a more positive view. The basic social process of "finding a way to live together" includes 3 phases: 1) recognizing the problems, 2) finding solutions to the problems, and 3) accepting the changes in their surrounding. Lack of privacy, family troubles, extreme distress, and unavailable caregivers are reflected in the process of recognizing the problems. The process of finding solutions was making a decision, obtaining family agreement, choosing the best nursing home, and enduring the financial burden. Possible outcomes of the last phase include recovering peace of mind and continuing conflict. Conclusion: Findings from this study offer suggestions for developing a strategy to help not only the elderly but also the family caregivers.

• 호스피스학술지
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• 제2권1호
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• pp.21-40
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• 2002

Cancer is the second leading cause of the death in Korea. Family caregivers of dying patients manifest many psychological and physical symptoms of stress, and they often seek for informational support from health care providers. Unfortunately, however, few systematic studies identify the actual effect of such support on family caregivers. This study, thus, intends to evaluate the effect of informational support for hospice care. One group pretest-posttest design was used, employing the stress-coping model by Cohen and Wills as a conceptual framework. This research was conducted from July 1 to November 15, 1998, initially with 32 subjects sampled from hemato-oncology department of two general hospitals in Seoul, but reduced to 18 at the end due to the untimely death of patients or caregiver's refusal during the course of study. Informational supports were programmed to provide the family caregivers with 8 times of education and counseling as well as 24-hour hot-line for 4 weeks. A booklet that explains the various problems of hospice care was also prepared and distributed to all subjects. Data were collected by using self-report questionnaires and reviewing medical records. The tools used in this study were based on the Weinert's PRQ-II(scale of perceived social support), Spielberger's state anxiety inventory, and CES-D. Also included in the data collection were the general characteristics of family caregivers and patients, and the pain intensity and the performance status of patients. The data were analyzed with descriptive statistics, Wilcoxon sign rank test and paired t-test using SPSSWIN program. The results of the study were as follows: 1.The perceived social support of family caregivers was not significantly increased with informational support for hospice care(t=1.64, one tailed p=.060). 2.The anxiety of family caregivers was significantly reduced following informational support for hospice care(t=3.48, one tailed p=.002). 3.The depression of family caregivers was significantly reduced following informational support for hospice care(t=-2.18, one tailed=.022). 4.The pain intensity of patients with terminal cancer was significantly reduced following informational support for hospice care(t=-2.41, two tailed p=.027). The results suggest that the informational support provided to family caregivers of patients with terminal cancer reduced not only their anxiety and depression but also the pain intensity of patients. Further study is necessary to consolidate the conceptual framework of this study with expanded number of subjects. Nevertheless, it was certain that the informational support program for hospice care was very helpful to both caregivers and patients. Thus, the informational support program is strongly recommended for the hospitals which have no hospice unit yet.

• 한국사회복지학
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• 제53권
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• pp.105-128
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• 2003

본 연구는 65세 이상 노인을 모시고 있는 가족부양자를 대상으로 재가복지서비스에 대한 이용의사와 이에 영향을 미치는 요인을 분석함으로써 향후 노인부양의 사회적 지원방안을 보다 효과적으로 마련하는데 연구의 목적이 있다. 서비스 이용의사에 영향을 미치는 요인을 선행요인, 가능태 요인, 욕구요인으로 구분하여 이용행위를 분석한 Anderson-Newman 모델을 기반으로, 총 230명의 가족부양자가 분석에 포함되었다. SAS 6.12를 이용하여 빈도분석, 교차분석과 함께, 서비스 이용의사에 있어 다양성이 포함될 수 있도록 다중명목 로지스틱 분석(Multinominal logistic analysis)을 실시하였다. 연구결과, 재가복지서비스를 이용하겠다는 의향은 85.9%로 나타났으며 시설보호서비스도 비슷한 수준인 86.9%이었다. 그러나 재가복지서비스는 무료 또는 유료라도 사용하겠다는 의사가 각각 50%씩 나타난 반면, 시설보호서비스는 유료라도 사용하겠다는 의사가 91.1%로 상대적으로 높게 나타났다. 또한 장기요양 발생시 대처방안에 있어서도 가족이 전담하기보다는 장기요양보험제도나 사회적 고용지원제도와 연결시키려는 욕구가 높았다. 재가복지서비스 이용의사에 영양을 미치는 요인을 분석해보면, 서비스를 이용할 의사여부는 연령, 부양자와 노인간의 우애관계, 노인부양 가치관과 같은 선행요인(predisposing factors)이나, 노인부양의 경제적 혹은 심리적 부담, 가족내 추가로 돌봐야 할 가족원 유무 등과 같은 서비스 이용의 직접적인 욕구와 연결된 요인(need factors)들이 주요한 영향력을 보이고 있다. 반면 서비스를 이용하겠다는 사람들 중 무료 옥은 유료 이용의사를 주요하게 구분하는 것은 가능태 요인(enabling factors)으로, 소득수준이 높을수록, 주부양자를 대체할 부부양자가 없을수록 유료라도 사용하겠다는 의향이 높은 것으로 나타났다. 이와 같은 연구결과에 기초하여 향후 노인부양을 위한 사회적 서비스의 지원 방향성과 대책이 제시되었다.

• Perspectives in Nursing Science
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• 제3권1호
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• pp.47-60
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• 2006

BACKGROUND: Social, legal, and economic factors have changed the delivery of care to elderly who are frail and/or chronically ill. Increasing number of the elderly are now treated in the community, while living with or in close proximity to their family. It is evident that families play a major role of support for elderly persons in our society. This paper provides a review and analysis of studies that have investigated informal caregiving issues encompassing physical, psychological, emotional, and social domains. RESULTS OF THE REVIEW: Family caregiving often interfered with workplace and other responsibilities, creating physical, emotional, and financial stress for caregivers. Relatively high volumes of research addressed caregiving issues in the families of Alzheimer patients and in the areas of emotional and psychological impact of caregiving. Few studies explicitly investigated the role of informal caregivers in the management of other chronic conditions such as stroke or depression or physical consequences of long-term caregiving. While most studies were focused on negative aspects of caregiving, a few studies found it rewarding. Often the burden, stress, and socio-economic effects on the family caregiving for an elderly person were not sufficiently appreciated. CONCLUSIONS: Positive outcomes for both the caregiver and the care recipient are more likely to occur when effective levels of collaboration exist between health professionals and caregivers. As a first step, a better understanding of the caregiving experience such as caregiver characteristics, care recipient characteristics, and social stigma is important for nurses to minimize the burden of care so that appropriate interventions can be developed. In addition, further studies are needed to examine the role and needs of informal caregivers in the care of increasing number of frail and/or chronic ill elderly treated in the community.

• Asian Pacific Journal of Cancer Prevention
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• 제14권7호
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• pp.4415-4419
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• 2013

Background: Measuring effects of cancer on family caregivers is important to develop methods which can improve their quality of life (QOL). Nevertheless, up to now, only a few tools have been developed to be used in this group. Among those, the Caregiver Quality of Life Index-Cancer Scale (CQOLC) has met minimum psychometric criteria in different populations in spite of conflicting results. The present study was conducted to evaluate reliability and validity of CQOLC among Turkish cancer family caregivers. Materials and Methods: The CQOLC was administered to 120 caregivers, along with Beck Depression Inventory (BDI), Medical Outcomes Study MOS 36- Item Short Form Health Survey (SF-36), State-Trait Anxiety Inventory (STAI), and Multidimensional Scale of Perceived Social Support (MSPSS). Internal consistency and test-retest stability were used to investigate reliability. Construct validity was examined by using known group method, convergent, and divergent validity. For the known group method, we hypothesized that CQOLC scores would differ between depressed and non-depressed subjects. We investigated convergent validity by correlating scores for CQOLC with scores for other similar measures including SF-36 and STAI. The MSPSS was completed at the same time as CQOLC to provide divergent validity. Results: The values for internal consistency and test-retest correlation were 0.88 and 0.96, respectively. The CQOLC discriminated those who were depressed from those who were not. Convergent validity supported strong correlations between CQOLC scores and two main component scores (PCS, MCS) in SF-36 although there was a weak correlation between CQOLC and STAI scores. Regarding divergent validity, the correlation between CQOLC and MSPSS was in the low range, as expected. Conclusions: The Turkish CQOLC is a reliable and valid tool and it can be utilized to determine QOL of family caregivers.

• 대한간호학회지
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• 제29권3호
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• pp.639-655
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• 1999

An explanatory design was employed to identify the relationship of physical, emotional & social readjustment and social support of post hospitalized stroke patients and their caregivers. A convenient sample of 254 patients who given follow-up care at the outpatient department after discharge and 225 caregivers were recruited. Mental Status Questionnaire (MSQ), Social Support Inventory Stroke Survivors (SSISS), Illness intrusiveness(II), Instument Activity of Daily Living(IADL), Center of Epidemilogic Studies-Depression(CES-D), social activity and caregiver burden were used for measurement in this study. Results showed patient's physical level measured by IADL and psychological level measured by depression were high. But social activity was low. Cognitive function, depression & social activity were not significantly different by the posthospitalized period, but IADL was. The source of professional support was mostly the physician at the outpatient department. The family support was found significantly related to patient's depression & social activity and caregiver's subjective burden. Professional support was found significantly related to patient's IADL & depression. Illness intrusiveness as a mediating variable was a sig nificantly predicting power on patient's IADL & depression. The path analysis was used to identify the variables to predict the physical, emotional, and social status of patients. As a result, patient's age, cognitive function, illness intursiveness and professional support significantly predicted the level of IADL ; patient's cognitive function, illness intrusiveness and family support significantly predicted the level of depression ; and patient's age and family support significantly predicted the level of social activity of posthospitalized stroke patients. Based upon these results, the rehabilitation programs to reduce the illness intrusiveness and improve cognitive funtion were recommended for the readjustment of the stroke patients. This model of the readjustment of the posthospitalized stroke patients is recommended as the framework for care of the stroke patients.

• 기본간호학회지
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• 제19권1호
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• pp.23-34
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• 2012

Purpose: Respite care is not a discrete intervention, but encompasses a range of services. This research was conducted to clarify the phenomenon of respite care for family caregivers of elders with dementia from a nursing perspective. Method: The Hybrid Model of concept development was applied to clarify the concept of respite care for family caregivers of elders with dementia. The study was conducted in the following three steps, theoretical phase, fieldwork phase, and final analytic phase. Results: The definition of respite care for family caregivers of elders with dementia was delineated through integration of data analyses in theoretical and fieldwork phase, and has three dimensions; tailored supports for caregivers, tailored supports based on physical and cognitive function of elders with dementia and community interventions related to family care function. Conclusion: Through this study, the concept of respite care for family caregivers of elders with dementia is clarified and reformulated as nursing practice phenomena in the Korean context, which indicates ways to develop caring practice forms for a family living with an elder with dementia in a community setting.

• 지역사회간호학회지
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• 제29권4호
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• pp.530-538
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• 2018

Purpose: This study tried to identify changes in family burden after the introduction of the long-term care insurance and to examine the factors influencing subjective and objective caring burden and depression of family caregivers of elders receiving home-based long-term care. Methods: Data were collected from 203 family caregivers of elders from August 1 to 31, 2015 using questionnaires. They were analyzed in descriptive statistics, t test, ANOVA test, and multiple regression analysis. Results: The mean score of depression was 7.24, which suggested mild depression level. The subjective family burden was 2.71 and the objective burden 3.04. The factors affecting depression included subjective burden (t=5.08, p<.001), objective burden (t=2.80, p=.006), time of elderly care per day (t=-3.61, p< .001), caregiving duration (t=3.33, p=.001), age (t=3.13, p=.002), family relationship (t=2.48, p=.014), and economic status (t=1.99, p=.047). Conclusion: The family burden was most important influencing factor on caregiver's depression. Therefore, services and supports to alleviate caregivers' burden in the home-based care should be added to long-term care.

• 한국노년학
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• 제29권2호
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• pp.377-394
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• 2009

일반적으로 노인수발경험은 가족수발자의 신체적 건강에 부정적 영향을 미치는 것으로 보고되어 왔으나, 민족 집단 간 연구결과가 일치하지 않았으며, 한국인 가족수발자의 신체적 건강에 관한 연구는 거의 전무하였다. 본 연구는 한인 가족수발자의 노인수발 경험이 신체적 건강에 미치는 영향을 조사하기 위해 사회문화적 스트레스 대처모델을 적용하여 경로모델을 제시하면서 문화적 가치의 영향을 고려하였다. 경로모델에서 문화적 가치는 수발부담과 스트레스 대처행동(사회적 지지)을 통해 수발자의 신체적 건강에 영향을 미칠 것이라 가정되었다. 자료 수집을 위해 미국 남가주(Southern California)에 거주하는 87명의 한인 가족수발자를 구조화된 설문지로 면접조사하였다. 신체적 건강 변수로서 주관적 건강, 혈압, 콜티졸을 고려하였으며, 사회적 지지는 가족, 친척, 이웃 등으로부터의 비공식적 사회적 지지와 공식적 계약에 의해 주어지는 사회적 지지(노인복지서비스 이용)의 영향을 고려하였다. 경로분석 결과, 문화적 가치가 한인 가족수발자의 신체적 건강에 미치는 영향이 확인되었는데, 문화적 가치에 대한 믿음이 강할수록 공식적 사회적 지지 이용 빈도가 높았으며, 이용 빈도가 높을수록 수발자의 수축기 혈압이 낮았다. 그러나 문화적 가치가 수발부담을 통해 신체적 건강에 미치는 영향은 확인되지 않았다. 본 연구는 한인 수발자의 신체적 건강에 관한 연구의 시발점으로서 정책적, 학문적 함의를 제시한다.