• Title/Summary/Keyword: Experiences of Illness

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Communication Experiences and Needs among the Critically Ill with an Artificial Airway: An Integrative Review (인공기도를 가진 중환자실 환자의 의사소통 경험과 요구에 관한 통합적 문헌고찰)

  • Kim, Soo Hyun;Kim, Juyoung;Choi, JiYeon
    • Journal of Korean Critical Care Nursing
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    • v.14 no.2
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    • pp.24-41
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    • 2021
  • Purpose : The aim of this integrative review was to describe communication experiences and needs among the critically ill with an artificial airway and evaluate relevant intervention studies. Methods : Using the method employed by Whittemore and Knafl (2005), we searched for papers on PubMed, CINAHL, and Web of Science published from January 1, 2015 to September 25, 2020. A total of 26 papers (11 descriptive studies, 15 experimental ones) were identified and evaluated. Results : Communication experiences while having an artificial airway, identified either by patients' recall or direct observation, were predominantly negative. However, positive experiences were reported in patients with improvements in physical conditions and functions. Patients' communication needs were diverse, encompassing physical, psycho-emotional, social, spiritual, and medical issues. Interventions tested included alternative and augmentative communication strategies, communication intervention packages, and voice restorative devices. Physical, psychosocial, and communication-related patient outcomes were evaluated using various methods including self-report surveys, interviews, and observations. Conclusions : The findings from this review represent the state of science regarding communication of the critically ill whose vocal abilities are inhibited by the presence of an artificial airway. Future studies with rigorous experimental designs and measures are warranted to better understand and support the complex needs of this highly vulnerable patient population.

A Study on Parenting Competency of Mothers with Mental Illness (여성정신장애인의 양육능력에 관한 연구)

  • Seo, Mi-Kyoung
    • Korean Journal of Social Welfare
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    • v.60 no.2
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    • pp.77-98
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    • 2008
  • For women living with mental illness, motherhood may be a normalizing life experiences and offers the opportunity to develop competencies in a major life roles. So, the main premise of this study that social contexts, social support of spouse and extended family, is very important for successful parenting of mothers with mental illness. Thus this study analyzes the impact of marital relationship and social support of networks on three dimensions of parenting competency(expression of love, encouragement of independence, rational discipline) when the socioeconomic(age, number of offsprings, subjective economic level) and disability variables(diagnosis, severity of symptoms, chronicity, frequencies of psychiatric admission) are controlled. This study conducted the survey with 145 mothers with schizophrenia and mood disorder. The major finding of the study are : i) Using step-wise multiple regression, marital relationship, social supports and economic level affect significantly on the expression of love. ii) Using step-wise multiple regression, the most powerful influenced factor on encouragement of independence is marital relationship. iii) Using step-wise multiple regression, diagnosis, severity of symptoms, chronicity and economic level affect significantly on the rational discipline. That is two dimensions of parenting competency, expression of love and encouragement of independence, can be explained well by social contexts variables(marital relationship, social support, economic level). But only rational discipline can be explain well by disability factors. In conclusion, this study recommends service providers to use family based comprehensive case management for the mothers with mental illness.

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Illness and Experiences of the Body Among Aged Women (만성질환을 지닌 여성 노인의 몸 체험)

  • Cho, Myung Ok
    • Korean Journal of Adult Nursing
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    • v.19 no.3
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    • pp.365-378
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    • 2007
  • Purpose: The purpose of present study was to discover the experience of the body of aged women, having had disease. Thus, the researcher tried to explore the perception of the informants and the context in which this perception emerged. Methods: 9 aged women who had disease or trauma were recruited by snow balling and theoretical sampling methods. The iterative data collection and analyzing process proceeded between September, 1999 and January, 2005. Questions posed to the informants included: "What major change in your body comes from the disease?" "How did you feel about yourself after having had disease?". Data from interviews and participant observation was taken as text. The text was analyzed using the ongoing process of qualitative content analysing method and taxonomy of Spradley. Results: Disease gives aged women a chance to reinforce the meaning of their body: the body as the most low valued component of a human, the body as a wholistic field of interacting each component of human and with natural environment and cosmos, and the body as a source of group identity. These meanings were constructed in their life world by the rules of hierarchy, reciprocity, and group cohesiveness. Conclusions: The human body is constructed as a cultural being by a social process. Nursing is concerned with the biological body and the social body. The results of this study can serve to help understand the socialization of the body and to construct a somology of nursing.

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Family Experiences of Living with Chronic Schizophrenic Patients - Application of Parse's Human Becoming Research Methodology - (만성정신분열환자 가족의 체험 - Parse의 인간되어감 연구방법론 적용 -)

  • Lee, Ok-Ja;Choi, Young-Sook
    • Journal of Korean Academy of Nursing
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    • v.37 no.1
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    • pp.26-34
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    • 2007
  • Purpose: This study was aimed at understanding the nature of the suffering of families with patients in mental health nursing homes and hoped to contribute to the rehabilitation process of those with a chronic mental disorder. Method: Research methodology was based upon Parse's human becoming research methodology. Results: a) Despite the despair the family feels by the violence caused by their now-institutionalized relative, they also realize anew the importance of their role as protectors b) Although they fear social stigmatization they also try to be supportive, out of guilt feelings; c) They regret their severe rearing style and wish to be more sympathetic, d) They find courage and hope through family therapy, which leads to a better understanding of the illness, e) With hopes of rehabilitation, the family members feel happy and go through an emotional release, by sharing the pain with each other. Conclusion: Families of nursing home residents share a focus on the process of human-health-universe. This is a positive,'human-becoming' process with which, based on past feelings of despair, fear, resignation, and pain, one can render meaning into his or her experiences in the present in the pursuit of love, conquest, hope, liberty and success.

A Prediction Model for Unmet Needs of Elders with Dementia and Caregiving Experiences of Family Caregivers (재가치매 환자의 미충족요구와 가족부양자의 돌봄경험 예측모형)

  • Choi, Sora;Park, Myonghwa
    • Journal of Korean Academy of Nursing
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    • v.46 no.5
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    • pp.663-674
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    • 2016
  • Purpose: The purposes of this study were to develop and test a prediction model for caregiving experiences including caregiving satisfaction and burden in dementia family caregivers. Methods: The stress process model and a two factor model were used as the conceptual frameworks. Secondary data analysis was done with 320 family caregivers who were selected from the Seoul Dementia Management Survey (2014) data set. In the hypothesis model, the exogenous variable was patient symptomatology which included cognitive impairment, behavioral problems, dependency in activity of daily living and in instrumental activity of daily living. Endogenous variables were caregiver's perception of dementia patient's unmet needs, caregiving satisfaction and caregiving burden. Data were analysed using SPSS/WINdows and AMOS program. Results: Caregiving burden was explained by patient symptomatology and caregiving satisfaction indicating significant direct effects and significant indirect effect from unmet needs. The proposed model explained 37.8% of the variance. Caregiving satisfaction was explained by patient symptomatology and unmet needs. Mediating effect of unmet needs was significant in the relationship between patient symptomatology and caregiving satisfaction. Conclusion: Results indicate that interventions focusing on relieving caregiving burden and enhancing caregiver satisfaction should be provided to caregivers with high levels of dementia patients' unmet needs and low level of caregiving satisfaction.

Experiences in Spiritual Nursing Care by Student Nurses before Starting Nursing Practice in Hospital: Part I (간호대학생의 임상실습 전 영적 간호경험 I : 사례연구를 중심으로)

  • Koh Myung-Suk
    • Journal of Korean Academy of Fundamentals of Nursing
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    • v.9 no.3
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    • pp.462-472
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    • 2002
  • The purpose of this study was to describe the spiritual care experiences of student nurses after they have received 2 credits in a spiritual nursing care course at a university in Seoul, Korea. The major finding are as follow: 1 The problems that students reported for their patients were. loss of self- confidence, anxiety about outward appearance, anxiety about his(her) health and illness, maladaptability, guilt, problems with dating, uncertainty about his (her) future. 2. The methods which students used to help solve the patients' problems were: prayer with patients, use of Scripture, conversation, advice, frequent meetings listening, frequent phone call, writing letters, exploring problem solving methods together, and introduction of similar patients. 3. After the students had experienced spiritual nursing care they felt satis-faction, lack of knowledge of spiritual care, understood that spiritual nursing care courses at the university are important for education and experience, and understood the need for experience to increase sensitivity to the spiritual needs of their patients. Conclusion : Maintaining spiritual wellness is a important as maintaining physical fitness and essential for optimal well being. Therefore educating student nurses in developing and maintaining spiritual wellness is essential in order for them to help their patients achieve holism.

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Children's Mental Health in Multicultural Family and North Korean Defectors in South Korea (다문화 및 북한이탈주민 가정 자녀의 정신건강)

  • Lee, So Hee;Lee, Sun Hea
    • Journal of the Korean Academy of Child and Adolescent Psychiatry
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    • v.24 no.3
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    • pp.124-131
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    • 2013
  • South Korea is changing into a multi-cultural society, due to an increase in international marriage, foreign workers and transcultural immigration. In addition, the number of North Korean defectors entering South Korea has increased and now, there are approximately 25000. Therefore, this review have focused on a research that pertains to adaptation and mental health concerns of their children. Children who have immigrated themselves or whose parents have immigrated, might experience language barriers, difficulties in school adjustment, identity confusion and mental health problems. However, their academic performance and developmental status are known to be variable and be affected by socioeconomic status and their parents' educational level. Studies that evaluated the psychological problems of North Korean adolescent refugees' indicated the need for interests in both emotional and behavioral problems. The risk factors of North Korean adolescent refugees' mental health are suggested to be past traumatic experiences, long duration of defection and short period of adaptation. When mental health professionals provide assessment and treatment, they should consider the pre- and post-migration experiences & cultural background that affect the illness behaviors and attitudes toward mental illnesses. Lastly, the majority of children with multi-cultural background are still under an adolescent period and we should follow up with long-term perspectives.

The Experience of Miners Relocated to Alternative Positions due to Silicosis in the Andean of CODELCO, Chile, 2010

  • Delgado, Diemen;Aguilera, Maria De Los Angeles;Delgado, Fabian;Rug, Ani
    • Safety and Health at Work
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    • v.3 no.2
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    • pp.140-145
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    • 2012
  • Objectives: To understand the personal experiences of mine workers that have experienced job relocation due to silicosis at the Andina Division of Corporaci$\acute{o}$n Nacional del Cobre (CODELCO), Chile. The purpose of the study was to provide useful information for the development of new local, business and public policies for the care of workers with silicosis. Methods: A qualitative study based on a practical case study of 5 workers. The information was collected by means of structured individual interviews. The method of analysis was phenomenology. Results: The corporal axis was the most commented upon. It included awareness of the illness, body pains, fatigue, and antagonistic mood disorders (sadness, or the difficulty in finding meaning in life). As far as personal relationships, there was evidence of strong relationships with family, coworkers and friends, as well as extended family. Over all, the experience of relocation was positive with periods of impatience and uncertainty. The job reassignment provided a new and pleasant context for the relocated workers and in the process improved their perception of their quality of life. Conclusions: A multidisciplinary team should attend mine workers relocated because of silicosis by addressing the mental and physical aspects of their disease, along with the integral participation of close family members. It is suggested that this investigation be maintain over time to record the personal experiences in the medium-term, adding new cases with the intention of shedding more light on the phenomenon being studied. As a preventive measure, continual workshops are needed on the proper use of respiratory protection in addition, a group of monitors is required.

The Lived Experiences of Employers among Employment of the Mentally Disabled People (고용주의 정신장애인 고용경험에 관한 연구)

  • Byun, Eun Kyung;Kim, Mi Young
    • The Journal of the Convergence on Culture Technology
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    • v.5 no.3
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    • pp.33-42
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    • 2019
  • The purpose of this study is to investigate in depth the lived employers experiences of utilizing employment among people with mentally disabilities. Phenomenological approach was used for this study. A total of 9 employer on work of the mentally disabled people were recruited as research participants Data was collected through in-depth interviews from March, 2017 to September, 2018. Transcribed data from audio recordings on interviews were analyzed using the Braun & Clarke method. 6 clustered themes consisting of 12 sub-themes emerged through the qualitative data analysis and they include the following: 1) Getting to realize that a vague concern; 2) Being forced to withstand others' persuasion; 3) Fluctuating on boundaries of my work; 4) Moving forward from individual to team; 5) Being together work expected workers with mentally disabled; and 6) Seeking for company progress. Study findings suggest that expanding employment and improving its quality for work of the mentally disabled people are needed. Additionally, the field of mental health needs an increase in the experiences of employment with expertise in dealing with employers on work of the mentally disabled people.

Experiences of Parents as Suicide Survivors (자살로 자녀를 잃은 부모의 경험 -참척(慘慽) 고통과 화해-)

  • Kim, Ka Duc
    • Korean Journal of Social Welfare
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    • v.64 no.4
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    • pp.5-29
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    • 2012
  • This study aimed to express the experiences of the parents who lost their children by suicides in their own words from their own perspectives by van Manen(2000)'s hermeneutic phenomenological approach. The analysis of the words expressed by the research participants led to the following five fundamental themes. These are 'broken heart, sinner's grief, land of exile and time stood still, pains to be comforted, and days ahead with half-stitched wounds'. Several distinctions are found due to cultural differences from Korean parents. First, whereas the Western parents see the cause of their child's suicide as his/her independent issue, the Korean parents blame themselves entirely. This may have stemmed from the overly inter-dependency between the parents and the child. Second, whereas the Western perspective views the suicide as a type of illness from the individual's depression. The Korean perspective views the suicide as a shame that disgraces the parents or the family. This negative social perspective intensifies the self-blame and social isolation. Third, the Westerners recognize the prevention and responsibility of suicide resting with the society and government, but the Korean society recognize suicide as personal or family matter. Based on the finding above, I proposed a number of practical measures to aid the surviving parents who belong to a group with extremely high suicidal rates.

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