• 제목/요약/키워드: End-of-life care decision-making

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호스피스 완화의료 전문기관 간호사의 임종간호수행 영향요인 (Factors Affecting End-of-life Care Performance of Nurses in Hospice and Palliative Nursing Institutions)

  • 전민기;권명진
    • 산업융합연구
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    • 제22권5호
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    • pp.107-116
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    • 2024
  • 본 연구는 호스피스 완화의료 전문기관 간호사의 임종간호스트레스, 죽음인식, 사전의사결정 태도가 임종간호수행에 미치는 영향 정도를 규명하기 위한 서술적 조사 연구이다. 본 연구의 대상자는 보건복지부로부터 호스피스 완화의료 전문기관으로 지정된 의료기관에 근무하는 호스피스 간호사 200명이다. 본 연구의 자료수집은 서면 설문지와 인터넷 설문조사 두가지 방법을 사용하여 2021년 8월 9일부터 9월 30일까지 이루어졌다. 자료분석방법은 대상자의 임종간호스트레스, 죽음인식, 사전의사결정 태도, 임종간호수행 간의 관계를 분석하기 위해 Pearson's correlation coefficient를 사용하였고 대상자의 임종간호수행에 영향을 미치는 요인을 파악하기 위해 Hierarchical Regression을 사용하였다. 본 연구결과 임종간호수행과 죽음인식(r=.22, p=.002), 임종간호수행과 사전의사결정 태도(r=.20, p=.004)는 유의한 상관관계를 나타냈다. 그리고 독립변수를 추가한 MODEL2에서 연령, 사전의사결정 태도, 죽음인식이 유의한 임종간호수행 영향요인이었으며 이들의 설명력은 10.4%이었다(F=3.90, p<.001). 호스피스 간호사의 임종간호스행 능력을 향상시키기 위해서는 그 영향요인을 고려한 중재가 요구된다.

일 대학병원종사자의 생애말기 치료 선호도 (Preferences for Care Near the End of Life among Hospital Employees)

  • 강지연;윤선영;김수정;안소라;이명희;김신미
    • 근관절건강학회지
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    • 제20권3호
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    • pp.197-206
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    • 2013
  • Purpose: The purpose of this study was to investigate end-of-life care preferences of employees working in a university hospital. Methods: Of 650 eligible employees that were approached, 607 employees (386 nurses, 93 physicians, and 128 general staff) completed the Korean version of Preferences for Care Near the End of Life (PCEOL-K). Results: Among 5 dimensions of the PECOL-K, "Pain" was the most preferred care dimension and "Decision making by health care professional" was the least preferred care dimension. The item that received the highest mean score was "I want to let nature guide my dying and I do not want my life to be artificially prolonged in any way", and the lowest item was "I want health care providers to make all decisions about my care". As preferred care near the end of life, nurses gave lower scores to the life sustaining treatment and decision making by health care profession than physicians and general staff. Compared to physicians and nurses, general staff preferred the decision making by health care professional and by family. Conclusion: The results show that adequate pain relief is the most preferred care at the end of life among hospital employees and non-medical personnel preferred decision making by others.

말기 암환자 가족의 대리적 연명의료 결정에 대한 치료결정 후회 및 심리적 스트레스: 경로모형 분석 (Family Surrogates' Decision Regret and Psychological Stress about End-of-Life Cancer Treatments: Path Analysis)

  • 김수현
    • 대한간호학회지
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    • 제48권5호
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    • pp.578-587
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    • 2018
  • Purpose: This study aimed to understand the mechanisms of decision regret and stress of family surrogates' end-of-life decision making using an exploratory path model. In particular, the research identified the direct effects of perceptions of uncertainty and effective decisions on decision regret and stress, and examined the indirect effects of being informed, having clear values, and being supported for decision regret and the stress of end-of-life decision making through the mediating variables of perceptions of uncertainty and effective decisions. Methods: Data were collected from 102 family surrogates who had participated in end-of-life decision making for patients with terminal cancer in a tertiary hospital. Results: Perception of effective decisions was a significant direct predictor of decision regret, and uncertainty was a significant predictor of stress among the participants. Being informed, having clear values, and being supported had a significant indirect influence on decision regret through the perception of effective decisions among family surrogates. However, only having clear values had a significant indirect influence on stress through the perception of uncertainty. The model explained 63.0% of decision regret and 20.0% of stress among the participants and showed a good fit with the data, ${\chi}^2=12.40$ (df=8, p=.134), TLI=.97, and RMSEA=.07. Conclusion: Nurses can support family surrogates in end-of-life decision-making processes to decrease their decision regret by providing information about end-of-life care choices, clarifying personal values, and supporting the decision-making process, and to relieve their stress by facilitating the clarification of personal values.

말기의 의료적 의사결정에 관한 임상간호사의 갈등경험 (Nurse's Conflict Experience toward End-of-life Medical Decision-making)

  • 조계화
    • 성인간호학회지
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    • 제22권5호
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    • pp.488-498
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    • 2010
  • Purpose: The purpose of this study was to explore clinical nurse's reported conflict experience toward end-of-life medical decision making. Methods: Data were collected by in-depth interviews with eight nurses from three different wards of university hospital in D city of Korea. Conventional qualitative analysis was used to analyze the data. Results: Results were three major themes and twelve categories from the analysis. The three major themes were prioritization of treatment, non-disclosure of diagnosis, and hierarchical and power relations. Conclusion: The results of this study suggest that shared decision making in end of life among patient, family members, physician, and nurse may contribute to improve end-of-life care performance as well as dignified dying of patient in end of life.

Notification of Terminal Status and Advance Care Planning in Patients with Cancer

  • Lee, Si Won
    • Journal of Hospice and Palliative Care
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    • 제25권1호
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    • pp.42-49
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    • 2022
  • As population aging increases the burden of cancer, the quality of death of patients with cancer is emerging as an important issue alongside their quality of life. To improve the quality of death, it is necessary to prepare for death, allowing patients to die comfortably and with dignity at the end. Considering these issues, I aim to discuss the practical aspects of notifying the patient of the terminal phase of cancer and planning for end-of-life care (i.e., advance care planning). When cancer treatment that can extend the patent's lifespan becomes difficult, the patient enters a treatment transition period. Treatment is shifted from life-prolonging care to life-enhancing care, and end-of-life care must be well planned. Medical providers often worry too much about whether the patient will be disappointed or psychologically traumatized when notified of the terminal phase of their cancer, thus delaying plans for end-of-life care. In fact, patients can accept their condition and prepare for end-of-life care better than we expect. During the treatment transition period, notification of terminal status should be given, and a well-prepared advance care plan should be established early when the patient has decision-making ability. In addition to conveying information, it is always necessary to be sensitive to whether the patient and caregiver understand the information and respond to their emotions.

Lifting Shadows off the End-of-Life Care: Hopes and Beliefs on Video Decision Support Tools for Advance Care Planning

  • Jeong, Heon-Jae;Yoon, Hyeyeon
    • Journal of Hospice and Palliative Care
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    • 제19권1호
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    • pp.1-4
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    • 2016
  • As advance care planning is taking center stage in the field of end-of-life care, various tools have been developed to aid in the often emotional and difficult decision-making process. Video decision support tools are one of the most promising means of assistance, of which the modus operandi is to provide more comprehensive and precise information of medical procedures to patients and their families, allowing them to make better informed decisions. Despite such value, some are concerned about its potential negative impact. For example, video footages of some procedures may be shocking and unpalatable to non-medical professionals, and patients and families may refuse the procedures. One approach to soften the sometimes unpleasant visual of medical procedures is to show less aggressive or more relaxing scenes. Yet another potential issue is that the objectivity of video decision support tools might be vulnerable to the very stakeholders who were involved in the development. Some might argue that having multiple stakeholders may function as checks and balances and provide collective wisdom, but we should provide more systematic guarantee on the objectivity of the visual decision aids. Because the decision of the modality of an individual's death is the last and most significant choice in one's life, no party should exert their influence on such a delicate decision. With carefully designed video decision support tools, our patients will live the last moments of their lives with dignity, as they deserve.

만성질환자의 특성에 따른 생애말기치료 선호도 (Preferences for Care near the End of Life according to Chronic Patients' Characteristics)

  • 윤선영;강지연
    • 성인간호학회지
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    • 제25권2호
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    • pp.207-218
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    • 2013
  • Purpose: The purpose of this study was to explore the chronic patients' preferences for care near the end of life. Methods: This is a descriptive survey research, with subjects of 161 outpatients with hypertension, diabetes mellitus or chronic renal failure. Results: The majority of the subjects do not want meaningless life sustaining treatment and they report thinking positively about family or health care professional to participate in their end of life decision making process. Subjects reported preferring adequate pain management and spiritual support at the end of life. In regard to advance directives (ADs), those subjects with chronic disease report thinking positively about the necessity of ADs and its institutionalization. However, the subjects report not having the detailed information on the proper time and method of writing their ADs. Conclusion: Based on these results, educational programs on end of life decision making for chronic patients need to be developed. Also, the nurse should try to reflect the opinion of chronic patients as much as possible when make an end-of-life decision.

생애 말 연명의료에 대한 중환자실 간호사의 인식: 내용 분석 연구 (Critical Care Nurses' Perception of Life-sustaining Treatment at End of Life: A Content Analysis)

  • 고진강;고정미;박혜영
    • 중환자간호학회지
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    • 제10권1호
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    • pp.41-50
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    • 2017
  • Purpose: The purpose of this study was to describe what critical care nurses perceived about life-sustaining treatment at end of life. Methods: A qualitative content analysis method was utilized. The unit of analysis was interview text obtained from fifty critical care nurses of a general hospital. Results: Seven categories in two content areas were abstracted. In the negative perception area, the following five categories were abstracted: patients' suffering, dying with damaged dignity, patients' isolation from family members, regret about choosing life-sustaining treatment, and family members' burden. In the positive perception area, the following two categories were abstracted: willingness to sustain life and duty as family members. Conclusions: Nurses have better competencies pertaining to understanding patients' responses and suffering than any other health care professions do. Nurses should play an important role in advocating for patients and their family in the process of end-of-life care decision making.

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생애말 치료결정 과정에 대한 중환자실 간호사의 인식, 태도, 경험: 국내 연구논문의 통합적 고찰 (Attitudes, Perceptions, and Experiences toward End-of-Life Care Decision-Making among Intensive Care Unit Nurses in Korea: An Integrative Review)

  • 최지연;손연정;이경훈
    • 중환자간호학회지
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    • 제13권1호
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    • pp.27-43
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    • 2020
  • Purpose : This integrative review aimed to synthesize studies on intensive care unit (ICU) nurses' attitude, perceptions, and experiences toward end-of-life care decision-making. Methods : Using Whittermore and Knafl (2005)'s methods, we identified and synthesized research articles published in domestic journals between the years 2003 and 2019 and evaluated the quality of selected articles using the Mixed Methods Appraisal Tool. Results : In the 13 studies reviewed, 12 were published prior to enactment of the "The Act for Hospice and Palliative Care and Decision-Making about Life-Sustaining Treatment (2018)." All nine quantitative studies identified were based on cross-sectional descriptive survey. In four qualitative studies, content analysis (n=2) and phenomenology (n=2) were used. Overall, ICU nurses were well-aware of the necessity of communicating and limiting life-sustaining treatments. Many ICU nurses had positive attitude towards limiting life-sustaining treatments to promote patients' comfort and dignity. Although nurses were willing to take active roles, they also reported having experienced high stress in the process of decision-making and implementation. Conclusions : It is important to prepare ICU nurses with proper knowledge and attitude regarding the topic area. It is also equally important to develop systems to support nurses' emotional stress and moral distress during communication, decision-making, and implementation.

Advance Care Planning: Preliminary Report of Differences and Similarities between Korean and Korean American

  • Park, Jin Hee
    • Journal of Hospice and Palliative Care
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    • 제16권4호
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    • pp.232-241
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    • 2013
  • 목적: 한국에 있는 한국 사람들과 미국에서 사는 재미 교포들간의 삶의 마지막 치료에 대한 의식, 삶의 마지막 전 계획에 대한 태도, 진실을 직면하는 태도 그리고 마지막 치료에 대한 결정을 누가 내리기를 원하는지에 대한 다른 관점들에 대해 밝히고자 한 예비 연구논문이다. 방법: 65세 이상의 한국에 사는 한국인들 25명, 미국에서 20년 이상 사신 한국인들 23명이 선택되었고 이들은 자신 개인신상에 대해 묻는 질문지와 임종에 가까워질 때 원하는 치료, 임종 전에 사전 계획을 세우는 것에 대한 것, 고칠 수 없는 자신의 병에 대한 진실을 대한 태도, 그리고 누가 마지막 치료에 대한 결정을 내리기를 원하는 지에 대한 질문지에 답하게 되었다. ${\chi}^2$ test로 한국인들 대상자들과 재미 교포 대상자들의 다른 점을 측정하는데 사용하였고, P value가 0.05보다 작은 것을 유용한 자료로 사용하였다. 자료 분석을 위해서는 SPSS 18.0을 사용하였다. 결과: 삶의 마지막 돌봄의 인식, 돌봄계획에 대한 태도, 그리고 진실 알리기 등의 항목에서는 한국인과 재미 교포간에 비슷한 의견을 보였다. 하지만, 삶의 마지막 돌봄에 대한 문서화, 진실을 누구에게 먼저 알릴 것인지, 그리고 선호하는 의사결정모델에서는 유의한 차이를 보였다. 결론: 한국인과 재미교포 사이에는 몇 가지 삶의 마지막 이슈에 대해 공통점과 차이점이 있었다.