본 연구는 원예 치료프로그램 종결 이후에 정신지체 장애인이 자조모임을 구성하는 것에 있으며, 의도적인 집단원예 활동을 통해 개인의 심리적 치료를 경험하게 하고, 사회부적응문제를 치료하여 적극적이고 긍정적인 생활태도를 가지도록 지원하며 자조모임을 형성하여 직업개발과 사회통합에 기여하고자 실시되었다. 연구기 간은 2003년 1월 4일부터 2003년 5월 27일까지였으며 모집기간 중에 선발된 정신지체장애인 10명 중 6명을 연구대상으로 하였다. 연구프로그램은 정신지체장애인의 사랑과 나눔의 재활공동체인 자조모임형성을 목표로 설계된 원예치료 프로그램으로서, 대상자의 특성에 맞게 접촉, 시행단계의 원예활동(2단계)과 자조모임을 위한 원예활동(1단계)을 적절히 배치하였으며 , 치료효과를 검증하기 위해 원예에 대한 기초 조사표, 원예에 대한 기초적인 흥미 진단표, 자아존중간척도(Self-Esteem Scale), 원예치료평가표, 클라이언트 만족도, 자체 설문지를 치료 전, 후로 시행하여 비교하였다. 원예에 대한 기초조사표 평가결과 원예에 대해 꽃가꾸기를 좋아하고, 원예 활동 중 마음이 평 화롭고 편안하다고 대답하였다. 선호하는 색깔은 파란색, 분홍, 노란, 흰색이었고 선호하는 꽃은 장미, 국화, 진달래, 백합 순으로 답하였으며, 채소는 무, 상추와 시금치, 배추 순이었고 과일은 배, 사과, 감과 밀감 순으로 조사되었다. 원예에 대한 기초적인 흥미 진단표 평가에서는 대부분의 항목에서 해 본적이 있거나 해 보고 싶다고 답을 했다 특히 정원수, 자생식물, 허브, 화단, 정원 가꾸기에 높은 관심을 보였다. 위의 결과로 보아 원예활동이 주는 정신적 안정을 느끼고, 기능의 재활이나 회복, 취미 생활로 할 수 있기 때문이라고 판단된다. 사전사후검사로 실시 한 자아존중감(Self-Esteem Scale)평가결과는 대상자 6명 모두에서 자아존중감이 유의미하게 향상 된 것으로 측정되었다. 이는 원예활동을 하면서 스스로 심고 가꾸는 것을 통해서 성취감과 자신감을 느끼게 되고, 실시한 성과물을 집에 가지고 가게 함으로써 정신지체장애인의 자아 존중 감에 영향을 미쳤다고 추정된다 사후검사로 실시한 클라이언트 만족도 척도의 평가한 결과 대부분이 정신지체장애인이 본 프로그램에 상당한 만족 도를 보였다. 원예 치료평가표 결과는 참가성, 흥미성, 지속성, 대인관계, 운동지각능력에서 모두에서 증가를 보였고 그 중 참가성 , 흥미성, 지속성, 대인관계 4개의 측정항목에서 높은 증가율을 보여 치료효과가 큰 것으로 판단된다. 원예 치료 실시 후의 자체설문지 평가결과 원예 활동을 통해서 달라진 점은 개인적으로 가족, 이웃 간의 긍정적인 변화를 이끌어내고 있다는 것을 발견할 수 있었고 다양한 원예프로그램이 인상깊었다고 하였으며 다음진행에 추가적으로 야외에서 진행할 프로그램에 대한 욕구가 표출되었다. 이것을 통해 개인적 치료경험과 가족, 이웃 간의 지지망 형성이 중요하며 긍정적인 영향을 주었다는 것을 볼 수 있었다. 또한 다양한 원예치료프로그램의 적용과 야외 활동을 조화롭게 적용한다면 성공적인 프로그램 진행에 도움을 될 것으로 판단된다. 이상의 결과를 종합하면 정신지체장애인에게 원예치료 프로그램을 실시한 이후에 원예에 대한 관심이 높고 자아존중 감이 향상되었으며 원예치료 프로그램에 대한 높은 만족도를 보였고 원예치료에 대한 참가성, 흥미성, 지속성, 대인관계성에서 높은 증가율을 보여 치료프로그램의 개입이 유의미한 효과가 있는 것으로 나타났다. 이러한 결과들 볼 때 의도적인 원예치료활동을 통해서 심신의 치료를 경험하
The purpose of the study is to identify the lived experience of mothers who have children with cerebral palsy in order to understand their agony. Moreover, the result of study was to find some nursing intervention for disabled children and their mothers. For this purpose, ten mothers who are willing to cooperate with this research were selected at random from those who have children with the cerebral palsy, currently using the municipal facilities for the handicapped with cerebral malfunction. Data collection was done from October 4, 1994 th December 31, 1994. The data were collected by asking the mothers mentioned above with some unstructured open-ended questions, recorded on the tapes with permission by the interviewee in order to prevent missing of the interviewed contents. These collected data have been substantiated and properly analyzed on the basis of phenomenological approach initiated by Colaizzi's method. The results and validity are proved to be credible by means of the individual checking of the interviewed mothers. The results of this study are as follows : 1. When the mother is first informed of the diagnosis of cerebral palsy on her child, she usually misses the crucial timing needed for proper treatment of the child's disorder because she is notified through the doctor's indifference and his apparently inactive, matter-of-fact attitude. At first she suspects the doctor's diagnosis and tries to attribute it to the unknown cause from a certain genetic problem and then she quickly wants to deny the whole situation that her child is really suffering from the cerebral palsy. The reality is too much for her to accept as it is and she would not believe her child is abnormal. Therefore, she even attempts depend on the power of God for its solution. 2. The mother, who goes thorough this kind of uncommon experiences, is totally devoted to the treatment and care of the child and completely ignores her own life and happiness. At the same time, she feels sorry for her other normal children she believes having not enough care and concern. Also, she feels sorry for the sick child when the child's brothers or sisters show special concern for the patient out of sympathy. It is sorry and not satisfied for her that the child is growing with abnormality and neighbor other around have inappropriate attitudes. Likewise, she is discontent with her husband's lack of concern about the child's treatment. She believes that the health care system in this society isn't fulfilling its due purpose. In the state of her utmost distress and anxiety, she always feels the need of competent consultants, and is angry about that her child is treated as an abnormal being, she is trying to hide the child from other people and to make him or her disappear, if possible. Although she doesn't have harmonious relation with her husband, she id happy when he shows his affection for the child and she feels relieved and thankful when the relatives don't mention about the child's condition Since the child's overall status of health is continuously in unstable conditions, requiring her all-time readiness for an emergency, she feels guilty of her child's illness toward the fEmily members as if it was her own fault to have borne such an abnormal child and she feels responsible for the child morally and financially if necessary Because her life is centered on taking care of the child, she cannot afford to enjoy her own life and happiness. She is a lonely mother, fatigued, with no proper relationship with other people around her. With this sense of guilt and responsibility as a mother of an unusual disease, she has no choice but to grieve her destiny from which she is not allowed to escape. 3. Nevertheless, the mother with the child suffering from the cerebral palsy does not easily give up the hope of getting her child cured and she believes that in the long run, though slower than hoped, her abnormal son or daughter will be eventually cured to become a normal sibling someday. This kind of hope is sustained by the mother's strong faith coming from observing the progress of other similar children getting better. Sometimes she is encouraged to have this faith by other mothers who share the same painful experiences, believing that her child will improve even more rapidly than others with the same palsy. Full of hope, she painstakingly waits for the child's healing. Moreover, she plans to have another child. she thinks that the patient child's brothers and sisters only can truly understand and look after the patients. However, when she notices that the progress of other children under the treatment does not look so hopeful, she is distressed by the thoughts that her child may never get well. Too, she is worried that the patient's brother or sister will be born as the same invalid with the cerebral disease. She is discouraged to have another baby as much as she is encouraged to. She is also troubled by the thought that in case she has another baby, she will have to be forced. to neglect the patient child, especially when she does have an extra hand or some reliable person to help her with taking care of the patient.