• 제목/요약/키워드: Clinical Document Registry

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익명화 방법을 적용한 임상진료문서 등록 기법 연구 (A New Method of Registering the XML-based Clinical Document Architecture Supporting Pseudonymization in Clinical Document Registry Framework)

  • 김일광;이재영;김일곤;곽연식
    • 한국정보과학회논문지:소프트웨어및응용
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    • 제34권10호
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    • pp.918-928
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    • 2007
  • 진료기관 사이뿐 아니라 국가 경계를 넘어선 환자진료 정보 교류에 대한 요구사항이 세계적으로 증가되고 있으며 이에 대한 연구가 활발하게 진행되고 있다. 본 논문에서는 임상진료문서 등록 저장소에서의 임상진료문서 등록, 조회 방법에 관한 두 가지 기법을 제안한다. 그 첫 번째는, 임상진료문서 관련부속파일에 대한 참조와 처리를 위해 적하목록(Manifest)을 구성하고 사용을 제안하는 것이다. 두 번째는 한층 강화된 임상진료문서 보안전략을 통해 환자 익명성을 제공할 수 있는 방법이다. 전자는 네트워크 장애와 같은 외부요인에도 임상진료문서 관련 부속자료에 대한 로컬 참조를 가능케 하여 끊김 없는 뷰(view)를 구성할 수 있게 한다. 후자는 환자의 신상정보를 담은 임상진료문서 헤더와 진단과 처치 정보를 담은 임상진료문서 바디가 지리적으로 분산된 하나 이상의 저장소에 분리 저장되기 때문에 어느 하나의 저장소가 공격 당하더라도 공격자는 환자의 단편적인 정보만 획득하게 된다. 이는, 결국 환자의 신상정보와 병력정보를 단절시킴으로써 사생활침해의 소지를 줄이고 개인정보보호 효과를 가져올 수 있게 한다.

The Value and Limitations of Guidelines, Expert Consensus, and Registries on the Management of Patients with Thoracic Aortic Disease

  • Pacini, Davide;Murana, Giacomo;Leone, Alessandro;Marco, Luca Di;Pantaleo, Antonio
    • Journal of Chest Surgery
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    • 제49권6호
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    • pp.413-420
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    • 2016
  • Doctors are often faced with difficult decisions and uncertainty when patients need a certain treatment. They routinely rely on the scientific literature, in addition to their knowledge, experience, and patient preferences. Clinical practice guidelines are created with the intention of facilitating decision-making. They may offer concise instructions for the diagnosis, management (medical or surgical treatments), and prevention of specific diseases or conditions. All information included in the final version are the result of a systematic review of scientific articles and an assessment of the benefits and costs of alternative care options. The final document attempts to meet the needs of most patients in most circumstances and clinicians, aware of these recommendations, should always make individualized treatment decisions. In this review, we attempted to define the intent and applicability of clinical practice guidelines, expert consensus documents, and registry studies, focusing on the management of patients with thoracic aortic disease.

Survival Analysis and Prognostic Factors for Colorectal Cancer Patients in Malaysia

  • Hassan, Muhammad Radzi Abu;Suan, Mohd Azri Mohd;Soelar, Shahrul Aiman;Mohammed, Noor Syahireen;Ismail, Ibtisam;Ahmad, Faizah
    • Asian Pacific Journal of Cancer Prevention
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    • 제17권7호
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    • pp.3575-3581
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    • 2016
  • Background: Cancer survival analysis is an essential indicator for effective early detection and improvements in cancer treatment. This study was undertaken to document colorectal cancer survival and associated prognostic factors in Malaysians. Materials and Methods: All data were retrieved from the National Cancer Patient Registry-Colorectal Cancer. Only cases with confirmed diagnosis through histology between the year 2008 and 2009 were included. Retrieved data include socio-demographic information, pathological features and treatment received. Survival curves were plotted using the Kaplan-Meier method. Univariate analysis of all variables was then made using the Log-rank test. All significant factors that influenced survival of patients were further analysed in a multivariate analysis using Cox' regression. Results: Total of 1,214 patients were included in the study. The overall 3- and 5-year survival rates were 59.1% and 48.7%, respectively. Patients with localized tumours had better prognosis compared to those with advanced stage cancer. In univariate analysis, staging at diagnosis (p<0.001), primary tumour size (p<0.001), involvement of lymph nodes (p<0.001) and treatment modalities (p=0.001) were found to be predictors of survival. None of the socio-demographic characteristics were found to exert any influence. In Cox regression analysis, staging at diagnosis (p<0.001), primary tumour size (p<0.001), involvement of lymph nodes (p<0.001) and treatment modalities (p<0.001) were determined as independent prognostic factors of survival after adjusted for age, gender and ethnicity. Conclusions: The overall survival rate for colorectal cancer patients in Malaysia is similar to those in other Asian countries, with staging at diagnosis, primary tumor size, involvement of lymph node and treatment modalities having significant effects. More efforts are needed to improve national survival rates in future.

Improving Accuracy and Completeness in the Collaborative Staging System for Stomach Cancer in South Korea

  • Lim, Hyun-Sook;Won, Young-Joo;Boo, Yoo-Kyung
    • Asian Pacific Journal of Cancer Prevention
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    • 제15권21호
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    • pp.9529-9534
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    • 2014
  • Background: Cancer staging enables planning for the best treatments, evaluation of prognosis, and predictions for survival. The Collaborative Stage (CS) system makes it possible to significantly reduce the proportion of patients labeled at an "unknown" stage as well as discrepancies among different staging systems. This study aims to analyze the factors that influence the accuracy and validity of CS data. Materials and Methods: Data were randomly selected (233 cases) from stomach cancer cases enrolled for CS survey at the Korea Central Cancer Registry. Two questionnaires were used to assess CS values for each case and to review the cancer registration environment for each hospital. Data were analyzed in terms of the relationships between the time spent for acquisition and registration of CS information, environments relating to cancer registration in the hospitals, and document sources of CS information for each item. Results: The time for extracting and registering data was found to be shorter when the hospitals had prior experience gained from participating in a CS pilot study and when they were equipped with full-time cancer registrars. Evaluation of the CS information according to medical record sources found that the percentage of items missing for Site Specific Factor (SSF) was 30% higher than for other CS variables. Errors in CS coding were found in variables such as "CS Extension," "CS Lymph Nodes," "CS Metastasis at Diagnosis," and "SSF25 Involvement of Cardia and Distance from Esophagogastric Junction (EGJ)." Conclusions: To build CS system data that are reliable for cancer registration and clinical research, the following components are required: 1) training programs for medical records administrators; 2) supporting materials to promote active participation; and 3) format development to improve registration validity.

말레이시아 1개 병원과 병상규모가 유사한 한국의 병원 간 보건정보관리자 직무 비교연구 (Comparative Research on the Health Information Manager(HIM) Duties of One Malaysian Hospital and Similar Scale Korean hospitals)

  • 김혜경;이현주
    • 한국산학기술학회논문지
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    • 제15권10호
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    • pp.6158-6167
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    • 2014
  • 본 연구는 말레이시아 병원과 유사규모의 한국 병원을 대상으로 보건정보관리자(HIM)의 새로운 역할 7가지에 대한 직무를 비교연구하기 위한 것이다. 말레이시아 병원은 272병상 규모의 종합병원을 선정하였다. 말레이시아는 해당병원을 연구자가 직접 방문하여 담당자 면담 등을 실시하였고 기간은 2013년 7월 22일부터 8월 2일까지 약 2주간이었다. 국내병원은 말레이시아와 병상규모가 유사한 병상대의 종합병원 총 13곳을 대상으로 유선 상 질의응답을 통해 확인하였다. HIM의 새로운 7가지 역할에서는 Health information manager로서 말레이시아 병원은 ICT가, 한국 병원은 조사대상 병원의 30.8%가 역할을 수행하고 있었다. Clinical data specialist역할 관련 classification of disease & procedure는 양국 모두 실시하고 있었고 tumor registry은 말레이시아 병원은 담당하고 있었던 반면 한국 병원에서는 15.4%만이 담당하고 있었다. 퇴원환자 통계는 말레이시아에서는 담당하지 않았고 한국은 76.9%에서 담당하고 있었다. 특수질환 등록업무는 한국은 22.1%에서 담당한 반면 말레이시아는 전체 법정전염병 등록 뿐 아니라 병원출생아와 사망자에 대한 정보등록까지 실시하고 있었다. 그 외 Patient Information Coordinator, Data Quality Manager, Document and Repository Manager, Research and Decision Support Analyst 역할은 양국 모두에서 실시하고 있지 않았다. HIM의 새로운 역할은 한국 중소병원에서 실천률이 낮은 편이다. 따라서 한국전체에서 HIM 역할이 확고히 정립되려면 중소규모 병원까지도 그 역할을 잘 수행할 수 있도록 해당 협회차원의 지속적인 교육, 지원을 통해 일부 대형병원뿐 아니라 중소병원을 포함한 전체 병원에서 역할이 명확화 될 수 있는 노력이 필요하다. 특히 특수질환 등 등록업무는 말레이시아 병원이 한국 병원에 비해 역할이 잘 정립되어 있어 이를 벤치마킹하여 업무를 확대하는 방안도 모색할 필요가 있다고 사료된다.