• Title/Summary/Keyword: Caring burden

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A Study on the Development of Self-help Program with Care Burden for Families with Demented Elderly Persons (치매노인 가족의 부양부담 경감을 위한 자조집단프로그램 개발)

  • Kim, Joung-Soon;Lee, Su-Ill;Kim, Ki-Tae;Park, Nam-Hee
    • Research in Community and Public Health Nursing
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    • v.16 no.3
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    • pp.260-269
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    • 2005
  • Purpose: This study were to understand the caregiving situation of families with the demented elderly and to develop a self-help program for them. Method: A self-help program was designed to increase caregivers' confidence and skills in problem solving. In addition, it was designed to provide information about the demented elderly. The self-help program of this study was composed of nine sessions. Result: Family caregivers of elderly patients with dementia obviously experience high level of stress. which often leads the caregivers to negative outcomes such as depression, interference with social activities and health difficulties. That is, caring is stressful for caregivers because the demands of the caregiving situation tend to overwhelm the caregivers' coping resources. Therefore, families with demented elderly persons need assistances in order to be relieved from their care burden. Conclusion: The self-help program includes the understanding of dementia, the family caregiving experiences of the demented elderly persons, the time for self-care, the search for helping, the improving of interpersonal relations and communications.

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The Factors affecting Burdens and Quality of Life of the Family Caregivers of Patients with Rare and Incurable Diseases Using Home Ventilators (가정용 인공호흡기를 적용한 희귀·난치성질환자를 돌보는 가족간호자의 부담감과 삶의 질 영향요인)

  • Hwang, Moon Sook;Lee, Mi Kyoung;Song, Jeong Rye
    • Korean Journal of Adult Nursing
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    • v.26 no.2
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    • pp.191-202
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    • 2014
  • Purpose: This study was aimed to survey the actual caregiving conditions of family caregivers who are caring patients with rare and incurable diseases using home ventilators at home, and to clarify any factors affecting their burdens and quality of life. Methods: A questionnaire survey was performed by the 159 subjects, and the questionnaires contained the actual conditions of caregiving activities, and caregiver's burdens and quality of life. The collected data was analyzed by ANOVA, Pearson's correlation, and stepwise linear regressions. Results: The mean of burden scores was 3.55 out of 5, and influencing variables included the relationships with patient (spouse), respite (moderate), health status, and diagnosis (non ALS), with the explanatory power of 30.0%. The mean of the quality of life was 2.58 point, and the influencing variables included burdens, health status, and respite (enough), with the explanatory power of 39.0%. Conclusion: In order to improve the quality of life among family caregivers caring for patients with using a home ventilator, it is required to develop strategies for reducing caregiving burdens as well as to introduce family respite welfare systems to family caregivers.

A Study about Health related Quality of Life, Burden and Coping Ability for Family Caregivers caring for Dementia Elderly (치매노인 가족의 부담감, 대처능력과 건강관련 삶의 질과의 관계)

  • Yoo, Moon Sook;Kim, Yong Soon;Kim, Ki Sook
    • 한국노년학
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    • v.30 no.4
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    • pp.1117-1127
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    • 2010
  • The aims of the study is to identify levels of burden, coping ability and health related quality of life and relationships among family caregivers who care dementia elderly using daycare center. Subjects were all major caregivers from conveniently selected 8 daycare center for dementia in a middle size city in Korea and final analyzed sample was 93. Data were collected through self-reported questionnaire from April to June, 2010. This study's results include the followings. First, the result indicated that mean score of health related quality of life among respondents was 69.34(SD 12.04). Secondly, there were significant differences in caregiver burden by age, education level, occupation and coping ability by education level and monthly income, health related quality of life by age, type of marriage, relation with dementia elderly. Finally, we can found significant negative relationships health related quality of life with caregiver burden and coping ability. Therefore, the findings of this study suggest that the program about development of intervention to reduce caregiver burden and to improve coping ability should consider for advanced health related quality of life of dementia elderly's caregiver.

A Study on Family Functioning and Burden of Parents with Cerebral Palsy Children (뇌성마비아 부모의 부담감 및 가족기능에 관한 연구)

  • Lee Hwa Ja;Eo Yong Sook
    • Child Health Nursing Research
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    • v.6 no.2
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    • pp.199-211
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    • 2000
  • Today, more chronically ill and handicapped children are being cared for at home by a family member caregiver. The task of caring for a family member may feel burden that the caregiver has less time and money and more work. Family functioning and their burden have influence on coping and adaptation of families with chronically-ill children. This study attempted to identify the levels of burden and family functioning in families of children with cerebral palsy and to examine their relationships. The instruments were burden scale developed by Suh and Oh(1993), and a modified Feetham Family Functioning Survey based on Roberts and Feetham.(1982). The subjects were 98 parents of children, under 15 years, who have cerebral palsy and being treated and living in Pusan. Data were collected through a self-administered question- aire from April 26 to May 29. The collected data were tested using frequencies, percentiles, means, t-test, ANOVA, and Pearson correlation coefficient with SPSSWIN program. The results of this study were as follows ; 1. The mean rating scores of burden and family functioning were 2.79±.51 and 4.12±.69, respectively. 2. The relationships between general character- istics and burden were statistically significant difference : degree of children's handicap(F=6.333, P<.01). The relationships between general characteristics and family functioning were statistically significant differences : familial relation with the children(F=3.628, P<.05), caregiver's health status(F=4.359, P<.05), age of children (F=4.185, P<.05), and duration of treatment (F=6.802, P<.01). 3. In families of children with cerebral palsy, there was significantly negative correlation between the burden of parents and the performance of family functioning(r=-.230, P<.05). There were significantly negative correlations between the burden of parents and the satisfaction of family functioning (r=-.211, P<.05), and between the perceived importance and the satisfaction of family functioning(r=-.481, P<.01); however, there was a positive correlation between the performance and the perceived importance of family functioning(r=.425, P<.01). In conclusion, this study suggests that families of children with cerebral palsy need family-focused nursing interventions as supportive care for relieving their burden and for improving family functioning.

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Attitude, Beliefs, and Intentions to Care for SARS Patients among Korean Clinical Nurses: An Application of Theory of Planned Behavior

  • Kim Cho-Ja;Yoo Hye-Ra;Yoo Myung-Sook;Kwon Bo-Eun;Hwang Kyung-Ja
    • Journal of Korean Academy of Nursing
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    • v.36 no.4
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    • pp.596-603
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    • 2006
  • Purpose. This study examined Korean clinical nurses' intentions to care for SARS patients and identify determinants of the intentions. Theory of planned behavior was the framework to explain the intentions of Korean nurses for SARS patients care. Methods. A convenient sample of six hundreds and seventy nine clinical nurses from four university-affiliated hospitals located in Seoul and in Kyung-gi province was used. Self-administered (83-items) questionnaire was used to collect data. Intentions, attitude, subjective norm, perceive behavioral control, behavioral beliefs, normative beliefs, and control beliefs were the study variables. All items were measured using 7point Likert scale (-3 to +3). Data were analyzed using descriptive statistics, Pearson correlation method, and stepwise multiple regression methods. Results. Intentions and attitudes toward SARS patient care among Korean clinical nurses were moderate, but their subjective norm and perceive behavioral control of SARS patients care were negative. Stepwise multiple regression analysis indicated that attitude toward SARS patient care, perceived behavioral control, subjective norm were the determinants of the intentions for SARS patients care as theory proposed. Among the behavioral beliefs, 'SARS-patient caring would be a new experience', 'during SARS-patient caring, I should be apart from my family', 'after completing SARS-patient caring, I would be proud of myself being able to cope with a stressful event' and 'with my SARS-patient caring, patients could recover from SARS' were the significant determinants. Among the normative beliefs, colleague approval, spouse approval, and physician approval were significant determinants of the intentions. Among the control beliefs, 'SARS-patient caring would be a challenge' 'SARS-patient caring is a professional responsibility', 'tension during the care of SARS patients' and 'support from team members' were the significant determinants of the intentions. Conclusions. Korean clinical nurses in this study were not willing to care for SARS patients and showed negative attitude toward the care. They believed their friends and family were not approved their care for SARS patients. Nurses were in conflicts between professional responsibilities to care for SARS patients and personal safety. This study was the first to understand stress and burden of Korean clinical nurses who are in front line to care for newly developed communicable disease such as SARS. Under the circumstance where several fatal communicable diseases are predictable, conflicts between professional responsibility and their personal risks should be taken into considerations by nurses themselves and by nursing administrators in order to improve quality of care.

The Hope, Burden, and Family Function in Mothers of Children with Cancer (암 환아 어머니의 희망, 부담감과 가족기능)

  • Park Ho Ran;Park Sun Nam;Jung Kyang Hee;Kim Hae Ja
    • Child Health Nursing Research
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    • v.7 no.1
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    • pp.51-61
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    • 2001
  • The purpose of the descriptive correlation study was to examine relations among the hope, the burden and the family function in mothers caring for children with cancer. 145 mothers completed the three questionaires of the study divided into tree sections: a) The Hope Scale, b) The Burden Scale, c) FACES-Ⅲ. The collected data was analysed with t-test, ANOVA, Scheffe test and Pearson correlation coefficients. The results were as follows: 1) The average age of mothers of children with cancer was 35.6 years old and the ages between 30 to 39 were the most abundant. 57.3% of the mothers had an education level of below high school education and 66.0% had religion. The average age of the children was 8.6 years old. Ages between 1 to 7 were the most and 60.8% were diagnosed as leukemia. 2) Regarding the section of degree of burden, mothers of children with cancer marked 2.6 out of 5, and the degree of hope 3.2 out of 4. The result for family function came out to be 3.5 out of 5, an average of family cohesion of 3.9 and family adaptation of 3.1. 3) There were significantly less burden to the mothers who were living together with a spouse compared to the mothers who were not. Also mothers who replied that they preserved good health came out to be exposed to less burden compared to the mothers who did not. In analysing hope according to the general characteristics of mothers of children with cancer, mothers who were employed marked high in the degree of hope compared to unemployed mothers. Furthermore, the degree of family cohesion marked higher with mothers who had higher education of college graduate, mothers with religion and mothers with a monthly family income of over ₩3,000,000, compared to the group of mothers with lower education of high school graduate, non-religious or with a monthly family income of less than ₩1,000,000. 4) Excluding the fact that the group sorted with children diagnosed as leukemia marked a perceivably high score regarding family cohesion, compared to groups with other cancers, the degree of burden, hope and family cohesion did not show any noticeable difference according to characteristics of children with different cancers. 5) In the correlation of the hope, the burden and the family function regarding the mothers of children with cancer, the burden did not have any manifest relationship with hope or family function. However, the degree of hope and family function cohesion had a direct proportional relationship, as family cohesion marked higher when the degree of hope were high.

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A Study of Parenting Characteristics of mothers experienced child care teachers ('유아교사'를 경험한 '엄마'의 양육특성에 관한 연구)

  • Park, Ji-Sun
    • Journal of the Korea Academia-Industrial cooperation Society
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    • v.17 no.3
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    • pp.48-56
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    • 2016
  • This study was to establish a framework to provide the necessary caring knowledge in preparental period by analyzing the effects of an experience of being a child-care teacher in a field based on child-care knowledge from university. The data were collected from 5 in-depth interviews for 7 weeks from July to August, 2015. The results showed that mothers who used to be child-care teachers put conversation first in the child rearing process, made a room environment similar to the activity space in a kindergarten, and evaluated themselves as mothers with a burden that their children should be different from the others. This means that they perform child rearing in a positive way by re-creating their experience and knowing the child rearing process.

Experience of a Special Rating Dementia Service for Family Caregivers of Elderly People with Dementia (치매노인 가족의 치매특별등급서비스 이용 경험)

  • Cho, Hee Kyung;Chang, Soo Jung
    • Research in Community and Public Health Nursing
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    • v.29 no.2
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    • pp.231-243
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    • 2018
  • Purpose: This study tries to explore experiences with a special rating dementia service among family caregivers of elderly people with dementia. Methods: The participants were 11 family caregivers of elderly people with dementia and had used a day-care service from the special rating dementia service for more than 3 months. Data were collected through individual in-depth interviews and analyzed using content analysis. Results: Three categories emerged: "reminiscence of an entangled life", "feeling relieved from a stifled life", and "hope for a better life through help and support" with 8 sub-categories and 23 codes. By using the special rating dementia service, the participants experienced relief from the burden of caring for their elderly family member with dementia and restored their social relations or family relationships. They experienced a positive transition in which their caring for elderly family members with dementia was integrated into their daily lives, and they expressed their desires for better policies. Conclusion: These findings imply the importance and necessity of the special rating dementia service. Practical and systematic family support programs are necessary and proactive publicity activities by the government and public agencies are suggested to ensure that family caregivers can easily use the special rating dementia system.

Development and Effects of the Collaborative Transitional Care Program for Continuity of Care in Patients Transferred to General Wards from ICUs (중환자실 환자의 간호지속성 유지를 위한 중환자실-병동간 연계형 전환간호 프로그램 개발 및 효과)

  • Son, Youn Jung
    • Journal of Korean Clinical Nursing Research
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    • v.15 no.3
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    • pp.143-155
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    • 2009
  • Purpose: This study was conducted to develop and evaluate the collaborate transitional care program for improving continuity of care in patients transferred to general wards from ICUs. Methods: 18 years and older who were hospitalized in adult intensive care units at A university affiliated medical center was recruited for the study. The experimental group for patients transferred from an ICU consisted of 33 patients and family caregivers; 34 patients and family caregivers for the control group. This study was utilized a quasi-experimental research design. The collaborative transitional care program was administered in transfer process. Data were collected two times by interviews, medical records, and telephone using questionnaires. Results: There were statistically significant differences between the two groups on relocation stress (p<.001), perceived health status (p<.001), satisfaction of caring (p=.011), physical domain (p=.022) and mental domain (p<.001) of the QOL. There were significant differences between the families of the two groups on burden (p<.001) and satisfaction of caring (p<.001). Conclusion: The collaborative transitional care programs administered in transfer process to general wards from an ICU have positive effects on patients and families' intrinsic and extrinsic factors. This program will be able to be utilized in clinical fields to improve continuity of care for patients and families between ICUs and general wards.

The Effect of the Parental Care Burden on the Labor Force Participation of the Middle Aged and Older Women (중.고령층 여성의 노부모 수발과 경제활동참여)

  • Choi, Young;Sim, Kyungsoo
    • Korean Journal of Social Welfare
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    • v.66 no.3
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    • pp.277-295
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    • 2014
  • This study was purposed to examine the effect of the parental care burden on the labor force participation of the middle aged and older women. For this, this study used 2,125 samples aged from 50 to 70 years old that were extracted from 1st and 2nd wave of the Korean Retirement and Income Study(KReIS). In order to examine the causal relationship between two variables, Generalized Estimating Equation(GEE) and Multi-nominal Regression analysis were performed. The results showed that there was a positive effect of the parental care burden on the labor force participation of the middle aged and older women. However, this effect was limited only to the employment to the unpaid family workers. In addition, the effect was varied according to the level of caring time to the old parents. Based on that, several policy and practical implications were suggested.

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