• Asian Pacific Journal of Cancer Prevention
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• v.15 no.12
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• pp.5063-5069
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• 2014

Background: Cancer is a disease which affects not only patients but also their families physically and emotionally. The purpose of this study was to determine the needs, challenges and ways of coping of caregivers of cancer patients. Materials and Methods: In the study, a phenomenological approach was used. Data were collected through semi-structured individual interviews. The study sample comprised 16 family members providing care for a cancer patient. Results: The study findings are grouped under four main themes: the impact of caregiving, masking feelings, experienced challenges and expectations, and coping. During the caregiving process, patient relatives are affected physiologically, psychologically and socially. It was determined that patient relatives hid their feelings and avoided talking about the disease for fear that they might upset the patient, and that they had difficulty in coping with the patient's reactions during the treatment process. Family members had difficulties arising from the health system, hospital conditions and treatment in addition to transportation and financial problems. Support is very important in coping, but it was determined that some of the relatives of patients did not receive adequate support. Patient relatives expect that health care professionals should provide them with more information about their patient's condition and the course of the disease that their patients should be dealt with by the physicians specialized in cancer, and that psychological support should be provided both for them and for their patient. Conclusions: During the caregiving process, family members are faced with many difficulties and they exhibit different coping behaviors which health care professionals should take into account.

• Journal of the Korean Home Economics Association
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• v.41 no.6
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• pp.143-156
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• 2003

The present study was initially designed to figure out the general condition of care giving system for the elderly women who need long term care and the level of their depression according to the conditions of care. And This research is intented to present appropriate policy that could help the establishment of supporting system for the fragile elderly women.1 used the data from <2001 National Study on the Needs for the Long-Term Care Elderly> by Korea Health and Population Institute. The results are as follows: First, Two third of all the respondents had serious problems (2-9 activities limits) in Instrumental Daily Living Ability(DAL). Most respondents reported “low” in satisfaction level related to receiving care, meaning the elderly had negative perception for the care from the family. The elderly expected their children to be as the primary care giver and mostly wanted to live with them in the future. Second, The majority of the long term care elderly women haven't used community service facilities very often and said they are not likely going to use the facilities in the future. Third, The respondents reported high in depression level as to lower satisfaction with their children's support, poorer health condition, more reluctant to use service facilities due to the cost, and fewer friends and neighbors resources around them. Therefore I could say that negative factors for the elderly women's psychological health were having unsatisfactory relationship with intimate people, developing physical illness, being in economic difficulties. That is, receiving less help from close family members, shrinking social network, and experiencing economic hardship would have negative effects on elderly women's psychological health. In the basis of these results, I suggest that in the mean time we shouldn't overlook the importance of the private support when we develop the public elderly support system.

• Korean Journal of Adult Nursing
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• v.27 no.3
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• pp.283-293
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• 2015

Purpose: Depression is a common sign of suffering among the patients with Parkinson's disease (PD). Frequent and severe neuropsychiatric symptoms lead to high levels of distress in patients and their caregivers, which results in the high levels of caregiver burden. The aim of this study was to determine the predictors of caregiver burden in caregivers of the patients with Parkinson's disease (PD). Methods: The study included 183 consecutive PD patients and their caregivers. Patients were assessed using the Hoehn and Yahr scale, Mini Mental State Examination (MMSE), Beck Depression Inventory (BDI), and Schwab and England Activities of Daily Living Scale. Caregivers' depressive symptoms were evaluated using the Caregiver Burden Inventor (CBI), BDI, and World Health Organization Quality of Life Scale. Results: All of the patients reported one or more neuropsychiatric symptoms. Patients' and caregivers' depressive symptoms, caregivers' age and education, time for caregiving, and quality of life were significantly associated with the increased caregiver burden. After controlling the level of education as a potential confounding variable, depression in both patients and caregivers, time for caregiving, and quality of life explained 45.6% of the variance in caregiver burden. Conclusion: Substantial attention needs to be given to the early identification of depression in PD patients and their caregivers to improve caregivers' quality of life and burden.

• Korean Journal of Social Welfare Studies
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• no.37
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• pp.63-89
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• 2008

This study attempts to examine the factors influencing the Caregiving responsibility of sibling without disability on their adult siblings with intellectual disability. For this purpose, a questionnaire survey was conducted on siblings without disability who have adult siblings with intellectual disability aged 18 years old or more and also who use services provided by 8 welfare centers for persons with disabilities in Seoul. With 132 valid responses, multiple regression technique was adopted in exploring a model for characteristics of adult with intellectual disability, a model for characteristics of siblings without disability, a model for relationship factors, and a comprehensive model. The findings of the study showed that the degree of disability in the model for characteristics of adult siblings with intellectual disability and the intimacy of siblings and social support in the model of relationship factors were significant. The result of the comprehensive model revealed that the degree of disability, the gender of the siblings without disability, the intimacy of siblings, and social support were significant. Especially, the relationship factors including the intimacy of siblings and social support were found to be the most significant factors in order to explain the caregiving responsibility. The findings of the study suggest that sibling program needs to be developed and disseminated in order to increase the understanding and the trust between adult with intellectual disability and sibling without disability, that a help is critical for adult with intellectual disability to extend the social network in which sibling without disability receives support from sibling without disability, family, friends, and other acquaintances around, and that different approach is needed in order to reduce caregiveing difficulties depending on the dependence of disability.

• Korean Journal of Social Welfare Studies
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• v.44 no.3
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• pp.31-56
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• 2013

The purpose of this study was to investigate the changes that family caregivers have experienced since using the Korean Long-Term Care Insurance(LTCI) system. In-depth interviews were conducted to determine how the services offered within the LTCI program had affected family caregiving and what changes they had incurred. Results from the qualitative content analysis show that the LTCI program significantly reduced the caregiving burden among family caregivers although burdens that family caregiver perceived varied greatly depending on the types of service that the family selected, and assigned family caregivers different identities and diverse roles(i.e., service user, family caregiver, certified care provider) depending on the service they use. The phenomenon of 'certified family care provider', which was not an intention of LTCI, demonstrates the practical need of elderly persons who require both care and the comfort of family and economic status of the family. Despite the positive impact of the LTCI policy on the family caregivers' burden and family relationship, the current LTCI system should be modified in order to better meet the needs of beneficiaries and their family caregivers.

• Journal of Digital Convergence
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• v.15 no.9
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• pp.301-309
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• 2017

The purpose of this study was to explore family caregiver's need for online education for dementia caregiving. Participants in this study were 220 family caregivers from district dementia centers in Seoul. Family caregiver's usability and needs of online education program were assessed using self-administered questionnaires. Descriptive statistics and t-test comparisons were conducted. About 50% of family caregivers answered they could use and have intention to use online education. The results showed that there were the highest demand for the video lectures which give information about dementia and case video about caregiving skills. There were differences in needs of online program according to the gender and age. The use of online program offers users the opportunity to participate support program at their own time and pace. In order to maximize the effects of online support programs, it is important to establish the strategies of the customized programs considering the characteristics of the caregivers.

• 한국노년학
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• v.40 no.1
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• pp.111-130
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• 2020

This qualitative study aims to understand family members' caregiving experience for middle-aged and elderly breast cancer survivors at early stages. A total of four families of breast cancer survivors were given focus group interviews(FGI), and an additional family was interviewed individually. The thematic analyses of the FGI and individual in-depth interview discussions revealed the following four themes: first, day-to-day feelings like walking on thin ice (entangled emotions with each treatment stage, regret of watching a survivor's pain, fear of recurrence and death, concerns of changes in family relationships, and various feelings experienced as a daughter), second, caregiving has become a mainstay in my life (unfamiliar and unskilled care, losing my life), third, beginning to recover and different experiences between a survivor and a family caregiver (not understanding a survivor's pain from the abyss, forgetting that the survivor is still a cancer patient and that treating him or her casually), and fourth, moving forward (hope that things will be better, taking care of myself to prevent exhaustion). Based on the results of this study, we proposed social welfare services and policy measures to reflect the psychosocial needs of family caregivers of breast cancer survivors and support family caregivers during the care process.

• 한국노년학
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• v.31 no.4
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• pp.905-923
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• 2011

The purpose of this study is to examine factors affecting the conflict between grandparents raising grandchildren and adult children. The data were based on the panel survey to explore korean retirement and income study conducted by National Pension Service in 2009. For this study, 287 parenting grandparents rearing grandchild are selected from the survey. Included variables are a demographic factor, a economic factor, a caregiving-related factor, a health factor, and a family relationship factor. The data were analyzed using descriptive statistics, t-test, co-relation and logistic regression, with SPSS WIN 18.0 program. The results are as follows: First, when grandparents are male, older, highly educated, having no religion, and unemployed, a conflict with their adult children grows. Second, when grandparents do not have earned income or financial income, but have private income transfers, a conflict with their adult children is high. Third, when grandchildren are younger, there are no caregiving rewards, economic activities suspension or reduction because of caregiving, a conflict with their adult children is strong. Also, when grandparents' physical health is good, but their mental health is poor, a conflict with their adult children increases. Fourth, when grandparents' satisfactions with family relationship and spouse relationship are low, but their satisfaction with adult children relationship is high, a conflict with their adult children rises. This study suggests that unlike in the past, grandparents raising grandchildren can no longer make sacrifice themselves for their adult children, but they expect proper exchange between parents and children. Therefore, there needs to be understanding of grandparents raising grandchildren and further studies of a conflict between grandparents raising grandchildren their adult children.

• Journal of Families and Better Life
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• v.21 no.1
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• pp.25-36
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• 2003

This study was conducted to reconstitute a family life education program for caregivers and to analyze the system of implementation. Based largely on a pre-existing program for caregiving families, I developed a new educational program. Personal time management and personal needs management were added in the content of the program order to help enhance self-esteem and internal control. The reconstituted educational program, which consists of 6 sessions, was implemented on a small group of caregivers in Jeollabukdo Province who support their elderly parents. The effectiveness of the program was evaluated by a pre-test, a post-test, a follow-up test and open-questionnaire reports. The results from the post-test suggest that the program has been effective in improving the knowledge on aging process, internal control and self-esteem. But the follow-up test results show the program has been effective only in improving the knowledge on aging process. According to the open-questionnaire reports, the program seems to have been effective in improving interpersonal relationships and changing attitudes toward their elderly parents.

• Journal of Convergence for Information Technology
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• v.10 no.5
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• pp.177-187
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• 2020

The purpose of this study was to classify the care needs of the older adults aged 65 and over and to identify characteristics of care need groups. This was a secondary analysis study using data from 2017 National Survey of Older Persons in Seoul. There were 50.4% in the general group without any support needs, 17.9% in the medical needs group, 14.2% in the welfare needs group with support needs of daily living or social activity, and 17.5% in the complex needs group with both medical and welfare needs. Significant differences were shown in most variables of the general characteristics, grading of long-term care or disability, financial burden and caregiving, health behaviors, health status, and life satisfactions among groups (p<.001). The complex care need group should be provided with integrated care service for medical and welfare through multidisciplinary team approach.