• Journal of Music and Human Behavior
• /
• v.20 no.2
• /
• pp.61-88
• /
• 2023

This case study examined whether a cooperative musical instrument playing could enhance interactions between children with autism spectrum disorder (ASD) and their neurotypical (NT) siblings. It involved three children with ASD aged 7-12 years and three NT siblings aged 6-11 years. Each group, comprising a child with ASD and their NT sibling, participated in a 40-minute sessions twice weekly for eight sessions over four weeks. The intervention included three stages: simultaneous action, complementary action, and achieving a joint goal. Evaluation criteria included the initiation and response behaviors of each child, and sequential interactive behaviors and cooperative behaviors between pairs were measured. Additionally, before and after the intervention, parents and NT sibling assessed their perceived sibling relationships. Results showed increased interactive and cooperative behaviors. Post-intervention, both parents and NT siblings rated the sibling relationship highly, despite little change in sibling conflict and competition consciousness. These findings indicate that interactive instrument playing can enhance perceptions of siblings as cooperative play partners and aid in teaching them how to collaborate during interactions.

• Korean Journal of Social Welfare Studies
• /
• no.37
• /
• pp.63-89
• /
• 2008

This study attempts to examine the factors influencing the Caregiving responsibility of sibling without disability on their adult siblings with intellectual disability. For this purpose, a questionnaire survey was conducted on siblings without disability who have adult siblings with intellectual disability aged 18 years old or more and also who use services provided by 8 welfare centers for persons with disabilities in Seoul. With 132 valid responses, multiple regression technique was adopted in exploring a model for characteristics of adult with intellectual disability, a model for characteristics of siblings without disability, a model for relationship factors, and a comprehensive model. The findings of the study showed that the degree of disability in the model for characteristics of adult siblings with intellectual disability and the intimacy of siblings and social support in the model of relationship factors were significant. The result of the comprehensive model revealed that the degree of disability, the gender of the siblings without disability, the intimacy of siblings, and social support were significant. Especially, the relationship factors including the intimacy of siblings and social support were found to be the most significant factors in order to explain the caregiving responsibility. The findings of the study suggest that sibling program needs to be developed and disseminated in order to increase the understanding and the trust between adult with intellectual disability and sibling without disability, that a help is critical for adult with intellectual disability to extend the social network in which sibling without disability receives support from sibling without disability, family, friends, and other acquaintances around, and that different approach is needed in order to reduce caregiveing difficulties depending on the dependence of disability.

• Korean Journal of Family Social Work
• /
• no.62
• /
• pp.5-38
• /
• 2018

This study explores experiences of male siblings without disability who are caring for their adult siblings with intellectual disability. To this end, in-depth interviews were conducted based on phenomenological qualitative research methods, and documents such as newspaper articles and broadcasting documentaries covering the care of participants were also used as materials. Data collection took place from August to October, 2017, and four brothers without disability participated in this study. Findings are presented as five themes: a sibling with a disability-centered life, living with complex emotions including emotional ambivalence, cautious life at all times, life to receive consolation, and life trying to achieve balance and harmony. Based on the results, political and practical considerations for brothers without disability and their families who support their adult siblings with intellectual disability are discussed. Implications for social workers are suggested.

• Journal of the Korea Convergence Society
• /
• v.12 no.7
• /
• pp.243-252
• /
• 2021

This study examined the current trend of the qualitative researches on the experiences of individuals who have siblings with disabilities. This study analyzed 17 research articles that either have been published in journals or nominated during the recent ten years, attempting to suggest future directions of the research on siblings who have siblings with disabilities. This study analyzed 17 research papers examining their participants, research methods, and research topics. The results of the previous literature analysis are the followings. Phenomenological approach is the most frequently used research method and normally developing siblings who were in their 20s participated in the researches most. As most research papers did not consider the normally developing siblings birth order, sex, and types of disabilities, future researches will need to specify these variables. The results of this study suggest the followings. Researchers have tried to investigate and understand the experience of the individuals who have siblings with disabilities, using phenomenological research method. Future research should go beyond the phenomenological research to developed theories that can affect the government policies, employing various research methods with specified participants. Further, this study has also identified that the individuals who have siblings with disabilities wanted to be identified as a separate cohort that needs to be researched and receive support.

• Human Ecology Research
• /
• v.57 no.3
• /
• pp.445-457
• /
• 2019

This study investigated the impact of parentification on ambivalence over the emotional expression of early adults who had a sibling with disabilities and examined if rejection sensitivity moderated the relationship of parentification and ambivalence over emotional expression. Participants consisted of 116 siblings in early adulthood who had a sibling with disabilities (45 male; 71 female). The data were collected from 13 centers for family disability, four community rehabilitation centers, three parent societies for people with disabilities, and three self-help groups in Seoul, Busan, and Gyeonggi province. The levels of ambivalence over emotional expression, parentification, and rejecton sensitivity were measured by the Ambivalence over Emotional Expression Questionnaire (King & Emmons, 1990), the Filial Responsibility Scale-Adult (Jurkovic, Thirkield, & Morrell, 2001), and the Rejection Sensitivity Questionnaire (Downey & Feldman, 1996), respectively. The PROCESS Macro program examined the moderating model. The Results indicated that both levels of parentification and rejection sensitivity increased the level of ambivalence over emotional expression of non-disabled siblings. In addition, rejection sensitivity moderated the effect of parentification on ambivalence over emotional expression. The influence of parentification on ambivalence over emotional expression was greater when the level of rejection sensitivity was high, compared to when it was low.

• Human Ecology Research
• /
• v.61 no.1
• /
• pp.123-139
• /
• 2023

The study examined the mediating effect of internalized shame on the relationship between affiliate stigma and interpersonal anxiety among adolescents with siblings who had autism spectrum disorder (ASD) and the moderated mediating effect of mother-adolescent communication openness. The participants consisted of 139 adolescents (boys 48.9%, high-school students 79.8%) who had siblings with ASD. Interpersonal anxiety, affiliate stigma, internalized shame, and mother-adolescent communication openness were measured using the Social Anxiety Scale for Adolescents (La Greca & Lopez, 1998), the Affiliate Stigma Scale (Mak & Cheung, 2008), the Internalized Shame Scale (Cook, 1988), and the Parent-Adolescent Communication Scale (Barnes & Olson, 1982), respectively. The data were analyzed using descriptive statistics and Pearson's correlation coefficients. Process Macro Models 4 and 7 were used to examine the mediating effect and the moderated mediating effect. The results indicated that internalized shame mediated the effect of affiliate stigma on interpersonal anxiety among adolescents who had siblings with ASD. However, there was no significant moderated mediating effect of mother-adolescent communication openness on the relationship between affiliate stigma, internalized shame and interpersonal anxiety. These findings suggest that it is necessary to improve social awareness of individuals with ASD and their family members to prevent adolescents who have siblings with ASD from having affiliate stigma and to help them reduce interpersonal anxiety. The results also highlight the importance of counseling programs for adolescents with siblings with ASD as a way of preventing or alleviating their interpersonal anxiety by reducing internalized shame, even where they experience affiliate stigma.