• Title/Summary/Keyword: 듀센 근이영양증

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Depressive Symptoms and Subjective Quality of Life in Parents of Boys with Duchenne/Becker Muscular Dystrophy (듀센.베커 근이영양증 아동 부모의 우울과 삶의 질)

  • Hwang, Jun-Won;Koo, Young-Jin
    • Journal of the Korean Academy of Child and Adolescent Psychiatry
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    • v.21 no.2
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    • pp.103-109
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    • 2010
  • Objectives : The purpose of the current study was to evaluate subject quality of life in depressed parents of boys with Duchenne/Becker muscular dystrophy (DMB/ BMD). In addition, a specific relationship between subject quality of life and the severity of depressive symptom was explored. Methods : The participants were 15 depressed parents who had moderate to severe depressive symptoms and 35 nondepressed parents of boys with DMD/BMD. All participants completed the World Health Organization Quality Of Life Scale, Brief Version and the Beck Depression Inventory. Other instruments included the Family Relationship Scale and the Child Behavior Checklist. Results : Among various model predictors, only higher score on the Beck Depression Inventory predicted lower scores on all domains of the World Health Organization Quality Of Life Scale, Brief Version. In addition, depressed parents had significantly lower scores on all domains of the World Health Organization Quality Of Life Scale, Brief Version including physical health, psychological health, social relationships, and environment, relative to non-depressed parents. Conclusion : Findings of the current study suggest that all domains of subjective quality of life may be influenced by depressive symptoms in parents of boys with DMD/BMD.

Effect of Aquatic Exercise on Functional Activity in Duchenne Muscular Dystrophy: Case Report (수중운동이 듀센 근이영양증 아동의 기능적 활동에 미치는 영향: 사례보고)

  • Na-Yeon Ye;Eun-Ju Lee
    • Journal of the Korean Society of Physical Medicine
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    • v.19 no.3
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    • pp.65-72
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    • 2024
  • PURPOSE: This study examined the effects of aquatic exercise on the functional activities of patients with Duchenne muscular dystrophy. METHODS: This study was a single-group experimental ABA design in three children with Duchenne muscular dystrophy. The study period was 20 weeks, consisting of 4 weeks of baseline, 12 weeks of intervention, and 4 weeks of maintenance, with 40 minutes of aquatic exercise once a week in the intervention. The Duchenne muscular dystrophy upper extremity patient-reported outcome scale and the expanded version of the Hammersmith Functional Motor Scale version of the Hammersmith Functional Movement Scale were used to determine the effects of aquatic exercise on the patient's functional activity. The measurements were taken five times: once at baseline, three times at intervention, and once at maintenance. The data collected in this study were analyzed using SPSS version 25.0, with a statistical significance level of α of .05, and the Friedman test, a non-parametric method was conducted. RESULTS: The functional activity scores improved significantly after 12 weeks of the intervention compared to the baseline and were maintained for up to 4 weeks after the intervention was complete. CONCLUSION: Aquatic exercise is an effective intervention for improving the functional activity of children with Duchenne muscular dystrophy and should be utilized in clinical practice.